Impact of a patient information website - how, where, what ...
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Impact of a patient information website - how, where, what ... Presentation Transcript

  • 1. Impact of a patient information website - how, where, what and why Peter Rutherford, Paul Forte, Tom Bowen, Rory Matthews and Alex Morrison University of Wales College of Medicine, Wrexham and Cognitive Applications, Brighton, UK
  • 2. Introduction
    • Delivery of high quality information to patients with chronic diseases can lead to:
      • improved compliance/concordance
      • improved quality of life
    • Internet based technology offers an additional resource with some clear advantages:
      • renewable resource
      • potential for interaction
      • accessible at all times
  • 3. Kidney disease
    • Progressive, debilitating, need for dialysis and reduced life expectancy
    • Patients are expected to retain much information and make decisions
    • Information can be very effective at improving quality of life and concordance
  • 4. Aims of the project
    • To develop an interactive kidney patient information web site
    • To perform an internet-based and Renal Unit based survey of the site
  • 5. Basic principles
    • A project team was established (see poster for details of approach)
    • Patients led the process to determine the style, colours, language and content of the site.
    • Uses animations, patient experiences and includes a bulletin board facility
    • Site = www.kidneypatientguide.org.uk
  • 6. Internet Survey
    • An internet-based survey was performed of over 1000 individual visitors by Virtual Surveys.
    • Results are presented in comparison to an average of other sites surveyed by Virtual Surveys - UK-based financial and commercial sites.
  • 7. COUNTRY Base : 970 (all answering)
  • 8. RELATIONSHIP WITH KIDNEY DISEASE Base : 887 (all answering)
  • 9. TREATMENTS USED (Patients)
  • 10. TREATMENTS USED : UK V USA/CANADA
  • 11. LEVEL OF KNOWLEDGE REGARDING KIDNEY DISEASE Base : 995 (all answering)
  • 12. AGE Base : 882 (all answering)
  • 13. SEX Base : 931 (all answering)
  • 14. HOW HEARD ABOUT WEB SITE: UK vs USA Base : 1032 (all answering)
  • 15. MAIN REASONS FOR VISITING WEB SITE Base : 1010 (all answering)
  • 16. OTHER SOURCES OF INFORMATION Base : 978 (all answering)
  • 17. OVERALL OPINION OF WEB SITE
  • 18. HOW SITE COMPARED WITH OTHER KIDNEY DISEASE WEB SITES
  • 19. Internet-based information in nephrology
    • Telephone survey amongst UK renal units and patients undertaken by BMRB
    • Telephone interview with patients and staff
    • Sample
      • 147 patients
      • 26 staff
  • 20. Patient sample
  • 21. Patients perception regarding information
  • 22. Information sources for patients
  • 23. Information sources for staff
  • 24. Patients view of internet based information sites
  • 25. Problems raised by patients
    • Majority had access to the internet at home or via a friend or family member
    • Minority had used it to access health information web sites
    • Most felt it would be good to do so
    • The hospital offers a potential route for internet access
  • 26. Conclusions
    • High quality information web sites can be created to give information to patients with chronic disease
    • An internet based survey demonstrated who was looking for information, where from and why.
    • A survey of UK renal patients demonstrated practical issues - there is a desire to look for information but limitations in terms of internet access
  • 27. Finally
    • There are problems
      • Time
      • Bulletin Board problems
    • Contact
      • [email_address]
      • [email_address]