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MATCHING TREATMENTS TO           PATIENTS’ GOALSAn Update on Palliative Care in Delaware                   Sheila Grant, B...
DISCLOSURESI work as a Community Liaison for Heartland          Hospice, Homecare & I.V.
OBJECTIVES1.   Participants will understand the difference between palliative care     and hospice and the current efforts...
WHEN THE TIME COMES . . .Most people say they want                               But 75% die in a                         ...
TRAJECTORY OF   ADVANCED ILLNESSWHAT DO COMMONWAYS OF DYINGLOOK LIKE?
EMPOWERING PATIENT’S TREATMENT CHOICES—  INFORMED CONSENT = ACCURATE INFORMATION ABOUTPROGNOSIS AND OPTIONS, INCLUDING PAL...
Joint Commission—New Speak UP Initiative features Palliative Care—                jointcommission.org/speakup.aspx
JOINT COMMISSION HAS A NEW  CERTIFICATION PROGRAM
THE CONVERSATIONPROJECT.ORG
WHAT’S THE DIFFERENCE?Palliative Care•Provided by an interdisciplinary team of specialists•Focused on quality of life   by...
HOSPICE & PALLIATIVE CARESame                  Different Patients             Timeframe Goals                Reimburse...
HOW DO HOSPICE & PALLIATIVE CARE FIT TOGETHER IN THE CONTINUUM OF CARE?                                       Hospice     ...
WHEN THE MEDICARE HOSPICEBENEFIT WAS CREATED, BACK IN 1982, Eligibility requirements were put in place to limit  costs, n...
 6-month prognosis requirement is clinically arbitrary and practically   difficult. Limiting hospice to patients who for...
RETHINKING HOSPICEELIGIBILITY CRITERIADAVID J. CASARETT, MD, MAJAMA. 2011;305(10):1031-1032.                              ...
The “H-Word”          “HOSPICE”           Be afraid. Be very afraid.
↘
IT’S NOT AS BAD AS IT LOOKS-- V.A. and Pediatric Hospitalswere not counted (M’care andIHI data were used.) St. Francis H...
Medicare     AAHPM       Medicare NBCHPN       Medicare    NBCHPN      MedicareDeaths       Certified   Deaths    Certifie...
DELAWARE NOW HAS:           ABHPM’s       = 8           ACHPN’s       = 4           CHPN’s = 65           CHPLN’s= 10 ...
HOSPICE & PALLIATIVE CARE BOARD-CERTIFIED PHYSICIANS IN DELAWARE
WE ALSO HAVE 2 NEW PALLIATIVECARE FELLOWSHIP-TRAINEDPHYSICIANS IN DE Roshni Guerry, MD at Christiana Care Hospitalist Par...
TIM COUSOUNIS, PALLIATIVE CARE  CONSULTANT Hospitals will likely look to post-acute care  networks to assist in managing ...
PALLIATIVE CARE PROVIDERS IN    DE                       Dr. Goodill, Dr. Roshni Guerry, Dr. Linsey O’Donnell and NP’s Sh...
WE ALSO HAVE
What are we missing in DE?Access to Palliative Care•    Palliative Care specialists in ALL hospitals•    Palliative Care o...
NOT EVERYONE WITH ADVANCEDILLNESS HAS ACCESS TO NEEDS (OR  NEEDS) A PALLIATIVE SPECIALISTPrimary Palliative              ...
PALLIATIVE CARE IS NOT NEWSo why are wetalking about itnow?New RESEARCH!New CLINICALGUIDELINES!
EARLY PALLIATIVE CARE FOR PATIENTS WITH NON-SMALL CELL                 METASTATIC LUNG CANCER RCT [standard oncologic car...
EARLY PALLIATIVE CARE
PROVISIONAL                                           CLINICAL OPINION Recent Data: Seven published RCTs form the basis o...
SPIKES—A SIX-STEP PROTOCOL FOR     DELIVERING BAD NEWSSetting—Privacy, include sig. others, sit down, manage time,make a c...
SPIKES, CONTINUEDKnowledge—Share information.                 Give a warning shot “I’m sorry tosay I have some bad news.” ...
DELAWARE NOW HASA NEW EMS REGULATION IN PLACEEMS Providers willhonor a new formcalled MedicalOrders for LifeSustaining Tre...
OUR DE MOLSTShould beprinted onpurple cardstockand looks likethis:
ADVANTAGES OF MOLST:• Clear, Standardized Instructions•   Translates a patient’s Living Will into an   Actionable    Medic...
ALL ADULTS SHOULD COMPLETE A LIVINGWILL AND HEALTH CARE POA• MOLST is recommended only for people with advanced illness or...
11/11 Study* showed94% overall consistency rate between POLST orders and treatments given.  POLST/MOLST Works!     *Study ...
WHY? BECAUSE FAMILIES SUFFER WHEN PATIENTS HAVE A “DIFFICULT DEATH”             Many surrogate decision             makers...
PLACE OF DEATH: CORRELATION WITH QUALITY OFLIFE OF PATIENTS WITH CANCER AND PREDICTORSOF BEREAVED CAREGIVERS’ MENTAL HEALT...
ADVANCE CARE PLANNING ANDPOLST/MOLST ARE AN IMPORTANT PARTOF :• Coordinated care   Look at the examples:     delivery     ...
WITHOUT WRITTEN INSTRUCTIONS,IT’S HARD TO KNOW WHAT A PATIENT              WANTS
NATIONAL COALITION FORHOSPICE AND PALLIATIVE         CARE     The NCHPC is designed to    focus on common organizational  ...
LEGISLATIVE UPDATE: SUPPORT    PCHETA                Provides funding for :                 Palliative Care and Hospice E...
LEARN THE LATEST NEWS FROM        EXPERTS IN THE FIELDIncreased focus on hospice     Is it time for another lawsuit?      ...
WIN PROBAILITY: The expected chance that a team will win a game at a particularmoment in time, given the situation it face...
AS YOU THINK ABOUT RESEARCH, POLICY, REGULATIONS, PAYORS,        CERTIFICATIONS,                         Don’t            ...
DO NOT RESUSCITATE                                   BY BRENDA BUTKA, MD VANDERBILT UNIV. SCHOOL OF MEDICINE, PUBLISHED IN...
WE NEED TO PROVIDE BETTER CARE  FOR PEOPLE WITH ADVANCED            ILLNESS Palliative Care is making it happen
Dcc 2012 slides matching treatments
Dcc 2012 slides matching treatments
Dcc 2012 slides matching treatments
Dcc 2012 slides matching treatments
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Dcc 2012 slides matching treatments

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Matching Treatments to Preferences: An update on palliative care in Delaware

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  • One of the most important goals of hospice and palliative care is to align care with patients’ wishes. If you want to stay at home, you need a plan. Chances are, if you don’t have hospice in place, you’ll end up calling 911, and you’ll end up in the hospital.
  • HPNA’S POLICY PRIORITIESEmpowering Patient’s Treatment Choices—Informed Consent requires accurate information about prognosis and options,
  • If you want to be effective when you have these conversations with your patients, the first step it having them with your own family. Tears. Non medical. Telling who you are, what you value (praying, eating, outdoors, social interaction, reading, keeping up with news, laughing, etc.)
  • Hospice is a subset of palliative care. All Hospice is Palliative Care, but not all Palliative Care is Hospice.
  • P.C is an evolving specialty—it fills in the gaps of traditional medical care.
  • From Diane Meier
  • NEJM Nov. 2012 Medical decisions should be based on medical considerations, not perverse financial incentives—ex. Skilled days, giving up curative treatments
  • http://wp.advancednflstats.com/nflarchive.php?year=2010&team=PIT&gameid=55161 At this website, you can move your cursor over the yellow line and see what event happened in the game which make the win probability fluctuate. A football game is an unbelievably complex situation with chaos and rules and parts that are manageable and parts that are unexpected, just like the rest of life, or weather which contrary to common wisdom has greatly increased predictive ability.
  • Transcript of "Dcc 2012 slides matching treatments"

    1. 1. MATCHING TREATMENTS TO PATIENTS’ GOALSAn Update on Palliative Care in Delaware Sheila Grant, BSN, RN, CHPN Community Liaison Heartland Hospice
    2. 2. DISCLOSURESI work as a Community Liaison for Heartland Hospice, Homecare & I.V.
    3. 3. OBJECTIVES1. Participants will understand the difference between palliative care and hospice and the current efforts to re-design hospice to break down barriers to care.2. Participants will be able to list the palliative care programs available to Delaware patients in hospital, home care, and long-term-care settings.3. Participants will be able to explain the successes and the needs for expansion and improvement in palliative care in Delaware.4. Participants will know the benefits of the Delaware Medical Orders for Life-Sustaining Treatment, where to download copies of the form, and know how to use it in practice.
    4. 4. WHEN THE TIME COMES . . .Most people say they want But 75% die in a hospital or nursing home to die at home If you want to stay home, you need a plan. Palliative care helps match treatments to preferences. Source: Means to a Better End, Robert Wood Johnson Foundation, 2002.
    5. 5. TRAJECTORY OF ADVANCED ILLNESSWHAT DO COMMONWAYS OF DYINGLOOK LIKE?
    6. 6. EMPOWERING PATIENT’S TREATMENT CHOICES— INFORMED CONSENT = ACCURATE INFORMATION ABOUTPROGNOSIS AND OPTIONS, INCLUDING PALLIATIVE CARE AND HOSPICE. Health System Efforts Legislative Efforts CA, PA, WV Launched initiatives to improve communication about prognosis and treatments options between doctors and patients. NY  Passed legislation requiring physicians to discuss palliative options with terminally ill patients
    7. 7. Joint Commission—New Speak UP Initiative features Palliative Care— jointcommission.org/speakup.aspx
    8. 8. JOINT COMMISSION HAS A NEW CERTIFICATION PROGRAM
    9. 9. THE CONVERSATIONPROJECT.ORG
    10. 10. WHAT’S THE DIFFERENCE?Palliative Care•Provided by an interdisciplinary team of specialists•Focused on quality of life by relieving: Hospice Palliative care in the •pain last 6 months of life, •symptoms after curative •stress of serious illness treatments stop•Provided at any stage of an illness, along withcurative treatment Palliative Care is provided “further upstream” from hospice.
    11. 11. HOSPICE & PALLIATIVE CARESame Different Patients  Timeframe Goals  Reimbursement method Knowledge base  Setting (maybe) Interdisciplinary team
    12. 12. HOW DO HOSPICE & PALLIATIVE CARE FIT TOGETHER IN THE CONTINUUM OF CARE? Hospice Care About 6 About 13 mos. Period of living with illness mos.Diagnosi Deaths
    13. 13. WHEN THE MEDICARE HOSPICEBENEFIT WAS CREATED, BACK IN 1982, Eligibility requirements were put in place to limit costs, not because they made sense, clinically. 1. 6 mo. Prognosis 2. No Curative Treatments allowed Didn’t foresee the explosion of eol care costs Small studies have found that hospice care does not increase costs at end of life. (Aetna) ACA authorized demo projects for concurrent care (no funding, yet).
    14. 14.  6-month prognosis requirement is clinically arbitrary and practically difficult. Limiting hospice to patients who forego curative treatments creates an artificial distinction and impedes enrollment and quality of care. Medicare’s unique Hospice eligibility criteria conflicts with efforts to integrate care and align incentives across providers and settings. Suggestions:--Change the hospice eligibility criteria:  Concurrent Care (Demonstration project passed, not funded)  Eligibility based on need, not prognosis
    15. 15. RETHINKING HOSPICEELIGIBILITY CRITERIADAVID J. CASARETT, MD, MAJAMA. 2011;305(10):1031-1032.  3 problems with Medicare Eligibility Criteria for Hospice: 1. They encourage late referrals + short LOS 2. They are based on prognosis (uncertain). Should be based on NEEDS, like every other benefit. 3. They reduce access for some groups (e.g. African Americans less likely to use hospice.)
    16. 16. The “H-Word” “HOSPICE” Be afraid. Be very afraid.
    17. 17.
    18. 18. IT’S NOT AS BAD AS IT LOOKS-- V.A. and Pediatric Hospitalswere not counted (M’care andIHI data were used.) St. Francis Hospital’spalliative care service misseddeadline for inclusion. Data did not account forhospital size (CCHS countedequal to Beebe)
    19. 19. Medicare AAHPM Medicare NBCHPN Medicare NBCHPN MedicareDeaths Certified Deaths Certified Deaths Certified Deaths per Physician per RN’s per APRN’s Certified s Certified Certified APRN Physicia RN nDelaware 1060 55 (65) 96 2 (4) 2,649 5 (8)Hawaii 25 154 37 104 1 3848(fewestdeaths/certifiedphys.)Rhode 4 1,267 43 118 6 845Island(fewestdeaths/certifiedAPRN)Arizona 79 270 405 53 9 2,369(fewestdeaths/
    20. 20. DELAWARE NOW HAS: ABHPM’s = 8 ACHPN’s = 4 CHPN’s = 65 CHPLN’s= 10 CHPNA’s= 44 CHPCA’s= 3
    21. 21. HOSPICE & PALLIATIVE CARE BOARD-CERTIFIED PHYSICIANS IN DELAWARE
    22. 22. WE ALSO HAVE 2 NEW PALLIATIVECARE FELLOWSHIP-TRAINEDPHYSICIANS IN DE Roshni Guerry, MD at Christiana Care Hospitalist Partners Demetris Platis, MD at St. Francis Hospital, Family Medicine Dept.
    23. 23. TIM COUSOUNIS, PALLIATIVE CARE CONSULTANT Hospitals will likely look to post-acute care networks to assist in managing the care of patients at-risk for re-hospitalization. Palliative care. . . may be provided under many health plan benefits, including, of course,  The hospice benefit,  The home health benefit, and  Medicare Part B, for physician outpatient or home-based visit coverage.  Tim Cousounis’ Blog palliativemedicine.blogspot.com
    24. 24. PALLIATIVE CARE PROVIDERS IN DE  Dr. Goodill, Dr. Roshni Guerry, Dr. Linsey O’Donnell and NP’s Shirley Christiana Care Health Brogley, MariPat Wellz-Bosna, Jo Melson, Brenda Eastham, Chap. Pat System Malcolm  Dr. Theresa Gillis has an outpt. P.C. practice as part of the Helen Graham A.I. DuPont Children’s Center. Hospital Wilmington V.A. Med.  Full-time medical director, NP, SW, additional full and part-time physicians, Ctr. volunteer chaplain. Inpatient, outpatient and home settings are covered. St. Francis Hospital  Dr. Dihenkar, APRN’s Maria Ash, and Marie Sedlak-Lupone staff the VA Program.  Dr. Dan DePietropaolo and Cindy Jones, APRN provide palliative Delaware Hospice consults.  Dr. Dimitris Patris just finished a P.C. Fellowship Heartland Home Care  Home & Community Based Palliative Care Consult Program (ACP & P.C. in NC and Sussex Counties—Medicare B pays)  Beebe Hospital  Fragile Patient Program thru Home Care Service-pts. need not be eligible for hospice to receive services. Bayhealth (Kent Gen.  Dr. Salvatore (pulmonologist) at Beebe has a small, palliative care and Milford Mem.) practice.  Plannning stages of forming a Palliative Care Team. They have offered
    25. 25. WE ALSO HAVE
    26. 26. What are we missing in DE?Access to Palliative Care• Palliative Care specialists in ALL hospitals• Palliative Care outside the hospital (though home care or hospice programs)Quality Palliative Care• Adequate numbers of board-certified palliative specialists• Better overall outcomes
    27. 27. NOT EVERYONE WITH ADVANCEDILLNESS HAS ACCESS TO NEEDS (OR NEEDS) A PALLIATIVE SPECIALISTPrimary Palliative Specialist Care Palliative CareAll health care providers should Certified and fellowship-trainedhave a basic level of expertise providers will serve patients with greater needs
    28. 28. PALLIATIVE CARE IS NOT NEWSo why are wetalking about itnow?New RESEARCH!New CLINICALGUIDELINES!
    29. 29. EARLY PALLIATIVE CARE FOR PATIENTS WITH NON-SMALL CELL METASTATIC LUNG CANCER RCT [standard oncologic care OR standard oncologic care + palliative care] P.C. group showed significant improvements in:  quality of life  moodAND  Less aggressive care at the end of life  Longer survival (11.6 mo. vs. 8.9 mo.) —n engl j med 363;8 nejm.org august 19, 2010
    30. 30. EARLY PALLIATIVE CARE
    31. 31. PROVISIONAL CLINICAL OPINION Recent Data: Seven published RCTs form the basis of this PCO. It is the Panel’s expert consensus that combined standard oncology care and palliative care should be considered early in the course of illness for any patient with metastatic cancer and/or high symptom burden.
    32. 32. SPIKES—A SIX-STEP PROTOCOL FOR DELIVERING BAD NEWSSetting—Privacy, include sig. others, sit down, manage time,make a connection)Perception—“What have you been told about your medicalsituation so far?”, ASK-TELL-ASKInvitation—Ask the patient if they would like to know moreabout their illness, their prognosis, their treatment options. ASK-TELL-ASK.
    33. 33. SPIKES, CONTINUEDKnowledge—Share information. Give a warning shot “I’m sorry tosay I have some bad news.” Unfortunately, the treatment is not working.”“I wish things were different, but . . . “ Avoid excessive bluntness. Don’tsay “There’s nothing more we can do”. We can always adjust our plan ofcare to meet new goals when prognosis changes.Empathy—Respond to the patient’s emotion—anger, denial,sadness, relief, etc. (“I can see this is upsetting for you”. “I was alsohoping for better results”, “I can tell you weren’t expecting to hear this.”)If emotions are not expressed, ask more questions.Strategy—Present treatment options, including palliative care, ifappropriate.
    34. 34. DELAWARE NOW HASA NEW EMS REGULATION IN PLACEEMS Providers willhonor a new formcalled MedicalOrders for LifeSustaining Treatment(or MOLST) to takethe place of thePACD
    35. 35. OUR DE MOLSTShould beprinted onpurple cardstockand looks likethis:
    36. 36. ADVANTAGES OF MOLST:• Clear, Standardized Instructions• Translates a patient’s Living Will into an Actionable Medical Order (Ideally patients will have both L.W. and MOLST)• Portable—Follows pts. thru transitions of care• Available On-line—No cost to the State for printing and distribution
    37. 37. ALL ADULTS SHOULD COMPLETE A LIVINGWILL AND HEALTH CARE POA• MOLST is recommended only for people with advanced illness or frail elders who want to give instructions for their MOLST care.
    38. 38. 11/11 Study* showed94% overall consistency rate between POLST orders and treatments given. POLST/MOLST Works! *Study included 90 nursing facilities in OR, WI, WV
    39. 39. WHY? BECAUSE FAMILIES SUFFER WHEN PATIENTS HAVE A “DIFFICULT DEATH” Many surrogate decision makers experience symptoms for up to 20 years or more after a death • Avoidance • Intrusion • Hyper-arousal • PTSD!
    40. 40. PLACE OF DEATH: CORRELATION WITH QUALITY OFLIFE OF PATIENTS WITH CANCER AND PREDICTORSOF BEREAVED CAREGIVERS’ MENTAL HEALTH  Patients with cancer who die in a hospital or ICU have worse QoL compared with those who die at home,  Their bereaved caregivers are at risk for developing psychiatric illness.  Interventions aimed at terminal hospitalizations or o hospice utilization may enhance patients QoL at the EOL and minimize bereavement-related distress.  JCO October 10, 2010 vol. 28no. 29 4457-4464
    41. 41. ADVANCE CARE PLANNING ANDPOLST/MOLST ARE AN IMPORTANT PARTOF :• Coordinated care Look at the examples: delivery • Geisinger (PA)• Smooth Care • Guthrie (PA)Transitions • Kaiser • Gunderson• Accountable Care • Cleveland Clinic Organizations • Grand Junction, CO
    42. 42. WITHOUT WRITTEN INSTRUCTIONS,IT’S HARD TO KNOW WHAT A PATIENT WANTS
    43. 43. NATIONAL COALITION FORHOSPICE AND PALLIATIVE CARE The NCHPC is designed to focus on common organizational goals.
    44. 44. LEGISLATIVE UPDATE: SUPPORT PCHETA Provides funding for :  Palliative Care and Hospice Education Centers  Interdisciplinary career incentive awards (APRN’s, SW’s, Pharm., Psych. Pursuing advanced degrees in p.c.)  Academic Career Awards (for those who teach p.c.)
    45. 45. LEARN THE LATEST NEWS FROM EXPERTS IN THE FIELDIncreased focus on hospice Is it time for another lawsuit? reform Advocating to change the Medicare Hospice Benefit eligibility requirements
    46. 46. WIN PROBAILITY: The expected chance that a team will win a game at a particularmoment in time, given the situation it faces. --from ESPN Magazine viaPallimed.org
    47. 47. AS YOU THINK ABOUT RESEARCH, POLICY, REGULATIONS, PAYORS, CERTIFICATIONS, Don’t forget: Keep your focus on patients and families.
    48. 48. DO NOT RESUSCITATE BY BRENDA BUTKA, MD VANDERBILT UNIV. SCHOOL OF MEDICINE, PUBLISHED IN JAMA 10/24/12I can say your father is dying . . . I can say do not confuseI can say love does not conquer all . . resuscitation.blind hope is not a recipe for with resurrection, althoughsuccess. . . neither works particularly wellunderdogs usually lose . . .death is not the worst thing, it is just You look like you are drowningthe last thing Pallid and slow inBut for you that is not true. . . . The waiting room’s underwaterI can say we should not do this lightHe will never be the same.I can say So, Tell meIf it were my father. Tell me again. Tell me about your father.
    49. 49. WE NEED TO PROVIDE BETTER CARE FOR PEOPLE WITH ADVANCED ILLNESS Palliative Care is making it happen
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