Setting
up
the


    Pediatric
TBNET





    Dr
Beate
Kampmann

On
behalf
of
the
PTBNET
group

Aims:

         to
improve
the
care
for
children
with
TB


                        in
Europe


        
    
    
by
creat...
April
09

                              Agenda



            1.  Presentations
from
each
country:

            Theme
1:
D...
Description
of
practice

160
                                                                                       Nation...
Designated
database

     Consensus
that
a
paediatric
database
is
highly
desirable


     ?
Use
existing
platforms
or
star...
Research
Priorities

Immuno‐assays
in
children

Longitudinal
studies,
age
related,
MDR
monitoring,
site‐specific,
in
immun...
Where
from
here

Logo


Yahoo
mail
group

 
    
     
    
    
P‐TBNET@yahoogroups.com


Database
negotiations
with
TBNE...
Ukraine
           Slovenia





           Bulgaria

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Vienna Ptbnet Report

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Vienna Ptbnet Report

  1. 1. Setting
up
the

 Pediatric
TBNET
 Dr
Beate
Kampmann
 On
behalf
of
the
PTBNET
group

  2. 2. Aims:
 to
improve
the
care
for
children
with
TB

 in
Europe
 
 
 
 
by
creating
a
network
of
pediatric
experts
in
TB
in
Europe

 ‐
to
more
accurately
describe
active
and
latent
TB
in
children
in
Europe
 ‐
to

identify
differences
in
practice
between
European
countries
 ‐
to
improve
clinical
management
and
research
in
childhood
TB
in
Europe
 ‐ 
to
develop
a
European
"expert
panel"
for
consultation
on
paediatric
TB

 

and
possibly
a
training
course

 
 
 
 
 
 
 
 
 
 
 






clinicians
 ‐
to
conduct
collaborative
research

 
 
 

 
 
 
 
 
 
 
 
epidemiologists
 
 
 
laboratory
scientists
 
 
 
 
 
 


  3. 3. April
09
 Agenda
 1.  Presentations
from
each
country:
 Theme
1:
Data
capture
for
TB
in
your
country
 Theme
2:
Practical
Care
for
children
in
your
 country/at
your
hospital

 2.
Data
collection:

 Discussion
of
shared
database
options
 3.
Discussion
of
multicentre
studies:
 Defining
research
priorities
and
possible
future
 studies
 4.
Conclusions
and
future
plans:
 What
do
we
want
to
be/do
 Possible
funding
streams‐
where
to
go

  4. 4. Description
of
practice
 160 National
guidelines
for
children
 140 Yes:
70%
 120 No:
20%
 Proposed:
10%
 100 80 children TB % 60 40 Over
30
variables
combined

 from
all
participating
countries
 20 0 Austria Belgium Greece Holland Italy LithuaniaRomania Spain Turkey UK Action
point
1:
It
was
agreed
that
the
presentations
would
be
used
to
prepare
a
 joint
publication
to
the
topic
of
tuberculosis
in
children
in
Europe‐
in
progress

  5. 5. Designated
database
 Consensus
that
a
paediatric
database
is
highly
desirable
 ?
Use
existing
platforms
or
start
from
scratch
 ?
ECDC
information‐
too
limited,
disease
only
 ?
Should
be
able
to
combine
with
adult
data
(contacts)
 ?
Example
of
PENTA
database‐
long
evolved….
 ?
What
to
include/brainstorm
 Needs
to
not
just
focus
on
TB
disease
but
include
exposure/infection/disease
 Action
Point
2:

 Designated
funding
needs
to
be
identified
to
move
this
project
forwards
substantially
 In
the
shorter
term,
we
will
investigate
existing
platforms
 ‐
potential
data
protection
issues
in
our
individual
countries
and

 ‐
compile
the
data
fields
that
we
would
like
to
include
(project
leaders,
then
group
opinion)

  6. 6. Research
Priorities
 Immuno‐assays
in
children
 Longitudinal
studies,
age
related,
MDR
monitoring,
site‐specific,
in
immunocompromised
 Pharmacokinetics
 New
and
old
TB
drugs
 MDR
TB
 Risk
factors,
management
(exposed
and
cases)
 Action
point
3:

 ‐
It
was
agreed
that
members
with
existing
studies
would
liaise

 to
share
data
and
compare
experience
and
recommendations
as
well
as

 prepare
shared
data
for
joint
publications.
Protocol
sharing
in
labs/training
 ‐
People
mutually
interested
in
new
projects
will
communicate
directly
after
shared

 “census”
of
who
is
most
interested
in
what
area
(proposal
leaders)

  7. 7. Where
from
here
 Logo
 Yahoo
mail
group

 
 
 
 
 
P‐TBNET@yahoogroups.com
 Database
negotiations
with
TBNET‐
in
process,
needs
to
be
intensified
 Funding
opportunities
?
within
EU‐
FP7
calls
 Descriptive
manuscript
of
childhood
TB
in
Europe
to
be
prepared
 PTBNET
members
contributing
to
anti‐TNF
paper
 Expansion
of
the
group
to
include
clinician,
laboratory
and
epidemiologist
in
each
place
 Close
collaborations
with
TBNET
 Database
 Website
space
 MDR
study
 Paediatric
aspects
of
other
studies

  8. 8. Ukraine
 Slovenia
 Bulgaria


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