Citizenship - themissing key to publicpolicy and welfare reformDr Simon Duffy of e Centre forWelfare Reform for the Master...
The loud argument• State = good        • Markets = good• Markets fail        • States can’t plan• Give help           • Gi...
Quiet agreement• Meritocracy - society should be led by the ‘best’  people - civil servants or business men• People can’t ...
An alternative       view• Democracy is vital - we cannot entrust our lives into  the hands of an elite• Citizenship is th...
“Above all, I think the idea ofcitizenship should remain at the centreof modern political debates aboutsocial and economic...
ere are eight degrees of charity,one higher than the other. ehighest degree, exceeded by none, isthat of the person who ...
help is not enough• Independence - living our own life• Citizenship - living together in a community• Respect - treating e...
There are 6keys tocitizenship:
• We control our life...to build             • it is an authentic life, withdignity...     goals that make sense          ...
and markets and statescannot be trusted...• markets create wealth but unbearable inequality• state power leads to damaging...
Nazi    Euthanasia• e T-4 Action and other  programs were used to kill  200,000 disabled people• Killed with injections, ...
Eugenic panic of 20thcentury overtaken in• German doctors warned Hitler that  Germany was being  eugenic practices by othe...
Photos from “Christmas in        Purgatory”
Post-war hopeful...• General revulsion at eugenics• Disabled people assert right to independent living• Families organise ...
but progress limited inUK people live in residential care homes• 267,000  (the average size for people over 65 is 34).• 24...
government spends our money inadvance - we must extract what valuewe can from their decisions...
We’d failed to think         of• Power - who is in control?• Rights - what guarantees do people have?• Purpose - what are ...
from professional-          to citizenship
decisions must be made by and withpeople
good outcomes build on people’s realwealth                        • Family-centred                        • Flexible fundi...
early model of individual budgets tested                      • 1996 Inclusion Glasgow                      • Helped peopl...
idea spread via networks & open sourcemodels• 2003 In Control• Tested and developed  model of ‘Self-Directed  Support’ and...
1. AssessmentSo it looks like I can get £15,000.
2. Making a plan            3. G00.   Who else can we get to help     Y           us do this plan?
3. Getting the plan agreed           4.  Yes - it looks like a good plan.    W
eed   4. Money for my supportn.     We’re opening a bank account         for Zoe’s support money.
5. Organising my support             6.I can choose how I get my support.   My
ort    6. Support that suits me              7ort.   My life’s changed – I’m in control.
me      7. Being accountable           The 7 s                                       1. Assess                            ...
Are you happy with the control you have over your life?                   Before        After
Are you happy with the control you have over your life?20                      Before       After1510 5 0     Really Unhap...
Are you happy with the control you have over your life?20                      Before       After1510 5 0     Really Unhap...
Are you happy with the control you have over your life?20                      Before       After1510 5 0     Really Unhap...
Are you happy with your plans?
Are you happy with your plans?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your plans?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your plans?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your money?
Are you happy with your money?15.0011.25 7.50 3.75   0        Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your money?15.0011.25 7.50 3.75   0        Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your money?15.0011.25 7.50 3.75   0        Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your home?
Are you happy with your home?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your home?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your home?30.022.515.0 7.5  0       Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your support?
Are you happy with your support?201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your support?201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
Are you happy with your support?201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
Happiness with community life overall...
Happiness with community life overall...201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
Happiness with community life overall...201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
Happiness with community life overall...201510 5 0     Really Unhappy   Unhappy   Quite Happy   Really Happy
at its best, ‘personalisation’ can1.   A positive focus on the person - their real wealth2.   An equal and productive rela...
but success & failure• 200,000 people in • control is oen still   control of their money     highly limited • expectation...
New challenges• so we must campaign for more fundamental change• work to protect and enhance good practice• Extend the rea...
• Education - £6,600 per child - but classes of 30 -  only 4 children are needed to pay for the teacher -  what are the ot...
I want patients to have far more control over the care they get. So peoplewith long term conditions get to be part of desi...
but progress is not guaranteed- successful innovations meetnew forms of resistance
Hope: the Danish Rescue         • Denmark saved nearly all           Danish and refugee Jews from           the gas chambe...
What is our goal?• Are we simply trying to build new toys and gadgets?• Are we trying to amuse ourselves until we die?• Or...
The Centre for Welfare ReformThe Quadrant, 99 Parkway Avenue,Parkway Business ParkSheffield, S9 4WGT +44 114 251 1790 | M ...
(171) citizenship in public policy (may, 2011)
(171) citizenship in public policy (may, 2011)
(171) citizenship in public policy (may, 2011)
(171) citizenship in public policy (may, 2011)
(171) citizenship in public policy (may, 2011)
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(171) citizenship in public policy (may, 2011)

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Talk on citizenship and public policy in Porto at Catholic University

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  • (171) citizenship in public policy (may, 2011)

    1. 1. Citizenship - themissing key to publicpolicy and welfare reformDr Simon Duffy of e Centre forWelfare Reform for the Masters in PublicAdministration Annual Conference ate Catholic University, Porto, Portugal,5th May 2011
    2. 2. The loud argument• State = good • Markets = good• Markets fail • States can’t plan• Give help • Give choice• Increase services • Cut taxes
    3. 3. Quiet agreement• Meritocracy - society should be led by the ‘best’ people - civil servants or business men• People can’t be trusted - instead people must to be governed by fear or greed• Economic growth is the goal - growth creates money for taxes and for profit
    4. 4. An alternative view• Democracy is vital - we cannot entrust our lives into the hands of an elite• Citizenship is the means - we need to be trusted to improve our own lives as part of our communities• Social Justice is the goal - we need the rights and duties that enable and support citizenship
    5. 5. “Above all, I think the idea ofcitizenship should remain at the centreof modern political debates aboutsocial and economic arrangements.“e concept of a citizen is that of aperson who can hold [their] head highand participate fully and with dignityin the life of their society.”Professor Jeremy Waldron
    6. 6. ere are eight degrees of charity,one higher than the other. ehighest degree, exceeded by none, isthat of the person who assists a poorJew by providing him with a gi orloan or by accepting him into abusiness partnership or by helpinghim find employment - in a word, byputting him where he can dispensewith other peoples aid. Withreference to such aid, it is said, “Youshall strengthen him, be he a strangeror a settler, he shall live with you.”Maimonides - Mishneh Torah: Seeds
    7. 7. help is not enough• Independence - living our own life• Citizenship - living together in a community• Respect - treating each other as equals help with dignity
    8. 8. There are 6keys tocitizenship:
    9. 9. • We control our life...to build • it is an authentic life, withdignity... goals that make sense • We have enough money to pursue those goals • and we are at home in the community - we belong • We get help from others - we enable contribution • and we give help to others
    10. 10. and markets and statescannot be trusted...• markets create wealth but unbearable inequality• state power leads to damaging dependency• at its worst meritocracy + utilitarianism = eugenics
    11. 11. Nazi Euthanasia• e T-4 Action and other programs were used to kill 200,000 disabled people• Killed with injections, gas or starvation• e same doctors and nurses moved on to set up the gassing e Cemetery at Hadamar facilities for the Jews
    12. 12. Eugenic panic of 20thcentury overtaken in• German doctors warned Hitler that Germany was being eugenic practices by other nations• Institutions had been set up to house ‘undesirable’ or ‘subnormal’ people• Sexual segregation and in Sweden and USA forced sterilisation• Gross abuse and de-humanising Lennox Castle Hospital, Glasgow treatment was common• Institutions continue to this day...
    13. 13. Photos from “Christmas in Purgatory”
    14. 14. Post-war hopeful...• General revulsion at eugenics• Disabled people assert right to independent living• Families organise new community organisations• Institutions do begin to close• New ‘community services’ begin to develop
    15. 15. but progress limited inUK people live in residential care homes• 267,000 (the average size for people over 65 is 34).• 242,000 people attend day centres• 98,000 people receive ‘intensive home care’ or domiciliary care
    16. 16. government spends our money inadvance - we must extract what valuewe can from their decisions...
    17. 17. We’d failed to think of• Power - who is in control?• Rights - what guarantees do people have?• Purpose - what are we trying to achieve?
    18. 18. from professional- to citizenship
    19. 19. decisions must be made by and withpeople
    20. 20. good outcomes build on people’s realwealth • Family-centred • Flexible funding • Creative planning • Partnership & trust • Using community resources
    21. 21. early model of individual budgets tested • 1996 Inclusion Glasgow • Helped people with most complex disabilities leave Lennox Castle Hospital • Everyone went to their own home - cost less than residential care.
    22. 22. idea spread via networks & open sourcemodels• 2003 In Control• Tested and developed model of ‘Self-Directed Support’ and ‘Individual Budgets’• Success - improved outcomes and reduced cost• Created a brand and a network of organisations Ò
    23. 23. 1. AssessmentSo it looks like I can get £15,000.
    24. 24. 2. Making a plan 3. G00. Who else can we get to help Y us do this plan?
    25. 25. 3. Getting the plan agreed 4. Yes - it looks like a good plan. W
    26. 26. eed 4. Money for my supportn. We’re opening a bank account for Zoe’s support money.
    27. 27. 5. Organising my support 6.I can choose how I get my support. My
    28. 28. ort 6. Support that suits me 7ort. My life’s changed – I’m in control.
    29. 29. me 7. Being accountable The 7 s 1. Assess suppor 2. Making get he 3. Getting has to 4. Money for my to som person manag 5. Organ find an 6. Suppo But I c peopletrol. It’s gone well. Let’s talk 7. Being about what’s next. use the
    30. 30. Are you happy with the control you have over your life? Before After
    31. 31. Are you happy with the control you have over your life?20 Before After1510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    32. 32. Are you happy with the control you have over your life?20 Before After1510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    33. 33. Are you happy with the control you have over your life?20 Before After1510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    34. 34. Are you happy with your plans?
    35. 35. Are you happy with your plans?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    36. 36. Are you happy with your plans?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    37. 37. Are you happy with your plans?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    38. 38. Are you happy with your money?
    39. 39. Are you happy with your money?15.0011.25 7.50 3.75 0 Really Unhappy Unhappy Quite Happy Really Happy
    40. 40. Are you happy with your money?15.0011.25 7.50 3.75 0 Really Unhappy Unhappy Quite Happy Really Happy
    41. 41. Are you happy with your money?15.0011.25 7.50 3.75 0 Really Unhappy Unhappy Quite Happy Really Happy
    42. 42. Are you happy with your home?
    43. 43. Are you happy with your home?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    44. 44. Are you happy with your home?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    45. 45. Are you happy with your home?30.022.515.0 7.5 0 Really Unhappy Unhappy Quite Happy Really Happy
    46. 46. Are you happy with your support?
    47. 47. Are you happy with your support?201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    48. 48. Are you happy with your support?201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    49. 49. Are you happy with your support?201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    50. 50. Happiness with community life overall...
    51. 51. Happiness with community life overall...201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    52. 52. Happiness with community life overall...201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    53. 53. Happiness with community life overall...201510 5 0 Really Unhappy Unhappy Quite Happy Really Happy
    54. 54. at its best, ‘personalisation’ can1. A positive focus on the person - their real wealth2. An equal and productive relationship with the professional - coproduction3. A commitment to positive outcomes and citizenship
    55. 55. but success & failure• 200,000 people in • control is oen still control of their money highly limited • expectations are much • very poor higher implementation • public government • public spending cuts policy is different target disabled peopleCentral government wantsoutcomes of the policy - butwithout the price: better laws andsystems - they want their omeletteand their eggs too.
    56. 56. New challenges• so we must campaign for more fundamental change• work to protect and enhance good practice• Extend the reach of innovations into other public services - spread the virus
    57. 57. • Education - £6,600 per child - but classes of 30 - only 4 children are needed to pay for the teacher - what are the other 26 paying for?• Health - in the UK, long term conditions account for around 70% of spending on healthcare - won’t they need self-directed support?
    58. 58. I want patients to have far more control over the care they get. So peoplewith long term conditions get to be part of designing the care they need.Choosing what suits them - and making it work. For mental healthpatients. For pensioners in need of care. For people with disabilities. Itworks.A couple of weeks ago in Sheffield, I met a wonderful woman calledKatrina. Shes got three disabled sons. e oldest is Jonathan, a charming,warm hearted young man of 19. He cant walk or talk clearly, or feedhimself alone. Hes had a breathing tube in his neck since he was atoddler.... Jonathans just got his own individual budget and care plan.Now hes doing work with a local charity, attending a music group, has hisown personal assistant. A child whose potential seemed so limited. Finallyas a young man, engaged in life in a way he and his mother never thoughtpossible. Katrina told me with the biggest smile Ive ever seen. She said:Weve gone from having nothing to having everything. I wish every childsneeds would be taken this seriously.Nick Clegg now Deputy Prime Minister
    59. 59. but progress is not guaranteed- successful innovations meetnew forms of resistance
    60. 60. Hope: the Danish Rescue • Denmark saved nearly all Danish and refugee Jews from the gas chambers. • Eventually organising a fleet of fishing individual fishing vessels to help people get to neutral Sweden. • is is the meaning of decency
    61. 61. What is our goal?• Are we simply trying to build new toys and gadgets?• Are we trying to amuse ourselves until we die?• Or, are we trying to build a decent society?• To become better citizens?• What do we really want for our children?
    62. 62. The Centre for Welfare ReformThe Quadrant, 99 Parkway Avenue,Parkway Business ParkSheffield, S9 4WGT +44 114 251 1790 | M +447729 7729 41admin@centreforwelfarereform.orgGet a free subscription at:© Simon Duffy. Rights Reserved. Full copyright details at www.centreforwelfarereform.org

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