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Glioblastoma case study - age 59 - Belgian
Oct Nov Dec Jan Feb Mar Apr May
Resection (left)
Former French teacher. He created one of the biggest Belgian non-profits to help children speaking French &
English while on holiday, and having fun doing so!
In his spare time heโ€™s a Glioblastoma patient (in left & right hemisphere)
TMZ 150mg + Radiation
Methadone
TMZ 60 mg
Cannabis oil (THC)
Immuno (virustherapy)
Boswellia + supplements
Avastin
Our message to other patients: Go for the cocktail approach!
Monotherapy cocktail
Acupuncture & Tui-na
2015 2016
This is only one case. We donโ€™t have the magic recipe.
But this is what we have learned so far
Do resection if possible. And do it in a specialized hospital.
Go for a healthy lifestyle: food - sports - positive mindset. You can beat this
Join glioblastoma Facebook groups. Learn from others
Test for ALL relevant markers (MGMT, BGJ, ABT-414). Do this at the start, no time to lose, know your options
Store tumor tissue after the resection. Can be used for immune therapies
Part 1: Discovery
Part 2: Follow up treatment
Radiation: not fully convinced. I and many other patients suffered from A LOT of damage
If you take Temodar (TMZ) - do search for other medication that amplifies its effect (we used Methadon)
Go for the cocktail approach from the start. Watch out not to exclude yourself from clinical trials
Contact info
Our family: pjmuller@gmail.com
Immunotherapy we take (+- โ‚ฌ30.000): Cologne - IOZK
Methadone (+-โ‚ฌ2/month): Claudia Friessen - Ulm (best to call: +49 731 500 650 81 )
THC (โ‚ฌ1/mg, โ‚ฌ30/month): Medical charity only ships in Netherlands - Contact me
Resources
1h30 documentary by 21 year glioblastoma survivor
Facebook groups: [1], [2], [3] and many others
Other options we find interesting
Ketogenic diet
Immunotherapy: Poliovirus - Nivolumab - Ipilimumab
Perillyl alcohol (via vaporizer)
Ben Williams supplement regime
Connection to CMV / Lyme infections
Options we find less interesting
Optune / NovoTTF
pro โ†’ you โ€˜onlyโ€™ win 3 months | con โ†’ $$$$$, life quality โ†˜ (invasive)

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Glioblastoma: go for the cocktail approach!

  • 1. Glioblastoma case study - age 59 - Belgian Oct Nov Dec Jan Feb Mar Apr May Resection (left) Former French teacher. He created one of the biggest Belgian non-profits to help children speaking French & English while on holiday, and having fun doing so! In his spare time heโ€™s a Glioblastoma patient (in left & right hemisphere) TMZ 150mg + Radiation Methadone TMZ 60 mg Cannabis oil (THC) Immuno (virustherapy) Boswellia + supplements Avastin Our message to other patients: Go for the cocktail approach! Monotherapy cocktail Acupuncture & Tui-na 2015 2016
  • 2. This is only one case. We donโ€™t have the magic recipe. But this is what we have learned so far Do resection if possible. And do it in a specialized hospital. Go for a healthy lifestyle: food - sports - positive mindset. You can beat this Join glioblastoma Facebook groups. Learn from others Test for ALL relevant markers (MGMT, BGJ, ABT-414). Do this at the start, no time to lose, know your options Store tumor tissue after the resection. Can be used for immune therapies Part 1: Discovery Part 2: Follow up treatment Radiation: not fully convinced. I and many other patients suffered from A LOT of damage If you take Temodar (TMZ) - do search for other medication that amplifies its effect (we used Methadon) Go for the cocktail approach from the start. Watch out not to exclude yourself from clinical trials
  • 3. Contact info Our family: pjmuller@gmail.com Immunotherapy we take (+- โ‚ฌ30.000): Cologne - IOZK Methadone (+-โ‚ฌ2/month): Claudia Friessen - Ulm (best to call: +49 731 500 650 81 ) THC (โ‚ฌ1/mg, โ‚ฌ30/month): Medical charity only ships in Netherlands - Contact me Resources 1h30 documentary by 21 year glioblastoma survivor Facebook groups: [1], [2], [3] and many others
  • 4. Other options we find interesting Ketogenic diet Immunotherapy: Poliovirus - Nivolumab - Ipilimumab Perillyl alcohol (via vaporizer) Ben Williams supplement regime Connection to CMV / Lyme infections Options we find less interesting Optune / NovoTTF pro โ†’ you โ€˜onlyโ€™ win 3 months | con โ†’ $$$$$, life quality โ†˜ (invasive)