Journey to Citizenship Part 1

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Talk given in Helsinki on the progress made towards citizenship by disabled people and particularly by people with learning difficulties. Focusing particularly on the importance of autonomy.

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  • Journey to Citizenship Part 1

    1. 1. Journey to Citizenship lessons from the UK Dr Simon Duffy ■ The Centre for Welfare Reform ■ Helsinki Conference ■ 21st March 2012
    2. 2. 1 Journey’s beginning• Understanding our past• Why citizenship is important• How citizenship is achieved2 Ups and downs• What has been happening in the UK• What has gone well• What has not gone so well
    3. 3. Pt. 1 Journey’s beginningIt is many years now that we meetGermans who declare that they areashamed of being Germans. I haveoften felt tempted to answer that Iam ashamed of being human.Hannah Arendt
    4. 4. Nazi Euthanasia• The T-4 Action and other programs were used to kill over 200,000 disabled people• Killed with injections, gas or starvation• The same doctors and nurses moved on to set up The Cemetery at Hadamar the gassing facilities for the Jews
    5. 5. Eugenic Panic• Institutions had been set up to house ‘undesirable’ or ‘subnormal’ people• Sexual segregation and in Sweden and USA forced sterilisation• Gross abuse and de- humanising treatment Lennox Castle Hospital, Glasgow were common
    6. 6. Photos from “Christmas in Purgatory”
    7. 7. We are not standing on theshoulders of giants......we’ve just stopped digging a hole
    8. 8. How was this possible?1.Loss of moral standards2.Feeling rootless and insecure3.Giving control to the state4.Looking for scapegoats5.Stripping victim of rights6.Making victim poor and needy7.Putting victims out of sight
    9. 9. The end of World War II led to somechanges and a focus on human rightsbut progress has been slow -prejudice and confusion has continued
    10. 10. 40 years of slow progress1970 - peak population of institutions1980 - growth in residential care begins1992 - care management1996 - direct payments2007 - personal budgets2009 - last institution closed
    11. 11. In the UK we made the mistake ofthinking that the institution was thebuilding...we didn’t leave the institutionbehind, we took it with us
    12. 12. Good languageinclusionnormalisationindividualisedcommunityempowermentReality less good
    13. 13. Innovators and their toolsJim Mansell - community livingPeter Kinsella - supported livingAnne O’Bryan - supported employmentJohn O’Brien - inclusionBeth Mount - person-centred plansGary Bourlet - self-advocacy
    14. 14. O’Brien’s 5 Basic Tasks
    15. 15. Tools don’t do the work - it is thehuman being that does the work...tools just make the job easier -but can also distract us from thereal task.
    16. 16. galvanising the positivePeople - wanting better futuresFamilies - organising for supportProfessionals - seeking better modelsCommunity - missing contributiontransforming the negative
    17. 17. citizenship is at the heart
    18. 18. Maslow: hierarchy of need is upside down
    19. 19. Self-realisation comes first Maslow was wrong
    20. 20. If you wait for self-realisation untilafter you’ve met all your other needsyou will have no self left to realise...citizenship begins within us - in thesearch for our purpose.
    21. 21. Achieving citizenship1.Purpose - set my own direction2.Control - get charge of my life3.Money - use my own means4.Home - as part of my community5.Needs - with help from others6.Gifts - to make my own contribution
    22. 22. Citizenship creates respect1.Purpose - authenticity2.Control - responsibility3.Money - freedom4.Home - belonging5.Needs - connections6.Gifts - contribution
    23. 23. Citizenship is the proper goal ofpublic policy...we must support each other to bethe best we can be - together.
    24. 24. For more information go towww.centreforwelfarereform.org These slides are © Simon Duffy 2012 ■ Publisher is The Centre for Welfare Reform ■ Slides can be distributed subject to conditions set out at www.centreforwelfarereform.org ■

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