iCMLf Forum at ASH: Introductory Presentation


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Introductory Presentation of the "iCMLf Forum", hosted by the International CML Foundation for physicians from emerging countries during the ASH Annual Meeting

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  • Key message: very well received. Expansion in 2011
  • iCMLf Forum at ASH: Introductory Presentation

    1. 1. The 2011 iCMLf Forum CML Management in Emerging Economic Regions Presented in partnership with The Max Foundation The 2011 iCMLf Virtual Education Program is supported by an unrestricted grant from Novartis Oncology
    2. 2. iCMLf: Who are we? <ul><li>Established by a group of leading hematologists </li></ul><ul><li>Founded & registered in 2009 as a charitable foundation </li></ul><ul><li>Mission: to improve the outcomes for patients with CML globally </li></ul><ul><li>Aims: Foster and coordinate global clinical and research collaborations </li></ul><ul><li>and to improve clinical practice and disease monitoring in CML </li></ul><ul><li>Advisors: 34 countries from all continents including patient </li></ul><ul><li>group representation </li></ul>
    3. 3. The iCMLf Virtual Education Program in partnership with The Max Foundation Increase access to CML knowledge and education through ‘at home’ learning Including a dedicated annual meeting to share experiences and best practice in emerging regions
    4. 4. iCMLf Virtual Education Program 2011 <ul><li>Presentations from CML experts on the best practice management of CML </li></ul><ul><ul><li>CML care in countries with limited access to monitoring & treatment </li></ul></ul><ul><ul><li>Webcasts hosted on the iCMLf website, over 1,000 views per module </li></ul></ul><ul><ul><li>USB drives for physicians without broadband Internet </li></ul></ul><ul><li>2011 Program: More languages, more modules </li></ul><ul><ul><li>CML management updates in French and Spanish </li></ul></ul><ul><ul><li>The importance of molecular monitoring & BCR-ABL kinase domain mutation analysis </li></ul></ul><ul><ul><li>Stem Cell Transplantation in 2011 </li></ul></ul>
    5. 5. iCMLf Forum at ASH <ul><ul><li>Emerging Regions Networking Meeting </li></ul></ul><ul><ul><li>at ASH - 2010 </li></ul></ul><ul><ul><ul><li>150 attendees </li></ul></ul></ul><ul><ul><li>2011 – iCMLf Forum “CML Management in Emerging Regions” </li></ul></ul><ul><ul><ul><li>Now an annual event </li></ul></ul></ul><ul><ul><ul><li>A networking meeting with discussion on the challenges and solutions of CML treatment when resources are limited </li></ul></ul></ul>
    6. 6. The Emerging Regions Support and Partnership (ERSAP) Program Enhancing clinician ’ s knowledge, sharing best practice and improving the access to diagnosis and testing facilities in emerging economic regions where this is most needed
    7. 7. ERSAP Preceptorship Program Facilitate the sharing of best practice treatment between CML Centres of excellence and hematologists from Emerging Regions <ul><li>Facilitate the sharing of best practice treatment between CML Centres of excellence and hematologists from Emerging Regions </li></ul><ul><li>I ntensive 3-4 week preceptorships </li></ul><ul><li>P receptors are part of the clinical team </li></ul><ul><li>participating in seminars and laboratory </li></ul><ul><li>work where appropriate </li></ul><ul><li>Preceptors come from all over the world </li></ul>
    8. 8. A successful first project <ul><li>2010 </li></ul><ul><ul><li>20 Preceptorships at 5 CML centres of excellence: </li></ul></ul><ul><ul><li>Positive Feedback </li></ul></ul><ul><ul><ul><li>Highly valued CML education, advancing knowledge of testing, increased overall hematology knowledge, networking for future support </li></ul></ul></ul><ul><li>2011 </li></ul><ul><ul><li>26 Preceptorships at 8 CML centres of excellence </li></ul></ul><ul><ul><ul><li>Australia – Tim Hughes, France - Francois Mahon, </li></ul></ul></ul><ul><ul><ul><li>Italy – Michele Baccarani, Spain - Juan Luis Steegmann, </li></ul></ul></ul><ul><ul><ul><li>UK – Jane Apperley, UK - Richard Clark, </li></ul></ul></ul><ul><ul><ul><li>USA – Jorge Cortes, USA – Michael Mauro </li></ul></ul></ul><ul><li>2012 </li></ul><ul><ul><li>Up to 30 preceptorships at 10 centres of excellence </li></ul></ul><ul><ul><ul><li>Open for applications www.cml-foundation.org </li></ul></ul></ul>
    9. 9. ERSAP Diagnosis and Testing Program Increasing access to equipment and facilities to enhance the diagnosis and monitoring of CML patients thus improving potential outcomes. <ul><li>Building partnerships to increase access to CML diagnostics in emerging regions </li></ul><ul><ul><li>Facilitating sample shipments to reference laboratories </li></ul></ul><ul><ul><li>Increasing capacity for local CML monitoring providing equipment, training and resources under the mentorship of CML centres of excellence </li></ul></ul>
    10. 10. 1) Through iCMLf funding and support <ul><ul><li>iCMLf grants to increase capacity to diagnose and monitor CML patients </li></ul></ul><ul><ul><ul><li>Program open for centres in emerging regions </li></ul></ul></ul><ul><ul><ul><li>Grants awarded on evaluation of submitted proposals </li></ul></ul></ul><ul><ul><ul><li>Grants up to US $10,000 along with additional support from a partnering CML centre of excellence </li></ul></ul></ul><ul><ul><ul><li>Grants have been awarded to centres in Ghana, India, Indonesia, Kenya, Nepal, Nigeria and Uzbekistan </li></ul></ul></ul><ul><ul><li>Centres have the flexibility to run the program according to their local situation with the ongoing support of a CML centre of excellence </li></ul></ul>
    11. 11. 2) Through iCMLf expert resources and long term partnerships <ul><li>Blood screening across the pacific </li></ul><ul><ul><li>An example of sample shipment to increase access to diagnosis and monitoring </li></ul></ul><ul><li>In September 2010 8 iCMLf advisors offered free PCR testing </li></ul><ul><li>In July 2011 we had the the first opportunity to make use of this </li></ul><ul><li>TMF approached us to help a patient in the Philippines </li></ul><ul><li>1 patient developed to 30 </li></ul><ul><li>Developing a long term partnership between Adelaide and </li></ul><ul><li>Philippine General Hospital </li></ul>
    12. 12. 3) Through iCMLf education and technical expertise <ul><li>iCMLf / MAX Diagnostic Project, Cepheid GeneXpert instrument </li></ul><ul><ul><li>Rapid molecular testing capability, across multiple diseases </li></ul></ul><ul><li>Goal: to utilize TB instruments in place in key countries to provide a diagnostic solution in resource poor countries </li></ul><ul><ul><li>Project Status: </li></ul></ul><ul><ul><li>Identified 6 priority countries (Ethiopia, Tanzania, Uzbekistan, Honduras, Nepal and El Salvador) Existing instruments in Ethiopia and Uzbekistan, limited cartridges for both sites </li></ul></ul><ul><ul><li>Training Ethiopian physician in Adelaide during ERSAP Preceptorship and Uzbekistan physician in October through iCMLf diagnostics grant </li></ul></ul><ul><ul><li>Project launched in Ethiopia October 6 and Uzbekistan October 26 </li></ul></ul>“ No more blind treatment of CML patients” Dr Gebremedhin Ethiopia
    13. 13. The iCMLf Online www.cml-foundation.org Providing wide access to CML expertise, knowledge and support for clinicians around the world <ul><li>Difficult Cases in CML - Online discussion forum </li></ul><ul><ul><li>interested clinicians discuss difficult or interesting CML patient cases </li></ul></ul><ul><li>CML Scientific News Section </li></ul><ul><ul><li>Current CML articles submitted by iCMLf members </li></ul></ul><ul><li>Pediatric CML Community </li></ul><ul><ul><li>Activities include: </li></ul></ul><ul><ul><ul><li>Online access to current data and publications </li></ul></ul></ul><ul><ul><ul><li>Regular teleconferences discussing Pediatric CML cases </li></ul></ul></ul><ul><ul><ul><li>Opportunities for collaboration and data sharing </li></ul></ul></ul>
    14. 14. Join CML patients worldwide to celebrate
    15. 15. International Chronic Myeloid Leukemia Foundation Improving the outcomes for patients with CML globally www.cml-foundation.org