Global Health Data Exchange<br />March 14, 2011<br />Peter Speyer<br />Director, Data Development<br />Launch of a global ...
It starts with data<br />2<br />Better health<br />Decisions<br />Evidence<br />Data<br />
Global health data landscape<br />Data sources<br />Data archives & repositories<br />Indicator databases<br />Internation...
The road to secondary data<br />Find out about relevant data<br />Different languages / multiple titles<br />‘Dynamic’ web...
A new resource<br />5<br />Data sources<br />Finding data<br />Datacatalog<br />Data archives & repositories<br />Getting ...
6<br />
7<br />
GHDx at IHME<br />“Our mission is to improve the health of the world’s populations by providing the best information on po...
Open data, open source<br />Open data<br />All data in the public domain<br />Open-source system: Drupal<br />Web content ...
Coverage<br />Health-related data that provideinformation about population health and its determinants<br />10<br />Survey...
Data catalog<br />Information about what datasets exist<br />Dataset records<br />Standardized English title<br />Original...
Data for download<br />Data in the public domain<br />High download speeds<br />Simple registrationto access<br />Easy to ...
Get higher impact for your data
Get credit via citation
Free!</li></li></ul><li>CDC and GHDx<br />March 14, 2011<br />Paul Stupp<br />Demographer, CDC<br />
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GHDx Launch

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Presentation for the launch of IHME's data catalog GHDx

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  • WelcomeThanks for coming, I’m sure you are all here because of the Global Health Data Exchange, not because there is food
  • Intro (refer to opening remarks?)For evidence-based improvements to global health, it all starts with dataGHME about making progress for people’s health with better measurement and evidenceWe are hearing about new, exciting methodsAll of this work requires data
  • If you are not collecting your own data, there are many, many data sourcesMany data sources in every country: range from int’l orgs to governments to commercial, academic and non-profit organizationsData repositories provide a central resource to get dataIndicator databases contain comparable indicators and references to source dataWorking with a lot of data sources at IHME: tedious task to find relevant and useful data
  • True for all kinds of data, not just health dataFinding out about relevant dataNavigating sites in different languagesWebsites change often (layout, hard to navigate) or are not availableMultiple titles of datasets, e.g. Azerbaijan DHS 2006 = MICS 2006, Niger 2006 same thingDates get mixed up (e.g. data collection vs. publication)Lots of data stuck in text and other documents (unstructured data)Getting access to the dataFinding a data providerGetting background on the data
  • Recap: many data sources, stony road to find &amp; get access to data:What we need is a resource that lists data from the different and provides the information needed during data search
  • Proof that the tool actually exists, Abby will provide the details
  • Primarily a catalogSecondary: platform for downloadFuture: community – made deliberate decision to exclude for first phase, launch the catalog and get feedback on what features would be most useful
  • Information on population includes information about information on population healthBesides the obvious need for this kind of tool, it fits particularly well with IHME’s mission
  • Open data: healthdata.gov, .gov.uk, .au; science commonsDrupal: Web CMS, Used by more and more organizations, including WhiteHouse.gov, Modular: point out current set up and possibilities for adding featuresSOLR: for Google-like search with additional powerful features
  • Providing information about data!!Focus for the immediate future:Added records: low-hanging fruit firstHave most large survey series like DHS, … 5000 surveyrecords, esp. other survey series1300 censuses waiting in existing recordsHave much more administrative data, esp. for health financing, need to be added (NHAs, budgets, ARs, etc.)Historical data (reports)Adding records systematicallyBUT: Can host ANY of those data for data providers (data or records to link back)
  • Primary function: data catalogDataset record provides information about a dataset, most are not available on the GHDxDiscuss how much work this is!!Citation: credit data producersStatus – recap that it’s data that EXIST, not necessarily in the GHDx
  • Share your data: happy to just have the record and point to you
  • GHDx Launch

    1. 1. Global Health Data Exchange<br />March 14, 2011<br />Peter Speyer<br />Director, Data Development<br />Launch of a global health data catalog<br />
    2. 2. It starts with data<br />2<br />Better health<br />Decisions<br />Evidence<br />Data<br />
    3. 3. Global health data landscape<br />Data sources<br />Data archives & repositories<br />Indicator databases<br />International organizations, survey programs<br />National CSOs, MoHs, Open Government<br />Sub-national Health Departments<br />Providers: health facilities, pharmacies<br />Health insurers<br />Funders & NGOs<br />Academic: studies, literature reviews, DSS<br />IPUMS: census<br />IHSN: surveys<br />ICPSR: social science<br />SodaPop: population <br />Dataverse: research archive<br />World Bank Open Data<br />WHO GHO<br />Gapminder<br />3<br />
    4. 4. The road to secondary data<br />Find out about relevant data<br />Different languages / multiple titles<br />‘Dynamic’ websites<br />Unstructured data<br />Get access to the data<br />Find data providers<br />Get permission<br />Get feedback on the data<br />4<br />
    5. 5. A new resource<br />5<br />Data sources<br />Finding data<br />Datacatalog<br />Data archives & repositories<br />Getting access to data<br />Indicator databases<br />Getting background on data<br />
    6. 6. 6<br />
    7. 7. 7<br />
    8. 8. GHDx at IHME<br />“Our mission is to improve the health of the world’s populations by providing the best information on population health.”<br />Planned since inception<br />Leveraging IHME’s data work<br />Managing internal data<br />8<br />
    9. 9. Open data, open source<br />Open data<br />All data in the public domain<br />Open-source system: Drupal<br />Web content management system<br />Modular<br />Open-source search: SOLR <br />Google-like<br />Powerful features<br />Sharing the platform: installations<br />9<br />
    10. 10. Coverage<br />Health-related data that provideinformation about population health and its determinants<br />10<br />Surveys and surveillance<br />Vital statistics<br />Censuses<br />Research results<br />Measurements & covariates<br />Registries<br />Patient health records<br />Administrative data<br />Databases<br />
    11. 11. Data catalog<br />Information about what datasets exist<br />Dataset records<br />Standardized English title<br />Original / alternative titles<br />Data provider<br />Suggested citation<br />Status<br />4,300 public records<br />5,800 more records to be published<br />11<br />
    12. 12. Data for download<br />Data in the public domain<br />High download speeds<br />Simple registrationto access<br />Easy to cite<br />12<br />Share your data!<br /><ul><li>Reach a different / broader audience
    13. 13. Get higher impact for your data
    14. 14. Get credit via citation
    15. 15. Free!</li></li></ul><li>CDC and GHDx<br />March 14, 2011<br />Paul Stupp<br />Demographer, CDC<br />
    16. 16. GHDx Demo<br />March 14, 2011<br />Abby Metcalf<br />Content Manager<br />
    17. 17. Use the GHDx<br />Search and browse data<br />Subscribe to blog and data feeds<br />Download data<br />Send us feedback and information about data<br />Share your data on the GHDx<br />15<br />Contact us!<br />speyer@uw.edu<br />abbyem@uw.edu<br />data@healthmetricsandevaluation.org<br />
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