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De castro h2020_eahil_2014_sparc

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Spare Europe Seminar at EAHIL Conference, June 2014, Rome (Italy). HORIZON 2020 and the health sector.

Spare Europe Seminar at EAHIL Conference, June 2014, Rome (Italy). HORIZON 2020 and the health sector.

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  • Preámbulo de la Constitución de la Organización Mundial de la Salud, que fue adoptada por la Conferencia Sanitaria Internacional, celebrada en Nueva York del 19 de junio al 22 de julio de 1946, firmada el 22 de julio de 1946 por los representantes de 61 Estados (Official Records of the World Health Organization, Nº 2, p. 100), y entró en vigor el 7 de abril de 1948. La definición no ha sido modificada desde 1948

    Millares de niños, mujeres, hombres mueren simplemente porque les falta la información
    No tiene acceso a la informacion que necesita en el momento de tomar decisiones que puedan salvarle la vida
  • Horizon 2020: Multi-Beneficiary General, Model Grant Agreement, 11 Dec 2013, pg 61, http://ec.europa.eu/research/participants/data/ref/h2020/mga/gga/h2020-mga-gga-multi_en.pdf
  • Let me show you now the «core element» of our Project: the Syllabus, the «ensemble» of topics addressed in the training activity
  • http://eventi.isti.cnr.it/attachments/category/33/1_SIREN-Guide_OA.pdf
  • Transcript

    • 1. OA IN HORIZON 2020 and the health sector Paola De Castro Direttore del Settore Attività Editoriali, Istituto Superiore di Sanità SPARC Workshop at EAHIL ● Rome, 10 June 2014 1
    • 2. Main points  Responsibilities in sharing information and data SPARC Workshop at EAHIL ● Rome, 10 June 2014 2  The EC and Horizon 2020  Some considerations from the health sector • E-research, E-science • Global collaboration • Next generation infrastructure TRANPARENCY INTEGRITY INNOVATION SHARING PARTICIPATION
    • 3. SPARC Workshop at EAHIL ● Rome, 10 June 2014 3 Information dissemination including both publication and data is strictly associated with research activity in the process of creating knowledge on the basis of existing knowledge. RESPONSIBILITY Researchers and health operators must assume such responsibility as part of their commitment (social implication) Open access to research information and data is therefore a moral imperative and is recognised as such by many research performing and funding institutions
    • 4. SPARC Workshop at EAHIL ● Rome, 10 June 2014 4 Global health has no borders Access to health information is critically important for all human beings, it often makes the difference between like and death, and as such is an important component of human rights
    • 5. 5 Shocking data on child mortality to reflect on the role of health ingormation Each year, around 9 million children die from preventable and treatable illnesses Health knowledge can often mean the difference between life and death The handbook produced by UNICEF, WHO, UNESCO provides vital messages and information for mothers, fathers, other family members and caregivers and communities Example
    • 6. 6 IMPACT OF INFORMATION IN PUBLIC HEALTH  Scientists (progress of science)  Policy makers (regulations, fundings)  General public (behavioural change) Social value of knowledge, Scientific communicatin as a civil commitment Scientists, in their role of knowledge gatekeepers, should play an active role in public discussions on science Trust in scientists role • Spread knowledge • Face challanges
    • 7. HEALTH, INFORMATION, HUMAN RIGHTS Universal Declaration on Human rights, 1948, Article 25. Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family Definition of Health World Health Organization, 1948 Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity Access to information Is an essential component of human rights Today people still die for lack of information Open Access= equality in health
    • 8. 8 Right of information According to the International Human Rights Law, governments have the legal obligation to ensure that all citizens and health operators have access to the appropriate health information they need to protect their health and the health of the other people
    • 9. 9 The European Commission and the new funding scheme HORIZON 2020
    • 10. SPARC Workshop at EAHIL ● Rome, 10 June 2014 10
    • 11. What is Open Access (OA) for EC? What OA is NOT • Not an obligation to publish • OA publications go through the same peer review process SPARC Workshop at EAHIL ● Rome, 10 June 2014 11 OA = online access at no charge to the user • to peer-reviewed scientific publications • to research data Two main OA publishing business models • Self-archiving: deposit of manuscripts & immediate/delayed OA provided by author ("Green OA") • OA publishing: costs covered & immediate OA provided by publisher ("Gold OA")
    • 12. Open access to research publications reaching 'tipping point' Free availability of the majority of articles has been reached in the fields of general science and technology, biomedical research, biology and mathematics and statistics. SPARC Workshop at EAHIL ● Rome, 10 June 2014 12 European Commission Press Release - IP/13/786 21/08/2013 The global shift towards making research findings available free of charge for readers was confirmed in a study funded by the European Commission. This research suggests that OA is reaching the tipping point, with around 50% of scientific papers published in 2011 now available for free. … …
    • 13. Guide to Open Access to Publications and the Open Research Data Pilot in Horizon 2020 SPARC Workshop at EAHIL ● Rome, 10 June 2014 13 From EC (Jarkko SIREN) presentation at the Conference Harmonizing Current OA practices with H2020 Guidelines Pisa, 08 April 2014
    • 14. Why OA is relevant for EC  improving efficiency, quality and impact of publicly-funded research for society and innovation in Europe.  Open access to publications: a general principle in H2020.  Both Green and Gold open access models are promoted.  Depositing underlying data is encouraged.  Open access to data: a pilot in H2020 will test and monitor analyse experiences.  Open access policy is not a goal in itself, but an element in promoting forward-looking digital practices for future research, education and innovation SPARC Workshop at EAHIL ● Rome, 10 June 2014 14
    • 15. SPARC Workshop at EAHIL ● Rome, 10 June 2014 15
    • 16. SPARC Workshop at EAHIL ● Rome, 10 June 2014 16
    • 17. SPARC Workshop at EAHIL ● Rome, 10 June 2014 17
    • 18. SPARC Workshop at EAHIL ● Rome, 10 June 2014 18 • Energy; • Environment; • Health; • ITC • Research Infrastructures • Science in Society; • Socio-economic Sciences
    • 19. SPARC Workshop at EAHIL ● Rome, 10 June 2014 19 "This pilot is part of our commitment to openness in Horizon 2020. I look forward to seeing the first results, which will be used to help set the course for the future." Neelie Kroes, Vice-President of the European Commission for the Digital Agenda Commissioner Máire Geoghegan- Quinn, Research and Innovation H2020 "We know that sharing and re-using research data holds huge potential for science, society and the economy. This Pilot is an opportunity to see how different disciplines share data in practice and to understand remaining obstacles." About HORIZON 2020 and the Pilot on Open data
    • 20. SPARC Workshop at EAHIL ● Rome, 10 June 2014 20
    • 21. SPARC Workshop at EAHIL ● Rome, 10 June 2014 21 NEW
    • 22. SPARC Workshop at EAHIL ● Rome, 10 June 2014 22 The Commission recognises that research data is as important as publications.
    • 23. SPARC Workshop at EAHIL ● Rome, 10 June 2014 23
    • 24. SPARC Workshop at EAHIL ● Rome, 10 June 2014 24
    • 25. SPARC Workshop at EAHIL ● Rome, 10 June 2014 25 Questions?
    • 26. SPARC Workshop at EAHIL ● Rome, 10 June 2014 26 • Regulation establishing Horizon 2020 (article 18) • Specific Programme (preamble 1.3) • Rules for Participation (article 43) • Work Programme 2014-15 (Introduction 1.5 and relevant areas) • Model Grant Agreement (articles 6.2.D.3, 29.2 and 29.3) • Annotated Model Grant Agreement (reference to Guidelines below) • Guidelines on OA to Scientific Publications and Research Data in Horizon 2020 • Guidelines on Data Management in Horizon 2020 OA in Horizon 2020: where to look Source for all documents: Participant Portal (reference documents) http://ec.europa.eu/research/participants/portal/desktop/en/home.html
    • 27. Model Grant Agreement, pg. 61
    • 28. HEALTH SCIENCES. Where is the source of data?  Governmental research bodies  NIH  INSERM  ISS  +++  Academia  Research councils  Industry  and others  Publications as a reference value  MEDLINE  ISI  DOAJ  ROAR  + + +  altmetricsSPARC Workshop at EAHIL ● Rome, 10 June 2014 28 How to evaluate impact for science and society?
    • 29. Articles in MEDLINE SPARC Workshop at EAHIL ● Rome, 10 June 2014 YEARS 2011 % 2012 % 2013 % Total no. articles 954.272 953.437 1.032.290 full text available 26137 93,6 27575 94,8 30850 94,1 full text free 6211 22,2 7377 25,3 7658 23,4 29 Necessary to reduce the gap between full text available and full text free
    • 30. SPARC Workshop at EAHIL ● Rome, 10 June 2014 Most represented countries Disciplines 99 30
    • 31. SPARC Workshop at EAHIL ● Rome, 10 June 2014 Publication fees 9 no charges 67% conditional 5% charges 26% no info 2% How many journals in the world require fees to publish? no charges 87% conditional 2% charges 10% no info 1% How many journals in Italy require fees to publish? No fee 67% total 87% in Italy 31
    • 32. Some considerations on ISS SPARC Workshop at EAHIL ● Rome, 10 June 2014 32 ….as a reserch institute for public health producer and publisher of medical literature Established 1934 Total staff 1800 Researchers 900 Publications 1800
    • 33. All ISS publications are free online on ISS website in PDF, since 2000 SPARC Workshop at EAHIL ● Rome, 10 June 2014 33 The journal Annali is indexed in ISI and more recently in SciELO (producing HTML using the ISI IF formula NEWS SciELO Citation Index in WoS
    • 34. Digital archive Dspace ISS >34.000  Title, Author, Date  Publication Type  MESH terms SPARC Workshop at EAHIL ● Rome, 10 June 2014 34  Communities(9) Major awareness towards Open data High potential, BUT…  Prudent data sharing  Training courses  Empowerment  Direct contacts with authors  “Mediated” deposit
    • 35. Databases and registers in ISS website SPARC Workshop at EAHIL ● Rome, 10 June 2014 35 Free access databases Reserved access Databases Nazional registries What about metadata?
    • 36. Steps towards OA at ISS  2006 Signature of the Berlin Declaration  International Conference to present di presentazione del D-Space ISS  2007 Signature of the Petition to the european Commission in support of OA to publicly funded research ( http://www.ec-petition.eu/)  2008, realease of the institutional policy http://www.iss.it/binary/sae4/cont/policy_ISS.jpg  2009-2014 Participation in EU funded projects in support of OA (NECOBELAC, MEDOANET) SPARC Workshop at EAHIL ● Rome, 10 June 2014 ? 36
    • 37. SPARC Workshop at EAHIL ● Rome, 10 June 2014 37 The most populated repository in Italy is in Medicine (ISS) ROAR REGISTRY OF OA REPOSITORIES Long way towards open data
    • 38. NECOBELAC PROJECT FP7 coordinated by ISS  Promote OA for public health in Europe e Latin America (2009-2012)  Promote training in public health institutions (>50 courses)  network > 200 institutions  training support material (topic maps semantic web ) in 4 lunguages SPARC Workshop at EAHIL ● Rome, 10 June 2014 After NECOBELAC OA training and advocacy + Open Data OA topics is included in research activity 38 Objective and results
    • 39. SPARC Workshop at EAHIL ● Rome, 10 June 2014 OA topics in research activities Some examples after NECOBELAC in Latin America and Africa CASA (AIDS) E-learning platform in scientific communication 39 Asbestos project
    • 40. ECDL Health Doc towards a European patent for scientific information and documentation Pilot course, Rome, 4,5,12,19 marzo 2014  biomedical databases,  research evaluation parameters,  scientific writing,  open access publishing,  websites assessment,  tools for patient education and empowerment,  Web 2.0 applications.  accesso al documento originale e all’informazione a testo completo SPARC Workshop at EAHIL ● Rome, 10 June 2014 40 Certify skills on : Focus on skills needed for managing scientific information and create awareness on OA Results of the pilot course will be presented at EAHIL 2014
    • 41. The heart of the ECDL Project is a Syllabus summarising the basic competences health professionals should have to get the diploma ECDL HealthDoc 1 Sources of health information 2 Access to full-text information 3 Web information quality 4 Research evaluation 5 EBM documentation 6 Scientific writing 7 Health information for citizens and patients 8 Web 2.0
    • 42. First results on a survey on JCR/DOAJ journals, 2010-2012 How many DOAJ are in JCR? SPARC Workshop at EAHIL ● Rome, 10 June 2014 2010 2011 2012 Riviste JCR Riviste DOAJ 83368073 8471 9,69 % 10,32 % 10,95 % ISS journalsAll JCR jounals 42 E. Poltronieri, C. Mancini, 2014, unpublished
    • 43. Italian translation di E. Poltronieri, A. De Robbio, P. Gargiulo, P. De Castro SPARC Workshop at EAHIL ● Rome, 10 June 2014 43 To support OA to research publications and data
    • 44. SPARC Workshop at EAHIL ● Rome, 10 June 2014 44 ECRAN Project European Communication on Research Awareness Needs The ECRAN Project aims to make understanding clinical trials - a relevant element of medical research - easy, and tells you all about taking part in them. • Awareness • Inclusion • Participation • Sharing Involve all stakeholders
    • 45. DNA databanks SPARC Workshop at EAHIL ● Rome, 10 June 2014 45 Among the pioneers of data sharing Example of the advantages of being open and sharing for all stakeholders
    • 46. SINIACASistema Informativo Nazionale Incidenti di Ambienti di Civile Abitazione National informative system on home injuries • First AID • Police National statictics (open) Minstry of Health SPARC Workshop at EAHIL ● Rome, 10 June 2014 46 IDB - Injury Data Base (Europe) Search per country Compare data Example of integration of different local systems
    • 47. EC public consultation on research data • How can we define research data and what types of research data should be open? • When and how does openness need to be limited? • How should the issue of data re-use be addressed? • Where should research data be stored and made accessible? • How can we enhance data awareness and a culture of sharing? LEAD QUESTIONS Bruxelles, July 2, 2013 Esempio dell’atteggiamento dei ricecatori tratto dal gruppo BRIF SPARC Workshop at EAHIL ● Rome, 10 June 2014 47
    • 48. Position of the Editorial Subgroup of the project BRIF (BIORESOURCE RESEARCH IMPACT FACTOR) agreed upon during the Workshop on Standardization of bioresources citation. ISS, Rome, June 21, 2013 It is important to create awareness and trust on the use of open bioresources. The EC should create mechanisms and incentives that facilitate the culture of sharing through ad hoc recommendations and the inclusion of specific clauses on open research data in their funding schemes. Technical issues about quality, maintenance and long-term preservation of open data should take into consideration the requirements of the different stakeholders. The EC should consider funding measures to create and test tools for implementing such mechanisms. There is general agreement that it is important that the EC consider the issue of bioresources/biobanks as relevant sources of aggregated open research data that have an impact on both on science and society. It is important that such data are shared for the progress of global research, to avoid duplication and to benefit from large investments in terms of both financial and personnel efforts, including donors’ In consideration of the ethical issues associated to bioresources, only aggregated results can be shared openly As regards where research data be stored, there was discussion about infrastructures and clouding and about maintenance and preservation issues during and after a research project involving collection and use of bioresources Awareness and Impact Levels of sharing. Aggregated data  Data life cycle. Data Management Plan Awareness, Trust, Binding mechanisms P. De Castro, ISS, IT SPARC Workshop at EAHIL ● Rome, 10 June 2014 48
    • 49. Funding authorities should adopt incentive and binding mechanisms and prioritize funding to research projects whose outputs and underlying research data are openly accessible and reusable. Such research projects should produce data which are natively open and reusable E-Research, E-science – Global collaboration – Next generation infrastructure Research data are associated with research activity in the process of creating knowledge on the basis of existing knowledge Research data and Open data are strictly connected, especially when publicly funded research is involved, but the different nature of research data needs careful consideration Research data need to be shared and properly managed within and beyond the research process which generated them, and they need to be preserved in such a way as to maximise benefits from their use and re-use for the sake of all individuals and society at large (NSF) Strategic infrastructures for open data should be globally integrated and should be built on persistent identification mechanisms which account the versioning of the whole chain of research outputs (data, pre-print, post-print and other research products subject to disclosure). This will achieve both the goals of smart access and reuse of research outputs and a coherent framework for digital preservation (OpenAire Plus, EUDAT). Multidimensional Approach to Open Science (liason officers) Goverments gain from open data sharing (EC, OECD, G8 Open Research data) Definition, awareness, policies Data Management Plan Binding mechanisms in funding schemes Return on investment Globally integrated infrastructures P. De Castro, ISS, IT Critical points EC Consultation, July 2013 SPARC Workshop at EAHIL ● Rome, 10 June 2014 49
    • 50. SPARC Workshop at EAHIL ● Rome, 10 June 2014 50 BRIF takes part in the testing of a new journal Ubiquity Press
    • 51. Final considerations simplifying the complexity of the processes involved Researchers pride was to produce and share quality publications (journal articles, reports) as reference tools useful for the scientific community SPARC Workshop at EAHIL ● Rome, 10 June 2014 51 open data sharing is the only way to keep effective communication towards progress in science and guarantees major equity to access and distribution of resources Past Present Evaluation processes directly influence researchers’ choices ISS, since 1938 has been publishing; since 2000 all publications are Future Conjugate advantages coming from ICT with ethical principles of research within a concerted networked action (sharing, transparency, integrity, privacy, innovation, sustainibility)
    • 52. … The major concern about data sharing is not associated with one project only (where it seems easier to foresee data sharing and the creation of DMPs) but, it is at broader institutional level, national or international level where a commitment towards open sharing is a real challenge … SPARC Workshop at EAHIL ● Rome, 10 June 2014 52 “ ” The voice of researchers (ISS) paola.decastro@iss.itTHANK YOU!

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