Pdssn power point final membership meeting - 1.17.14


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  • Can discuss and elaborate on meetings, speakers, and events as we talk about simple goals.
    Speakers – Estate planning, challenger league, beyond academics, medical needs, et.
    Events – Poker night (fund raiser), sporting event
  • Pdssn power point final membership meeting - 1.17.14

    1. 1. Piedmont Down Syndrome Support Network
    2. 2. Piedmont Down Syndrome Support Network’s Mission • Enhance the lives of people with Down syndrome • Provide information and support to families and professionals • Provide educational and social opportunities for our members • Educate the community to promote awareness, respect, and inclusion of people with Down syndrome
    3. 3. PDSSN is a Support and Advocacy Group Founded in 1987 Has grown and increased services to others over the past 12 years Became a 501(c)(3) nonprofit organization in 2005 While the main advocacy remains on Down syndrome, welcomes other special needs groups to many activities
    4. 4. PDSSN Organization In 2012, awarded a grant from the Winston-Salem Foundation and hired a part-time executive director Affiliations: National Down Syndrome Congress, the National Down Syndrome Society, Down Syndrome Affiliates in Action, and HandsOn Northwest North Carolina www.pdssn.org highlights our mission, programs, events calendar, information about Down syndrome, and more.
    5. 5. PDSSN Representation on Community Committees CenterPoint’s Consumer & Family Advisory Committee CenterPoint’s IDD Advisory Committee Forsyth County Special Needs Planning Committee Family Support Network’s Local Collaboration Team Disability Rights North Carolina Board Keynote Presentation at the NC ARC State Conference Disability Advocates DHHS and the Medicaid Reform Advisory Group
    6. 6. Programs for Families Who Have Children with Down Syndrome Family Social Gatherings Ladies Night Out D.A.D.S. Group PDSSN Member Scholarships Sunshine Fund New Parent Resource Notebook Pre and Post Natal Program Triad First in Family Funds Seasonal Newsletters
    7. 7. Family Social Gatherings Regular gatherings include: • Dine Out - PDSSN family nights at area restaurants • A winter family gathering • A summer family picnic • Spring KIDS FEST • Ladies Nights Out • D.A.D.S. (Dads Appreciating Down Syndrome)
    8. 8. PDSSN Member Scholarships PDSSN members can apply for funding to attend national and local Down syndrome related conferences. Scholarship awards based on past years involvement with the PDSSN.
    9. 9. D.A.D.S. – Piedmont Chapter “To assist and support, through fellowship and action, the fathers and families of individuals with Down syndrome” Simple Mission: Simple Goals: • To create a network of fathers willing to develop a program based on the needs of • • • • • Information: : • • • the men involved To enhance a father’s knowledge and resources about children and individuals with Down syndrome To enhance personal advocacy skills To improve a family’s ability to cope with the unique challenges of raising a child with Down syndrome To provide a safe atmosphere of support where men can openly share To have fun and build camaraderie and friendships among fathers Open Forum and Info: https://www.facebook.com/DADS.Piedmont Closed discussion group on Facebook PDSSN Site: http://pdssn.org/programs-3/d-a-d-s/ The Foundation
    10. 10. PDSSN Member Scholarships PDSSN members can apply for funding to attend national and local Down syndrome related conferences. Scholarship awards based on past years involvement with the PDSSN.
    11. 11. Sunshine Fund The PDSSN shows support for families who are experience illness, hospitalization, or other hardship by offering visits and gift cards.   This year the committee expanded support for families in need through the use of an electronic care calendar that allows members to sign up for meals, rides, etc. to help with family needs.
    12. 12. PDSSN New Parent Resource Notebook Provides comprehensive information for ages birth through adulthood Lists IDD related resources for the surrounding six counties Available in both English and Spanish Materials also available online at www.pdssn.com Thanks to the LAMB Foundation for their support
    13. 13. Pre & Post Natal Program Available to any family whose child is diagnosed with Down syndrome before or after birth Provides up-to-date accurate written information as well as a trained volunteer
    14. 14. Triad First in Family Funds First In Families of North Carolina Believe, Achieve, Give Back. TFIF offers support to families and individuals in Forsyth, Davie & Stokes Counties. Support might be achieved by connecting them to community programs, obtaining discounts and in some cases providing funds. The PDSSN annually provides funds to TFIF that can be used for people who have Down syndrome and their families in the 3 counties TFIF covers plus Surry, Yadkin, and Davidson. Distribution of funds is determined by the TFIF management team. Eligibility Requirements: Triad First In Families supports any family in which one family member has a developmental disability or traumatic brain injury. The family/individual must be living in their own rented or owned home, not in a group home. Total household income cannot exceed $65,000 per year.
    15. 15. PDSSN Programs Open to the Community Exceptional Families Program Next Chapter Book Clubs No Limits II Dance Community Education Programs Annual Down Syndrome Update Community Grants
    16. 16. Exceptional Families Program Partnership with Family Support Network Meets 10 times a year on the 4th Thursday of the month from 5:30pm to 7:00pm at the Little Creek Recreation Center Guest facilitators support discussions regarding topics of interest to parents of children who have intellectual and developmental disabilities A light supper and childcare are available but reservations for both are required Professionals are welcome and Infant Toddler Credit is available
    17. 17. Next Chapter Promotes literacy and encourages friendships among adolescents and adults with intellectual disabilities. Members meet for one hour a week at local bookstores, coffee shops and cafés to read and discuss a book of their choosing. Anyone can participate, no matter their reading or ability level. Two trained volunteers facilitate each group. Currently 4 adult clubs in Forsyth County. Will expand to other counties when enough people show interest. Book Club
    18. 18. No Limits II Dances Promotes literacy and encourages friendships among adolescents and adults with intellectual disabilities. For adults with intellectual and physical challenges (18 years or older) Dance, play Bingo, enjoy refreshments and door prizes
    19. 19. Community Education Programs PDSSN Community Education Programs are open to everyone. Our speakers have included: speech language pathologists; occupational therapists; ear, nose and throat doctors; special needs trusts attorneys; estate planning professionals; and others. PDSSN hosts an annual Down Syndrome update meeting every January, at which Dr. Tamison Jewett presents the most current medical information available about Down syndrome.
    20. 20. Community Grants PDSSN makes donations to groups that support people who have Down syndrome or other intellectual disabilities. Some recipients: Triad First in Families, Beyond Academics, The Special Children’s School, No Limits II, Friday Socialites, and the Family Support Network.
    21. 21. Dress Down for World Down Syndrome Day March 21st marks the 9th anniversary of World Down Syndrome Day.  This day was chosen to symbolize the third copy of chromosome 21 in Trisomy 21, the most common form of Down syndrome.  Last year, PDSSN celebrated individuals with Down syndrome in our community with our first Dress Down for Down Syndrome day.  Please join us this year by encouraging companies and organizations to help promote the acceptance and inclusion of individuals with Down syndrome by “Dressing Down” on March 21st.  We’ll be sending out more information by email soon.  
    22. 22. The PDSSN Buddy Walk PDSSN’s largest annual fundraiser Held in October which is Down Syndrome Awareness Month Fun for all includes: food, photos, carnival games, live bands, magic shows, inflatables, and the famous talent show
    23. 23. 2013 Buddy Walk Results Revenue Expenses Net 2013 Walk $55,220 $10,633 $44,587 2012 Walk $46,932 $10,388 $36,543 2011 Walk $22,048 $9,255 $12,793
    24. 24. 2013 Accomplishments Launched new website - PDSSN.org Founded D.A.D.S. Group – Dads Appreciating Down Syndrome Launched Dress Down for Down Syndrome Implemented monthly Dine Out for Down Syndrome event Received Prevention, Outreach, and Wellness Programs of Excellence Award from NC Council of Community Programs for the Next Chapter Book Club Distributed Baby Bootie Boxes Held Most Successful Buddy Walk Increased Community Awareness – i.e. PepsiCo Donation
    25. 25. 2014 Initiatives Awareness video Support for Spanish Speaking families Leadership Winston-Salem Board Development Increase number and variety of social and educational gatherings Welcome each new family with a PDSSN Baby Bootie Box Build and expand partnerships with community organizations Add No Limits II Dances to PDSSN’s programs
    26. 26. PDSSN Member Benefits Support, social, and educational opportunities Input and voting privileges regarding PDSSN issues Information on Down syndrome, resources, and advocacy Parent resource notebooks Support if a family member is hospitalized Scholarship funds to attend local and national conferences
    27. 27. Thank you!