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ALISS  Making Self-Management Support more findable   A ccess to  L ocal  I nformation to  S upport  S elf-Management A co...
Today’s presentation <ul><li>A little  recap   </li></ul><ul><li>An  update  on the ALISS project outline we gave to the ...
So, what  is  ALISS then?
ALISS is some technology – we call it an ‘Engine’
ALISS is also lots of social processes
health assets? ALISS can help   (With thanks to I&D e A) And ALISS is also an ‘assets’ register
We focus on info about practical resources, and experience
ALISS is also a platform, for innovation…
…for example, the Engine code is all Open Source
Clinicians view of Self Mgt The traditional view of Self Management focuses on the Visit
<ul><li>But 15 min per month </li></ul><ul><li>= only 3 hours per year </li></ul>Copyright 2004 FreePhotosBank.com … 8757 ...
Update: timeline since autumn 2009 2010 2011 open innovation process spin-off activities in Renfrewshire ALISS and school-...
We’ve always been more interested in insights, than numbers: some early ethnography at  http:// inthelongterm.wordpress.co...
Social processes in action during our Open Innovation Process
Social processes
Hard at work <ul><li>Not long to go before their final presentations… </li></ul><ul><li>http://vimeo.com/12049911   </li><...
Social processes
Social processes
Testing the Engine: lots of coloured wool required!
Our first ALISS spin-off event in Paisley
 
Social processes One of the ideas generated on the day…
… was progressed by co-design
 
Meanwhile, ALISS and the CfE, at Trinity Academy
The school set us in their own context (the European Comenius project)…
And the pupils co-created a lesson plan, tested it on their own year-group, and plan to deliver it to others
Inspired by the student service-designers we met uring our open innovation process, we’ve developed Matchable –  See  http...
What is Matchable? <ul><li>A brokerage service that helps connect design students to health and well-being organisations <...
design students are already working in health & well-being 14 students in 1 year in 1 institution
…14 students in 1 year in 1 institution…
 
 
 
 
 
 
 
 
 
 
 
 
We’ve created a blue-print for the brokerage service
A fruitful encounter in summer 2011
IR – story telling (strong verticals, vertigo, and a baseball cap…)
IR Architecture  Story-telling A P I Solution-provider support Community conversation aggregation People-like-me timelines...
The IR ecosystem BrainIAC Epilepsy West Lothian Epilepsy Connections
Asset-mapping for mental health and well-being in East Dunbartonshire
 
 
And personal maps too
And ideas for how things could be better
How a photo turns into a clickable blob… Review the asset…
…Tag it…
Put it on a spreadsheet first
Then add the resource to your collection on the Engine…
…from where it can be taken and (in this example) added to an interactive map
The GP ‘Links’ Project in spring 2011
Discovering local resources
…adding them to a spreadsheet…
Summary page?
Or contact details? You can have both on the Engine
 
 
Meanwhile, how about getting info back out of the Engine? A javascript-based ‘widget’ does the necessary…
…The widget will underpin the pages that these wire-frames preview
 
 
‘ Curation’ and quality-assured data
the ALISS engine ALISS engine collect it sort it publish it
Location: indexed Subsequent curation resource-original spotter tags Free text description: indexed ‘ flag’ – could be ale...
Indexing Wayside Club Resource Asbestos Group Curation Curation Curation Curation Curation Curation
Searches Asbestos Group Search glasgow, support group Search   Links Practices asbestos
ALISS engine Curated info- flows out to information services Centre
For further info <ul><li>Key Contacts: </li></ul><ul><li>[email_address]  /  [email_address]   </li></ul><ul><li>@alisspro...
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ALISS goes to the BCS conference

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This presentation provides:
- An update on the ALISS project outline we gave to the 2009 BCS Health Scotland conference;
- An overview of the activities we’ve been working on with networks of people with Long-Term Conditions;
- A preview of the data-quality-assurance approach we’ve embedded within the informatics element of the project.

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  • This slide and the next are included to point up the impression that what ‘self management’ is rather depends on your institutional perspective (if you have such a thing in the first place). Here, it can be noted that from the clinicians point of view, the concept of SM seems to be firmly centred upon the patient visit to the clinician (activities are framed either before, during or after this event). Whereas the visit may not play that big a part in the patient’s year…
  • ALISS supports a similar process. The ALISS engine collects short descriptions and links to useful resources, either by people submitting things, or by getting them electronically from other systems in various ways. Once a resource is in the ALISS index, people with accounts can add keywords or more information, like sticking a post-it note on. We call that curation, meaning collecting information and labelling it in ways that make it more useful and easier to find. This means devolving control over content, which is not only in line with the ethic of self management but also more sustainable as it means no resources going to centralised administration. But, it’s not a free-for-all. All content is moderated, and you can filter it so you only get information from sources you trust. ALISS data can be published and searched by any other computer systems- the data is open and accessible across the web.
  • Once a resource is added to ALISS, it is added to the index. All additional curations are then combined in that the index. It means that, for example, if someone sees a resource as being useful for a different group, they can tag it and it will then show up in searches using that tag.
  • Searches to the engine will use that combined index entry to make the resource more findable, or a search can be limited to resources curated by a particular group or groups.
  • This means useful resources which might be scattered across lots of different systems, or not online at all, can now be indexed in one place which we call the ALISS Engine. The Engine can then be accessed by any system across the web. So it can feed other web sites, practice systems, libraries, advice centres, right across Scotland.
  • Transcript of "ALISS goes to the BCS conference"

    1. 1. ALISS Making Self-Management Support more findable A ccess to L ocal I nformation to S upport S elf-Management A collaboration between the Scottish Government, NHS Scotland, and the Long Term Conditions Alliance Scotland…and ever so many other organisations…and people… [email_address]
    2. 2. Today’s presentation <ul><li>A little recap  </li></ul><ul><li>An update on the ALISS project outline we gave to the 2009 BCS Health Scotland conference  </li></ul><ul><li>An overview of the activities we’ve been working on with networks of people with Long-Term Conditions  </li></ul><ul><li>A preview of the data-quality-assurance approach (curation) we’ve embedded within the informatics element of the project  </li></ul>
    3. 3. So, what is ALISS then?
    4. 4. ALISS is some technology – we call it an ‘Engine’
    5. 5. ALISS is also lots of social processes
    6. 6. health assets? ALISS can help (With thanks to I&D e A) And ALISS is also an ‘assets’ register
    7. 7. We focus on info about practical resources, and experience
    8. 8. ALISS is also a platform, for innovation…
    9. 9. …for example, the Engine code is all Open Source
    10. 10. Clinicians view of Self Mgt The traditional view of Self Management focuses on the Visit
    11. 11. <ul><li>But 15 min per month </li></ul><ul><li>= only 3 hours per year </li></ul>Copyright 2004 FreePhotosBank.com … 8757 hours left! …But we think that the rest of the year is the more interesting place to be
    12. 12. Update: timeline since autumn 2009 2010 2011 open innovation process spin-off activities in Renfrewshire ALISS and school-students (CfE) building the Engine… …building the Engine exploring curation GP Links project ‘ Matchable’ health: service-design & well-being SI camp & Invisible Ramps Asset-mapping MH&W-B Glasgow eHealth project (GPs & curation) Living well@the Library
    13. 13. We’ve always been more interested in insights, than numbers: some early ethnography at http:// inthelongterm.wordpress.com /
    14. 14. Social processes in action during our Open Innovation Process
    15. 15. Social processes
    16. 16. Hard at work <ul><li>Not long to go before their final presentations… </li></ul><ul><li>http://vimeo.com/12049911 </li></ul>Social processes
    17. 17. Social processes
    18. 18. Social processes
    19. 19. Testing the Engine: lots of coloured wool required!
    20. 20. Our first ALISS spin-off event in Paisley
    21. 22. Social processes One of the ideas generated on the day…
    22. 23. … was progressed by co-design
    23. 25. Meanwhile, ALISS and the CfE, at Trinity Academy
    24. 26. The school set us in their own context (the European Comenius project)…
    25. 27. And the pupils co-created a lesson plan, tested it on their own year-group, and plan to deliver it to others
    26. 28. Inspired by the student service-designers we met uring our open innovation process, we’ve developed Matchable – See http:// matchablehealth.wordpress.com /
    27. 29. What is Matchable? <ul><li>A brokerage service that helps connect design students to health and well-being organisations </li></ul><ul><li>C. 80-90 (undergrad + grad) students a year across Scotland’s design schools </li></ul><ul><li>Other discs too: </li></ul><ul><ul><li>Business studies, informatics, ICT, etc </li></ul></ul>
    28. 30. design students are already working in health & well-being 14 students in 1 year in 1 institution
    29. 31. …14 students in 1 year in 1 institution…
    30. 44. We’ve created a blue-print for the brokerage service
    31. 45. A fruitful encounter in summer 2011
    32. 46. IR – story telling (strong verticals, vertigo, and a baseball cap…)
    33. 47. IR Architecture Story-telling A P I Solution-provider support Community conversation aggregation People-like-me timelines … and more
    34. 48. The IR ecosystem BrainIAC Epilepsy West Lothian Epilepsy Connections
    35. 49. Asset-mapping for mental health and well-being in East Dunbartonshire
    36. 52. And personal maps too
    37. 53. And ideas for how things could be better
    38. 54. How a photo turns into a clickable blob… Review the asset…
    39. 55. …Tag it…
    40. 56. Put it on a spreadsheet first
    41. 57. Then add the resource to your collection on the Engine…
    42. 58. …from where it can be taken and (in this example) added to an interactive map
    43. 59. The GP ‘Links’ Project in spring 2011
    44. 60. Discovering local resources
    45. 61. …adding them to a spreadsheet…
    46. 62. Summary page?
    47. 63. Or contact details? You can have both on the Engine
    48. 66. Meanwhile, how about getting info back out of the Engine? A javascript-based ‘widget’ does the necessary…
    49. 67. …The widget will underpin the pages that these wire-frames preview
    50. 70. ‘ Curation’ and quality-assured data
    51. 71. the ALISS engine ALISS engine collect it sort it publish it
    52. 72. Location: indexed Subsequent curation resource-original spotter tags Free text description: indexed ‘ flag’ – could be alert Time-stamp resource-original curation Title is clickable link, takes you to the original resource A curation unpacked
    53. 73. Indexing Wayside Club Resource Asbestos Group Curation Curation Curation Curation Curation Curation
    54. 74. Searches Asbestos Group Search glasgow, support group Search Links Practices asbestos
    55. 75. ALISS engine Curated info- flows out to information services Centre
    56. 76. For further info <ul><li>Key Contacts: </li></ul><ul><li>[email_address] / [email_address] </li></ul><ul><li>@alissproject on twitter </li></ul><ul><li>Key Links: </li></ul><ul><li>ALISS demo site – searches, curations etc. http:// aliss.org / </li></ul><ul><li>ALISS Project Blog: http:// www.aliss.scot.nhs.uk / </li></ul><ul><li>ALISS Engine explained: http://vimeo.com/11986849 </li></ul><ul><li>ALISS Engine code on GitHub: http:// github.com/snowcloud/engineclub / </li></ul><ul><li>ALISS Open Innovation Process http:// alissproject.wordpress.com / </li></ul><ul><li>ALISS Service Design: http:// www.slideshare.net/wearesnook/nhsconferencepresentation </li></ul>
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