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E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
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E-Patients: Empowered, Engaged, Equipped, Enabled

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E-Patients: Empowered, Engaged, Equipped, Enabled – ”e-Patient Dave” de Bronkart; Co-Chairman, Society for Participatory Medicine

E-Patients: Empowered, Engaged, Equipped, Enabled – ”e-Patient Dave” de Bronkart; Co-Chairman, Society for Participatory Medicine

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    • 1. E-Patients: Empowered, Engaged, Equipped, Enabled<br />“e-Patient Dave” deBronkart@ePatientDave<br />facebook.com/ePatientDaveLinkedIn.com/in/ePatientDavedave@epatientdave.com<br />
    • 2. “I want to note especially the importance of the resource that is most often under-utilized in our information systems – our patients”<br />Charles Safran MD, Beth Israel Deaconess and Harvard Medical SchoolTestimony to the House Ways & Means subcommittee on health, 2004<br />
    • 3. How I came to be here today<br />High tech marketing<br />Data geek; tech trends; automation<br />2007: Cancer kicker<br />2008: E-Patient blogger<br />2009: Participatory Medicine, Public Speaker<br />2010: full time<br />
    • 4. JAMIA, 1997<br />1997<br />
    • 5. e-Patients.net founderTom Ferguson MD<br /> 1944-2006<br />Doc Tom said…<br />Doc Tom said,“e-Patients are<br />Equipped<br />Engaged<br />Empowered<br />Enabled”<br />
    • 6. Empowered:Speaks up. Expresses wants.Responsible for care choices.<br />
    • 7. Engaged:Actively involved.Not a passive “care receptacle.”<br />
    • 8. Note: Just being online no longer qualifies one as an e-patient.<br />
    • 9. The Engaged Patient, 2006<br />Some of the 12 items in my pre-appointment “agenda” email<br />
    • 10. The Incidental Finding<br />Routine shoulder x-rayJan. 2, 2007<br />“Your shoulder will be fine … but there’s something in your lung”<br />
    • 11. Multiple tumors in both lungs <br />Where’s This From??<br />Where’s This From??<br />
    • 12. Primary Tumor: Kidney<br />
    • 13. E-Patient Activity 1<br />E-Patient Activity 1:Researching my condition<br />
    • 14. Classic Stage IV<br />Classic Stage IV, Grade 4Renal Cell Carcinoma<br /> Illustration on the drug company’s web site<br />
    • 15. “My doctor prescribed ACOR”(Community of my patient peers)<br />E-Patient Activity 2:<br />
    • 16. Reading (and sharing) my hospital data online<br />E-Patient Activity 3:<br />
    • 17. E-Patient Activity 4:My own social support network(CaringBridge.org - family and friends - journal & guestbook)<br />
    • 18. E-Patient Activity 5:Tracking my Data<br />
    • 19. Baseline: 39x43 mm<br />50 weeks: 20x12 mm<br />Surgery & Interleukin worked.Target Lesion 1 – Left Upper Lobe<br />
    • 20. E-Patient Activity 6:Start a blog (pay it forward)<br />
    • 21. John Sharp, Cleveland Clinic:<br />“If you have not read the e-Patient White Paper, you do not understand the future of medicine.”<br />John Sharp<br />
    • 22. Society for Participatory Medicinewww.ParticipatoryMedicine.org<br /> “Participatory Medicine is a movement in which networked patients shift from being mere passengerstoresponsible driversof their health, and in which providers encourage and value themasfull partners.”<br />
    • 23. Launched last fall: jopm.org @JourPMJournal of Participatory Medicine<br />Taking it “from anecdote to evidence”<br />Peer reviewed for and by providers, patients, and all<br />Open access (free)<br />Co-Editors are a physician and lay editor/patient<br />
    • 24. NLM ePatient Conference<br />SPM invited to speak<br />Two e-Patients presented<br />
    • 25. Medicine 2.0 Congress<br /> Invited by Dr. GuntherEysenbach to deliver the opening keynote at the Medicine 2.0 Congress Toronto, September 2009<br />
    • 26. Psoas muscle(My kidney tumor was encroaching on it) my rendering on VisibleBody.com<br />
    • 27. Why not “Google Earth for my body”?<br />

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