iCMLf Forum at ASH: Introductory Presentation

The 2011 iCMLf Forum CML Management in Emerging Economic Regions Presented in partnership with The Max Foundation The 2011 iCMLf Virtual Education Program is supported by an unrestricted grant from Novartis Oncology

iCMLf: Who are we?
Established by a group of leading hematologists
Founded & registered in 2009 as a charitable foundation
Mission: to improve the outcomes for patients with CML globally
Aims: Foster and coordinate global clinical and research collaborations
and to improve clinical practice and disease monitoring in CML
Advisors: 34 countries from all continents including patient
group representation

The iCMLf Virtual Education Program in partnership with The Max Foundation Increase access to CML knowledge and education through ‘at home’ learning Including a dedicated annual meeting to share experiences and best practice in emerging regions

iCMLf Virtual Education Program 2011
Presentations from CML experts on the best practice management of CML
CML care in countries with limited access to monitoring & treatment
Webcasts hosted on the iCMLf website, over 1,000 views per module
USB drives for physicians without broadband Internet
2011 Program: More languages, more modules
CML management updates in French and Spanish
The importance of molecular monitoring & BCR-ABL kinase domain mutation analysis
Stem Cell Transplantation in 2011

iCMLf Forum at ASH
Emerging Regions Networking Meeting
at ASH - 2010
150 attendees
2011 – iCMLf Forum “CML Management in Emerging Regions”
Now an annual event
A networking meeting with discussion on the challenges and solutions of CML treatment when resources are limited

The Emerging Regions Support and Partnership (ERSAP) Program Enhancing clinician ’ s knowledge, sharing best practice and improving the access to diagnosis and testing facilities in emerging economic regions where this is most needed

ERSAP Preceptorship Program Facilitate the sharing of best practice treatment between CML Centres of excellence and hematologists from Emerging Regions
Facilitate the sharing of best practice treatment between CML Centres of excellence and hematologists from Emerging Regions
I ntensive 3-4 week preceptorships
P receptors are part of the clinical team
participating in seminars and laboratory
work where appropriate
Preceptors come from all over the world

A successful first project
2010
20 Preceptorships at 5 CML centres of excellence:
Positive Feedback
Highly valued CML education, advancing knowledge of testing, increased overall hematology knowledge, networking for future support
2011
26 Preceptorships at 8 CML centres of excellence
Australia – Tim Hughes, France - Francois Mahon,
Italy – Michele Baccarani, Spain - Juan Luis Steegmann,
UK – Jane Apperley, UK - Richard Clark,
USA – Jorge Cortes, USA – Michael Mauro
2012
Up to 30 preceptorships at 10 centres of excellence
Open for applications www.cml-foundation.org

ERSAP Diagnosis and Testing Program Increasing access to equipment and facilities to enhance the diagnosis and monitoring of CML patients thus improving potential outcomes.
Building partnerships to increase access to CML diagnostics in emerging regions
Facilitating sample shipments to reference laboratories
Increasing capacity for local CML monitoring providing equipment, training and resources under the mentorship of CML centres of excellence

1) Through iCMLf funding and support
iCMLf grants to increase capacity to diagnose and monitor CML patients
Program open for centres in emerging regions
Grants awarded on evaluation of submitted proposals
Grants up to US $10,000 along with additional support from a partnering CML centre of excellence
Grants have been awarded to centres in Ghana, India, Indonesia, Kenya, Nepal, Nigeria and Uzbekistan
Centres have the flexibility to run the program according to their local situation with the ongoing support of a CML centre of excellence

2) Through iCMLf expert resources and long term partnerships
Blood screening across the pacific
An example of sample shipment to increase access to diagnosis and monitoring
In September 2010 8 iCMLf advisors offered free PCR testing
In July 2011 we had the the first opportunity to make use of this
TMF approached us to help a patient in the Philippines
1 patient developed to 30
Developing a long term partnership between Adelaide and
Philippine General Hospital

3) Through iCMLf education and technical expertise
iCMLf / MAX Diagnostic Project, Cepheid GeneXpert instrument
Rapid molecular testing capability, across multiple diseases
Goal: to utilize TB instruments in place in key countries to provide a diagnostic solution in resource poor countries
Project Status:
Identified 6 priority countries (Ethiopia, Tanzania, Uzbekistan, Honduras, Nepal and El Salvador) Existing instruments in Ethiopia and Uzbekistan, limited cartridges for both sites
Training Ethiopian physician in Adelaide during ERSAP Preceptorship and Uzbekistan physician in October through iCMLf diagnostics grant
Project launched in Ethiopia October 6 and Uzbekistan October 26
“ No more blind treatment of CML patients” Dr Gebremedhin Ethiopia

The iCMLf Online www.cml-foundation.org Providing wide access to CML expertise, knowledge and support for clinicians around the world
Difficult Cases in CML - Online discussion forum
interested clinicians discuss difficult or interesting CML patient cases
CML Scientific News Section
Current CML articles submitted by iCMLf members
Pediatric CML Community
Activities include:
Online access to current data and publications
Regular teleconferences discussing Pediatric CML cases
Opportunities for collaboration and data sharing

Join CML patients worldwide to celebrate

International Chronic Myeloid Leukemia Foundation Improving the outcomes for patients with CML globally www.cml-foundation.org

iCMLf Forum at ASH: Introductory Presentation

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