Overview Of Federal Databases

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A presentation by Pamela Owens, PhD. covering some of the major federal health care data providers.

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Overview Of Federal Databases

  1. 1. Overview of Federal Databases Data Workgroup Institute of Public Health September 4, 2009 Pamela L. Owens, Ph.D.
  2. 2. Overview of Presentation <ul><li>Data.Gov Initiative </li></ul><ul><li>Federal Data and Information </li></ul><ul><ul><li>Databases related to Health Services </li></ul></ul><ul><ul><li>Online Queries </li></ul></ul><ul><ul><li>Software Tools </li></ul></ul><ul><ul><li>Resources </li></ul></ul><ul><li>Example </li></ul>
  3. 3. Data.Gov <ul><li>One-stop online website for free access to data produced or held by agencies across the Federal government </li></ul><ul><li>Beta-version </li></ul><ul><li>Agencies submitted updates </li></ul>
  4. 4. Perspective of the Data <ul><li>Person/Family </li></ul><ul><ul><li>Household survey </li></ul></ul><ul><li>Encounter/Visit/Event </li></ul><ul><ul><li>Surveillance records </li></ul></ul><ul><ul><li>Billing records </li></ul></ul><ul><ul><li>Hospital/Clinic survey </li></ul></ul><ul><li>Provider/Facility </li></ul><ul><ul><li>Hospital/Clinic/Physician survey </li></ul></ul><ul><li>County </li></ul><ul><ul><li>Surveys </li></ul></ul>
  5. 5. Data Considerations <ul><li>Availability at national, state, local level </li></ul><ul><li>Origin of the data (e.g., billing records, surveys) </li></ul><ul><li>Population represented </li></ul><ul><ul><li>All-payer </li></ul></ul><ul><ul><li>Settings of care </li></ul></ul><ul><ul><li>All conditions or condition-specific </li></ul></ul><ul><li>Longitudinal </li></ul><ul><li>Episodes of care </li></ul><ul><li>Depth and breadth of data </li></ul><ul><li>Linkages (identifiers) </li></ul><ul><li>Cost of data </li></ul><ul><li>Access to data </li></ul><ul><li>Format of data </li></ul>
  6. 6. Federal Data Bases, Tools and Resources Databases Software Tools Resources Online Queries
  7. 7. Federal Agencies within DHHS
  8. 8. Agency for Healthcare Research and Quality <ul><li>Healthcare Cost and Utilization Project (www.hcup-us.ahrq.gov) </li></ul><ul><ul><li>Hospital-based visit records (UB-04/CMS-1500) </li></ul></ul><ul><ul><li>Census of all-payer inpatient, emergency department and ambulatory surgery data </li></ul></ul><ul><ul><li>Nationwide databases & state databases </li></ul></ul><ul><ul><ul><li>Nationwide Inpatient Sample (NIS) </li></ul></ul></ul><ul><ul><ul><li>Kids’ Inpatient Database (KID) </li></ul></ul></ul><ul><ul><ul><li>Nationwide Emergency Department Sample (NEDS) </li></ul></ul></ul><ul><ul><ul><li>State Inpatient Databases (SID) </li></ul></ul></ul><ul><ul><ul><li>State Emergency Department Databases (SEDD) </li></ul></ul></ul><ul><ul><ul><li>State Ambulatory Surgery Databases (SASD) </li></ul></ul></ul><ul><li>Medical Expenditure Panel Survey (www.meps.ahrq.gov) </li></ul><ul><ul><li>Annual survey of 15,000 households (civilian, non-institutionalized population) </li></ul></ul><ul><ul><li>Information on health care use, expenditures, insurance coverage, sources of payment, access to care and health care quality </li></ul></ul><ul><ul><li>Surveys: Household, Medical provider, Insurance </li></ul></ul>
  9. 9. Agency for Healthcare Research and Quality <ul><li>Consumer Assessment of Health Plan Survey (CAHPS) (www.cahps.ahrq.gov) </li></ul><ul><ul><li>CAHPS Health Plan Survey Data This component of the CAHPS Database contains commercial and Medicaid survey results submitted by various sponsors, including public and private employers, State Medicaid agencies, State Children's Health Insurance Programs (SCHIP), and individual health plans since 1998. </li></ul></ul><ul><ul><li>CAHPS Hospital Survey (H-CAHPS) Data This component contains data collected from hospitals across the country that voluntarily submitted H-CAHPS Survey results to the CAHPS Database. During the fall of 2005, 254 hospitals submitted this data to the CAHPS Database; in 2006, 927 hospitals submitted data; in 2007, 1,313 hospitals submitted data. </li></ul></ul>
  10. 10. Centers for Medicare and Medicaid Services <ul><li>Medicare Enrollment and Claims data </li></ul><ul><li>Medicare Current Beneficiary Survey (MCBS) </li></ul><ul><li>Outcome and Assessment Information Set (OASIS) </li></ul><ul><li>Long Term Care Minimum Dataset (MDS) </li></ul><ul><li>Cost Reports and National Health Expenditure Data </li></ul><ul><li>Chronic Condition Warehouse (CCW) </li></ul><ul><li>Medicaid Enrollment and Claims data (MAX) </li></ul><ul><li>CMS home page: www.cms.gov </li></ul><ul><li>Research Data Assistance Center (ResDAC), CMS-sponsored Website for data files and documentation: http://www.resdac.umn.edu/Available_CMS_Data.asp </li></ul>
  11. 11. Centers for Disease Control and Prevention National Center for Health Statistics (www.cdc.gov/nchs/) <ul><li>National Health Care Surveys </li></ul><ul><ul><li>National Ambulatory Health Care Survey (NAMCS) </li></ul></ul><ul><ul><li>National Hospital Ambulatory Medical Care Survey (NHAMCS) </li></ul></ul><ul><ul><li>National Hospital Discharge Survey (NHDS) </li></ul></ul><ul><ul><li>National Survey of Ambulatory Surgery (NSAS) </li></ul></ul><ul><ul><li>National Health Interview Surveys (NHIS) </li></ul></ul><ul><ul><li>National Home and Hospice Care Survey (NHHCS) </li></ul></ul><ul><ul><li>National Home Health Aide Survey (NHHAS) </li></ul></ul><ul><ul><li>National Nursing Home Survey (NNHS) </li></ul></ul><ul><ul><li>National Nursing Assistant Survey (NNAS) </li></ul></ul><ul><ul><li>National Survey of Residential Care Facilities (NSRCF) </li></ul></ul>
  12. 12. Centers for Disease Control and Prevention National Center for Health Statistics (www.cdc.gov/nchs/) <ul><li>National Health Care Survey </li></ul><ul><li>National Health Interview Survey </li></ul><ul><li>National Health and Nutrition Examination Survey </li></ul><ul><li>National Immunization Survey </li></ul><ul><li>National Survey of Family Growth </li></ul><ul><li>National Vital Statistics System </li></ul><ul><li>The Longitudinal Studies of Aging </li></ul><ul><li>State and Local Area Integrated Telephone Survey </li></ul><ul><ul><li>National Survey of Children with Special Health Care Needs </li></ul></ul><ul><ul><li>National Survey of Children </li></ul></ul><ul><ul><li>National Asthma Survey </li></ul></ul>
  13. 13. Centers for Disease Control and Prevention (www.cdc.gov) <ul><li>Selected Surveillance Data Systems </li></ul><ul><li>Behavioral Risk Factor Surveillance System </li></ul><ul><li>Birth Defects Surveillance </li></ul><ul><li>Blood Disorders Surveillance </li></ul><ul><li>National Electronic Disease Surveillance System </li></ul><ul><li>Respiratory Disease Surveillance </li></ul><ul><li>Traumatic Injury Surveillance </li></ul><ul><li>Vaccine Adverse Events Reporting Data </li></ul>
  14. 14. Substance Abuse and Mental Health Administration (www.samhsa.gov) <ul><li>National Survey on Drug Use & Health (NSDUH) </li></ul><ul><li>Drug Abuse Warning Network (DAWN) </li></ul><ul><li>Drug and Alcohol Services Information System (DASIS) </li></ul><ul><li>Treatment Episode Data Set (TEDS) </li></ul><ul><li>National Survey of Substance Abuse Treatment Services (N-SSATS) </li></ul><ul><li>Inventory of Substance Abuse Treatment Services (I-SATS) </li></ul>
  15. 15. Health Resources and Services Administration <ul><li>Health Professional Services Area ( http://bhpr.hrsa.gov/shortage/ ) </li></ul><ul><ul><li>Shortages of primary medical care, dental and mental health providers </li></ul></ul><ul><li>Geospatial Data Warehouse ( http://datawarehouse.hrsa.gov/ ) </li></ul><ul><li>Area Resource File ( http://www.arfsys.com/ ) </li></ul><ul><ul><li>County level information (can be aggregated) </li></ul></ul><ul><ul><li>Integration of data from 50 primary sources, including NCHS (mortality and natality records), American Hospital Association (facilities statistics), and the American Medical Association (physician specialty data) </li></ul></ul>
  16. 16. Other Agencies and Departments (Selected Examples) <ul><li>National Highway Traffic and Safety Administration (NHTSA) </li></ul><ul><ul><li>National EMS Information System (NEMSIS) </li></ul></ul><ul><li>Department Labor, Bureau of Labor Statistics (BLS) </li></ul><ul><li>Census Bureau </li></ul><ul><ul><li>American Community Survey (ACS) </li></ul></ul><ul><ul><li>Current Population Survey (CPS) (with BLS) </li></ul></ul><ul><ul><li>Small Area Health Insurance Estimates (SAHIE) </li></ul></ul><ul><ul><li>Survey of Income and Program Participation (SIPP) </li></ul></ul><ul><li>Consumer Product Safety Commission (CPSC) </li></ul><ul><ul><li>National Electronic Injury Surveillance System (NEISS) </li></ul></ul><ul><ul><li>National Electronic Injury Surveillance System – All-Injury Program (NEISS-AIP) (with CDC) </li></ul></ul><ul><li>Department of Commerce, Bureau of Economic Analysis (BEA) </li></ul><ul><li>Department of Agriculture, Economic Research Services (ERS) </li></ul>More information at: Population Denominator Data for Use with the HCUP Databases. HCUP Methods Series Report #2006-06 Online. http://www.hcup-us.ahrq.gov/reports/2006_6a.pdf
  17. 17. Federal Data Bases, Tools and Resources Databases Software Tools Resources Online Queries
  18. 18. Online Query Systems - Examples <ul><li>Agency for Healthcare Research and Quality </li></ul><ul><li>HIVnet ( http://www.ahrq.gov/data/hivnet.htm ) </li></ul><ul><li>HCUPnet (http://www.hcupnet.ahrq.gov) </li></ul><ul><li>MEPSnet ( http://www.meps.ahrq.gov/mepsweb/data_stats/meps_query.jsp ) </li></ul><ul><li>Centers for Disease Control and Prevention </li></ul><ul><li>WISQARS TM (Web-based Injury Statistics Query and Reporting System) – NEISS-AIP (http://www.cdc.gov/injury/wisqars/index.html) </li></ul><ul><li>VitalStats (http://www.cdc.gov/nchs/VitalStats.htm) </li></ul><ul><li>Health Data Interactive ( http://www.cdc.gov/nchs/hdi.htm ) </li></ul><ul><li>Surveillance databases ( http://www.cdc.gov) </li></ul>
  19. 19. Federal Data Bases, Tools and Resources Databases Software Tools Resources Online Queries
  20. 20. Software Tools <ul><li>Healthcare Cost and Utilization Project (http://www.hcup-us.ahrq.gov/tools_software.jsp) </li></ul><ul><li>AHRQ Quality Indicators </li></ul><ul><li>Clinical Classifications Software (CCS) for ICD-9-CM </li></ul><ul><li>Clinical Classifications Software (CCS) for ICD-10 </li></ul><ul><li>Clinical Classifications Software for Mental Health Substance Abuse (CCS-MHSA) </li></ul><ul><li>Clinical Classification Software (CCS) for Services and Procedures </li></ul><ul><li>Chronic Condition Indicator </li></ul><ul><li>Comorbidity Software </li></ul><ul><li>Procedure Classes </li></ul><ul><li>Utilization Flags </li></ul><ul><li>MONAHRQ ( http://www.hcup-us.ahrq.gov/toolssoftware/monahrq/monahrq.jsp ) </li></ul><ul><li>Centers for Disease Control and Prevention ( www.cdc.gov ) </li></ul><ul><li>Barell Matrix – Injury Framework </li></ul><ul><li>External Cause of Injury classification </li></ul><ul><li>CDC Growth Charts </li></ul><ul><li>EpiInfo </li></ul>
  21. 21. Federal Data Bases, Tools and Resources Databases Software Tools Resources Online Queries
  22. 22. Resources <ul><li>Data Reports </li></ul><ul><ul><li>Health, U.S. </li></ul></ul><ul><ul><li>Mental Health, U.S. </li></ul></ul><ul><ul><li>National Healthcare Quality Report </li></ul></ul><ul><ul><li>National Healthcare Disparities Report </li></ul></ul><ul><ul><li>Healthy People </li></ul></ul><ul><ul><li>Fact Books and Chart Books </li></ul></ul><ul><li>Statistical Briefs and Methods Reports </li></ul><ul><ul><li>Healthcare Cost and Utilization Project (HCUP) (www.hcup-us.ahrq.gov) </li></ul></ul><ul><ul><li>Medical Expenditure Panel Survey (MEPS) (www.meps.ahrq.gov) </li></ul></ul><ul><ul><li>National Center for Health Statistics (NCHS) (www.cdc.gov/nchs/) </li></ul></ul>
  23. 23. Example: Profile of ED Care in U.S. <ul><li>ED visit information from a sample of emergency departments </li></ul><ul><ul><li>Nationwide Emergency Department Sample (NEDS) </li></ul></ul><ul><ul><li>National Hospital Ambulatory Medical Care Survey (NHAMCS) </li></ul></ul><ul><ul><li>National Electronic Injury Surveillance System – All Injury Program (NEISS-AIP) </li></ul></ul><ul><li>ED visit information from a sample of patients </li></ul><ul><ul><li>National Health Interview Survey (NHIS) </li></ul></ul><ul><ul><li>Medical Expenditure Panel Survey (MEPS) </li></ul></ul>
  24. 24. <ul><li>Questions? </li></ul><ul><li>Comments? </li></ul><ul><li>Email: [email_address] </li></ul>

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