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This operation was designed to help people who are incontinent of urine or cannot empty their bladder completely via their urethra. Your surgeon will explain the details of the procedure, how it works …

This operation was designed to help people who are incontinent of urine or cannot empty their bladder completely via their urethra. Your surgeon will explain the details of the procedure, how it works and what will happen after the operation, both in the short and long term.

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  • 1. shinecharity.org.uk info@shinecharity.org.uk 42 Park Road Peterborough PE1 2UQ 01733 555988Mitrofanoff procedureThis operation was designed to help people who areincontinent of urine or cannot empty their bladder completelyvia their urethra. Your surgeon will explain the details of theprocedure, how it works and what will happen after theoperation, both in the short and long term.To create a mitrofanoff stoma, the (See separate information sheetsurgeon will take your appendix on Bladder Augmentation).and connect one end to yourbladder and the other end to the You may be admitted to hospitalwall of your abdomen (tummy), a few days before surgery. This iseither into the navel or lower down to make sure you are well enoughbelow the level of most underwear. to have the operation. Also,This small opening (stoma) is used sometimes it is necessary toto pass a tube called a catheter, empty the bowel and make surealong the new channel into the it is clean before the procedurebladder so it can be emptied. If you is started. A clean, empty bowelhave already had your appendix is especially important if you areremoved, don’t worry. There are having your bladder enlarged.other ways of making a Mitrofanoff This helps to prevent infectionschannel. One way is by using a after the surgery. The bowel istiny segment of small bowel. usually cleaned by temporarily changing your diet to clear fluidSome people also have their drinks only (for one or two days)bladder enlarged at the same time and by taking medicine thatas having the Mitrofanoff. empties the bowel.
  • 2. Mitrofanoff procedureAlthough you will not be able to opinion. Urinary tract infectionseat and drink immediately after sometimes occur following thissurgery, you should be up and type of operation (especially if youaround and eating and drinking are not careful about keeping to aas usual after about 2 - 3 days. clean catheterisation routine), butYour stay in hospital will usually cranberry juice is known to reducebe about 3-5 days. After the the risk of these occurring.operation and when you go home,a catheter will stay in the stoma for Catheterisation via mitrofanoff isup to six weeks, to drain urine from not a sterile procedure, but is athe bladder. You will then be asked clean one. This is how it should beto come back to the hospital and performed. Make sure you havewill be taught how to catheterise everything you need before youthe bladder through your stoma. start.Many people will already know thebasic principle because they have • A clean or new catheter eachbeen using a catheter to empty time you catheterise urine through the urethra (the tube • Somewhere to wash/clean yourthrough which urine leaves the hands body) for some time. • A toilet or container to collect the urineThe nurse or doctor will helpyou do your first catheterisation. Wash your hands and prepareSometimes a washout is done your catheter. Gently introduceat the same time. This just clears the catheter into your stoma,your bladder of any ‘debris’ making sure you go far enough inwhich can cause problems to drain the urine. When the urineby blocking the catheter. You has stopped draining, advancecan reduce the amount of this the catheter about a centimeter‘debris’ by drinking a glass of further to ensure your bladder iscranberry juice every day. If you completely empty. Then slowlyare on blood thinning medicines remove the catheter, twisting ityou should not take cranberry. as you do so and throw it away.If you are unsure seek medical Some catheters can be rinsed
  • 3. and stored in a clean container, You should also let your doctor ordepending on the type of catheter nurse know if you have any of thethat you have chosen to use. following:Wash your hands again. • Blood in the urine. As with any surgery, sometimes • Smelly urine. problems do occur. The stoma can • A temperature causing you tooccasionally become narrowed shiver or sweat. (stenosed). If it becomes difficult • Difficulty draining any urine. for you to catheterise your stoma, • Urine leaking from your urethrathis could be the reason. If this or stoma, which hasn’t happenedhappens it is important for you to before.contact your doctor or specialistnurse immediately. At this stage, if Never leave catheterisation fora problem is developing, it is fairly longer than four hours during theeasy to correct. This usually means day. Your bladder may overfill andeither leaving a catheter in for a there is a real risk that it couldfew days or stretching the stoma, burst if you have also had surgeryunder a short general anaesthetic, to your bladder neck.(not as bad as you think!). Do notwait until you cannot pass the It is recommended that you wear acatheter at all, as this can often “Medic-Alert” (Tel: 020 7833 3034)be too late and will need more to alert medical professionals thatmajor surgery to fix. Apart from you have had a Mitrofanoff. If youproblems with stenosis of the have any problems or questionsstoma, difficulties in completely concerning your Mitrofanoff, youemptying the bladder, and urine should ask your doctor, continenceinfections can occur. nurse or Shine Specialist Adviser.
  • 4. Further information andresources Radar - The disability networkoffers a key scheme which allowspeople with disabilities accessto locked public toilets. Visitwww.radar.org.uk or telephone0207 250 3222 to find out more.Help usShine relies on people’s generosity and support so we can help our clientswho depend on us for help and advice - people with hydrocephalus,spina bifida, their families and carers. To donate to Shine please visitwww.shinecharity.org.uk or call 01733 421329.This information has been produced by Shine’s medical advisers andapproved by Shine’s Medical Advisory Committee of senior medicalprofessionals.Shine - Registered charity no.249338To see our full range of information sheets and to find out how to donateto Shine please visit www.shinecharity.org.uk