Launch of ESDSN - European SDS Network


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Slides given at launch of ESDSN at event hosted by EASPD, with ENIL in Brussels in December 2013.

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Launch of ESDSN - European SDS Network

  1. 1. Self-Directed Support creating a European network
  2. 2. Self-Directed Support • It is not new - it has been growing since the 1960s. • It can be found in lots of places around the world. • It has been successful, but slow to grow. • It creates new opportunities and new risks.
  3. 3. “We are obliged to surrender to the will of the strong. Big companies, cities and municipalities decide what is best for us. This is about power. Why do I feel a lack of power in my own life?” Sami Helle at European Parliament, November 2013
  4. 4. Research • Positive outcomes (often) negative outcomes (never) • Can cost less, can cost more • Tends to increase demand • Design matters - there are big differences between different systems
  5. 5. English data 2003-2005, first In Control pilot
  6. 6. English data 2005-2007
  7. 7. Design Matters 1. Rights - secure foundations 2. Control - person focused 3. Clarity - transparent 4. Flexibility - high in options 5. Ease of use - low in burdens 6. Community - connectivity 7. Sustainability - evolving
  8. 8. 1. Rights
  9. 9. Support should not be a professional gift it should be an entitlement
  10. 10. The government money fallacy it can’t always be government money: where did government get it from?
  11. 11. 2. Control
  12. 12. The right person must have responsibility control as close to the person as possible
  13. 13. Needs are met - but met in ways that are shaped by the person.
  14. 14. 3. Clarity
  15. 15. Systems ration resources in different ways ! responding to crises or requests creating waiting lists for places professional assessment public rules for entitlements negotiation
  16. 16. Clarity about money seems to improve how people plan and how willing the system is to provide flexibility. But it can be corrupted.
  17. 17. 4. Flexibility
  18. 18. Flexible funding helps promote greater community involvement
  19. 19. 5. Easy to use
  20. 20. Resistance to innovation often leads to increases in complexity.
  21. 21. • Big support plans • Complex resource assessments • Lengthy processes for review and decisions • Intrusive bureaucracy and monitoring • Multiple and conflicting funding streams • Weak incentives to take control • Regulations and inspections
  22. 22. Trust is critical.
  23. 23. 6. Community
  24. 24. Self-directed support seeks to move money into community - in different ways.
  25. 25. This includes how people take control.
  26. 26. 7. Sustainability
  27. 27. Self-directed support demands a new way of managing - NOT the middle
  28. 28. Its about citizenship - NOT services
  29. 29. Questions
  30. 30. There are some important risks
  31. 31. • The efficiencies can be turned into cuts not improvements • Service providers can be cut out of the process and not encouraged to play a full part • The system can burden people with unnecessary burdens and confusion
  32. 32. Service providers led the move to self-directed support and can play a positive role
  33. 33. One useful approach is to offer ISFs flexible managed funds
  34. 34. Research on use of ISFs - Choice Support
  35. 35. People, staff and families saw major improvements as savings were also made
  36. 36. Major improvements were seen in every area of life and support.
  37. 37. impact on services • Changes the security - not the system, but people • Changes the purpose - not quality, but citizenship • Changes the means - not services, but community • Changes the politics - not funding, but rights
  38. 38. We want to explore how best Europe can embrace self-directed support and ensure it promotes citizenship and community
  39. 39. • Can we create a European movement for selfdirected support to focus on the right things? • Can we put civil society, community and persons with disabilities at the heart of the movement? • Can we encourage experimentation and learning between European countries? • Can we help the European Union strengthen their support for real human rights and inclusion?
  40. 40. Ideas for European Self-Directed Support Network ! Mission ! To help persons with disabilities across Europe to achieve full citizenship by reforming systems for funding assistance and meeting the human rights of people with disabilities.
  41. 41. Ideas for European Self-Directed Support Network Objectives 1.To identify systems of self-directed support used in Europe 2.To identify and share good practice 3.To identify obstacles to good practice 4.To create a network of champions for self-directed support across Europe (of interested organisations, people with disabilities and families) 5.To build alliances with other groups who are using selfdirected support (not just people with disabilities) 6.To help improve European policy-making on self-directed support
  42. 42. Partnership We need partners in all of the objectives. We need to • meet, share, learn • make research, build strategies • grow a network • use social media and easy to access -tools • organise events, lobby, publish papers • find ways for service producers to help • work together to promote people’s right to access full citizenship
  43. 43. The  European  Self-­‐Directed  Support  Network  
 Do  you  want  to  join  in?   Contacts Aarne  Rajalahti           Development  Manager       Service  Foundation  for  People  with   Intellectual  Disabilities   +358  40  517  4447 Dr  Simon  Duffy   Director   The  Centre  for  Welfare  Reform     +44  7729  7729  41 Your  logo  here?  ☺
  44. 44. © Simon Duffy. Rights Reserved. Full copyright details at