**NOTE to Facilitator: The bolded text is the most important information to cover if you have limited time. Please tailor your comments based on the audience. FACILITATOR: Welcome participants to the training. Thank them for their time and dedication to serving others.
Read our mission. Emphasis on italicized text. While we are working to prevent cancer and increase survivorship. We are also here to support those who have been touched by cancer. The American Cancer Society is:Nationwide voluntary health organization since 1913Volunteer-driven, with more than three million volunteersSupports research, cancer prevention and early detection, patient services, and advocacyOur mission exists to eliminate cancerThe American Cancer Society Helps People:Stay WellGet WellFind CuresFight Back
Cancer is not just one disease, it is more than 100 different diseases. But they are all characterized by uncontrolled growth and spread of abnormal cells in the body.Cancer can be caused by external factors such as tobacco, chemical exposure, or radiation) or internal factors such as hormones or genetics.
Cancers that can be prevented or detected early by screening account for at least half of all new cancer cases! So we have a great opportunity to save lives from cancer by taking steps to protect ourselves and getting appropriate screening tests.Regular use of some established screening tests can prevent the development of cancer through identification and removal or treatment of premalignant abnormalities; screening tests can also improve survival and decrease mortality by detecting cancer at an early stage when treatment is more effective.
ACS estimates that in 2010 about 171,000 cancer deaths were expected to be caused by tobacco use. 87% of lung cancer deaths are caused by tobacco use and tobacco use can also be attributed to 30% of all cancer deaths.
That means over 189,830 deaths could be prevented in 2010 alone!
Although genetic inheritance plays a role for some individuals in the risk of developing cancer, modifiable behaviors have a larger impact on cancer risk for the population as a whole. CFF 2008
Breast Cancer is the most commonly diagnosed cancer in women.
Incidence rates of cervical cancer have decreased steadily over the past several decades. The FDA approved Gardasil, the first vaccine developed to prevent the most common HPV infections that cause cervical cancers for use in females aged 9-26.
Screening for colon cancer can actually prevent colon cancer! During a screening test, precancerous growths, or polyps, can be removed before they become cancer. Your health care provider can help you determine which test is right for you. If you have family history of colon cancer, tell your doctor, because you may need to start testing earlier.
The American Cancer Society is empowering people to fight back against cancer in communities across the nation. We create venues for individuals to fight back against cancer through special events such as Relay For Life® and Making Strides Against Breast Cancer. We ensure lawmakers hear passionate cancer survivors’ voices through activities such as Celebration on the Hill and other advocacy efforts. We provide volunteer opportunities to mobilize communities and address the cancer issue at a community level.
The American Cancer Society is saving lives in every community. We are researching new ways to treat and detect cancer, and we have played a role in almost every major cancer research breakthrough for the last several decades. We are educating people on how to prevent cancer and detect it at its earliest, most treatable stage. We are advocating for smoke-free communities and federal, state, and local policies that boost research funding and extend lifesaving cancer screenings and treatments to those who need them most. We also save lives by conducting clinical research. The American Cancer Society’s research program began in 1946. Its aim is to determine the causes of cancer and to support efforts to prevent, detect, and cure the disease. The Society is the largest source of private, nonprofit cancer research funds in the United States, second only to the federal government in dollars invested.
**Note to Facilitator: This is an introduction slide to the Information, Day to Day Help and Emotional Support subject theme slidesWhether a patient is recently been diagnosed, are currently going through treatment, or are caring for a loved one with cancer, the American Cancer Society is here with information, day-to-day help, and emotional support every step of the way. We are available 24/7/365 days a year at 1.800.227.2345 or www.cancer.org.AMERICAN CANCER SOCIETY VIDEOS**NOTE to Facilitator: Video you tube addresses are provided on slide 13 (below), 17 (Road), 22 (Reach), and 23 (LGFB). Please use as appropriate and as time permits. Only use 1-2 videos, if there is the appropriate equipment available. Pick the 1-2 that seem the best fit for the patients in a specific facility. Show the videos following the presentation of CRN slides 7 – 10 or interweave the video(s) into the presentation of the appropriate content slide (i.e. Day-to-Day Help). If there is not a projector & speakers available, do not attempt to play the videos for a group of people over your laptop as the visual and audio quality will not be good. Please download these videos prior to presenting if you will not have internet access.Cancer Resource Network VideoThis video highlights 24/7 emotional support 1-800#Connection to local cancer support groupsHope Lodge4 ½ minute video: http://www.youtube.com/watch?v=TNFZSNSXiJM&feature=youtube
When cancer survivors and their families need to know that they are not facing this experience alone, they can turn to the Cancer Survivors Network. This online community connects them with other people touched by cancer who can provide insight, support, and friendship.
When a cancer diagnosis causes feelings of fear, frustration, and confusion, I Can Cope - Online provides patients and their families with an online interactive learning program that offers a quick, easy way to learn important facts and practical tips about cancer and related issues. There is never any charge to participate, and learners set their own pace—whenever and wherever is most convenient for them.Learners can stop when they need to, come back later, and pick up where they left off. Run through basic information quickly or go slowly, stop to watch videos, or follow links to more detailed information when they like. It is also easy to skip around to the sections that are the most interesting or pertinent at the moment. Topics include:Understanding Cancer TreatmentsFinding and Paying for TreatmentManaging the Effects of Illness and TreatmentCommunicating Concerns and FeelingsNutrition During TreatmentMobilizing Resources and SupportManaging Cancer-related FatigueKeeping Well in Mind, Body, and Spirit
The Patient Navigators Program places trained American Cancer Society staff members called “patient navigators” on-site in local healthcare facilities to help those affected by the disease navigate their cancer experience. The patient navigators offer high-quality, timely, and understandable cancer-related information. They may also provide referrals to Society programs and services as well as community resources that can help with common concerns associated with cancer, such as finances, housing, and transportation.
Transportation is a formidable barrier to many cancer patients ability to access treatment.Simply put, without a way to get to treatment, a cancer diagnosis is a death sentence.The American Cancer Society is committed to eliminating this major obstacle to treatment by matching patients with volunteers who are able to provide a ride to their lifesaving treatment. Road to Recovery Video3 minute 40 seconds: http://www.youtube.com/watch?v=ksP26dtHDW0In 2012, the Midwest Division’s Road to Recovery volunteers provided 8485 rides to and from treatment. Note: Data based on FY12 MWD Report. This number signifies “one-way” ridesAdditional low cost or free Transportation resources and services can be accessed by contacting the Society’s Cancer Resource Network at 1-800-ACS-2345.Stories about DAY-TO-DAY HELP:#1A patient facing financial obstacles was connected to the American Cancer Society. She shared that she was most likely going to give up her fight against cancer because she couldn't afford, nor get to, her treatments. She sounded very resigned and depressed. One of our trained staff talked with her at length, going over the various forms of financial assistance that might be available to her and was able to find volunteer drivers to take her to and from her treatments. She was so extremely relieved to hear of the various forms of programs and services available to her, especially the volunteer drivers. Where she had been emotionally broken down and crying from sadness early in the conversation, she then cried from relief and happiness later in call. By the end of the conversation, the patient was no longer talking of dying from cancer, but rather, talked of her determination to beat the disease.#2 Patient quoteI want to read you a quote from a patient how Road to Recovery has helped her to battle cancer and improve access to health care.“When I was recovering after surgery, I received a lot of literature from the American Cancer society and I got to reading about the Road to Recovery program and I thought I'm going to phone them and ask them if they could give me a ride because I don't drive in this country. Without their help I don't think I would be standing here and talking about it.” #3 Road to Recovery Driver quotesRoad to Recovery helps patients through the generosity of volunteers who understand the impact of cancer and the importance of access to consistent treatment. Our drivers make a difference with every ride.Here are some quotes from volunteer Road to Recovery Drivers:Cindy: “I think RTR is a program that has made patients prosper ...its not only the physical but also the emotional and when you have the opportunity to have what we call a door to door service, where a stranger is taking out of their time, volunteering their vehicle, their gas, and they are willing to do that for someone they don't even know, the patients are almost overwhelmed with the emotional end of it.” Buddy: “Being touched by cancer in our family, myself personally and her father... and so we wanted to see if we could be a part of affecting their lives in some respect and its a good feeling to know that you have helped someone get the treatment they so desperately need. ...that may not have otherwise gotten if they didn't have a ride.” Judy:“All of us have been touched by cancer in one way or another, either through family or through neighbors. If we don't drive them they can't get to treatment. They give you such gratitude every time you pick them up It's ""I'm so glad you could take me, I don't know how I would get there."" So its made a big impact on the patients and I think its made a big impact on me driving them. Its just, I think I've told people its just a feel good; you can't describe exactly how you feel for doing it...its just wonderful.”
Sometimes cancer patients and their caregivers must travel to obtain their lifesaving treatment. The American Cancer society is there for them. The American Cancer Society actively supports two methods of providing FREE LODGING options for patients. Cancer patients from every county across our division take advantage of our lodging program:HOPE LODGEIn 2012, the American Cancer Society provided nearly 45,000 nights of free lodging through its Hope Lodge program in the Midwest Division. This saved those cancer patients more than $5,370,080.Hope Lodge statistics: Rochester: 19,734 nights of lodging saving cancer patients $2,368,080 (based on $120/night)Marshfield: 5,567 nights of lodging saving cancer patients $556,700 (based on $100/night)Twin Cities: 10,341 nights of lodging saving cancer patients $1,447,740 (based on $140/night)Iowa City Hope Lodge: 9,087 nights of lodging saving cancer patients $999,570 (based on $110/night)HOPE LODGE is a free “Home Away from Home” FREE Lodging option provided by the American Cancer SocietyThere are 31 Hope Lodge Locations throughout the United States. The Midwest Division has 4 Hope Lodge sites in Minnesota: Rochester (60 rooms) and Twin Cities (40 rooms)Iowa: Iowa City (28 rooms)Wisconsin: Marshfield (22 rooms)www.cancer.org/hopelodgeTo qualify to stay at Hope Lodge patients must Be commuting to cancer treatment or cancer diagnosis appointmentsLive more than 40 miles or 1 hour (travel distance) from the treatment clinicFREE HOTEL LODGINGIn addition to these 4 Hope Lodges, the Society has Collaborative Agreements for FREE HOTEL LODGING with approximately 100 participating Hotels throughout the 4 state area.Through strong partnerships with our hotel partners and dedicated American Cancer Society volunteers and staff we recently increased by 50% the number of hotel rooms booked for cancer patients across our four states. Our hotel lodging program helps to reduce or eliminate a cancer patient’s long commute to obtain lifesaving treatment. Hotel Stays: In 2012 patients received 2602 nights of free hotel lodging saving cancer patients $364,280 (based upon $140.00/night). To qualified to receive FREE Hotel Lodging at participating hotels, patients mustBe commuting to cancer treatment or cancer diagnosis appointmentsLive more than 50 miles from the treatment clinicHope Lodge StoryA patient caregiver shared the following story after his first day at Hope Lodge:The patient had come to the University of Minnesota for a specialist appointment as his wife had recently begun to experience some concerning health symptoms. The appointment resulted in diagnosis of an aggressive form of cancer. His wife was admitted and began intensive treatment immediately while he remained by her side, returning to their hotel room only to shower and shave. After a week, a nurse found him sitting with back arched, elbows on his knees, and face in his hands. He was shaking and it was clear he was crying. She approached and asked if there was anything she could do to help. The man looked up and forced a painful smile as he said, “Thank you for your concern. There’s nothing. It is just that we were only planning on attending a brief appointment with a specialist and then returning home. We had not idea this would happen. I just don’t know what to do. We can’t afford the hotel anymore. And we can’t afford to drive back and forth every day.” Then the nurse told him about Hope Lodge where he and his wife could stay. It was free, clean, comfortable, and close to the hospital. The man’s face turned from disbelief, to relief, and then hope settled in. That afternoon they checked in at Hope Lodge where he and his wife were both able to rest between treatments. He shared that the most incredible thing about Hope Lodge was the all encompassing support he experienced. Financial, emotional, spiritual, and mental. “Hope Lodge is a Safe Haven in a horrible storm.”A patient caregiver who stayed at one of our Hope Lodges had this to say at the end of their stay: Quote:“We haven't found the right words to express how wonderful Hope Lodge has been to us - it's more of a feeling! It's a home away from home, a safety net, an understanding from everyone as we are all going thru similar situations whether it be the persons with cancer or the caregiver. We have learned so much from the other residents - how to keep a sense of humor, how to boost one another up, how to accept what is happening to us and that prayer is one of the most important things to do!!”Hope Lodge exists to eliminate the lodging and travel expense barrier to treatment for cancer patients who live more than 40 miles from their treatment center. Many patients could not continue their treatment without this help. But Hope Lodge provides much more than financial help alone. Countless guests voice that Hope Lodge is both a “home away from home” and a place where lifelong friendships are made. Hope Lodge guests serve one another as a vital emotional and spiritual support network.
When a woman first learns she has breast cancer, she may feel overwhelmed, vulnerable, and alone. But a visit from a Reach to Recovery volunteer allows her to express her feelings, ask questions, and bolster courage – because every volunteer is a breast cancer survivor herself.We recently underwent a nationwide evaluation of this program. The evaluation results indicated that Reach is a very effective program for enhancing the quality of life of newly diagnosed cancer patients. Reach has a positive impact on patient’s overall ability to cope with the disease. Reach visitors are able to provide patients with valuable support in the emotional process of choosing and enduring treatment as well as longer term survivorship issues. The vast majority of the patients are very satisfied with the program.Currently we are investing evidence based strategies to enhance and improve the program. We seek to increase program awareness among patient through health care promotion and community based promotion. In our efforts to increase our services to patients experiencing health disparities, we are also concentrating efforts to recruit a wider range of diverse representation in our volunteers so as to provide a broader wealth of matching criteria in our Reach volunteer pool. Reach to Recovery Video5 minute video: http://www.youtube.com/watch?v=33i-ImD37Vs
When the side effects of cancer treatment lower a woman’s self-image, a free consultation with a Look Good…Feel Better beauty consultant can give her the tools she needs to remember that she is still beautiful – no matter what changes her body is experiencing. Consultants provide expertise on skin care to help combat the effects on appearance resulting from cancer treatments such as chemotherapy and radiation. A free makeup kit is given to the women as a gift for participation. But this class is far more than a beauty class. Look Good… Feel Better provides a safe place and haven for women to relax and share with other women battling cancer. The ingredients of peer support, networking, tears, laughter, and bonding make this class a life changing experience for the women who attend.Look Good… Feel Better Video 6 minute video: http://www.youtube.com/watch?v=j-xQ2aBbEIw
American Cancer Society
Cancer Resource Network
Connecting Cancer Patients to
Information and Resources
Amy Peters, M.S.
February 28, 2014
American Cancer Society Mission
The American Cancer Society is the nationwide
community-based voluntary health organization
dedicated to eliminating cancer as a major health
problem by preventing cancer, saving lives and
diminishing suffering from cancer, through
research, education, advocacy and service.
What We Do – Save Lives
Helping people stay well
By educating them on steps they can take to
prevent cancer and find it early
Helping people get well
By providing accurate and timely
informational, emotional, and practical support
Funding cancer research
To further understand its causes, determine how
best to prevent it, and discover new ways to cure
Encouraging federal and state lawmakers to fight
By continuing government funding of cancer
research, creating smoke-free communities, and
What is cancer?
Cancer is a group of
diseases characterized by
uncontrolled growth and
spread of abnormal cells.
Cancer can be caused by
both external factors and
Cancers that can be
prevented or detected
early by screening
account for at least half
of all new cancer cases.
Cancer Facts & Figures 2009
Prevention & Early Detection
All cancers caused by cigarette
smoking and heavy use of
alcohol could be prevented
Prevention & Early Detection
Scientific evidence suggests that
about one-third of the cancer
deaths expected to occur in 2010
will be related to overweight or
obesity, physical inactivity
Cancer Facts & Figures 2010
Prevention & Detection
While you can’t change your
genetics, there are many things you
can do to lower your risk for
Cancer Risk Factors
Five lifesaving things you can do:
1. Don’t use tobacco
2. Maintain a healthy weight and adopt a
physically active lifestyle
3. Consume a healthy diet with an emphasis on
fruits and vegetables
4. Protect yourself from the sun
5. Get recommended screening tests
Reduce Your Risk
Cancer Early Detection
Develop a good relationship with your physician.
Be open and honest in your discussions.
He/she can educate you on early detection tests
and screening tests.
Bring a list of things you would like to discuss
with your physician.
Be empowered to ask for what screenings you
need. Don’t always wait for your provider to
bring it up.
Example: “What early detection tests should I
consider? How often should I have them done?”
Women at average risk should begin annual
mammograms at age 40.
Clinical breast exams should be part of a
periodic health exam – every 3 years for
women in their 20s and 30s and every year for
women 40 and older.
Women should know how their breasts
normally feel so they can promptly report
any changes to their physician.
Women at increased risk (family history,
genetic tendency or past breast cancer) should
talk with their physician about their options.
Screening should begin approximately 3 years
after a woman begins to have vaginal intercourse,
but no later than 21 years of age.
Cervical screening should be done every year with
regular Pap tests or every two years using
liquid-based Pap tests. At or after age 30, women
who have had three normal test results in a row
may get screened every two to three years. But a
physician may suggest getting the test more often
if a woman has certain risk factors such as human
immunodeficiency virus (HIV) infection or a
weakened immune system.
Women 70 years of age and older who have had
three or more normal Pap test results and no
abnormal results in the last 10 years may choose
to stop cervical cancer screening.
Beginning at age 50, men and women of average
risk should follow one of these screening options:
Tests that detect polyps and cancer:
Flexible sigmoidoscopy every 5 years
Colonoscopy every 10 years
Double contrast barium enema every 5 years
Computed Tomographic (CT) colonography every
Tests that primarily detect cancer:
A guaiac-based fecal occult blood test (gFOBT)
or fecal immunochemical test (FIT) every year
Stool DNA test (interval uncertain)
The American Cancer Society recommends
that men discuss the potential benefits and
limitations of prostate cancer early
detection testing with their health care
provider beginning at age 50
Men at high risk should have this
conversation at age 45. Men at high risk
include African-Americans and men who
have a close relative
(father, brother, or son)who had prostate
cancer before age 65.
Relay for Life
Against Breast Cancer
Cancer Resource Network
The American Cancer Society is available 24 hours a
day, 7 days a week, to help guide you through every step
of a cancer experience.
Referral for day-to-day questions such as
financial, insurance, transportation, and lodging.
Connection to others who have been there for
Easy to understand information to help you make
decisions about your care.
How can ACS help?
Phone help: 1-800-227-2345
On the internet: www.cancer.org
Clinical Trials Matching Service
Tools to help with treatment decisions
Cancer Education Classes
I Can Cope
How can ACS help?
Finding lodging and transportation
Financial and insurance questions
Prescription drug assistance
Patient Navigation Program
•On-Site in Healthcare
Facilities to Provide
• Community Resources
Road to Recovery
Road to Recovery is an American Cancer Society service
program with a mission to improve the quality of life for
patients undergoing cancer care by providing transportation
to their treatments and medical appointments and home
again. Transportation is provided according to the needs
and available resources in the community.
Rochester Twin Cities
How can ACS help?
Finding local support groups
Online community for cancer
patients and their families
Peer and Emotional Support Programs
Reach to Recovery