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Lorna Higgins – "Cancer Patient to Survivor

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    Lorna Higgins – "Cancer Patient to Survivor Lorna Higgins – "Cancer Patient to Survivor Presentation Transcript

    • The Development of a Self-Help Guide for Cancer Patients The Transition from Cancer Patient to Survivor: A Guide to Mental Wellness
    • Why?
      • Patients had identified that after treatment is over they seem to have an abrupt cut of from contact with Health care professionals
      • It is a real scary time as after treatment patients are not physically or mentally equipped to join the “real” world
      • It was agreed that a local self help booklet would be really beneficial at this time
    • Unmet need?
      • Nearly half (49%) of people living with cancer feel their non-medical cancer needs are currently unmet by the healthcare system,
      • People living with cancer are optimistic about life; 59% expect to die from something other than cancer
      • (LAF 2005 )
    • Aims and Rationale
      • To develop a self-help guide to help cancer patients who have recently completed treatment to cope with symptoms of anxiety and depression
      • To promote and increase awareness of common mental health problems
      • To increase availability of mental health information to cancer patients
    • Research
      • Link between physical and mental health (NSF 1999)
      • Cancer identified as ‘one of several chronic illnesses that precipitates the need for and use of mental health services’ (Hewitt & Rowland, 2002)
      • ¾ cancer patients experience an increase in anxiety and nearly half (49%) experience an increase in depression due to their diagnosis (Macmillan 2006)
    • Research - continued
      • Healthcare professionals poor at recognising symptoms (Fallowfield, Ratcliffe, Jenkins et al 2001)
      • 6 in 10 cancer patients suffering from depression do not receive any information, advice, support or treatment for this (Macmillan 2006)
      • Cancer patients still show increased levels of anxiety and depression once treatment has been completed (Deimling et al 2002, Thomas et al 1997)
    • Why a self help guide?
      • Studies have shown the benefits of self-help material (Lovell and Richards 2000, Bower, Lovell and Richards 2001)
      • Stepped care model for Depression and Anxiety facilitated self-help step 2 (NICE 2002)
    • Development
      • Developed in conjunction with a Macmillan Library Information Facilitator (who is also a survivor)
      • Based on Cognitive Behavioural Therapy techniques and existing self-help materials
      • The contents of the guide are generic
    • Contents Include:
      • Psycho-education on anxiety and depression
      • Goal Setting
      • Pleasurable Activity Scheduling
      • Confidence Building
      • Body Image
      • Complementary Therapies
      • Book list
    • Consultation and Launch
      • Local support groups and Merseyside and Cheshire Cancer Network
      • Psychology Working Group for feedback and comments
      • Launched at Merseyside and Cheshire Cancer Network ‘Cancer Care in Primary Care’ Event in January 2007
      • Winner of the ‘Overcoming Series Innovations Award’ 2007
    • Spreading the Word
      • Local GP Forums & service user groups
      • ICCP Nurses (Halton)
      • Local newsletters
      • Clinical Nurse Specialists at local Hospital Trust
      • Staff at Clatterbridge Centre of Oncology
      • Cancer Action Team National Development programme
    • Reaction
        • Feedback has been very positive.
        • Clinical Psychologists very enthusiastic
          • Pleased that we had recognised mental aspect and thought it would help to reduce stigma
        • Changes have been made accordingly
          • Inclusion of service user experiences
          • Readability scores increased to 62.8 Flesch Reading Ease
    • Future plans
      • Professional printing of the guide in A5 format as suggested from consultation this would be more user friendly
      • Research effectiveness of guide
      • Produce 1 page summaries for specific topics that can be downloaded from website
      • To develop further guides for other stages of illness (or other long term illnesses)
    • References
      • Bower, P., Richards, D. & Lovell, K. (2001) The clinical and cost effectiveness of self-help treatments for anxiety and depressive disorders in primary care: a systematic review. British Journal of General Practice, 51, 838-845
      • Deimling, et al (2006) Cancer-related health worries and psychological distress among older adult, long term cancer survivors, Psycho-Oncology 15: 306–320
      • Fallowfield, L et al: Psychiatric morbidity and its recognition by doctors in patients with cancer. British Journal of Cancer 84:1011-1015, 2001
      • Hewitt, M. & Rowland, J. H. (2002) Mental health service use among adult cancer survivors: Analyses of the national health interview survey, Journal of Clinical Oncology, 20 (23), 4581 – 4590
    • References cont …..
      • Lovell, K. & Richards, D. (2000) Multiple Access Points and Levels of Entry (MAPLE): Ensuring choice accessibility and equity for CBT services, Behavioural and Cognitive Psychotherapy, 28, 379-391
      • Macmillan (2006) Worried Sick: The emotional impact of cancer
      • NICE (2002) Depression: Management of depression in Primary and Secondary Care
      • Department of Health (1999) National Service Framework for Mental Health: modern standards and service models, London: Department of Health
      • Thomas et al (1997) Anxiety in long-term cancer survivors influences the acceptability of planned discharge from follow-up Psycho-Oncology 6: 190–196 .
    • For any further information or feedback please contact:
      • Lorna Higgins – [email_address]
      • Wirral Primary Care Mental Health Team
      • Greasby Clinic
      • Greasby Road
      • Greasby
      • Wirral
      • CH49 3NH
      • 0151 651 3943
      • Sue Kernaghan - [email_address]
      • Birkenhead Central Library
      • Borough Road
      • Birkenhead
      • Wirral
      • CH41 2XB
      • 0151 652 5512
      Copies of the guide can be downloaded from www.mccn.nhs.uk
    • Any questions?
    • Personal Summary – Lorna Higgins
      • Graduate Mental Health Worker with Wirral PCT since May 2005. 
      • I work with people with mild – moderate mental health problems such as anxiety, depression and panic. 
      • For Postgraduate Certificate in Mental Health project I designed a self-help booklet aimed at helping cancer survivors cope with symptoms of anxiety and depression. 
      • This was awarded the ‘Overcoming Series Innovation Award’ in March 2007
      • We are currently looking at developing this further to help people at other stages of the cancer journey or with other physical health difficulties