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GMADE presentation

  1. 1. Finding and Following a Good Lead Sara Nicastro, M.Ed. Diabetes Advocate
  2. 2. Finding a Good Lead <ul><li>Available resources for communication </li></ul><ul><ul><li>Between health care professional and the diabetic </li></ul></ul><ul><ul><li>For the diabetic </li></ul></ul><ul><ul><li>To connect the diabetic to the larger diabetes community </li></ul></ul>
  3. 3. There’s an app for that <ul><li>dLife </li></ul><ul><li>Lenny the Lion </li></ul><ul><li>WaveSense </li></ul><ul><li>GlucoseBuddy </li></ul><ul><li>Food Apps </li></ul>
  4. 4. dLife <ul><li> </li></ul><ul><ul><li>Ask the expert </li></ul></ul><ul><ul><li>Blogabetes </li></ul></ul><ul><ul><li>Message board/forum </li></ul></ul><ul><ul><li>Recipes </li></ul></ul><ul><ul><li>Supplies </li></ul></ul><ul><li>dLife TV </li></ul><ul><ul><li>CNBC 7 pm </li></ul></ul>
  5. 5. dLife
  6. 6. dLife <ul><li>$.99 </li></ul><ul><li>Settings not as helpful for insulin pumps </li></ul><ul><li>Cannot download all info – only blood glucose </li></ul><ul><li>Can e-mail health care provider </li></ul>
  7. 7. dLife
  8. 8. dLife
  9. 9. Lenny the Lion <ul><li>Free </li></ul><ul><li>Medtronic Diabetes </li></ul><ul><li>For children </li></ul>
  10. 10. Lenny the Lion
  11. 11. Lenny the Lion
  12. 12. Lenny the Lion
  13. 13. Lenny the Lion
  14. 14. Wavesense Diabetes Manager
  15. 15. Glucose Buddy <ul><li>oneAppOneCause </li></ul><ul><li>Free </li></ul><ul><li>Ranked #1 iPhone App by </li></ul><ul><li>Can e-mail health care provider </li></ul>
  16. 16. Glucose Buddy <ul><li>Features </li></ul><ul><li>Forum </li></ul>
  17. 17. Glucose Buddy – Testing in Pairs
  18. 18. Food Apps <ul><li>GoMeals </li></ul><ul><li>myNetDiary </li></ul>
  19. 19. myChart <ul><li>Developed by Epic Systems Corp ( </li></ul><ul><li>Benefits for patient include the ability to </li></ul><ul><ul><li>Review past appointments </li></ul></ul><ul><ul><li>Manage your prescription renewals. </li></ul></ul><ul><ul><li>Manage appointment requests and cancellations </li></ul></ul><ul><ul><li>View your health summary, current list of medications and test results as released 
by your physician </li></ul></ul><ul><ul><li>Receive important health reminders </li></ul></ul>
  20. 20. Product Specific Tools <ul><li>Carelink </li></ul><ul><li>ezManager </li></ul><ul><li>ContourUSB </li></ul><ul><li>DexCom </li></ul>
  21. 21. CareLink <ul><li>Free*, secure, web-based therapy management software that allows you to </li></ul><ul><ul><li>insulin dosage, carbohydrate intake, sensor glucose and blood glucose readings all in one place </li></ul></ul><ul><ul><li>Seeing cause-and-effect relationships in charts, graphs, and tables </li></ul></ul><ul><ul><li>Work more productively with your healthcare provider by sharing detailed reports and making therapy and lifestyle changes </li></ul></ul><ul><ul><li>Get the full picture with continuous glucose monitoring data, revealing more patterns than fingerstick data </li></ul></ul>
  22. 22. Carelink <ul><li>Requires a $50 USB drive </li></ul><ul><li>Only compatible on Windows operating systems </li></ul>
  23. 23. ezManager Max <ul><li>For Animas insulin pumps </li></ul><ul><li>Features of ezManager ® Max </li></ul><ul><ul><li>Compatible with Mac and PC platforms </li></ul></ul><ul><ul><li>You can download pump and blood glucose meter data into reports and logs that can be viewed on screen, printed or emailed – perfect for sending to your doctor </li></ul></ul><ul><ul><li>Reports can be saved as PDF, HTML or XLS files </li></ul></ul>
  24. 24. ezManager Max <ul><li>Your health care provider can: </li></ul><ul><ul><li>Analyze blood glucose data against your treatment goals </li></ul></ul><ul><ul><li>Trend blood glucose data against your insulin use and carb consumption </li></ul></ul><ul><ul><li>Compare changes in your pump settings over time </li></ul></ul><ul><ul><li>Ensure your data is kept totally private with powerful security features </li></ul></ul>
  25. 25. Contour USB
  26. 26. DexCom
  27. 27. DexCom
  28. 28. Patient Perspective <ul><li>What are some perspectives of diabetics of the usages of &quot;real time&quot; communication with their health care providers? </li></ul>
  29. 29. Patient Perspectives <ul><li>“ I meet my HCP in person only, he doesn't like it when I print out charts/logs anyways. Just looks at my meter.” (Type 1) </li></ul><ul><li>“ I find that my Carelink graphs completely overwhelm my HCP. Just this week she asked me if I could look at them myself and summarize” (Type 1) </li></ul><ul><li>“ My takes my pump and then pulls all the data thru the doctor's version of Carelink.” (Type 1) </li></ul><ul><li>My HCP is “not necessarily using online tools... More a matter of working with patients who use those resources, collaborate.” (Type 1) </li></ul>
  30. 30. Patient Perspectives <ul><li>“ Speeds up the whole appointment. Cal's HCP looks at things in advance and we breeze through it when we meet.” (Parent of Type 1) </li></ul><ul><li>“ I'd love to be able to email questions in between visits. Sometimes so much time goes by in between that I forget them.” (Type 1) </li></ul><ul><li>“ My HCP's office has someone who has job duty of monitoring patient online info & putting into files/charts/communications” </li></ul><ul><li>“ CDE's and RD's seem to be more open than the endos.” </li></ul>
  31. 31. Benefits and Challenges <ul><li>What are the benefits and challenges inherent in online communication tools for both the health care provider and the diabetic? </li></ul>
  32. 32. Benefits <ul><li>“ I actually think e-mail would let us say a lot more than we can squeeze into the back and forth of office appointments” </li></ul><ul><li>“ Easier, faster and more effective communication allows adjustments between appointments” </li></ul><ul><li>“ Benefit of emailing HCP is obvious - quick answers to brief questions” </li></ul>
  33. 33. Benefits <ul><li>“ I've emailed both WaveSense and DexCom reports in advance which leaves more time for my questions at appointment” </li></ul><ul><li>“ My doctors are connected via the internet. Foot doctor can log onto endo's site for my information” </li></ul><ul><li>“ I'd be more accountable with more frequent HCP communication” </li></ul>
  34. 34. Challenges <ul><li>“ Online doc/patient communications opens up unrealistic response time expectations, HIPPA issues, and issues regarding HCP billing for emails” </li></ul><ul><li>“ I can't stand the influx of email from the few people I work with. Imagine a ton of angry diabetic patients!” </li></ul><ul><li>“ My biggest challenge with online tools is that my HCP doesn't communicate electronically” </li></ul>
  35. 35. Challenges <ul><li>Reimbursement </li></ul><ul><ul><li>“ My HCP has said she'd be more willing to engage with e-patients if there was &quot;patient care&quot; time built in for reimbursing. </li></ul></ul><ul><ul><li>“ Will providers be reimbursed for e-communication and counseling? If not, it will be slow going.” </li></ul></ul><ul><ul><li>“ I mean, I'd love to be in more frequent communication. I wonder how much providers worry about getting paid for their advice.” </li></ul></ul>
  36. 36. Challenges <ul><li>Time </li></ul><ul><ul><li>“ Can say from experience that the amount of things for a HCP to do WITHOUT answering email is already staggering. Usually thousands of patients” </li></ul></ul><ul><ul><li>“ My HCP has appointments so backed up he rarely checks e-mail. I don't see that happening with him at least.” </li></ul></ul><ul><ul><li>“ From HCP side, challenge is controlling the HUGE amount of information” </li></ul></ul>
  37. 37. Challenges <ul><li>Standardization </li></ul><ul><ul><li>“ Standardization by far is the biggest deal. Some HCPs only like information presented in one way” </li></ul></ul><ul><ul><li>“ The turn-around issue is a biggie. I expect a phone call back to acknowledge a voicemail within 24 hrs. What to expect from e-mail?” </li></ul></ul><ul><ul><li>“ It would be nice to be able to email my HCP, but I can't. So even though I have great technology everyday, my HCP is behind” </li></ul></ul>
  38. 38. Challenges <ul><li>Privacy </li></ul><ul><ul><li>“ I think patients and healthcare providers worry about privacy issues.” </li></ul></ul>
  39. 39. Diabetes Online Community <ul><li>Where can diabetics and health care providers connect to continued diabetes education in the online diabetes network? </li></ul>
  40. 40. Children With Diabetes <ul><li>Promote understanding of the care and treatment of diabetes, especially in children </li></ul><ul><li>Increase awareness of the need for unrestricted diabetes care for children at school and daycare </li></ul><ul><li>Support families living with diabetes </li></ul><ul><li>Promote understanding of research into a cure </li></ul>
  41. 41. Children with Diabetes
  42. 42. Diabetes Daily <ul><li>A leading online support network that helps people affected by diabetes live a better life </li></ul><ul><ul><li>Over 20,000 registered members and over 2 million annual visitors </li></ul></ul><ul><ul><li>one of the largest diabetes forums, as well as original recipes, meal plans, cookbooks, blogs, educational resources, online blood glucose tracking, health challenges and diabetes related news. </li></ul></ul>
  43. 43. tu diabetes <ul><li>“ It's like 'MySpace' on insulin...” </li></ul><ul><li>Includes </li></ul><ul><ul><li>blog posts </li></ul></ul><ul><ul><li>discussion forums </li></ul></ul><ul><ul><li>share photos and videos that we find useful and informative. </li></ul></ul>
  44. 44. Diabetes Advocates <ul><li>Program that advocates on behalf of patient-serving diabetes organizations and bloggers </li></ul><ul><li>Hosted by the Diabetes Hands Foundation, a 501(c)3 nonprofit that connects people touched by diabetes and raises diabetes awareness. </li></ul><ul><li>Founding principles </li></ul><ul><ul><li>building a program to support areas of mutual interest </li></ul></ul><ul><ul><li>connecting members </li></ul></ul><ul><ul><li>facilitating joint projects and diabetes awareness initiatives. </li></ul></ul>
  45. 45. facebook
  46. 46. Twitter <ul><li>Diabetes Social Media Advocacy (#dsma) </li></ul><ul><ul><li>“ simple questions, thought provoking responses, strengthening the diabetes community, one tweet at a time” </li></ul></ul><ul><ul><li> </li></ul></ul><ul><ul><li>Wednesday 9 pm EST </li></ul></ul>
  47. 47. Flickr <ul><li>Help people make their photos available to the people who matter to them </li></ul><ul><li>Enable new ways of organizing photos and video. </li></ul><ul><ul><li>Diabetes365 </li></ul></ul><ul><ul><li>CGM – Tracking the Roller Coaster </li></ul></ul><ul><ul><li>diabetes made visible </li></ul></ul><ul><ul><li>Waiting with Diabetes </li></ul></ul>
  48. 48. Thank you! Any questions?