HOW ONLINE TRENDS AND TOOLS
CAN ENDORSE HEALTHCARE AND
IMPROVE QUALITY OF LIFE.
A conversation about search, social media, co-creation, patient empowerment and new business models.
When you’re sick, you have a lot
•Questions you might ask relating to illness or symptom(s)
•What's wrong with me?
•Can you draw a picture or show me what is wrong?
•What causes this kind of problem?
•Can I give this illness to someone else, and if so, how and for what period of time can I pass this on?
•Are there any activities or foods which I should avoid?
•When can I return to work or school?
•What is the long-term prognosis of my condition?
•How can I prevent this from happening again?
•How will this problem affect me in the future?
•What will happen if I don't treat my condition right away?
•What treatment should I follow, including dietary, medical treatment, and lifestyle changes?
•When do I need to see the doctor?
•Where can I get more information about my condition?
So you start searching Google
• In Belgium more than 50% of the
total population uses internet in
search for health information (2006).
• People in Nordic countries tend to
be frequent users (does it have to do
with the weather?)
• And in the US the number of adults
on the web searching for health
information has doubled in the past 2
years from 31% tot 60% (june 2009).
Or you can ask somebody else to
search Google for you
• 50% of all online health searches are on behalf of someone
People love using thet net when
• 26% (fully) agrees with ‘when I feel something I ﬁrst look on the Internet to see what might be
• 24% (fully) agrees with ‘before I go to a doctor, I ﬁrst look for more information on the Internet’
• 50% (fully) agrees with ‘when my doctor makes a diagnosis, I often look on the Internet for extra
• 27% (fully) agrees with ‘when my doctor makes a diagnosis, I will check it based on online
• 26% (fully) agrees with ‘when I need to take medicine, I ﬁrst look up more information on the
Internet about this medicine’
• The physician remains by far the most reliable source of health related information. But the
patient has joined the online conversation
And Microsoft doesn’t help
•Bing gives us 10% more
results than Google,
82.300.000 in total.
They want to learn about their medication,
treatment, alternatives and what the illness
will cost them
1. Speciﬁc disease or medical problem;
2. Certain medical treatment or procedure;
3. Diet, nutrition, supplements;
4. Excercise or ﬁtness;
5. Prescription or over-the-counter drug;
6. Alternative treatment or medicine;
7. Health Insurance;
8. Depression, anxiety, stress, mental health;
9. A particular doctor or hospital;
10.Experimental treatments or medicines.
And as far as diabetes is
concerned, they look for:
1. Symptoms of Diabetes
2. Diabetes Diet
3. Types of Diabetes
4. What Causes Diabetes?
5. Type 1 Diabetes
6. Treatment for Diabetes
7. Facts About Diabetes
8. Diabetes Tests
10. Type 2 Diabetes
11. Gestational Diabetes
Chronicle patients use search
• Chronicle patients use less search engines in search for health information;
• 56% chronicle patients start with search engine;
• 67% non-chronicle patients start with search engine;
• 50% of chronicle patients talk to their fysician about information found on the
• 30 of non-chronicle patients talk to fysician about information found on the
• It could be that chronicle patients become more experienced with higher quality
results and more networked (worth talking about tot physician) over time.
And people enter the
• Health consumers are often looking for tailored information, searching for a “just-in-time
someone-like-me.” For example:
• 41% of e-patients have read someone else's commentary or experience about health
or medical issues on an online news group, website, or blog.
• 24% of e-patients have consulted rankings or reviews online of doctors or other
• 24% of e-patients have consulted rankings or reviews online of hospitals or other
• 19% of e-patients have signed up to receive updates about health or medical issues.
• 13% of e-patients have listened to a podcast about health or medical issues.
Sharing is healthy
Sharing on other sites:
• All information sources
today encourage visitors
to share the information
in their own community Discussion on Google Friend Connect:
• Natural selection: Get e-mail alerts on related topics:
people share only
information they ﬁnd
Even the pope is sharing
• Pope-to-You (P2Y)
• Facebook application
• Receive messages from the pope
• Meet the pope on Facebook
• Listen to his words
• See picture of the pope
• Send virtual postcards
• But the pope is not only on Facebook:
• iPhone application
• YouTube channel
Sharing occurs through numerous
• 35.755 links
• Top rated diabetes
• America Diabetes
• Diabetes Mine
• Sugar Stats
• Glycemic Index
It can give us (false) hope
• A break-through in diabets
• And we are off on a journey
through cyber health space
(via “Newest First”):
• Checkdiabetes.org with
message ‘Sharing is
• NYTimes: bycicle challenge
by Type1 patients
Or “interesting” insights
• Guardian: Cannabis
might treat diabetes,
says top researcher
• MSNBC: No more
needs for expensive
equipment. Dogs will do
the job in the near
Similarity breeds connection. Homophily is the
principle that a contact between similar people
occurs at a higher rate than among dissimilar people.
Take Lise’s story for example
• Diabetes is a
condition. For at
the end of the
day, no one can
the challenges we
face and deal
with, better than
those of us who
condition, having a
• they will make kids...
• they will become involved in making us aware ...
• they become assertive and start a blog
• they will post their stories
healtcare, just like hundreds
of thousands of ordinary
Americans who have
watched their premiums
rise faster than wages, and
spiraling costs shackle
American businesses — put
a personal touch on the
health care crisis.
• they will come up with solutions for future generations.
using collaboration platforms
• Learn the secrets to managing
diabetes.Ask questions and
get answers in minutes.
• Get real-time support in Live
Chat.Meet people who
understand what you're going
• Stay up-to-date on critical
advances.Be the ﬁrst to know
about research discoveries
and new treatments.
Which can be set up in seconds
• In 60 seconds a private or public platform is
• Personal pages
• POI’s on Google Maps
• Chat history
If they get access to the right data
• Have the right to our own health
• Have the right to know the source
of each health data element
• Have the right to take possession of
a complete copy of our individual
health data, without delay, at
minimal or no cost; if data exist in
computable form, they must be
made available in that form
• Have the right to share our health
data with others as we see ﬁt
Getting a complete medical record
centralized online is almost accomplished
• Tracking medical history and
learn about your conditions
• Import your medical records
• Find out how medications
• Share your medical records
• Make your health information
work for you
They will become e-patients
• E-patients: individuals who
are equipped, enabled,
empowered and engaged
in their health and health
• Health care as an equal
partnership between e-
patients and health
professionals and systems
that support them.
e-Patients know how to use
• Social networks, webvideo and
weblog are also for e-patient most
• 61% is more then 11 hours
online per week;
• 31% is more then 20 hours
online per week;
• 35% on social networks;
• 25,2 % on webvideosites;
• 22,5 % on weblogs;
The pharmaceutical, payer and provider
value chains will be much more closely
Because the situation want get
better without drastic change
• Adult obesity rates now
exceed 25% in 31 states, up
from 28 states last year and 19
the year before that.
• Among children 10-17, about
30% are overweight or obese
in 30 states.
• "There is a huge wave of obese
adults coming that will
bankrupt us as a nation unless
we get this under control now,"
Design efﬁcient tools for co-
• Working across disciplines and institutions
• Design is a process that makes connections.The design process hasthe proven ability to forge connections
between people and organisations,unlock solutions and address change.
• The user process
• The design process is a set of techniques and approaches that puts users at its heart,works from their
perspectives,engaging with articulated knowledge,latent perceptions and emotional responses.
• Usable interfaces
• Design is a practical tool.It helps to make things more visible,legible, coherent and easy to navigate.
• Platforms,tools and motivators
• Distributed,collaborative services will involve the need for new tools andplatforms that enable the sharing of
knowledge and resources and the continual adaptation of services.