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Integrating UX and evidence-based approaches to design effective youth mental health services

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A presentation given at UXNZ 13, on integrating user experience and participatory approaches with traditional evidence-based approaches to design mental health interventions for young people. …

A presentation given at UXNZ 13, on integrating user experience and participatory approaches with traditional evidence-based approaches to design mental health interventions for young people.

Presentation given in collaboration with @kittyrahilly and @mariesanicholas from the Inspire Foundation in Sydney, Australia.

See full abstract & audio of the presentation
http://uxnewzealand.co.nz/uxnz-2013/integrating-ux-evidence-based-approaches/
For more info see
More info http://www.smallfire.co.nz/2014/01/25/integrating-user-experience-and-evidence-based-approaches-to-design/

Published in: Design, Health & Medicine

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  • 1. Integrating UX and evidence-based approaches to design effective online youth mental health services with young people. @pennyhagen @kittyrahilly @mariesanicholas With much thanks to: Brain & Mind Research Institute Young and Well CRC Victoria Blake, Inspire Stephen McKernon And our co-designers
  • 2. What I am talking about today? User Experience Design Approach Evidence-based Design Approach Youth Mental Health
  • 3. In collaboration with: @mariesanicholas Senior Manager, UX Research and Service Design @kittyrahilly Manager, UX Research & Service Design
  • 4. The Inspire Foundation
  • 5. Inspire Foundation
  • 6. What we’ll cover
  • 7. Two approaches to design User Experience Design Approach Evidence-based Design Approach
  • 8. User experience design The design of a product or service that accounts for the needs, expectations, experiences and perspective of those who will use it, through collaboration with those users. IDENTIFY & DEFINE CONCEPT BUILD LAUNCH & EVALUATE Understand domain from a user perspective. Identify area of greatest opportunity. Develop and test a range of concepts with users. Identify strongest proposition. Build, test, iterate and evaluate with users against user goals. Launch. Potentially track usage and look to optimise.
  • 9. Evidence-based design. The design of an intervention on the basis of research data, past evaluations, health planning frameworks and theories of behaviour change. IDENTIFY PROBLEM DEFINE FOCUS AND APPROACH BUILD & TEST EVALUATE & PUBLISH Epidemiological analysis Review literature Build program logic Monitor outcomes Assess and select theory of change Evaluation framework tools Publish results Identify outcomes and impacts Build experiments Consult experts Review existing national policies and strategies Review for safety and ethics
  • 10. Why integrate? To achieve greater impact through interventions that are based on sound evidence and are also engaging for young people .
  • 11. Why integrate? Re-thinking clinical models and service delivery within an online, anonymous, self-service context. Ways to actively involve the young people who will use the service in the design of the service. A specific focus on the perspectives and experiences of the end-users of a service. Connecting the models and theories of evidence-based approaches with the lived experiences of the young people.
  • 12. How do we do it?
  • 13. 1. Translate the model Understanding how, when, where and in what way mental health issues can be broached with young people.
  • 14. 1. Translate the model From mental health to mental fitness, handling pressure, building confidence and taking control.
  • 15. 2. Re-interpret the model Mapping sleep factors to the evidencebased model
  • 16. 3. Identifying fail points Understanding where a negative experience will likely cause the intervention to fail Image credit: http://www.flickr.com/photos/frak_tal/2455855855/
  • 17. 4. Redirect opportunities Understanding what is a priority to young people
  • 18. 5. Work with the evidence
  • 19. How we do it #1 Translate models from the evidence-base #2 Re-interpret models from the evidence-base #3 Identify fail points #4 Re-direct opportunities #5 Work with the evidence
  • 20. Challenges
  • 21. Challenge 1: Different ways of measuring success means different priorities.
  • 22. Challenge 1: Different ways of measuring success means different priorities. Evidence-based success = User Experience success = The model applied in the way intended with a positive result that can be correlated to the intervention. An intervention that is used and useful to those who it was designed with and for.
  • 23. Challenge 1: Different ways of measuring success means different priorities. Evidence-based success = User Experience success = Model must not be altered in order to be measured. Model needs to be flexible in order to be usable.
  • 24. Challenge 2: Our forms of evidence and how we manage them are not the same
  • 25. Challenge 2: Our forms of evidence and how we manage them are not the same Part 1. Our methods tend to be qualitative and largely visual Part 2. In comparison our methodology is not as rigorous (partly because it hasn’t had to be)
  • 26. Evolving our tools and methods
  • 27. 01 design tools to Adapting connect and integrate both perspectives as inputs for design.
  • 28. Personas and scenarios include mental health status, and demonstrates how behaviours and the theory of change play out in the real world.
  • 29. Personas and scenarios include mental health status, and demonstrates how behaviours and the theory of change play out in the real world.
  • 30. User Journey maps help show how theory of change will be supported through the intervention and how this connects to the intended user experience. Reproduced from: Hagen, P, Collin, P, Metcalf, A, Nicholas, M, Rahilly, K, & Swainston, N 2012, Participatory Design of evidence-based online youth mental health promotion, prevention, early intervention and treatment, Young and Well Cooperative Research Centre, Melbourne.
  • 31. 02 Evolving how method and findings are communicated
  • 32. There are cycles of input and validation with young people throughout the design process. Images from: Hagen, P, Collin, P, Metcalf, A, Nicholas, M, Rahilly, K, & Swainston, N 2012, Participatory Design of evidence-based online youth mental health promotion, prevention, early intervention and treatment, Young and Well Cooperative Research Centre, Melbourne.
  • 33. Showing the source of all insights and presenting individual project findings in the context of all other research and findings from other projects. Insight ReachOut guiding principles The guiding principles describe the underlying factors that steer the service, irrespective of specific project goals, constraints and resources. All aspects of ReachOut should meet these principles, or at the very least, never contradict them. • Focus on the benefit to young people and their friends • Be relevant to them and their life • Reach out to where young people are Sources Researchers: Pollinate Market Research, Mariesa Nicholas, Nathalie Swainston, Kitty Rahilly Project/Program: ReachOut Next Gen Method: Market Research Focus Groups (see Project Happy: Group Testing Method & Questions) Thematic Analysis of Transcripts Sample (n = 29): 18 Males, 11 Females Existing and non-ReachOut.com users Diversity across the Satisfaction With Life Scale (Diener et al 1985) Divided into 3 groups: Existing ReachOut.com Users (n = 6) SWLS Slightly Dissatisfied (n = 7, SWLS) SWLS Moderately Dissatisfied (n = 5) Tested: Focus group method with young people aged 16 to 25 mixture male and female. ReachOut Next Gen Workshop 1 (n=21) ReachOut Next Gen Workshop 2 (n=19) ReachOut Next Gen Youth Ambassador Workshop (n=28) ReachOut Next Gen Community Workshop (n=16) Project Folder Location:
  • 34. Developing a framework that articulates how participatory design can be integrated with evidence-based approaches. Images from: Hagen, P, Collin, P, Metcalf, A, Nicholas, M, Rahilly, K, & Swainston, N 2012, Participatory Design of evidence-based online youth mental health promotion, prevention, early intervention and treatment, Young and Well Cooperative Research Centre, Melbourne.
  • 35. Developing a framework that articulates how participatory design can be integrated with evidence-based approaches. Download from http://www.yawcrc.org.au/news/article/199# Images from: Hagen, P, Collin, P, Metcalf, A, Nicholas, M, Rahilly, K, & Swainston, N 2012, Participatory Design of evidence-based online youth mental health promotion, prevention, early intervention and treatment, Young and Well Cooperative Research Centre, Melbourne.
  • 36. Supporting co-synthesis with researchers & providing close proximity to the actual stories, quotes and experiences of young people. Should I go and see the GP, even though there is nothing physically wrong?? My mobile is public. Don’t SMS me anything sensitive. You can talk to me at BigDay Out, but not about anything serious. Oh, I’d delete the app if it did that.
  • 37. 03 our tools and Evolving approach to actually be more rigorous
  • 38. Methods and analysis are more consistent with greater transparency and accountability.
  • 39. Evolving our tools and methods #1. Adapting design tools to connect both perspectives #2. Evolving how method and findings are communicated #3. Being more critical about our tools and methods
  • 40. Lessons Learned
  • 41. Lesson 1. There are inherent tensions between the two approaches that may not be resolved. Neither is a complete solution to the complexities and challenges we face.
  • 42. Lesson 2. Both approaches should be challenged, and the opportunity is in the new things we can build out of this collaboration
  • 43. Lesson 3. Negotiating which perspective has greater influence will be ongoing. But how we gather and communicate our ‘data’ matters.
  • 44. Lesson 4. We bring lots of value but we need to communicate that value and practice in a way that earns us the right to have influence.
  • 45. Lesson 5. We are all learning. Presentation by Kathryn McCabe a post-doc researcher on Work Out
  • 46. In closing… Opportunity Marketing design as a holistic approach Opportunity = Better integrating design with other approaches and perspectives
  • 47. Being challenged is what helps us to build a richer practice
  • 48. Thank you. Questions, for me or for @mariesanicholas @kittyrahilly