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Health IT and the Voice of the Patient
Using Cloud-Based Technology and Patient Reported Outcomes to Understand
                           Population Health




                            April 18, 2012
Agenda

I.     Company Overview
II.    Smart Measurement System
III.   Monitoring Population Health
IV.    Case Study: Alberta Health Services




                      Proprietary and Confidential. Do not distribute.   2
Existing Healthcare “System”

                  Governments              Hospitals


Wellness & Care                                        Physicians
Managment

                                What’s Missing?


Other
healthcare                                             Medical Device
professionals                                          companies


                      Pharmaceutical & Biotechnology
The Patient!
I.   COMPANY OVERVIEW

           Proprietary and Confidential. Do not distribute.   5
Company Overview
• QualityMetric offers health                                                 Providers
  surveys that capture the                                                     (1,753)
  patient’s own assessment
  of their health
• QualityMetric has grown             Researchers
                                        (1,835)
  by 765% in the last 10                                                                  Payers (265)
  years
• QualityMetric’s footprint
  spans the entire health
  care ecosystem
                                            Government                                    Life Sciences
                                              (223)                                           (1,044)

                                                      Our Market Segments and Clients



                           Proprietary and Confidential. Do not distribute.                          6
Our Numbers


  76,000,000 Survey administrations
     >21,000 License requests
     >18,000 Peer-reviewed articles
       2,400 Published RCTs
        140+ Language translations
          35 Label claims
              Proprietary and Confidential. Do not distribute.   7
QualityMetric’s Culturally Appropriate Language Translations

•   QM has 11 Arabic language translations of our survey
    instruments (Egyptian, Saudi Arabian, Algerian,
    Jordanian, Lebanese, Moroccan, Palestinian, Qatari,
    Tunisian, and UAE)

•   QM has language translations for Indian (Bengali,
    Gujarati, Hindi, Kannada, Malayalam, Marathi, Odia,
    Punjabi, Tamil, Telugu, and Urdu), Pakistani (Urdu), and
    Filipino (Cebuano, Ilocano, Ilonggo, and Tagalog)

                     Proprietary and Confidential. Do not distribute.   8
V.   SMART MEASUREMENT SYSTEM

           Proprietary and Confidential. Do not distribute.   9
Smart Measurement™ System

                                     Outcomes in a Cloud




                                      Modes of Administration
                           Phone | Online | Paper/Fax | Tablet | Smart Phone



   Patient Reminders &                                                               Data
      Provider Alerts                                                              Warehouse
                                             Scoring Engine                       Data feeds | Real
    Phone | Email | Post
                                                                                    time | Batch


                                               Comparative
                                               Data Assets


                                                             Management           Customized
        Patient Report       Provider Report
                                                               Reports             Analysis


                               Proprietary and Confidential. Do not distribute.                       10
Smart Measurement Components




  Content       Scoring                        Reports                Interfaces
  • eForms      • ASP scoring                  •   Member             • Auto register
  • HTML web      engine                       •   Provider            members
    form        • API – vendor                 •   Aggregate          •Automated
  • Fax/OCR       integration                  •   Management          result feeds
  • IVRS        • Web                          •   Custom
                                                                       (HL7, CDISC)
  • Web Smart     services                         dash-boards        •Patient
    Phone         (SaaS)                                               reminder
    (coming)    • Desktop                                             •Professional
  • Custom                                                             Alerts




                   Proprietary and Confidential. Do not distribute.                     11
IT Capabilities

• Off-site hosted environment   • Group, site, and individual   • Look and feel to match host
  (24/7/365) U.S. and Canada      role based access               site
• 128 bit secure socket layer   • Ease of access through        • Survey domains/items and
  (HTTPS)                         “single sign on”                scoring
• System complies with          • Available from standard       • Report modifications to
  HIPAA security and FDA          Internet browsers               meet your needs
  21CFR part 11 privacy         • HL7, CDISC formats to         • Customized push/pull
  regulations                     standard EMR/EHR                interfaces
                                  systems


Security                        Access                          Customization
Real-time Measurement and Reporting

        Computer (Desktop,
        Web)


        Fax (Paper OCR
        recognition)



        Phone (IVR)


        Tablet/Kiosk

                       Proprietary and Confidential. Do not distribute.   13
The SF-12v2 Health Survey – iPhone App Version




                                                 14
The Asthma Control Test – iPhone App Version




                                               15
Health Risk Assessment – iPad Version




                Proprietary and Confidential. Do not distribute.   16
II.   MONITORING POPULATION HEALTH

             Proprietary and Confidential. Do not distribute.   17
Monitoring Population Health



                          Risk                       Cost Benefit
                       Prediction                      Analysis


             Disease                                                       Program
             Burden                                                       Evaluation




     Screening/                    Population                                    Health
    Stratification                   Health                                     Registries




                       Proprietary and Confidential. Do not distribute.                      18
What is Population Health?

• Taking stock of
  your population’s
  health status
• Monitoring trends
  over time
• Evaluating
  differences among
  subgroups
• Noting variations in
  risk among these
  groups




                         Proprietary and Confidential. Do not distribute.   19
Screening and Stratification
                                                            • Identify patients for
                                                              treatment
                                                            • Determine score “cut
                                                              points” for physical
                                                              functioning and mental
                                                              well-being
                                                            • SF surveys are
                                                              especially helpful for
                                                              mental health




                   Proprietary and Confidential. Do not distribute.                    20
Disease Burden Assessment

• Disease-specific
  benchmarks available
  for more than 30
  different conditions
• Ability to compare your
  population’s burden
  against what would be
  expected of the
  disease




                      Proprietary and Confidential. Do not distribute.   21
Risk Prediction/Management

                                                         • SF surveys are able to
                                                           define risk by
                                                                     – Predicting increased use
                                                                       of MH Services
                                                                     – Predicting job loss due to
                                                                       health
                                                                     – Predicting depression
                                                                       diagnosis
                                                                     – Predicting Hospitalization
                                                                     – Estimating future medical
                                                                       expenses




                  Proprietary and Confidential. Do not distribute.                            22
Cost/benefit Analysis

• SF surveys can be used
  for economic analysis
  (cost-benefit, cost-
  effectiveness, ROI)
• Using a preference-
  based utility index (SF-
  6D) QALY estimates can
  help assesses the
  economic benefit of
  various health care
  interventions




                      Proprietary and Confidential. Do not distribute.   23
Program Evaluation
                                                           • SF surveys can be used
                                                             to develop benchmarks
                                                             allowing the
                                                             development of best
                                                             practices
                                                           • Identifying providers
                                                             handling the greatest
                                                             health risk
                                                           • Allow the comparison of
                                                             individual practitioners




                     Proprietary and Confidential. Do not distribute.                   24
IV. CASE STUDY: ALBERTA HEALTH SERVICES

              Proprietary and Confidential. Do not distribute.   25
AHS Case Study

             Alberta Health Services (AHS) is the provincial health authority in Alberta
Client        Canada
             Responsible for delivering health care services to 3.5 million people


             To implement a population health initiative that would monitor health
              outcomes in patients enrolled in community-based diabetes and obesity
              management and education programs
Challenge    To generate geographically specific norms for the Edmonton area so that
              future outcomes measurement programs might benefit
             To measure the impact of these programs in the community

             Patients participating in both programs complete baseline surveys either
              in their doctor’s office or at the beginning of the educational classes with
              follow up suveys administered at six months and one year
Solution     To evaluate health outcomes scores were compared at baseline and one
              year
             Results from both the diabetes program and obesity program offered
              information that helped AHS either improve the existing program or
              demonstrate its positive impact on patients
                        Proprietary and Confidential. Do not distribute.                26
AHS Diabetes Program Outcomes

                                           Baseline            One year
 Best    60                                                                   60
Health
         55 Norm                                                              55
                                                                                   Norm
         50                                                                   50
         45                                                                   45
         40                                                                   40
         35                                                                   35
         30                                                                   30
Worse    25                                                                   25
Health   20                                                                   20




                   N=130



                           Proprietary and Confidential. Do not distribute.               27
AHS Obesity Program Outcomes

                                           Baseline            One year
 Best    60                                                                   60
Health
         55 Norm                                                              55
                                                                                   Norm
         50                                                                   50
         45                                                                   45
         40                                                                   40
         35                                                                   35
         30                                                                   30
Worse    25                                                                   25
Health   20                                                                   20




                   N=113



                           Proprietary and Confidential. Do not distribute.               28
Questions?

Contact information
Gus Gardner, President and                          Mark Bean, Vice President Global
COO, QualityMetric Incorporated                     Initiatives, QualityMetric Incorporated
(401) 642-9239                                      (401) 585-6174
ggardner@qualitymetric.com                          mbean@qualitymetric.com


                         Proprietary and Confidential. Do not distribute.                     29
III. MEASURING HEALTH

           Proprietary and Confidential. Do not distribute.   30
Three Seminal Studies
• The Health Insurance Experiment (1974-1981)
   – First extensive use of psychometrics in health status surveys
   – Led by John E. Ware Jr. et al while at the RAND Corporation
   – Demonstrated self-administered surveys to be reliable and valid
• The Medical Outcomes Study (1986-1990)
   – Four-year longitudinal, observational study of practice style variations for
     over 23,000 chronically ill patients
   – Led by Dr. Ware et al at the University of Chicago, RAND, and Tufts-New
     England Medical Center
   – Surveys measured 40 health concepts and became the basis for the SF-
     36 Health Survey, which represented the eight most important concepts
• The Medicare Health Outcomes Study (1998-2004)
   – The 1997 Balance Budget Act directed Medicare to focus on the health
     status of beneficiaries
   – CMS worked with NCQA to incorporate Medicare beneficiaries into HEDIS
     and expand outcomes measures
   – The SF-36 Health Survey was recommended as a core measure in an
     annual assessment of physical and mental health                      31
The SF Health Surveys

 Most reliable, rigorously validated, and
  widely used patient-reported outcome
  measures in the world
 Standardized so that outcomes are
  comparable across groups, times, and
  populations
 Used during all phases of
  drug/biologic/device development
 Eight health domains measured
                                                                          Physical Health   Mental Health
 Summarized as physical health scores and
  mental health scores
 Benchmarked against a norm, or T-
  score, of 50, which is age and gender
  specific




                              Proprietary and Confidential. Do not distribute.                              32
Disease-specific Health Surveys
•   Asthma Control Test (ACT)
•   MOS Sleep Scale
•   Pain Impact Questionnaire (PIQ-6)
•   Headache Impact Test (HIT-6)
•   Rhinitis Impact Survey
•   PMSIS Impact Survey
•   Asthma Impact Survey (AIS-6)
•   MOS Cognitive Functioning Scale




                         Proprietary and Confidential. Do not distribute.   33
SF Bibliography
                                                                            Total Articles
                                                                                                                                                                               17,038
                                                                                                                                                                            16,585
                                                                                       16,001
                                                                                   14,072
                                                                             12,828
                                                                         12,088
                                                             11,081 11,461
                                                          10,240
                                                 8,6809,250
                                  7,2507,7168,130
                             6,502
                        5,595
                   4,791
         4,0654,275
    2,390
1,441




                                                                                                                                                          Jan-10
         Jan-02


                           Jan-03


                                             Jan-04


                                                                Jan-05


                                                                                  Jan-06


                                                                                                    Jan-07


                                                                                                                      Jan-08


                                                                                                                                        Jan-09




                                                                                                                                                                             Jan-11
Jul-01


                  Jul-02


                                    Jul-03


                                                      Jul-04


                                                                         Jul-05


                                                                                           Jul-06


                                                                                                             Jul-07


                                                                                                                               Jul-08


                                                                                                                                                 Jul-09


                                                                                                                                                                   Jul-10


                                                                                                                                                                                      Jul-11
  Updated 7/2011

                                                               Proprietary and Confidential. Do not distribute.                                                                       34
A Universal Measure of Health

     • 50% reduction in physical disability
     • 33% reduction in hospitalization
     • Substantial increase in work productivity
     • Reduced expenditures



                                                           Asthma             Asthma
                                                           Before              After
         Congestive Heart                                    Rx                 Rx
             Failure



                      Chronic Lung          Diabetes
                        Disease                                                    Average    Average
                                             Type II                                Adult    Well Adult
                                                                 Treatment




    30                                     40                                       50
                                       Physical Component Summary (PCS)
                                Proprietary and Confidential. Do not distribute.                          35
What We Do – The Predictive Power of SF Tools*
           SF-12 MCS Scores Predict                                   SF-12 PCS Scores Predict
           Future Use of MH Services                                Hospitalization within 6 months
                                                                                                                 35%
                                                         75%
                                                   62%                                                     26%
                                             54%                                                     19%
                                      36%                                                    16%
                               26%                                               8% 10%
                14% 16%                                                    6%
     3%   5%                                                   0%    2%

60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25          60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25


            SF-12 MCS Scores Predict                               SF-36 PCS Scores Predict Job
              Depression Diagnosis                                      Loss Due to Health
                                                         60%                                                32%
                                                   51%
                                             42%                                              18%
                                      35%
                               24%                                              10%
                  8% 10%                                            3%
     1%    2%
                                                                  55-65         45-55        30-40          15-25
 60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25
36
      * X axis is a range of PCS or MCS scores
What We Measure


 What is Your Health?                                                             Social & Role



 • Bodily structure and
                                                                            Physical & Mental
   function
 • What you are able to
   do: functioning                                                                  Biologic
                                                                                    Function
 • How you feel: distress
   and well-being
                                                                                    Function &
 • What you say it is:                                                              Well-being
   personal evaluation
                                                                                   Participation


 Sources: WHO, ICIDH-2, 2001 (www.who.org)


                               Proprietary and Confidential. Do not distribute.                    37
Quality of life

                         Community                         Marriage
                           Education                       Nation
                          Family Life                      Neighborhood
                         Friendships                       Self
                              Health                       Standard of Living
                             Housing                       Work

 Source: Campbell 1981

                              Proprietary and Confidential. Do not distribute.   38
What is your health?


   •   Bodily structure and function
   •   What you are able to do: functioning
   •   How you feel: distress and well-being
   •   What you say it is: personal evaluation

                                                                    Best captured using
                                                                      patient-reported
                                                                    outcome (PRO) tools
        Sources: WHO, ICIDH-2, 2001 (www.who.org)


                              Proprietary and Confidential. Do not distribute.            39
Eight Health Domains
                                                     Perform normal
                                                     physical activities


                                                            Physical
                                                            Function
           Feelings of
                                       Mental                                       Role-         Interference with
           peace, happiness,
                                       Health                                      physical       work resulting from
           nervousness, or
                                                                                                  physical problems
           depression




                                                           SF                                               Level of pain
 Interference with          Role-                                                             Bodily
 work resulting from       emotional                      Health                               Pain         impacting
                                                         Surveys                                            normal activities
 emotional problems




          Limited social
                                    Social                                         General             Perspective on
          activities due to        Function                                        Health              and expectations
          physical or emotional
                                                                                                       for health
          problems
                                                             Vitality

                                       Level of energy
                                       or tiredness

                                         Proprietary and Confidential. Do not distribute.                                       40
SF Bibliography (by Condition)
                Allergic Rhinitis    104
                            ALS     41
                          Angina       197
               Arthritis-General                                858
    Arthritis-Juvenile Idopathic    59
                Arthritis-Osteo.                       589
               Arthritis-Rheum.                  451
                 Asthma - Adult                 417
             Asthma - Pediatric       109
                          Cancer                                                  1336
                Cardiovascular               275
              Caregiver Studies              275
                  Carpal Tunnel     33
               Chronic Fatigue               289
                           COPD               307
                 Cystic Fibrosis    34
                       Dementia      73
                           Dental      128
                    Depression                                                                    2420
                   Dermatology                 358
                        Diabetes                              787
               Eating Disorders     44
                   Emphysema        33
                            ENT        158
 Endocrinological (not Diabetes)     93
                        Epilepsy     94
               Eye Impairment          145
                   Fibromyalgia         208
                Gastrointestinal               355
            Headache/Migraine                   383
                        Hepatitis              373
                       HIV/AIDS                  412
                  Hypertension                 373
                         IBS/IBD         172


 Updated 7/2011


                                               Proprietary and Confidential. Do not distribute.          41
SF Bibliography (by Condition)
                             Liver    109
       Low Back Pain (Sciatica)           416
                           Lupus       178
                   Lyme Disease      13
                   Mental Health                                                                 4872
                               MS      238
                 Musculoskeletal                                            2322
                  Neuromuscular       122
                         Obesity              665
                    Osteoporosis      107
                             Pain                   938
            Parkinson's Disease       113
                      Psychiatric                                                                  5102
         Pulmonary (not Cardio)              501
                    Renal/Kidney             501
                  Senior Studies                        1081
   Sexually Transmitted Disease       114
                Sleep Disorders        208
                     Spinal Injury    124
                          Stroke         361
               Substance Abuse            417
                         Surgical                                                         3086
                 Transplantation            483
                         Trauma              586
            Urinary Incontinence      173
       Vascular (not Pulmonary)                   695
           Vascular (Pulmonary)       96
        Women's Health Issues                                     1759
                   Work-Related                         1003
                 Other Diseases             434


 Updated 7/2011                               Proprietary and Confidential. Do not distribute.            42
Identifying the “Flat of the Curve”

                                                                               • More is not always
                                                                                 better
                                                                               • There is a point where
                                                                                 more care no longer
                                                                                 improves health
                                                                               • PROs can help you
        Increased Benefit




                                                                                 find that point




                                                                  Waste


                                    Increased Cost



                            Proprietary and Confidential. Do not distribute.                              43
More Results from the AHS Project (Obesity Program)

       Physical Health Outcomes                                                                Mental Health Outcomes
64%
      49%
                       37%              37%               35%                                                                35%
             32%
                           24%                               27%
                                            23%                                        23%                                       22%            20%
                                  15%             14%                 15%                 14%                                          15%         15%
                                                                                                   10% 13%12% 7%                                          9%


Limted in activities    Accomplished    Limited in work     Reporting pain              Limted in social     Worked less    Not calm/peaceful   Downhearted/
                            less                                                           activities         carefully                          depressed

                       Baseline     One Year        Norm                                                   Baseline        One Year      Norm




                                                          Proprietary and Confidential. Do not distribute.                                           44
Quotes from the AHS Population Health Study

  “It’s useful to see how my health
                                                                            “79% of Edmonton’s
    compares to my peers – other
     diabetics and obese people.                                           population has one or
  Seeing my scores is liberating                                          more chronic conditions
 because now I know if I’m more or                                         and 40% have more
   less healthy than other people                                              than three.”
        who have similar health                                                -Health Quality of Life
               concerns.”                                                  Measurement Tool Final Report,
                                                                                     July 2010
   -A patient involved in the AHS project


                “Physicians and patients reported that the survey provided a
                 quick assessment of mental and physical health which had
                clinical value. If the patient’s mental or physical health scores
                  were less than optimal, patients and providers reported
                      discussing contributing factors to the decline.”
                            -Health Quality of Life Measurement Tool Final Report,
                                                    July 2010

                                Proprietary and Confidential. Do not distribute.                            45
What’s Next at AHS

• Expanding the program from a focus on initial studies and two
  cohort groups (obesity and diabetes) to enrolling entire populations
• Currently over 1/3 of Alberta’s Primary Care Networks are using SF-
  12v2 and Smart Measurement System to monitor their population’s
  health
• Alberta Primary Care Networks are obtaining patient measurement
  and real time reporting that is tailored for their specific needs
• This is Health IT in action




                       Proprietary and Confidential. Do not distribute.   46

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Health IT & Voice of Patient

  • 1. Health IT and the Voice of the Patient Using Cloud-Based Technology and Patient Reported Outcomes to Understand Population Health April 18, 2012
  • 2. Agenda I. Company Overview II. Smart Measurement System III. Monitoring Population Health IV. Case Study: Alberta Health Services Proprietary and Confidential. Do not distribute. 2
  • 3. Existing Healthcare “System” Governments Hospitals Wellness & Care Physicians Managment What’s Missing? Other healthcare Medical Device professionals companies Pharmaceutical & Biotechnology
  • 5. I. COMPANY OVERVIEW Proprietary and Confidential. Do not distribute. 5
  • 6. Company Overview • QualityMetric offers health Providers surveys that capture the (1,753) patient’s own assessment of their health • QualityMetric has grown Researchers (1,835) by 765% in the last 10 Payers (265) years • QualityMetric’s footprint spans the entire health care ecosystem Government Life Sciences (223) (1,044) Our Market Segments and Clients Proprietary and Confidential. Do not distribute. 6
  • 7. Our Numbers 76,000,000 Survey administrations >21,000 License requests >18,000 Peer-reviewed articles 2,400 Published RCTs 140+ Language translations 35 Label claims Proprietary and Confidential. Do not distribute. 7
  • 8. QualityMetric’s Culturally Appropriate Language Translations • QM has 11 Arabic language translations of our survey instruments (Egyptian, Saudi Arabian, Algerian, Jordanian, Lebanese, Moroccan, Palestinian, Qatari, Tunisian, and UAE) • QM has language translations for Indian (Bengali, Gujarati, Hindi, Kannada, Malayalam, Marathi, Odia, Punjabi, Tamil, Telugu, and Urdu), Pakistani (Urdu), and Filipino (Cebuano, Ilocano, Ilonggo, and Tagalog) Proprietary and Confidential. Do not distribute. 8
  • 9. V. SMART MEASUREMENT SYSTEM Proprietary and Confidential. Do not distribute. 9
  • 10. Smart Measurement™ System Outcomes in a Cloud Modes of Administration Phone | Online | Paper/Fax | Tablet | Smart Phone Patient Reminders & Data Provider Alerts Warehouse Scoring Engine Data feeds | Real Phone | Email | Post time | Batch Comparative Data Assets Management Customized Patient Report Provider Report Reports Analysis Proprietary and Confidential. Do not distribute. 10
  • 11. Smart Measurement Components Content Scoring Reports Interfaces • eForms • ASP scoring • Member • Auto register • HTML web engine • Provider members form • API – vendor • Aggregate •Automated • Fax/OCR integration • Management result feeds • IVRS • Web • Custom (HL7, CDISC) • Web Smart services dash-boards •Patient Phone (SaaS) reminder (coming) • Desktop •Professional • Custom Alerts Proprietary and Confidential. Do not distribute. 11
  • 12. IT Capabilities • Off-site hosted environment • Group, site, and individual • Look and feel to match host (24/7/365) U.S. and Canada role based access site • 128 bit secure socket layer • Ease of access through • Survey domains/items and (HTTPS) “single sign on” scoring • System complies with • Available from standard • Report modifications to HIPAA security and FDA Internet browsers meet your needs 21CFR part 11 privacy • HL7, CDISC formats to • Customized push/pull regulations standard EMR/EHR interfaces systems Security Access Customization
  • 13. Real-time Measurement and Reporting Computer (Desktop, Web) Fax (Paper OCR recognition) Phone (IVR) Tablet/Kiosk Proprietary and Confidential. Do not distribute. 13
  • 14. The SF-12v2 Health Survey – iPhone App Version 14
  • 15. The Asthma Control Test – iPhone App Version 15
  • 16. Health Risk Assessment – iPad Version Proprietary and Confidential. Do not distribute. 16
  • 17. II. MONITORING POPULATION HEALTH Proprietary and Confidential. Do not distribute. 17
  • 18. Monitoring Population Health Risk Cost Benefit Prediction Analysis Disease Program Burden Evaluation Screening/ Population Health Stratification Health Registries Proprietary and Confidential. Do not distribute. 18
  • 19. What is Population Health? • Taking stock of your population’s health status • Monitoring trends over time • Evaluating differences among subgroups • Noting variations in risk among these groups Proprietary and Confidential. Do not distribute. 19
  • 20. Screening and Stratification • Identify patients for treatment • Determine score “cut points” for physical functioning and mental well-being • SF surveys are especially helpful for mental health Proprietary and Confidential. Do not distribute. 20
  • 21. Disease Burden Assessment • Disease-specific benchmarks available for more than 30 different conditions • Ability to compare your population’s burden against what would be expected of the disease Proprietary and Confidential. Do not distribute. 21
  • 22. Risk Prediction/Management • SF surveys are able to define risk by – Predicting increased use of MH Services – Predicting job loss due to health – Predicting depression diagnosis – Predicting Hospitalization – Estimating future medical expenses Proprietary and Confidential. Do not distribute. 22
  • 23. Cost/benefit Analysis • SF surveys can be used for economic analysis (cost-benefit, cost- effectiveness, ROI) • Using a preference- based utility index (SF- 6D) QALY estimates can help assesses the economic benefit of various health care interventions Proprietary and Confidential. Do not distribute. 23
  • 24. Program Evaluation • SF surveys can be used to develop benchmarks allowing the development of best practices • Identifying providers handling the greatest health risk • Allow the comparison of individual practitioners Proprietary and Confidential. Do not distribute. 24
  • 25. IV. CASE STUDY: ALBERTA HEALTH SERVICES Proprietary and Confidential. Do not distribute. 25
  • 26. AHS Case Study  Alberta Health Services (AHS) is the provincial health authority in Alberta Client Canada  Responsible for delivering health care services to 3.5 million people  To implement a population health initiative that would monitor health outcomes in patients enrolled in community-based diabetes and obesity management and education programs Challenge  To generate geographically specific norms for the Edmonton area so that future outcomes measurement programs might benefit  To measure the impact of these programs in the community  Patients participating in both programs complete baseline surveys either in their doctor’s office or at the beginning of the educational classes with follow up suveys administered at six months and one year Solution  To evaluate health outcomes scores were compared at baseline and one year  Results from both the diabetes program and obesity program offered information that helped AHS either improve the existing program or demonstrate its positive impact on patients Proprietary and Confidential. Do not distribute. 26
  • 27. AHS Diabetes Program Outcomes Baseline One year Best 60 60 Health 55 Norm 55 Norm 50 50 45 45 40 40 35 35 30 30 Worse 25 25 Health 20 20 N=130 Proprietary and Confidential. Do not distribute. 27
  • 28. AHS Obesity Program Outcomes Baseline One year Best 60 60 Health 55 Norm 55 Norm 50 50 45 45 40 40 35 35 30 30 Worse 25 25 Health 20 20 N=113 Proprietary and Confidential. Do not distribute. 28
  • 29. Questions? Contact information Gus Gardner, President and Mark Bean, Vice President Global COO, QualityMetric Incorporated Initiatives, QualityMetric Incorporated (401) 642-9239 (401) 585-6174 ggardner@qualitymetric.com mbean@qualitymetric.com Proprietary and Confidential. Do not distribute. 29
  • 30. III. MEASURING HEALTH Proprietary and Confidential. Do not distribute. 30
  • 31. Three Seminal Studies • The Health Insurance Experiment (1974-1981) – First extensive use of psychometrics in health status surveys – Led by John E. Ware Jr. et al while at the RAND Corporation – Demonstrated self-administered surveys to be reliable and valid • The Medical Outcomes Study (1986-1990) – Four-year longitudinal, observational study of practice style variations for over 23,000 chronically ill patients – Led by Dr. Ware et al at the University of Chicago, RAND, and Tufts-New England Medical Center – Surveys measured 40 health concepts and became the basis for the SF- 36 Health Survey, which represented the eight most important concepts • The Medicare Health Outcomes Study (1998-2004) – The 1997 Balance Budget Act directed Medicare to focus on the health status of beneficiaries – CMS worked with NCQA to incorporate Medicare beneficiaries into HEDIS and expand outcomes measures – The SF-36 Health Survey was recommended as a core measure in an annual assessment of physical and mental health 31
  • 32. The SF Health Surveys  Most reliable, rigorously validated, and widely used patient-reported outcome measures in the world  Standardized so that outcomes are comparable across groups, times, and populations  Used during all phases of drug/biologic/device development  Eight health domains measured Physical Health Mental Health  Summarized as physical health scores and mental health scores  Benchmarked against a norm, or T- score, of 50, which is age and gender specific Proprietary and Confidential. Do not distribute. 32
  • 33. Disease-specific Health Surveys • Asthma Control Test (ACT) • MOS Sleep Scale • Pain Impact Questionnaire (PIQ-6) • Headache Impact Test (HIT-6) • Rhinitis Impact Survey • PMSIS Impact Survey • Asthma Impact Survey (AIS-6) • MOS Cognitive Functioning Scale Proprietary and Confidential. Do not distribute. 33
  • 34. SF Bibliography Total Articles 17,038 16,585 16,001 14,072 12,828 12,088 11,081 11,461 10,240 8,6809,250 7,2507,7168,130 6,502 5,595 4,791 4,0654,275 2,390 1,441 Jan-10 Jan-02 Jan-03 Jan-04 Jan-05 Jan-06 Jan-07 Jan-08 Jan-09 Jan-11 Jul-01 Jul-02 Jul-03 Jul-04 Jul-05 Jul-06 Jul-07 Jul-08 Jul-09 Jul-10 Jul-11 Updated 7/2011 Proprietary and Confidential. Do not distribute. 34
  • 35. A Universal Measure of Health • 50% reduction in physical disability • 33% reduction in hospitalization • Substantial increase in work productivity • Reduced expenditures Asthma Asthma Before After Congestive Heart Rx Rx Failure Chronic Lung Diabetes Disease Average Average Type II Adult Well Adult Treatment 30 40 50 Physical Component Summary (PCS) Proprietary and Confidential. Do not distribute. 35
  • 36. What We Do – The Predictive Power of SF Tools* SF-12 MCS Scores Predict SF-12 PCS Scores Predict Future Use of MH Services Hospitalization within 6 months 35% 75% 62% 26% 54% 19% 36% 16% 26% 8% 10% 14% 16% 6% 3% 5% 0% 2% 60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25 60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25 SF-12 MCS Scores Predict SF-36 PCS Scores Predict Job Depression Diagnosis Loss Due to Health 60% 32% 51% 42% 18% 35% 24% 10% 8% 10% 3% 1% 2% 55-65 45-55 30-40 15-25 60-65 55-60 50-55 45-50 40-45 35-40 30-35 25-30 20-25 36 * X axis is a range of PCS or MCS scores
  • 37. What We Measure What is Your Health? Social & Role • Bodily structure and Physical & Mental function • What you are able to do: functioning Biologic Function • How you feel: distress and well-being Function & • What you say it is: Well-being personal evaluation Participation Sources: WHO, ICIDH-2, 2001 (www.who.org) Proprietary and Confidential. Do not distribute. 37
  • 38. Quality of life Community Marriage Education Nation Family Life Neighborhood Friendships Self Health Standard of Living Housing Work Source: Campbell 1981 Proprietary and Confidential. Do not distribute. 38
  • 39. What is your health? • Bodily structure and function • What you are able to do: functioning • How you feel: distress and well-being • What you say it is: personal evaluation Best captured using patient-reported outcome (PRO) tools Sources: WHO, ICIDH-2, 2001 (www.who.org) Proprietary and Confidential. Do not distribute. 39
  • 40. Eight Health Domains Perform normal physical activities Physical Function Feelings of Mental Role- Interference with peace, happiness, Health physical work resulting from nervousness, or physical problems depression SF Level of pain Interference with Role- Bodily work resulting from emotional Health Pain impacting Surveys normal activities emotional problems Limited social Social General Perspective on activities due to Function Health and expectations physical or emotional for health problems Vitality Level of energy or tiredness Proprietary and Confidential. Do not distribute. 40
  • 41. SF Bibliography (by Condition) Allergic Rhinitis 104 ALS 41 Angina 197 Arthritis-General 858 Arthritis-Juvenile Idopathic 59 Arthritis-Osteo. 589 Arthritis-Rheum. 451 Asthma - Adult 417 Asthma - Pediatric 109 Cancer 1336 Cardiovascular 275 Caregiver Studies 275 Carpal Tunnel 33 Chronic Fatigue 289 COPD 307 Cystic Fibrosis 34 Dementia 73 Dental 128 Depression 2420 Dermatology 358 Diabetes 787 Eating Disorders 44 Emphysema 33 ENT 158 Endocrinological (not Diabetes) 93 Epilepsy 94 Eye Impairment 145 Fibromyalgia 208 Gastrointestinal 355 Headache/Migraine 383 Hepatitis 373 HIV/AIDS 412 Hypertension 373 IBS/IBD 172 Updated 7/2011 Proprietary and Confidential. Do not distribute. 41
  • 42. SF Bibliography (by Condition) Liver 109 Low Back Pain (Sciatica) 416 Lupus 178 Lyme Disease 13 Mental Health 4872 MS 238 Musculoskeletal 2322 Neuromuscular 122 Obesity 665 Osteoporosis 107 Pain 938 Parkinson's Disease 113 Psychiatric 5102 Pulmonary (not Cardio) 501 Renal/Kidney 501 Senior Studies 1081 Sexually Transmitted Disease 114 Sleep Disorders 208 Spinal Injury 124 Stroke 361 Substance Abuse 417 Surgical 3086 Transplantation 483 Trauma 586 Urinary Incontinence 173 Vascular (not Pulmonary) 695 Vascular (Pulmonary) 96 Women's Health Issues 1759 Work-Related 1003 Other Diseases 434 Updated 7/2011 Proprietary and Confidential. Do not distribute. 42
  • 43. Identifying the “Flat of the Curve” • More is not always better • There is a point where more care no longer improves health • PROs can help you Increased Benefit find that point Waste Increased Cost Proprietary and Confidential. Do not distribute. 43
  • 44. More Results from the AHS Project (Obesity Program) Physical Health Outcomes Mental Health Outcomes 64% 49% 37% 37% 35% 35% 32% 24% 27% 23% 23% 22% 20% 15% 14% 15% 14% 15% 15% 10% 13%12% 7% 9% Limted in activities Accomplished Limited in work Reporting pain Limted in social Worked less Not calm/peaceful Downhearted/ less activities carefully depressed Baseline One Year Norm Baseline One Year Norm Proprietary and Confidential. Do not distribute. 44
  • 45. Quotes from the AHS Population Health Study “It’s useful to see how my health “79% of Edmonton’s compares to my peers – other diabetics and obese people. population has one or Seeing my scores is liberating more chronic conditions because now I know if I’m more or and 40% have more less healthy than other people than three.” who have similar health -Health Quality of Life concerns.” Measurement Tool Final Report, July 2010 -A patient involved in the AHS project “Physicians and patients reported that the survey provided a quick assessment of mental and physical health which had clinical value. If the patient’s mental or physical health scores were less than optimal, patients and providers reported discussing contributing factors to the decline.” -Health Quality of Life Measurement Tool Final Report, July 2010 Proprietary and Confidential. Do not distribute. 45
  • 46. What’s Next at AHS • Expanding the program from a focus on initial studies and two cohort groups (obesity and diabetes) to enrolling entire populations • Currently over 1/3 of Alberta’s Primary Care Networks are using SF- 12v2 and Smart Measurement System to monitor their population’s health • Alberta Primary Care Networks are obtaining patient measurement and real time reporting that is tailored for their specific needs • This is Health IT in action Proprietary and Confidential. Do not distribute. 46

Editor's Notes

  1. QualityMetric’s health surveys capture reliable and scientifically valid patient-reported health outcomes information. A last count the surveys have been administered more than 76 million times worldwide and have been adapted for use in 130 languages. Used successfully in more than 1,900 clinical trials and referenced in more than 14,000 peer-reviewed articles, these surveys are proven responsive in 66 disease conditions and have been accepted by the Food and Drug Administration as proof of benefit for improved functioning and other PRO concepts. To date, 35 drug label claims have been approved using our tools.
  2. Our surveys are available in multiple modes including…<read slide>To ensure that the surveys are accessible to as many individuals as possible. It is also possible to complete a paper survey and scan it through a fax machine to collect and score the data automatically.
  3. Mark:
  4. The SF Health Surveys are the…Most reliable, rigorously validated, and widely used patient-reported outcome measures in the worldStandardized so that outcomes are comparable across groups, times, and populations
  5. Here is a list of the disease-specific health surveys we offer. By the way this is a copy of the Asthma Control Test in Bulgarian!These are just a few of the surveys we have developed for clients over the years to measure disease impact, symptom control, health burden and risk. Things that can not be traditionally or medically measured.
  6. Mark: