Maintaining VisionThe challenge of maintaining a vision driven system inother western democratic countries.Dr Simon Duffy ￭ The Centre for Welfare Reform￭ 8th May 2013 ￭ NASDDDS Directors Forum, OklahomaCity
Key variables include...• Funding levels• Local government• Culture - S. vs N.• Religion - Cath. vs. Protestant• Party politics - 2 Party vs. Multi-party• Disability politics and self-advocacy• Service structures - Intellectual disability or not...• Peak bodies• Cold war - W vs. E• Welfare state models...first impressions are not always reliable
Introductory remarksNorth America has had a big influence on UKthinking and on many other countries...... and there is also a corresponding fear orsuspicion.The problem of filtration (or editing out thedifficult bits)......and the problem of respecting our diversityin order to sharing our learning
Self-Directed SupportPerson Centred PlanningPersonalisationPersonalBudgetsBrokerage IndividualBudgetsSupportPlansEssential Lifestyle PlanningPersonalised SupportSupportedLivingKeys to CitizenshipInclusionCommunityConnectingIndividualService FundsHomeOwnershipSelf-determinationSupportedEmploymentMAPS& PATHNormalisationSocial RoleValorisationSocial Model ofDisabilityCircles
Thoughts I want to shareVision is not about what you want to see, butbeing clear about what is really there.The threats faced by people with intellectualdisabilities are not receding.Current strategies are necessary, but have someserious limitations.New strategies need to be more philosophical,personal, political and peer-focused
The Official Storythrough rose tinted spectaclesthrough rose tinted spectacles“We realised that institutions were wrong and sowe set about closing the institutions. At first peoplewere moved into group homes and into daycentres. But today people are increasingly able tocontrol their own support, have real homes, realjobs and be in real relationships. We are enteringan era of disability rights, where where familiesare properly supported and people with disabilitiesare seen as full and active citizens .”
Disturbing facts that do not fit the official story• Resistance is not futile - it is nearly 40 years sinceChristmas in Purgatory - i.e. two generations• Funding is still primarily locked in segregated(community) services• Eugenic practices are continuing or increasing:genetic testing, pro- abortion, neo-natal deaths• Rights often exist on paper - but they lacksubstance• Austerity has led to cuts that target disabledpeople (although not in Spain, I hear)
What can we learn from our bestachievements so far...
Social innovations develop...• Through passionate engagement with realproblems and aspirations• Inspired by powerful values - makingcitizenship real• Shared through peer networks• Significant political implications, butproblematic engagement with forces ofpower and commerce
Self-directed support...• USA and Canada - early progress...• England - radical policy shift, emerging problems• Scotland - early innovation, recent policy shift• Finland - early pilots, de-institutionalisation on-going• Australia - big new funding system - ‘DisabilityCare’ - major structural change• Europe - various early experiments
The way we make good thingshappen (innovation) does not fitwell with our normal strategiesof implementationand we don’t know how to beeffectively political
Primary forms of strategic action:• Leaders - managing, guiding and controlling• Money - funding, rewarding, constructing• Experts - advising, informing and training• Rules - laws, regulation and proceduresImportant, but not central to thedevelopment of social innovations...
Is it time to think more deeply?The Unmaking of Manby Simon Duffy
Can we work together as peers?• Human rights at heart ofsystem• Minimum universal securitiesas rights• Fair and integrated tax-benefitsystem• Individual freedom for all• Families and communitiesrespected
Is it possible to be more politically savvy?• Human rights at heart ofsystem• Minimum universal securitiesas rights• Fair and integrated tax-benefitsystem• Individual freedom for all• Families and communitiesrespected