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  • 1. The National Lipid Association and the Polish Lipid Association A Model for Global CooperationChristopher R. Seymour,MBAExecutive DirectorWarsaw, PolandSeptember 9, 2011
  • 2. Chris Seymour Born in Chicago (Polish Section) Graduated Temple Univ. (Philadelphia)  Chemistry Naval Officer (Commander USN) Master of Business Administration (Jacksonville U) Executive Director  American Assoc. of Clinical Endocrinologists (1993- 1996)  National Lipid Association (1997- present)
  • 3. Family Name: SLYSZTown:PielniaProvince: PODKFormer Province: Krosno
  • 4. Persia Kenya Siberia• England• Canada• United States
  • 5. The National Lipid Association and the Polish Lipid Association A Model for Global CooperationChristopher R. Seymour,MBAExecutive DirectorWarsaw, PolandSeptember 9, 2011
  • 6. MissionThe mission of the National Lipid Association (NLA) is to enhance the practice of lipid management in clinical medicine.
  • 7. FOUNDING VALUESProfessionalism:The NLA will enhance medical knowledge, clinical skills, andrelated business activities that provide for more effective patientoutcomes. Promoting and sustaining the highest ethicalstandards will be an essential component of these activities.Public Service:The NLA will enhance efforts to reduce deathand disability related to disorders of lipid metabolism in patients.Multidisciplinary Approach:The NLA will strive to provide professional activities forthe disciplines which comprise the membership.
  • 8. FOUNDING VALUESCooperation:The NLA will be supportive of other organizations with commonpurposes and values and will seek active interactions with suchorganizations.Business Ethics:The NLA will promote its activities with the utmost respect toacceptable business practices, ensuring all interactions willbe undertaken in a responsible and ethical fashion.Continuous Growth and Development:The NLA will promote responsible outreach to all regionsof the country to make available the membership benefitsof the NLA in every community.
  • 9. Definition of Clinical LipidologyAdopted May 2006 Clinical Lipidology is a multidisciplinary branch of medicine focusing on lipid and lipoprotein metabolism and their associated disorders.
  • 10. Clinical Perspective
  • 11. Members
  • 12. Respondents by Specialty  About half of physician respondents are self-report as IMs or FPs  Nearly a third of the respondents are cardiologists (CARDS) 100% 80% % of Physicians 60% 50% 40% 32% 20% 11% 7% 0% IM/FP CARD ENDO Other (n=218) (n=138) (n=50) (n=30) Base: Physicians (n=436) Q3b Please describe your board certification: Cardiology, Endocrinology, Internal Medicine, Family Medicine, Other [specify]. Other includes Pediatrics, Lipidology/Clinical Lipidology, Medical Biochem, and Nephrology.13
  • 13. Distribution by Practice Profile* Lipid Clinic Lipid Specialist General Member * n=628 (29 respondents excluded because of undetermined addresses or international respondents)
  • 14. Frequency of Practice Services 100% 80% 69%% of Respondents 60% 59% 60% 41% 40% 24% 20% 10% 6% 6% 5% 1% 0% Diabetes management Nutrition/ Exercise Weight Managementtrial participation RehabLDLOther HTN/ Lipids Other Misc./ General Health**Teaching, Educational programs Clinical Cardiac Apheresis Diagnosis & Mgt.* Other Cardio Services*** Other *Includes: Lipid management, Hypertension/Anticoagulation Management, CIMT, HTN management, Advanced lipid/lipoprotein testing **Other miscellaneous mentions, Internal medicine, Lab, Sports medicine ***Non-Invasive Cardiology Diagnostics, General (e.g. Stress testing/(nuclear/echo), Cardiology services (general cardiology/non specific), Preventive Cardiology Services & Risk Assessment ((non-specific)), Interventional Cardiology ****Smoking cessation, Diabetes education, Teaching/education (non-specific), Med management/education (non-specific) Base: Physician/NP/PA/Pharm (n=594). Total is greater than 100% due to multiple responses. Q15 Please indicate which of the following services your practice provides: [check boxes], Clinical trial participation, Cardiac rehab, Diabetes management, Nutrition/exercise programs, Weight management, LDL apheresis, Other – please specify [fill in blank] 15
  • 15. Overview Slide
  • 16. Greatest Need forEducation/Awareness Lipid Clinici Lipid Specj Not Lipid Speck (n=155) (n=200) (n=282) Statin intolerance: evaluation and management 57% JK 39% 36% Strategies for improving patient compliance with therapy 52% Jk 37% 43% j (medication and/or diet/lifestyle) Metabolic syndrome 45% jk 37% 35% Genetic testing for FH 21% j 13% 18% j Lipoprotein particle # 34% 41% ik 33% Non-HDL 30% 26% 26% Apo B 30% 36% ik 30% Genetic markers, e.g., KIF6 27% 30% 25% Lp-PLA2 24% 33% I 31% I Familial hypercholesterolemeia screening and diagnosis 23% 18% 22% Lipoprotein particle size 19% 16% 23% J Lipid clinic practice management 17% 15% 24% iJ Lp(a) 15% 21% I 21% I HDL-C 14% 19% I 17% CRP 12% 16% 14% Triglycerides 11% 18% ik 12% Other apolipoproteins 8% 8% 9% APO E 6% 10% I 13% I LDL-C 3% 6% 10% Ij None of the above 1% 1% 1%Base: All Respondents (n=657)Q22-3. Of those listed, the 5 topics where you believe there is greatest need for increased awareness and/or education? (select 5) 20
  • 17. Activity Formats Delivered2007-2010 Types of Activities Offered (Total = 200) 6% Live Meetings & Courses 25% Internet 69% Print/SAPs
  • 18. Communicating the Message
  • 19. Communicating the Message@Lipid e-Newsbrief
  • 20. Communicating the MessageThe Lipid SpinNewsletter•Practice focused•Developed by Chapters•Editors:•Jamie Underberg, MD•Robert Wild, MD
  • 21. Communicating the MessageBroadcast MediaReach MD / Lipid Luminations  Satellite Radio  Podcasts are archived  Host – Dr. Alan Brown  Reaches 700,000 monthly listeners
  • 22. Foundation of the NLA Established December 2008 Goal to establish “outreach” for lipidology  Public Education about Lipidology  Extended Opportunities for Professional Education  Local effort to reach community based members and patients.
  • 23.  Foundation Grant Program  Research grants, medical education grants and community outreach grants. Public Education  100 Q & A About Cholesterol  Educational booklet for general public and patients National Campaign: Familial Hypercholesterolemia Fundraising Activities
  • 24. Sources Used to Learn About LipidManagementNEJM and JACC as most often used sources for LM information• Respondents cite JCL,• ~60% describe reading journals online; 45% use other (non-journal) online source Journal of Clinical Lipidology/Journal of Lipidology 45% NEJM 23% Lipid Spin 20% JACC 20% NLA 63% Circulation 16% AHA 21% JAMA 10% ACC 19% NLA 23% NEJM 13% 100% Heart.org 12% 88% 88% Medscape 12% Heart.org 17% Medscape 13% % of Respondents NLA 12% 80% UpToDate 11% NLA 27% 62% ReachMD 12% 60% Heart.org 10% 45% NLA 42% 40% Heart.org 9% 27% 20% 5% 1% 0% Reading journals Attending Reading journal Reading other on- Listening to or Reading or None of the above (printed versions) conferences websites or email line sources (not watching Pod-casts participating in on- updates journals) or other audio/video line chat rooms with lectures on-line peer clinicians Base: All respondents (n=657). Total is greater than 100% due to multiple responses. Top mentions noted in text boxes. Q23. Which sources do you use to learn about lipid management? Which ones? 30
  • 25. International RelationshipsBring together a core group of organizations with like international interests to share, cooperate and discuss;  Clinical application of science and research in clinical lipidology and cardiometabolic science.  Establishment of a framework of collaborative organizations dedicated to the field of clinical lipidology.  Improve the practice of Clinical Lipidology
  • 26. Cooperation ObjectivesOther Objectives Develop a cooperation/affilaition program that can be adopted by an organization within a country that would allow exchange of education programs. To reach a diversity of healthcare professionals interested in improving their knowledge and skills in managing patients with lipid disorders. Foster the examination of competency based on standardized curriculum.
  • 27. Policy (Professional and Public) Policy Development  Toseek international consensus on clinical guidelines and recommendations.  Toestablish unified messages for public , patients, and other audiences.
  • 28. Currently Offered  Participate in NLA Programs at member rate.  Journal (Electronic)  Lipid Spin (Electronic)  Meeting rates  Participate in Online Education/Community  Enhance and develop PoLA page at Lipid.org  Send reports and recommendations to the NLA Board through a recognized liaison.
  • 29. Short Term Goals Participate with NLA in establishment of recognized curriculum. Work on international consensus statements, guidelines and recommendations. Fellowship in the NLA (Award)
  • 30. Long Term Goals Establish routes to recognized certification as necessary. Form a global organization of Lipid Related Organizations Demonstrate enhanced patient outcomes and improvement on a global basis.
  • 31. NLA International Activity 2005 – Recognized as Component Society of IAS 2006 – Summit Program in Rome 2007 – Summit Program in Prague 2008- Venice IAS- Clinician Council Workgroup 2010 – Australia AAPSAVD-AAS Congress 2010 – Australia - Masters Course 2010 – India - Best of NLA 2010 2010 – Formal tie with International Cholesterol Federation 2011 –Conference with Polish Lipid Association (PoLA ) 2011 – India-Best of NLA 2011 2012 – Australia-Collaboration at the ISA 2012 Meeting
  • 32. Option to Join $35.00 per year
  • 33. CertificationAmerican Board of Clinical LipidologyThe American Board of Clinical Lipidology was established to encourage professional growth in the practice of Lipidology, and to enhance physician practice behavior to improve the quality of patient care.
  • 34. Certification The ABCL is an independent certifying organization offering the only certification program for physicians specializing in Clinical Lipidology. Since offering its first exam in 2005, 700 physicians have earned the distinction of “Diplomate of the ABCL.”
  • 35. Training Requirements
  • 36. Certification Established in 2006, the Accreditation Council in Clinical Lipidology is an independent certifying organization that has developed standards and an exam for allied health practice providers in lipidology. Two exams are offered.  Advanced Exam: The ACCL award certification as a "Clinical Lipid Specialist” to successful candidates (125 CLS)  Basic Exam The BCCL is a basic exam and certification available to professionals and industry (199 plus 90 pending)
  • 37. Exam Content ABCL vs. ACCL* ABCL (physician exam) ACCL (*CLS Allied health exam) 24% Molecular lipidology  22% Pharmacological Therapy 18% Pharmacologic therapy  18% Nutrition and Non- 14% Nutrition and non- pharmacological Therapy pharmacologic therapy  10% Clinical Trials 14% Risk assessment and NCEP  10% Metabolic Syndrome Guidelines  10% Risk Assessment and NCEP 10% Lipoprotein metabolism Guidelines 10% Epidemiology and clinical trials  10% Lipoprotein Metabolism 10% Metabolic syndrome  5% Genetic Disorders  5% Vascular Biology  5% Special Populations (ethnicity, pediatrics, geriatrics, HIV, etc.)  5% Behavior and Compliance
  • 38. Issues the NLA Is Facing Maintaining quality/relevance of our CME Meeting our diverse members’ needs Compliance with new laws and regulation Demonstrating outcomes Invigorating volunteer leadership Creating positive collaborations Promoting multidisciplinary care Funding / Independence from Industry
  • 39. cseymour@lipid.org www.lipid.org Phone: 904.998.0854 Dziekuje