Voice of the Patient:  ePatient 2009
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Voice of the Patient: ePatient 2009

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A presentation given at the ePatient 2009 conference in Philadelphia, talking about patient opinion leaders and how patient blogging affects the greater health community.

A presentation given at the ePatient 2009 conference in Philadelphia, talking about patient opinion leaders and how patient blogging affects the greater health community.

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    Voice of the Patient:  ePatient 2009 Voice of the Patient: ePatient 2009 Presentation Transcript

    • Voice of the Patient ePatient2009 Conference Kerri Morrone Sparling www.sixuntilme.com
      • Before I was an ePatient, I was e-Impatient. Where were the other people living “real lives” with chronic illnesses, like me?
      • Was the only information online of the “horror story” variety?
      • I couldn’t find what I wanted,
      • so I had to create it for myself.
    • I Wasn’t Alone.
      • SixUntilMe started in May 2005, one of the very first diabetes blogs.
      • Now there are more than 350 sites dedicated to diabetes lifestyle and management.
      • The diabetes community has stepped outside of the Internet and has in-person meet-ups.
    •  
      • Patient opinion leaders (POLs) are patient bloggers who have risen to become voices for their communities.
      • Connecting with the POL links you to their vast community of like-minded people who trust them to provide quality information with integrity.
      Why Do the “POLs” Matter?
      • We don’t blog because we HAVE to – we blog because it helps us heal.
      • Until there is a cure, there will be a blog. And while life with diabetes isn’t easy, sharing our collective stories and finding support in one another makes the burden so much lighter.