This is only one case. We donโt have the magic recipe.
But this is what we have learned so far about fighting the most aggressive brain tumor there is
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Glioblastoma: go for the cocktail approach!
1. Glioblastoma case study - age 59 - Belgian
Oct Nov Dec Jan Feb Mar Apr May
Resection (left)
Former French teacher. He created one of the biggest Belgian non-profits to help children speaking French &
English while on holiday, and having fun doing so!
In his spare time heโs a Glioblastoma patient (in left & right hemisphere)
TMZ 150mg + Radiation
Methadone
TMZ 60 mg
Cannabis oil (THC)
Immuno (virustherapy)
Boswellia + supplements
Avastin
Our message to other patients: Go for the cocktail approach!
Monotherapy cocktail
Acupuncture & Tui-na
2015 2016
2. This is only one case. We donโt have the magic recipe.
But this is what we have learned so far
Do resection if possible. And do it in a specialized hospital.
Go for a healthy lifestyle: food - sports - positive mindset. You can beat this
Join glioblastoma Facebook groups. Learn from others
Test for ALL relevant markers (MGMT, BGJ, ABT-414). Do this at the start, no time to lose, know your options
Store tumor tissue after the resection. Can be used for immune therapies
Part 1: Discovery
Part 2: Follow up treatment
Radiation: not fully convinced. I and many other patients suffered from A LOT of damage
If you take Temodar (TMZ) - do search for other medication that amplifies its effect (we used Methadon)
Go for the cocktail approach from the start. Watch out not to exclude yourself from clinical trials
3. Contact info
Our family: pjmuller@gmail.com
Immunotherapy we take (+- โฌ30.000): Cologne - IOZK
Methadone (+-โฌ2/month): Claudia Friessen - Ulm (best to call: +49 731 500 650 81 )
THC (โฌ1/mg, โฌ30/month): Medical charity only ships in Netherlands - Contact me
Resources
1h30 documentary by 21 year glioblastoma survivor
Facebook groups: [1], [2], [3] and many others
4. Other options we find interesting
Ketogenic diet
Immunotherapy: Poliovirus - Nivolumab - Ipilimumab
Perillyl alcohol (via vaporizer)
Ben Williams supplement regime
Connection to CMV / Lyme infections
Options we find less interesting
Optune / NovoTTF
pro โ you โonlyโ win 3 months | con โ $$$$$, life quality โ (invasive)