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Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada
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Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada

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Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada. Ho K. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)

Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada. Ho K. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)

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  • 1. Engaging Patients with Chronic Diseases Using ICT: A Multicultural Approach in B.C. Canada World of Health IT Conference, Barcelona March 17, 2010 Kendall Ho, MD FRCPC Director, eHealth Strategy Office Faculty of Medicine, University of British Columbia
  • 2. If you build it, will they come? Engaging Public in ICT Use in CDM? Dyersville, Iowa (filming of “Field of Dreams”)
  • 3. Engaging Public: Chronic Diseases • Accurate & quality health information • Enable self-care & health partnerships • Impact on chronic disease management • Health consumers & health professionals • Between generations & care givers • Peer to peer 3
  • 4. British Columbia, Canada Home Language: English 51% Serving multicultural public? Chinese 21.6% •Language marginalization Punjabi 8.2% •Computer skills Korean 2.7% •Hunger for health knowledge Filipino (Tagalog) 2% Persian (Farsi) 1.7% Vietnamese 1.3% Spanish 1.2%
  • 5. iCON: Goals 1. Provide access to culturally relevant health information in Chinese language 2. Use multi-channel engagement to reach a variety of community members’ needs/ preferences 3. Gather and incorporate data to ensure community-driven content and format 6
  • 6. Health Forum, Vancouver 7
  • 7. Live Forum Component • Chinese and South Asian doctors, nurses, dietician, pharmacists… • Diabetes: September 2007 (~700 attendees) • Healthy Heart: April 2008 (~1000 attendees) • Dementia: October 2008 (~700 attendees) • Dementia: March 2009 (~750 attendees) • Liver Disease: November 2009 (~1,450 attendees) • Medical & university students • Surveys, focus groups, interviews 8
  • 8. Web component • Culturally appropriate and language translated: • Traditional and simplified Chinese characters • Punjabi • Chronic disease management content: • Symptoms • Self-management Culturally relevant and • Diet translated health resources • Local resources • Interactive feedback • Online survey…
  • 9. www.iconproject.org
  • 10. Public Engagement - Highlights • Over 95% of the surveys turned in first language • Female 65% Male 35% • Average 65 years (mid-30s to late 90s) • 1/3 Patients • 1/3 Interested in prevention • 1/3 Caregivers
  • 11. Findings: What does self care mean? • Trying to make healthy choices but need culturally relevant resources available in own language • Becoming better informed so they will have to “use the system less” • Having sufficient knowledge to be conversant with health professionals • Helping family members care for themselves Health info Sources: “The problem with doctors is that Necessary Ingredient: Culturally relevant we only go for a check-up once, •Doctors, HPs resources available but our condition may•Newspapers, books in own language change before or after, even if we are well •Internet (41%) at our appointment…and he says “ok” – we don’t know for sure….”
  • 12. Findings: Personal Health Record Good idea to keep own record? (Q#10) Maybe No 10.6% 3.1% DO YOU THINK IT IS A GOOD IDEA TO KEEP A RECORD OF YOUR OWN HEALTH WITH YOU? Yes 86.3%
  • 13. Findings: Personal Health Record • 75% see an advantage in electronic PHR • 80% would like to learn electronic PHR • 88% would like a template Themes: When a patient keeps his or her own record it facilitates knowledge and self-management. When both patient and physician keep a record it facilitates comparison and validation of information.
  • 14. Insights: Public Engagement Evaluation • Common Desire: engaged, empowered, contribute • Evaluation builds trust and partnerships • Evaluation promotes authenticity, mutual understanding • Through engagement, evaluation can build capacity
  • 15. iCON…What’s next?  Digital Access through Web 2.0 Network (DAWN)  Public Health Agency of Canada funded  Reaching population in non-urban B.C.  Videoconferencing, web/pod casting  Blogs  Youtube  Wiki  Smart phones …
  • 16. “Dizzy Gillespie”: lessons • They're not particular about whether you're playing a flatted fifth or a ruptured 129th as long as they can dance to it. of Essence Engagement • How do you know they like your music? If I got their toes tapping, then I know I’ve got them 17
  • 17. Multicultural Engagement in ICT • Build content to invite • Build community to engage • Build evaluation to understand • Build personal tools to transform
  • 18. Contact Information eHealth Strategy Office Faculty of Medicine, UBC, Vancouver, Canada MISSION: IT to enable education, service, research and knowledge translation Kendall Ho: Director & Associate Professor, Emergency Medicine Kendall.Ho@ubc.ca www.eHealth.med.ubc.ca Facebook: Kendall Ho
  • 19. Thank-you to…. • Michael Smith Foundation for Health Research • Technology Enabled Knowledge Translation Investigative Centre • BC Ministry of Health • Vancouver Coastal Health Authority • Fraser Health Authority • Public Health Agency of Canada • Safeway Canada • SUCCESS, Progressive Intercultural Community Services Society • The many health professionals, students and community members Project Team • Francis Ho • Shinie Tan • Francisco Grajales III • Kendall Ho • Janice Tian • Jasmin Abizadeh • Jennifer Cordeiro • Elizabeth Stacy • Nelson Shen • Noreen Kamal • Helen Novak Lauscher

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