LiveWell – Promoting Healthy Living and Well-being for Parkinson Patients through Social Network and ICT Training

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LiveWell EU-funded project (2012-2014): Introduction and Plymouth University roles - Author: Maged N. Kamel Boulos, MBBCh, PhD, SMIEEE (Oct. 2012, Matosinhos, Porto)

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LiveWell – Promoting Healthy Living and Well-being for Parkinson Patients through Social Network and ICT Training

  1. 1. Insert logo LiveWell – Promoting Healthy Living and Well-being for Parkinson Patients through Social Network and ICT Training WP 3 – LiveWell Training Content Lead: Plymouth University, UK Plymouth University (Faculty of Health, Faculty of Science and PCMD) is also involved in all other WPs. Presentation by: Maged N Kamel Boulos, MBBCh, MSc, PhD, SMIEEE – Oct 2012 mnkboulos@ieee.org mnkamelboulos@plymouth.ac.uk This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  2. 2. Insert logo Presentation Index Presentation Index: 1. About LiveWell 2. WP3 Outputs and Dependencies 3. WP3 Main Highlights and Requirements (content + pedagogy + Web technologies)—in a nutshell 4. WP3 Standards and Tools (HTML5, SCORM/RLOs) This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  3. 3. Coordinated by INOVA+ in Portugal, the partnershipInsert logo is composed of the following members: -University of Plymouth (United Kingdom) - Bitmedia (Austria) -Parkinson Association of Madrid (Spain) - Ana Aslan International Foundation (Romania) - Samvil ehf. Fjarkennsla.com (Iceland)LiveWell project, starting in October 2012, is a 2-year duration initiative co-funded by the European Commission through the Lifelong Learning programme – - Brežice General Hospital (Slovenia)Grundtvig sub-programme.LiveWell aims to develop an innovative Web-based Training and Social Networking System which targets: • Parkinson Patients, to self-manage their condition, reduce the burden on their caregivers and promote their well-being and inclusion; • Caregivers, with access to information, training and greater support through an online community; • Health and Medical Professionals enabling them to remotely and continuously monitor patients´ participation in various activities, helping improve patients´ effective rehabilitation. The Web-based tool to be developed will have two main features/areas: • Training with e-Learning Contents: The system will offer both Parkinson Patients and Caregivers interactive training contents, exercises and information packages about Parkinson Disease and, and for Caregivers, how to deal with patients and contribute to their active ageing. • Social Community: Will present a learning and discussion platform tailored for Parkinson Patients, Caregivers and Health and Medical professionals. It will allow interaction between Parkinson Patients while respecting all privacy issues involved in the process. Moreover, through this Social Community, Caregivers and Health Professionals will also be able to participate and interact, by providing tips about healthcare, exchanging ideas and concerns, or simply, sharing their experiences in the treatment process of a Parkinson Patient. Direct Target Groups: Indirect Beneficiaries: • Parkinson Patients • Parkinson Associations • Caregivers - families, friends and • Policy Makers colleagues • Hospitals, Medical Clinics, and • Health and Medical Professionals Other Health-related LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 Organisations Lifelong Learning Programme - Grundtvig Project – Multilateral Projects
  4. 4. Insert logo 1. Outputs and Interdependencies WP 3 – Lead partner: Plymouth University, UKWP3 outputs: Two deliverables,• D3.1 Interactive Training Contents – format: HTML5 e-Learning Modules + PDF Report #1 [main WP3 report describing background and underpinnings, methods used, results, etc.])• D3.2 User Manual (for above Training Contents) – format: PDF Report #2 [end user manual for training system]*WP3 learns from/is informed by: WP2 regarding Parkinson’s Patients andTheir Caregivers - Needs Analyses and Specific Training System RequirementsWP3 feeds into/integrates with: WP4 LiveWell’s Web-based Training and Social Community System* RE User Manual: A highly intuitive, usable and understandable design of the Web-based system and associated e-learning modules willnegate the need for a lengthy user manual. Most software packages these days come with minimal or no printed user documentation, but withplenty of inline and contextual help (embedded in the software’s user interface). We envisage LiveWell’s user manual to be a simple, shortdocument offering guidance to both patients and carers (e.g., by presenting a module index and content highlights to assist users in learningwhat’s on offer and selecting the right module/content to answer specific questions or issues at hand) and informative screenshots detailing thevarious system functions (including navigating around) and how to use them. A FAQ can also be added, e.g., to list recommended systemrequirements and offer help in troubleshooting any issues users might encounter when accessing the system. WP2 WP3 WP4 This project has been funded with the PROJECT theGrant Agreement publication reflects the views only of LivWell support from - European Commission. This n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  5. 5. Insert logo 2. Main Highlights and Requirements• WP3 involves the development of interactive training content for LiveWell’s target groups (both Parkinson’s Patients and their Caregivers)• Specifically: Ten e-learning modules will be produced in HTML5 format, ready to be uploaded into the Web-based System (WP4)• Modules will include informational and ‘How to...’ components, hand-picked links to relevant quality Web resources (including third-party Social Media resources), interactive exercises and other training contents, as well as motivational case studies• Modules will also link to and make use of own Social Media and Community features within LivWell’s Web Platform (WP4), e.g., to run multiplayer interactive exercises/quizzes and games, and to facilitate communication and peer-to-peer support (e.g., via online groups, chatting and forum discussions – moderation/quality issues to be considered)• WP3 requires: Quality, evidence-based medical/clinical content matching the readability and health literacy levels of target groups (written and compiled by neurologist(s) and patient organisations) + suitable and engaging, learner-centred pedagogy (e.g., to design interactive features, implement ‘checkpoints’ for monitoring trainer’s progress, etc.) + suitable, standards- compliant Web technologies for online delivery (ensure cross-platform support and reusability) This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  6. 6. Insert logo “Almost half of all Europeans show limited health literacy, according to the European Health Literacy Survey results published in 2011!” See: Kamel Boulos MN. Using social media for improving health literacy. In: I Kickbusch, J Pelikan, A Tsouros and F Apfel (Editors). THE SOLID FACTS - Health Literacy: Enabling healthier decisions in the 21st century. Copenhagen, Denmark: World Health Organization Regional Office for Europe, in press - full text: http://www.webcitation.org/69l4M2uVC Google can crudely filter/sort search results by ‘reading level’ (feature available since Q4 2010) - search example (parkinsonism): http://www.google.com/search?q=parkinsonism&tbs=rl%3A1 It tells us that most currently available online material in English about Parkinson’s disease is written in a language well above the reading-with-understanding level of the average patient/lay person in English- speaking developed countries. This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  7. 7. Insert logo 3. WP3 Standards and Tools• The use of HTML5 ensures adequate and future-proof cross-platform support, particularly on mobile devices such as tablets and larger-screen smartphones, as well as next- generation operating systems such as Windows 8• Sharable Content Object Reference Model (SCORM— http://www.adlnet.gov/capabilities/scorm): a collection of standards and specifications maintained by the Advanced Distributed Learning (ADL) Initiative, Office of the US Secretary of Defense, for Web-based e-learning; supported by many commercial e- learning content creation tools• Reusable Learning Objects (RLOs) and Generative Learning Objects (GLOs): see http://www.rlo-cetl.ac.uk/ and many examples of ready to use RLOs at http://www.rlo-cetl.ac.uk/whatwedo/rlos/completedrlos.php#gth and http://sonet.nottingham.ac.uk/rlos/. In GLOs, it is the pedagogical pattern at the heart of a learning object that provides the basis for reuse. The focus in GLOs is on reusable pedagogical designs rather than content, while the main focus of RLOs is on reusable/shareable content RLO-CETL (Centre for Excellence in Teaching and Learning): This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  8. 8. Insert logo 3. WP3 Standards and Tools (Cont’d) Tools are to be investigated by Plymouth (P2) to choose suitable one(s)• Software tools exist that support both HTML5 and SCORM. Some also support publishing the same content in Flash in addition to HTML5 (for graceful fallback) • Adobe Captivate http://www.adobe.com/products/captivate.html • Luminosity Studio http://www.cm-luminosity.com/studio • Ingram FLOE (Flexible Learning Object Editor) http://www.vitalsource.com/pages/floe.aspx FLOE • Raptivity HTML5 TurboPack http://www.raptivity.com/elearning- product/raptivity-turbopack/html5-turbopack (includes Flash Cards, Slide Show, Study Card Deck, Study Card Shuffle, Memory Aid Peeler, and Catch Them Fast) • GLO Maker: authoring tool for learning objects http://www.glomaker.org/ This project has been funded with the PROJECT theGrant Agreement publication reflects the views only of LivWell support from - European Commission. This n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  9. 9. Insert logo Raptivity HTML5 TurboPack http://www.raptivity.com/elearning- product/raptivity-turbopack/html5-turbopack Raptivity is produced by Harbinger Knowledge Products Pvt. Ltd http://www.raptivity.com/ elearning-interactivity- samples Other Packs (HTML5 Bundle): This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001
  10. 10. Recommended Web links and existing qualityInsert logo online resources to learn from; for example: http://www.nlm.nih.gov/medlineplus/tutorials/ parkinsonsdisease/htm/index.htm LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 Lifelong Learning Programme - Grundtvig Project – Multilateral Projects
  11. 11. Recommended Web links and existing qualityInsert logo online resources to learn from; for example: http://www.nhs.uk/Conditions/Parkinsons- disease/Pages/Introduction.aspx This project has been funded with the support from the European Commission. This publication reflects the views only of LivWell PROJECT - Grant Agreement n° 2012-2954/001-001 the author, and the Commission cannot be held responsible for any use which may be made of the information contained Lifelong Learning Programme - Grundtvig Project – Multilateral Projects herein. Project Number: 527943-LLP-2012-PT-GRUNDTVIG-GMP – Grant Agreement no 2012-2954/001-001

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