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Carers, the Care and Support Bill and whole family approaches
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Carers, the Care and Support Bill and whole family approaches


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The conference took place on the 31st Janyar

The conference took place on the 31st Janyar

Published in: Health & Medicine

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  • Welcome.....
  • The purpose of today is to discussing the Caring for Our Future White Paper and what it means for Carers. The paper was published in July 2012, accompanied by the Care and Support Bill which will provide the legal framework for putting changes into place. Carers was a key focus of the white paper and the Bill proposes a number of new rights for Carers.
  • In Surrey we had advocated strongly for improved support for Carers in our response to the Caring for Future consultation – this quote is taken directly from our response. We recognised that Carers are the cornerstone of social care and are a huge cost saving to Government. We also want carers to be better recognised in their own right and to have their own health needs recognised. Therefore we welcomed the new rights for Carers that the Bill proposes.
  • The new rights for Carers will be explained in detail in the next presentations. However, to summarise: The Bill legislates to extend the right to a Carer’s assessment and provides Carers with first ever entitlement to public support on the same legal footing as for the people for whom they care. It will also require an increased focus on whole family working so we will need to redouble our efforts in supporting young carers. It proposes a national minimum eligibility threshold for support for carers, as for the people who use services. and From April 2013 the NHS Commissioning Board and clinical commissioning groups will be responsible for working with local partners to ensure that carers are identified and supported. The Care and Support Bill will also introduce new obligations for Health and local Authorities to co-operate to improve support for carers
  • We need to find a way of supporting many more carers. The Government have said that there will be a likely net increased cost to councils of £175 million p.a. that will be funded by the Department of Health. We estimate the cost locally to be £3.4 Million a year
  • I am pleased to say that we have already introduced initiatives which anticipate the enhanced responsibilities that Surrey will be obliged to meet under the new Care and Support Bill. For example: The Carers Care Pathway developed together with NHS Providers carers network is now being distributed to health professionals. I believe that it will lead to improved identification of carers and more signposting to services and support. The Surrey NHS Carers Break Scheme has resulted in more than 1500 Carers receiving a payment from their GP so far through a scheme administered for us by Surrey Independent Living Council We’ve invested in an early interventions scheme, administered through Local Carer Support organisations. Aimed at supporting 1000 carers a year who are not known to Adult Social Care, it enables them to create balance between their caring role and their life away from it.
  • However, we know we have a long way to go in order to meet the full requirements of the Bill and ensure that we are delivering the best possible support to Carers. We need to do this whilst also dealing with the impact that welfare reform will have on both Local Authorities and Carers directly, against a background of NHS reorganisation and the ongoing funding reductions as a result of economic climate. This is a challenge but one that I am confident we can meet through continued partnership working.
  • The purpose of today is to start a discussion about how we can best meet the challenges and opportunities posed by the Bill. I invite you to participate as fully and honestly as you can – your knowledge and expertise will be invaluable in helping us shape our services going forward.
  • Shahana will do a short presentation on the position on MIR – where we are with the testing, plans for dissemination. This will lead into a short plenary discussion on what this might mean for our programme, as a lead into the more detailed discussions this afternoon
  • Transcript

    • 1. Welcome Councillor Michael GoslingCabinet Member for Adult Social Care and Health
    • 2. Caring for Our Future White Paper• Set out vision for reformed Care and Support system.• Accompanied by Care and Support Bill which provides legal framework for putting changes into place.
    • 3. In order to maintain the health and wellbeing of people who are cared for we need to spend more time and energy looking after the needs of thecarers themselves by providing regular respite services.Carers are the cornerstone of social care and are a huge cost saving to Government.
    • 4. New Rights for Carers• Legislates to extend the right to a carer’s assessment, and provide an entitlement to public support for the first time.• National minimum eligibility threshold for support for carers, as for people who use services.• From April 2013 the NHS Commissioning Board and Clinical Commissioning Groups will be responsible for working with local partners to ensure that carers are identified and supported.
    • 5. Helping more Carers in Surrey• At present services we fund support for around 13,000 adult carers a year and support 1,200 young carers.• However there are just over 108,000 carers in Surrey and 12,000 young carers• The Care and Support Bill will create new duties to have a range of preventative and information services for carers
    • 6. Moving Forward Together Today provides anopportunity for you to discuss how wecan move forward tomeet the challenges and opportunities posed by the Bill.
    • 7. Making it Real for Carers Bernadette Simpson Making it Real for Carers Project coordinator
    • 8. What is Making it Real?• Will help to mark and make progress towards personalised, community–based support• Developed by TLAP, led by the Co-Production Advisory Group• Supported by ADASS, DH,CQC, LGA, Provider bodies
    • 9. Making it Real aims toturn words intoaction. An importantpart of the approach isto involve people whouse services andcarers in planning theMaking it Realprogramme.
    • 10. Six key themes• Information and advice• Active and supportive communities• Flexible and integrated care and support• Workforce• Risk enablement• Personal budgets and self-funding
    • 11. Making it Real for Carers• Looking at what the 6 Making it Real themes mean to carers.• Identifying what needs to be in place to make support work well in practice for carers, as well as the people they support
    • 12. Information and advice“If I am going to be in control as a carer, I needinformation about the choices available to me”•Information that’s easily available•Face-to-face contact, emotional support and someone toshare my concerns with•A regular review that provides a good platform forinformation and advice.•Wherever possible and appropriate people including andtalking to me as a carer•Confidentiality not used as a barrier to communicationwith me as a carer.
    • 13. Active and supportive communities“I need support for my son’s social life so I can have one too!”•Space to be someone other than a carer•Time to pursue my own hobbies and interests•Good information about the opportunities available to me as acarer•Flexible support – more evening and out of hours support.•Employers, community services, schools and colleges thatunderstand carers issues and listen to carers including youngcarers
    • 14. Flexible and integrated care and support• “If the system is chaotic it disables me and prevents me from deciding the kind of support I need and when, where and how to receive it”• Support through the maze of care and good information about the process and timescales.• Good communication between different agencies, organisations and officials so I don’t have to keep making phone calls to sort things out.• A named social worker/assessor, and information that is shared so I don’t have to tell my story over and over• Good planning of services and good change management that involves users and carers and is equitable. Carers see the benefits of their involvement.
    • 15. Workforce“I want friendly staff who smile at me; who understand my roleas a carer and listen to me.”•Professionals who talk to me as the carer about the needs of the person Icare for and respect my expertise and knowledge as a carer.•A care worker who connects with the person I support and who knowsabout a person’s likes, dislikes and personality traits.•To know that I can report poor care without being afraid of therepercussions.•Cover available for my needs as a carer, for example extra hours if I am illand domiciliary care workers who are available in the evenings as well asdaytime.•Training that provides staff with a good understanding of how to work withdifferent people and respond to specific needs.
    • 16. Risk enablement“Over the top risk assessments can get in the way of mehaving a life.”•Knowing that there are support workers I can contact in anemergency•Knowing there’s the availability of a safety net to support mein my caring role.•As a carer, being able to access training such as first aid,hygiene, moving and handling etc•A global review that considers all aspects of support and theoptions available to me - a review that joins things up.•Staff with good listening skills who get things sorted outpromptly so there’s no breakdown in care
    • 17. Personal budgets and self funding“I value my direct payments and understand how to use themoney well.”•A carers personal budget (regardless of age) that can bespent on what’s important to me•A good range of support services available locally includinggood quality appropriate respite, affordable and safetransport and a wide range of social activities.•Transport included in any activities for my cared for.•Good information and the right support with direct payments•When a person moves from social care funding to PCTpersonalised care, direct payments able to be continued.
    • 18. A whole family approach“ People need to understand that all of these areimportant to me as a carer:•The support I have•My identity as a carer•The person I care for•The support around me.”
    • 19. What canwe do The statements can bebetter? used to look at what is happening locally for carers, and ask carers to help decide what could be better and how.
    • 20. Actions focussing on improvingservices for carers and wholefamily approaches can beincluded in the action plan thatan organisation puts onto theMaking it Real website.Organisations can achieve aMaking it Real Kitemark to showthat they are a Making it Realorganisation.
    • 21. • Organisations who put their information onto the website will see themselves on the Making it Real Map.• This allows organisations to contact one another and to check on each others progress.• This also ensures that anyone can check progress of organisations in their area, and comment on how they are doing.
    • 22. Achieving the aims and vision of the Care and Support Bill“The law should treat carers as equals, not as an extension of the person they care for”“Carers will find it easier to access personalisedadvice and support to help them care for as long as they wish.”