What is an information prescription?

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What is an information prescription?

  1. 1. Your Health Your Way Long-Term Advice and Conditions information Self - Care Local Services Long Term Conditions Patient Prospectus “A long-term condition is one that can be treated and managed but not cured, so you are likely to have it for many years even the rest of your life” – NHS Choices - Your Health Your Way The Purpose of this Guide Living with a long-term condition can sometimes make daily life difficult, so it is important that information and local services are available to help patients, their relatives and/or carers, deal with specific problems and assist with self care. This guide is a directory of local health, social and voluntary services, available to people with long term conditions. It is to make sure patients are receiving the right kind of care and support for their condition and to help them make choices to improve their care and lifestyle. The first section gives information about general services such as GP practices and healthier lifestyles and the services available locally. Other sections cover each condition separately. As people’s needs vary so will the services that are required or available. It includes these long-term conditions:- • Cardiovascular disease • Respiratory disease • Neurological conditions • Diabetes • Musculo-Skeletal conditions • Chronic Kidney Disease Each section starts with a brief description of the condition listed including, where appropriate, a list of the specific conditions the term refers to, then explains where to get information, support and help. (For help/advice about how to use this guide contact patient advice and liaison service on freephone 0800 032 32 35, mobile text facility 07919 466212, minicom 01332 369301 e-mail PALS@derbycitypct.nhs.uk) 1
  2. 2. Local Services – GP and Urgent Care Healthier Lifestyles GP/Urgent Care Getting advice or treatment, ongoing or as needed, from an appropriate health professional is important to everyone and perhaps even more essential for people with a long-term condition. This section shows what is available locally and where you can find further information about the services. You will find a list of GP practices in your area can be found on NHS Choices. Also available on this web site is a list of hospitals with the number of miles away from your postcode area they are (those with an Accident & Emergency department can be identified). The Walk-in-Centres is a nurse led service. You will find information, including opening hours by clicking here. Derby Open Access Centre is a GP led service in the Walk in Centre until June 2009 when it will move to new purpose built premises on 151 St. Thomas Road, Derby Out-of-Hours Service – information can be found a www.derbycitypct.nhs.uk/out-of-hours-service.asp NHS Direct on line for health advice and information Healthier Lifestyles/Advice Lots of evidence suggests that adopting a health lifestyle will improve health and prevent further complications for people with long term conditions so this section outlines local services offering support and advice. You can get advice on healthy lifestyles including news of local events on NHS Choices Derby City and Derbyshire and also on Information for Patients and the Public Fresh Start Stop Smoking Service - Pentagon House, Sir Frank Whittle Road, Derby, Derbyshire DE21 4XA Tel. No. 01332 224019 – Information about opening times and so on available at www.freshstart.nhs.uk. Other Information and Support Information about available support e.g. benefits advice, social services and community transport, can be found at www.derby.gov.uk Services Directory for Older People Key Contact Numbers for Older People 2
  3. 3. Mood and Mental Health Problems Related to Long Term Conditions Mood and Mental Health Problems Many of the Long Term Conditions dealt with in this prospectus can have effects on a person’s mental health, causing anxiety or depression for example. It is also true that many long term conditions have a psychological aspect which can be helped with psychological therapies; for example if someone with diabetes is struggling with accepting the need for insulin injections or is afraid of needles. Another example might be someone with a cardiovascular disorder who is anxious about having sex or taking part in sport in case it damages their physical health. Living with a Long Term Condition can also lead to depression, for example if someone has to give up work or has restricted social contacts , both of which we know can lower people’s mood. Treatment/Management The research suggests that for all of these conditions the treatment of choice is evidence based psychological therapy such as Cognitive Behaviour Therapy. Cognitive Behaviour Therapy (CBT) and generic counselling is now available within the Primary Care setting and your GP should be able to refer you to an appropriately qualified CBT Therapist through the Primary Care Mental Health Service. Many people however feel they cannot approach their GP with mental health difficulties but this is no barrier to getting the appropriate support and help you need with your problem. If you do not have a GP or you do not wish to approach your GP you can refer yourself to the service. Details of how to contact the Primary Care Mental Health Service can be found in most Health and Community Centres, PALS, your local library and by phoning or contacting NHS Direct. CBT can take a variety of forms depending on the severity of the problem. It may be self help books on prescription from your local library; access to a special computer programme (CCBT) which you can use at home, at some GP surgeries or again at the local library; an anxiety management or depression control group or individual face to face sessions with specially qualified therapist. Which ever form it takes it can help people with long term physical problems deal with the symptoms and the treatments they need to keep them under control. Other Support and Help As well as the support and help outlined in the sections relating to each long term condition there are a number of places where help, support and general advice regarding anxiety, stress and depression can be found such as:- Anxiety UK and Depression UK whilst further information and links are available from the NHS Choices site and the Information for Patients and Public site. 3
  4. 4. Cardiovascular Disease Cardiovascular Disease Cardiovascular disease is a term used to describe a number of conditions that are due to a single cause. This is due to reduced blood flow to the heart, brain or other areas of the body such as legs. Its because of a blockage in a blood vessel from either a blood clot or a build up of fatty deposits resulting in a heart attack, stroke or a leg without a pulse at some level. These main symptoms are sometimes referred to as coronary heart disease, stoke and peripheral vascular disease. The term ‘coronary heart disease’ can also include other conditions such as abnormal heart rhythms, heart failure and valve abnormalities. You will find more information about these conditions at:- o The Heart Health site gives you information about heart disease, where to get help and support, and to answers questions about heart health, exercise and general well being. o National voluntary organisations such as the British Heart Foundation also offer information, advice and support, as do NHS Choices Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can also ask your pharmacist or other health professionals involved in your care. For further information click here. Rehabilitation/Ongoing Management The Cardiac Rehabilitation service is available to people following a heart attack, surgery for heart conditions and some people with heart failure. One of the cardiac team will give patients more detailed information at the appropriate time Arrhythmias – the cardiac team at Derby Hospitals NHS Foundation Trust offers advice and support for patients with this condition. People who have had pacemaker/ICD implants can get support from the Arrhythmia nurse specialists at Nottingham University Hospitals and University Hospitals of Leicester Heart Failure – a heart failure specialist nurse team working both at Derby Hospitals NHS Foundation Trust and in the community give advice and support to people with this condition. Stroke – Information regarding stroke rehabilitation services will be provided at an appropriate stage of recovery 4
  5. 5. Cardiovascular Disease - Continued Other Support and Help Here are other places where you can access support, help and general advice:- Patient Advice and Liaison Service – NHS Derby City Patient Advice and Liaison Service – National IPP – Information for Patients and Public Heart Health British Heart Foundation Expert Patient Programme Angina Plan NHS Choices has a number of short video/audio clips from people who have experience of living with specific cardiovascular conditions 5
  6. 6. Respiratory Disease Respiratory Disease Respiratory disease is a term used to describe conditions which affect the lungs such as Asthma, Chronic Obstructive Pulmonary Disease - COPD (Chronic Bronchitis & Emphysema), Bronchiectasis, Fibrosis,Pneumonia and Cancer. More information about lung conditions is on the British Lung Foundation (tel: 08458 505020), Asthma UK (tel: 08001 216255) and the British Thoracic Society. The NHS Choice website is also a useful information resource. You can get published guidelines and standards on selected respiratory conditions may be accessed via the Department of Health website. Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can ask your pharmacist or other health professionals involved in your care. Further information can be found here. Rehabilitation/Ongoing Management The Adult Integrated Respiratory (AIR) Team at NHS Derby City is a specialised team of nurses, physiotherapists and practitioners who offer comprehensive assessment, advice, support and information on managing this condition, including self management plans for patients with respiratory disease. Patients may be seen at a various out patient clinics across Southern Derbyshire or in their own home if they are ‘housebound’. Other services the AIR Team offers are:  group education sessions for patients with COPD at a variety of venues throughout Southern Derbyshire  follow up of respiratory patients discharged from hospital  home management scheme for GP selected acutely unwell COPD patients providing specialist respiratory equipment  Spirometry to confirm COPD diagnosis The AIR Team are based at Coleman Health Centre in Alvaston. The Pulmonary Rehabilitation service is available for patients with chronic respiratory disease – you can get more information about this service and the eligibility criteria from the health professional looking after you or from the AIR Team, NHS Derby City. The AIR Team have close links with the hospital outreach specialist respiratory nursing and medical teams. 6
  7. 7. Respiratory Disease - Continued Other Support and Help Here are other places where you can access support, help and general advice: Patient Advice and Liaison Service (PALS) Tel No : 0800 32 32 35 Information for Patients and Public (IPP) NHS Direct Tel No : 0845 4647 British Lung Foundation (BLF) Tel No : 08458 50 50 20 or 02076 88 55 55 - information, advice and support on all aspects of respiratory disease and care. You can also get information, advice and support on the following at www.derby.gov.uk Disability Direct Tel No : 01332 299449 Derby City Benefits Advice Line Tel No : 01332 256552 Derby City Adult Social Services Tel No : 01332 717777 Derby Community Transport Tel No : 01332 380738 Derby City Council Health and Leisure Services (exercise classes/options available) Tel no : 01332 293111 Interpreting Services Tel No : 01332 368221 Support Groups The Breathe Easy Support Group is part of the British Lung Foundation – get more information about your local breath easy group at: - Tel No : 01332 391297 or 01332 660796 The Expert Patient Programme is a course aimed at people living with any long-term health condition. Get more information at: - Tel No : 0800 32 32 35 or 01332 626303 NHS Choices has a number of short video/audio clips from people who have experience of living with specific respiratory diseases 7
  8. 8. Neurological Conditions Neurological Conditions Neurological conditions is a group term for specific diseases that effect the brain and nervous system and includes Parkinson’s Disease, Muscular Dystrophy, Multiple Sclerosis, Progressive Supranuclear Palsy, Huntington’s Disease and Epilepsy. Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can also ask your pharmacist or other health professionals involved in your care. Further information is here and here. Rehabilitation/Ongoing Management Epilepsy: There is an epilepsy nurse specialist working both at Derby Hospitals NHS Foundation Trust and in the community providing advice and support to people with this condition Multiple Sclerosis: Investigations for Multiple Sclerosis will be undertaken at Derby Hospitals NHS Foundation Trust you will be seen in medical outpatients where the results will be discussed. Follow up care will be managed by the Rehab Medicine team which includes specialist nurse and occupational therapy input. Your GP will be involved in ongoing management of the condition. Motor Neurone Disease: Derby Hospitals NHS Foundation Trust have a Medical Rehab Team with specialist nurse and occupational therapy input to assist with rehabilitation as have Nottingham University Hospitals NHS Trust. GP’s will be involved in the ongoing management of the condition. For many conditions such as acquired brain injury, non-acquired brain injury and Parkinson’s disease therapy teams working at Derby Hospitals NHS Foundation Trust will be involved in the rehabilitation element of care. They will liaise with community care teams/GPs in order to provide long term ongoing management. Other Support and Help Here are other places where you can access support, help and general advice:- PALS - Patient Advice and Liaison Service IPP – Information for Patients and Public The Expert Patient Programme NHS Choices has a number of short video/audio clips from people who have experience of living with specific neurological conditions Disease specific information can be found on associated websites such as Motor Neurone Disease, Multiple Sclerosis and Muscular Dystrophy. Support Groups Information for Patients and Public has a list of support groups for specific neurological conditions if you click on the disease area you want further details including contact telephone numbers will be displayed and can be found here. 8
  9. 9. Diabetes Diabetes Diabetes is a long-term (chronic) condition caused by too much glucose (sugar) in the blood. It is also sometimes known as diabetes mellitus. Diabetes affects two million people in England and Wales. It is also thought that there are a further 750,000 people who have the condition but are unaware of it. Type 1 and Type 2 are the most common forms. The causes of both types are different, but both result in too much glucose (sugar) in the blood. Type 1 diabetes is caused by the body's failure to produce insulin. Insulin is a hormone released by the pancreas to help control levels of sugar in the blood. It's sometimes called juvenile diabetes or early-onset diabetes because it usually appears before the age of 40. Further information can be found here. Type 2 diabetes is caused by the body not producing enough insulin or not using what it produces effectively. It's the most common form and accounts for around 90% of all diabetes. Further information can be found here. Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can also ask your pharmacist or other health professionals involved in your care. Further information here and here. Rehabilitation/Ongoing Management People with Type 1 Diabetes (for longer than 1 year) may be offered a structured education programme called DAFNE (this excludes children and adolescents at this time) People diagnosed with Type 2 Diabetes are offered a specifically structured education programme – either Diabetes and You or APNEE (this is a specifically designed programme to meet the needs of the Asian population). Specialist nurses within the community offer nurse led clinics held in for example local Health Centres, home visits for people who are housebound, telephone advice and support. Whilst within the General Practice team there is often a practice nurse with an interest/increased knowledge in Diabetes. Screening for some possible complications of Diabetes will be undertaken, these include an annual eye and foot check. 9
  10. 10. Diabetes - Continued Other Support and Help Here are other places where you can access support, help and general advice: PALS - Patient Advice and Liaison Service IPP – Information for Patients and Public The Expert Patient Programme NHS Choices has a number of short video/audio clips from people who have experience of living with Diabetes http://www.nhs.uk/video/Pages/medialibrary.aspx?Tag=Long-term+conditions&Page=3 Diabetes UK also have stories from people sharing their personal experience of living with diabetes these can be found at http://www.diabetes.org.uk/Guide-to-diabetes/Your-stories/ Support Groups – Information for Patients and Public has a list of support groups for Diabetes including contact telephone numbers and can be found at http://www.derbyshire.nhs.uk/ipp/derby/recordlist.asp?main_code=14&main_label=Support %20groups&sub_code=30&sub_label=Diabetes 10
  11. 11. Musculo-Skeletal Conditions Musculo- Skeletal Conditions Is a term used to describe a number of painful conditions of muscle, joints and bone including arthritis, and osteoporosis. Further information about musculo-skeletal conditions can be found here where links can be found to information relating to specific disease areas such as those noted above. Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can ask your pharmacist or other health professionals involved in your care. Further information here and here. Rehabilitation/Ongoing Management Many musculo-skeletal conditions are managed within the community by GP’s and nursing staff. However there are occasions and particular points in the disease process where additional care is needed. It is at these times when you may be referred on to a specialist service such as a consultant within the local hospital, physiotherapist or occupational therapist. Other Support and Help PALS - Patient Advice and Liaison Service IPP – Information for Patients and Public The Expert Patient Programme The National Osteoporosis Society and the Arthritis Research Campaign NHS Choices has a number of short video/audio clips from people who have experience of living with specific musculo-skeletal conditions if you go to the following web address and select muscle, joints and bone the options will be displayed for you to choose from. http://www.nhs.uk/video/Pages/medialibrary.aspx?Tag=Long-term+conditions contains list of useful telephone numbers including Derby social services provision, available equipment etc is included on page 2 of this document. 11
  12. 12. Chronic Kidney Disease Chronic Kidney Disease Chronic kidney disease, also known as chronic kidney failure, is a long-lasting and irreversible condition that is caused by damage to the kidneys. Chronic kidney disease is a serious condition because our kidneys carry out several important functions within the body, such as filtering waste products from the blood and regulating blood flow. Information about the causes of kidney disease can be found here. Sometimes kidney disease cannot be stopped and the kidneys lose almost all functioning capability. This is known as established renal failure (ERF) or end-stage kidney disease. People with ERF require either dialysis (a procedure where the blood is artificially filtered by a machine) or a kidney transplant. Further information here. Medication The health professional prescribing your medication will be able to give you information about why it is needed and you can also ask your pharmacist or other health professionals involved in your care. Further information here and here. Rehabilitation/Ongoing Management The primary aims of rehabilitation and ongoing management, in the early stages of this condition, are to slow down and/or prevent further kidney damage. At this point management is most likely to be undertaken by your GP. If the disease progresses there will be a stage at which it is more appropriate to have a shared care approach between your GP and a Kidney Specialist. For some people care/management of the chronic kidney disease will become more hospital based with the inclusion of a multi- disciplinary team who will liaise with the appropriate GP/community team More information about the Stages of Chronic Kidney Disease is available here. Other Support and Help PALS - Patient Advice and Liaison Service IPP – Information for Patients and Public NHS Choices has a number of short video/audio clips from people who have experience of kidney disease The British Renal Society also provide information including care plans, DVDs and so on at as does NHS Kidney Care A list of useful telephone numbers including Derby social services provision, available equipment etc is included on page 2 of this document. 12
  13. 13. What is an information prescription? Patients and carers have said that they want to know how to find information they can trust and rely on. Information prescriptions are being developed as a quick and easy way to provide this information about specific long term conditions and local services. They will be broken down into three distinct areas containing associated information sources - when you are diagnosed, about your condition and living with your condition These information prescriptions bring together and build upon the wealth of information sources already available through NHS Choices http://www.nhs.uk/Pages/homepage.aspx to make it easier for you to find the information you need. 13

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