E-Patients: Empowered, Engaged, Equipped, Enabled<br />“e-Patient Dave” deBronkart@ePatientDave<br />facebook.com/ePatient...
“I want to note especially the importance of the resource that is most often under-utilized in our information systems – o...
How I came to be here today<br />High tech marketing<br />Data geek; tech trends; automation<br />2007: Cancer kicker<br /...
JAMIA, 1997<br />1997<br />
e-Patients.net founderTom Ferguson MD<br /> 1944-2006<br />Doc Tom said…<br />Doc Tom said,“e-Patients are<br />Equipped<b...
Empowered:Speaks up. Expresses wants.Responsible for care choices.<br />
Engaged:Actively involved.Not a passive “care receptacle.”<br />
Note: Just being online no longer qualifies one as an e-patient.<br />
The Engaged Patient, 2006<br />Some of the 12 items in my pre-appointment “agenda” email<br />
The Incidental Finding<br />Routine shoulder x-rayJan. 2, 2007<br />“Your shoulder  will be fine …  but there’s   somethin...
Multiple tumors in both lungs <br />Where’s This From??<br />Where’s This From??<br />
Primary Tumor: Kidney<br />
E-Patient Activity 1<br />E-Patient Activity 1:Researching my condition<br />
Classic Stage IV<br />Classic  Stage IV, Grade 4Renal Cell Carcinoma<br />  Illustration on     the drug company’s   web s...
“My doctor prescribed ACOR”(Community of my patient peers)<br />E-Patient Activity 2:<br />
Reading (and sharing) my hospital data online<br />E-Patient Activity 3:<br />
E-Patient Activity 4:My own social support network(CaringBridge.org - family and friends - journal & guestbook)<br />
E-Patient Activity 5:Tracking my Data<br />
Baseline: 39x43 mm<br />50 weeks: 20x12 mm<br />Surgery & Interleukin worked.Target Lesion 1 – Left Upper Lobe<br />
E-Patient Activity 6:Start a blog (pay it forward)<br />
John Sharp, Cleveland Clinic:<br />“If you have not read the e-Patient White Paper, you do not understand the future of me...
Society for Participatory Medicinewww.ParticipatoryMedicine.org<br />  “Participatory Medicine is a movement in which netw...
Launched last fall:          jopm.org    @JourPMJournal of Participatory Medicine<br />Taking it “from anecdote to evidenc...
NLM ePatient Conference<br />SPM invited to speak<br />Two e-Patients presented<br />
Medicine 2.0 Congress<br />	        Invited by Dr. GuntherEysenbach to deliver	        the opening keynote at the Medicine...
Psoas muscle(My kidney tumor was encroaching on it)         my rendering on VisibleBody.com<br />
Why not “Google Earth for my body”?<br />
E-Patients: Empowered, Engaged, Equipped, Enabled
E-Patients: Empowered, Engaged, Equipped, Enabled
Upcoming SlideShare
Loading in …5
×

E-Patients: Empowered, Engaged, Equipped, Enabled

5,467 views
5,322 views

Published on

E-Patients: Empowered, Engaged, Equipped, Enabled – ”e-Patient Dave” de Bronkart; Co-Chairman, Society for Participatory Medicine

Published in: Health & Medicine
0 Comments
1 Like
Statistics
Notes
  • Be the first to comment

No Downloads
Views
Total views
5,467
On SlideShare
0
From Embeds
0
Number of Embeds
389
Actions
Shares
0
Downloads
0
Comments
0
Likes
1
Embeds 0
No embeds

No notes for slide
  • @4:23 + 22 = 4:45
  • E-Patients: Empowered, Engaged, Equipped, Enabled

    1. 1. E-Patients: Empowered, Engaged, Equipped, Enabled<br />“e-Patient Dave” deBronkart@ePatientDave<br />facebook.com/ePatientDaveLinkedIn.com/in/ePatientDavedave@epatientdave.com<br />
    2. 2. “I want to note especially the importance of the resource that is most often under-utilized in our information systems – our patients”<br />Charles Safran MD, Beth Israel Deaconess and Harvard Medical SchoolTestimony to the House Ways & Means subcommittee on health, 2004<br />
    3. 3. How I came to be here today<br />High tech marketing<br />Data geek; tech trends; automation<br />2007: Cancer kicker<br />2008: E-Patient blogger<br />2009: Participatory Medicine, Public Speaker<br />2010: full time<br />
    4. 4. JAMIA, 1997<br />1997<br />
    5. 5. e-Patients.net founderTom Ferguson MD<br /> 1944-2006<br />Doc Tom said…<br />Doc Tom said,“e-Patients are<br />Equipped<br />Engaged<br />Empowered<br />Enabled”<br />
    6. 6. Empowered:Speaks up. Expresses wants.Responsible for care choices.<br />
    7. 7. Engaged:Actively involved.Not a passive “care receptacle.”<br />
    8. 8. Note: Just being online no longer qualifies one as an e-patient.<br />
    9. 9. The Engaged Patient, 2006<br />Some of the 12 items in my pre-appointment “agenda” email<br />
    10. 10. The Incidental Finding<br />Routine shoulder x-rayJan. 2, 2007<br />“Your shoulder will be fine … but there’s something in your lung”<br />
    11. 11. Multiple tumors in both lungs <br />Where’s This From??<br />Where’s This From??<br />
    12. 12. Primary Tumor: Kidney<br />
    13. 13. E-Patient Activity 1<br />E-Patient Activity 1:Researching my condition<br />
    14. 14. Classic Stage IV<br />Classic Stage IV, Grade 4Renal Cell Carcinoma<br /> Illustration on the drug company’s web site<br />
    15. 15. “My doctor prescribed ACOR”(Community of my patient peers)<br />E-Patient Activity 2:<br />
    16. 16. Reading (and sharing) my hospital data online<br />E-Patient Activity 3:<br />
    17. 17. E-Patient Activity 4:My own social support network(CaringBridge.org - family and friends - journal & guestbook)<br />
    18. 18. E-Patient Activity 5:Tracking my Data<br />
    19. 19. Baseline: 39x43 mm<br />50 weeks: 20x12 mm<br />Surgery & Interleukin worked.Target Lesion 1 – Left Upper Lobe<br />
    20. 20. E-Patient Activity 6:Start a blog (pay it forward)<br />
    21. 21. John Sharp, Cleveland Clinic:<br />“If you have not read the e-Patient White Paper, you do not understand the future of medicine.”<br />John Sharp<br />
    22. 22. Society for Participatory Medicinewww.ParticipatoryMedicine.org<br /> “Participatory Medicine is a movement in which networked patients shift from being mere passengerstoresponsible driversof their health, and in which providers encourage and value themasfull partners.”<br />
    23. 23. Launched last fall: jopm.org @JourPMJournal of Participatory Medicine<br />Taking it “from anecdote to evidence”<br />Peer reviewed for and by providers, patients, and all<br />Open access (free)<br />Co-Editors are a physician and lay editor/patient<br />
    24. 24. NLM ePatient Conference<br />SPM invited to speak<br />Two e-Patients presented<br />
    25. 25. Medicine 2.0 Congress<br /> Invited by Dr. GuntherEysenbach to deliver the opening keynote at the Medicine 2.0 Congress Toronto, September 2009<br />
    26. 26. Psoas muscle(My kidney tumor was encroaching on it) my rendering on VisibleBody.com<br />
    27. 27. Why not “Google Earth for my body”?<br />

    ×