Burl Down Syndrome
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Burl Down Syndrome

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Ms. Burl's presentation on Down Syndrome.

Ms. Burl's presentation on Down Syndrome.

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Burl Down Syndrome Burl Down Syndrome Presentation Transcript

  • Down Syndrome Network of Montgomery County Let’s Talk About…
  • Who we are?
    • We are a Down Syndrome awareness group.
    • We provide support and advocacy to the families who have members that have Down Syndrome in Montgomery County, MD.
  • What is Down Syndrome…
    • Down Syndrome is a genetic condition that causes a delay in physical and mental development also referred to as Trisomy 21.
    • Children who have Down Syndrome have 47 chromosomes instead of 46.
    • Down Syndrome occurs in one in every 800 live births.
    • 80% of children born with Down Syndrome are born to mothers under the age of 35!
  • Chromosome picture of a child that will have Down Syndrome. One cell has two 21 st chromosomes instead of one, giving the child an extra chromosome.
  • What does all that mean?
    • 40% of children born with Down Syndrome will have a congenital heart defect.
    • Many children who have Down Syndrome will have:
      • Hearing Problems
      • Vision Trouble
      • Speech Delay
      • Respiratory problems
      • Developmental Delays or Mental Retardation
  • How can we help?
    • Literacy Program
    • Assistive Technology Support
    • Playgroups
    • Respite Care Days
    • Family Fesitval
    • Sib Shops
    • Sports Leagues/Game
    • Celebration of Life parties
    • Book Clubs
    • Swimming Lessons
    • Extended Family Support Groups
  • A Literacy Program
    • Provide one on one tutoring.
    • Have a parent open house to show parents the techniques
    • Improve the child’s communication skills
    • Improve achievement in school and adult life.
  • Assistive Technology Assistance
    • Obtain Assistive Technology Equipment for our center
    • Show parents how to use assistive technology devices
    • Children will have access to assistive technology devices outside of school
    • Will improve the child’s communication
  • Playgroups
    • Toddlers
    • Kids
    • Teens
  • Respite Days
    • Give the parents a break from care duties
    • Give kids a sense of independence
    • Create another avenue for kids to make friends with and without Down Syndrome
  • A DSNMC Festival
    • Great for increasing community awareness
    • Provide a fun outing for our families
    • Solicit membership/volunteers for our organization
    • Generate income
  • Sib Shops
    • Support for siblings of children that have Down Syndrome
    • Allow kids to celebrate their birthdays with their DSNMC family
    • Alleviate some of the expense of having a party for all of the child’s friends
    • Allows a time for family interaction/networking
    Celebration of Life Parties
  • Book Clubs
    • Improve literacy
    • Encourages and improves communication skills for adults with Down Syndrome
  • Extended Family Support Groups
    • Support for extended family members
    • Answer questions
    • Increase awareness
    • An opportunity to bridge families closer together.
  • A One Stop Shop…
    • Increase awareness
    • Educate others
    • Provide fun for our members and their communities