Your SlideShare is downloading. ×
0
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
Upcoming SlideShare
Loading in...5
×

Thanks for flagging this SlideShare!

Oops! An error has occurred.

×
Saving this for later? Get the SlideShare app to save on your phone or tablet. Read anywhere, anytime – even offline.
Text the download link to your phone
Standard text messaging rates apply

E-Patients: Empowered, Engaged, Equipped, Enabled

5,144

Published on

E-Patients: Empowered, Engaged, Equipped, Enabled – ”e-Patient Dave” de Bronkart; Co-Chairman, Society for Participatory Medicine

E-Patients: Empowered, Engaged, Equipped, Enabled – ”e-Patient Dave” de Bronkart; Co-Chairman, Society for Participatory Medicine

Published in: Health & Medicine
0 Comments
1 Like
Statistics
Notes
  • Be the first to comment

No Downloads
Views
Total Views
5,144
On Slideshare
0
From Embeds
0
Number of Embeds
2
Actions
Shares
0
Downloads
0
Comments
0
Likes
1
Embeds 0
No embeds

Report content
Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
No notes for slide
  • @4:23 + 22 = 4:45
  • Transcript

    • 1. E-Patients: Empowered, Engaged, Equipped, Enabled
      “e-Patient Dave” deBronkart@ePatientDave
      facebook.com/ePatientDaveLinkedIn.com/in/ePatientDavedave@epatientdave.com
    • 2. “I want to note especially the importance of the resource that is most often under-utilized in our information systems – our patients”
      Charles Safran MD, Beth Israel Deaconess and Harvard Medical SchoolTestimony to the House Ways & Means subcommittee on health, 2004
    • 3. How I came to be here today
      High tech marketing
      Data geek; tech trends; automation
      2007: Cancer kicker
      2008: E-Patient blogger
      2009: Participatory Medicine, Public Speaker
      2010: full time
    • 4. JAMIA, 1997
      1997
    • 5. e-Patients.net founderTom Ferguson MD
      1944-2006
      Doc Tom said…
      Doc Tom said,“e-Patients are
      Equipped
      Engaged
      Empowered
      Enabled”
    • 6. Empowered:Speaks up. Expresses wants.Responsible for care choices.
    • 7. Engaged:Actively involved.Not a passive “care receptacle.”
    • 8. Note: Just being online no longer qualifies one as an e-patient.
    • 9. The Engaged Patient, 2006
      Some of the 12 items in my pre-appointment “agenda” email
    • 10. The Incidental Finding
      Routine shoulder x-rayJan. 2, 2007
      “Your shoulder will be fine … but there’s something in your lung”
    • 11. Multiple tumors in both lungs
      Where’s This From??
      Where’s This From??
    • 12. Primary Tumor: Kidney
    • 13. E-Patient Activity 1
      E-Patient Activity 1:Researching my condition
    • 14. Classic Stage IV
      Classic Stage IV, Grade 4Renal Cell Carcinoma
      Illustration on the drug company’s web site
    • 15. “My doctor prescribed ACOR”(Community of my patient peers)
      E-Patient Activity 2:
    • 16. Reading (and sharing) my hospital data online
      E-Patient Activity 3:
    • 17. E-Patient Activity 4:My own social support network(CaringBridge.org - family and friends - journal & guestbook)
    • 18. E-Patient Activity 5:Tracking my Data
    • 19. Baseline: 39x43 mm
      50 weeks: 20x12 mm
      Surgery & Interleukin worked.Target Lesion 1 – Left Upper Lobe
    • 20. E-Patient Activity 6:Start a blog (pay it forward)
    • 21. John Sharp, Cleveland Clinic:
      “If you have not read the e-Patient White Paper, you do not understand the future of medicine.”
      John Sharp
    • 22. Society for Participatory Medicinewww.ParticipatoryMedicine.org
      “Participatory Medicine is a movement in which networked patients shift from being mere passengerstoresponsible driversof their health, and in which providers encourage and value themasfull partners.”
    • 23. Launched last fall: jopm.org @JourPMJournal of Participatory Medicine
      Taking it “from anecdote to evidence”
      Peer reviewed for and by providers, patients, and all
      Open access (free)
      Co-Editors are a physician and lay editor/patient
    • 24. NLM ePatient Conference
      SPM invited to speak
      Two e-Patients presented
    • 25. Medicine 2.0 Congress
      Invited by Dr. GuntherEysenbach to deliver the opening keynote at the Medicine 2.0 Congress Toronto, September 2009
    • 26. Psoas muscle(My kidney tumor was encroaching on it) my rendering on VisibleBody.com
    • 27. Why not “Google Earth for my body”?

    ×