Building Strong Advocacy Efforts to Address Southern HIV/AIDS Disparities

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  • In the 34 states and 5 U.S. dependent areas with confidential name-based HIV infection reporting, the diagnosis rate of HIV/AIDS among adults and adolescents was 25.9 per 100,000 population in 2007. The rate for adults and adolescents diagnosed with HIV/AIDS ranged from zero per 100,000 in American Samoa and North Mariana Island to 52.5 per 100,000 in Florida. The following 34 states have had laws or regulations requiring confidential name-based HIV infection surveillance since at least 2003: Alabama, Alaska, Arizona, Arkansas, Colorado, Florida, Georgia, Idaho, Indiana, Iowa, Kansas, Louisiana, Michigan, Minnesota, Mississippi, Missouri, Nebraska, Nevada, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma, South Carolina, South Dakota, Tennessee, Texas, Utah, Virginia, West Virginia, Wisconsin, Wyoming, American Samoa, Guam, the Northern Mariana Islands, Puerto Rico, and the U.S. Virgin Islands. The data have been adjusted for reporting delays.
  • The estimated number of adults and adolescents living with AIDS in each region of the 50 states and the District of Columbia increased from 1993 through 2006. This increase is due primarily to the widespread use of highly active antiretroviral therapy, introduced in 1996, which has delayed the progression of AIDS to death. At the end of 2006, an estimated 177,075 (41%) of adults and adolescents living with AIDS resided in the South, 125,294 (29%) in the Northeast, 86,339 (20%) in the West, 46,871 (11%) in the Midwest. The data have been adjusted for reporting delays. Regions of residence are defined as follows: Northeast—Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont Midwest—Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, North Dakota, Ohio, South Dakota, Wisconsin South—Alabama, Arkansas, Delaware, District of Columbia, Florida, Georgia, Kentucky, Louisiana, Maryland, Mississippi, North Carolina, Oklahoma, South Carolina, Tennessee, Texas, Virginia, West Virginia West—Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, Nevada, New Mexico, Oregon, Utah, Washington, Wyoming

Transcript

  • 1. Patrick Packer Executive Director Southern AIDS Coalition, Inc.
  • 2.
    • Alabama
    • Arkansas
    • Delaware
    • District of Columbia
    • Florida
    • Georgia
    • Kentucky
    • Louisiana
    • Maryland
    • Mississippi
    • North Carolina
    • Oklahoma
    • South Carolina
    • Tennessee
    • Texas
    • Virginia
    • West Virginia
  • 3.
    • Began with the “Southern States Manifesto - HIV/AIDS & STD’s in the South: A Call to Action!” Released in 2003
    • Southern State AIDS/STD Directors Work Group
  • 4.
    • Released on July 21, 2008.
    • Highlights accomplishments over the prior 6 years.
    • Continues to highlight the challenges for preventing new infections and caring for those living with HIV as we continue to face an ever-growing southern epidemic.
  • 5.
    • 2009-2010 HIV/AIDS Health Care Policy Brief and Recommendations
    • The Potential Impact of Health Care Reform on HIV in the South (07/29/09)
    • Housing Persons with HIV Disease (10/26/09)
  • 6. National Policy Collaborative Efforts Congressional and Senate Briefings Living Quilt and National HIV/AIDS Atlas State Advocacy Efforts The Southern Access Advocate Network Leadership Council
  • 7.  
  • 8.  
  • 9.
    • Inadequate funding for Care and Treatment for People Living with HIV disease in the south and particularly in Texas
    • Inadequate funding for HIV prevention services to stop the spread of the HIV virus
    • Inadequate funding for research to find a cure for HIV disease
  • 10.
    • ADAP Program Waiting List
    • ADAP Waiting List Data
    • Kentucky_______200
    • North Carolina___506
    • South Carolina___81
    • 1056 individuals on waiting list
    • 75% are Southerners
  • 11.
    • In 2007, there were 26,347 newly diagnosed cases of HIV infection
    • (not AIDS) in the US.
      • Data from 47 states and the District of Columbia
    • Of the 26,347 new diagnoses, 51.2% were diagnosed in the 17 Southern States
    *CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19
  • 12. Southern States CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19
    • 34 states with confidential name-based HIV infection reporting:
    • 10 of the top 15 are Southern States
  • 13. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern States
    • 11 of the top 20 are Southern States
  • 14.  
  • 15. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern Metropolitan Areas
    • 14 of the top 20 are Southern Metropolitan Areas
  • 16. CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19 Southern States
    • 11 of the top 20 are Southern States
  • 17.  
  • 18.
    • Southern states represent 37% of the U.S. population, but account for 40% of the persons living with AIDS and 46% of the new AIDS cases in 2007
    • Of the 20 states that had the highest AIDS case rates in 2007, 11 (55%) are in the South
    • Of the 20 metropolitan areas that had the highest AIDS case rates in 2007, 14 (70%) are in the South
      • Of the top 10 metropolitan areas that had the highest AIDS case rates in 2007, 8 (80%) are in the South
    • Of the 20 states that had the highest rates of persons living with AIDS in 2007, 11 (55%) are in the South
  • 19.
    • The South has the highest number of adults/adolescents living with AIDS in the U.S.
    • The number of persons living with AIDS has increased from 1993 to 2006 at a greater rate in the South than in the other regions of the U.S.
    • In 2006, the Southern states had the highest AIDS rate among adults and adolescents in nonmetropolitan areas with <50,000 residents and in metropolitan areas with >500,000 residents. The South had the second highest AIDS rate in cities with 50,000 to 499,999 residents.
  • 20.
    • From 2003 to 2007, deaths decreased in all regions of the U.S. but the South had the smallest percent decrease
      • Northeast:  30.6%
      • Midwest:  19.5%
      • South:  8.5%
      • West:  17.1%
    CDC. HIV/AIDS Surveillance Report , 2007 , Vol. 19
  • 21. Federal Funding for HIV/AIDS Dollars Spent per Person Living with AIDS By Region, 2007 Kaiser Family Foundation: www.statehealthfacts.org Total Federal Funding for HIV/AIDS CDC HIV/AIDS Funding Ryan White HIV/AIDS Funding Rank $ Spent Rank $ Spent Rank $ Spent North 1 $6,623 2 $1,196 1 $4,476 Midwest 2 $6,506 1 $1,314 2 $4,470 South 3 $6,215 4 $1,035 3 $4,439 West 4 $5,974 3 $1,180 4 $4,030
  • 22. Federal Funding for HIV/AIDS Dollars Spent per Person Living with AIDS By Region, 2007 Kaiser Family Foundation: www.statehealthfacts.org CDC - Prevention HIV/AIDS Funding CDC - Surveillance HIV/AIDS Funding Rank $ Spent Rank $ Spent North 2 $712 3 $133 Midwest 1 $791 1 $189 South 4 $528 4 $128 West 3 $676 2 $163
  • 23.
    • The South has 40% of the official distribution of cases, but only 33% of the prevention funds.
    Percent of all Prevention Money Percent of all AIDS Cases Kaiser Family Foundation: www.statehealthfacts.org
  • 24. Ethiopian Proverb
  • 25.
    • Advocacy: Speaking out on issues of concern. This can mean something as formal as sitting down and talking to your legislator; as intensive as engaging in efforts to make a change in laws or policies; or as simple as telling your neighbor about the impact of a law.
  • 26.
    • Know who has the power/decision makers
    • http://www.house.state.tx.us/committees/welcome.htm
    • http://www.senate.state.tx.us/
    • Motivating factors for the decision makers
      • Telling your story
      • Votes and Money
      • Who is asking
  • 27.
    • Development of the ASK
    • Building relationships with elected officials (federal, state, and local)
    • Time to Speak (public forums, media, letters )
    • Build a coalition of people speaking with one voice
    • Speak directly to your elected officials (district offices, state capital, national office)
  • 28.
    • Individuals with HIV disease
    • Individuals who work in clinics, agencies,
    • academic environments, prevention
    • programs, ASO, CBO
    • All people who are impacted by HIV disease
    • Organizations (ASO, CBO, Church, Community Groups, Businesses)
  • 29. Margaret Mead
  • 30.