Serious Play: The Importance of a Meaningful Life After a Catastrophic InjuryPresentation Transcript
Speaker: Joanne Finegan, MSA, CTRS CEO, ReMed NRH/ReMed Joint Conference October 27, 2011 Serious Play: The Importance of a Meaningful Life After a Catastrophic Injury
FACTS… from the World Health Organization (WHO) Report on Disability
Disability is part of the human condition. Almost everyone will be temporarily or permanently impaired at some point in life, and those who survive to old age will experience increasing difficulties in functioning.
How are the lives of people with disabilities affected?
They have poor health outcomes.
They have lower educational achievements.
They are less economically active.
They experience higher rates of poverty.
They cannot always live independently or participate fully in community activities.
WHO Report on Disability
Health (medical) Conditions
Lack of Opportunities
Rehabilitation and Education can pave the way for a more fulfilling LIFE
“ PLAY” Defined
What does good ‘ole Webster have to say:
1 a: to engage in sport or recreation: FROLIC
2 a: to take advantage
c: to move or function freely within prescribed limits
4 a: to engage or take part in a game
b: to engage or occupy oneself
Synonyms: dalliance, frolic, fun, fun and games, recreation, relaxation, rollicking, sport
What Then Is Serious PLAY?
Someone Who “PLAYS” with Intent and with Variety that Includes:
Do We Still “PLAY” as Adults?
Should “PLAY” End After a Catastrophic Injury?
Pre- Brain Tumor
President Harry S. Truman with the Bowlers Victory Legion (now called Bowlers to Veterans Link) winners at the Whitehouse Bowling Lanes "BVL holds the distinction of being the only national sports organization specifically devoted to providing therapeutic and recreational therapy for our veterans. These "extras" are essential to the social and psychological rehabilitation of these men and women." http://www.bowlforveterans.org
Think DIFFERENT We need to challenge people to think BEYOND their Disabilities, this is how successful outcomes occur
Each of Us Want Lives Where We: are supported by & contribute to our communities Have our own dreams and our own journeys Have opportunities to meet new people; try new things; change jobs; change who we live with & where we live Have what/who is important to us in everyday life; people to be with; things to do, places to be Stay healthy & safe (On our own terms) (with apologies to Abraham Maslow) Michael Smull
KEY outcomes of Recreational Therapy in rehabilitation are:
Effective re-entry into the community with or without supports
Opportunities for socialization and development of friends
Stable activity pattern
Finding Meaning, Purpose and FUN!!!
Where To Begin??
What We Do Reflects Who We Are…
How Do We Really Spend Our Time? Source: Csikszentmihalyi and Graef 1980
Productive Activities 24-60%
Working or Studying
Maintenance Activities 20-42%
Leisure Activities 20-43%
TV and reading
Hobbies, sports, movies, restaurants
Talking and socializing
-What did the person like or spend time doing before?
-What resources are available in my community?
-Ask widely - Support groups, former therapists, physicians, family, friends, work colleagues, church and other community people…
“ I don’t have to worry about my disability or being treated differently out here” Jason
Our quality of life everyday is determined by the presence or absence of things that are important to us – our choices, our rituals.
M. Smull, 1996
Can Recreation Change Lives, Add Value, Decrease Costs???
Other Outcomes: Health Outcomes From Exercise, Fitness and Relaxation
An improvement in physical health status
Reduction in complications related to secondary disability
An improvement in long term health status and reduction in disease risk factors
An improvement in cognitive functioning
A reduction in reliance on the health care system
“ It feels so good to finally be able to do stuff again…”
Carter, Van Andel, and Robb Therapeutic Recreation: A Practical Approach One way to ensure lives are improved is by enhancing personal wellbeing through involvement in leisure activities.
community resources and experiences give individuals the opportunity to enhance their activity plan, quality of life, and improve/practice their skills
Inclusive Recreation Is:
Having the same choices and opportunities in recreation activities that other people have.
Being accepted and appreciated for who you are.
Being with friends who share your interests, not your disability.
Being a valued customer and a welcomed participant in community recreation programs regardless of ability levels.
Options and Opportunities in the Home and Community The List is Endless.
What’s Out There
Senior Centers and Services
Chamber of Commerce
Educational Institutions – schools, community colleges, universities…
Meals on Wheels
Club Houses or Sports/Activity Centers
SPCA and animal shelters
What’s Out There
Adult Ed/Night School
Senior Living settings
Township or community programs
VA and other hospitals
Learn To Swing Golf clinics and other sports instruction
Online connections and social groups i.e. “Meet Up”, Facebook, blogging…
Clubs – biking, hiking, horticulture
Brain Games and other online resources
Yoga, massage, meditation
What’s Out There
Carnivals and Fairs
Board and card games
Starbucks or local coffee shop
Programs offered by local hospitals, rehabs
What’s Out There
Nightclubs and Dancing
Craft groups and classes
Other Hobby groups and classes
TBI specific groups and events
Brain Injury associations
There is no Magic Bullet or Solution, Just Lots of Experiences to See What Fits
Examples of Meaningful Engagement
Senior Centers/Retirement Communities
-Bingo, board games, cards
-Socializing with residents
-Reading newspapers/current events
-Writing/reading letters for residents
-Kitchen work/serving lunch
Special Interest Organizations
Food Pantry-restocking shelves, packing bags
-Special programs and events
American Cancer Society
Wayne Art Center Wayne, PA
Arts for The Mind:
Painting & Ceramics for Persons with
www.vsarts.org National Sports Center for the Disabled Courage, Strength and Determination www.nscd.org
www.k94life.org America the Beautiful The National Parks and Federal Recreational Lands Pass Series www.nps.gov/findapark/passes.htm National Capital - Washington DC, DE, MD David Folkerts, Regional Coordinator [email_address]
Three Rivers Adaptive Sports Western PA www.traspa.org Everyone Can Dance!!! www.americandancewheels.org www.eaga.org Resources for the Disabled Hunter and Outdoorsman • Helping those with disabilities make life in the Great Outdoors accessible http://followmeoutdoors.com
What is Rails-to-Trails? The Rails-to-Trails Conservancy was established in 1985 as a national non-profit charity with its mission to enhance America’s communities and countryside by converting thousands of miles of abandoned rail lines into a national system of public trails. So far, nearly 7,000 miles of interconnected rail-trails have been converted. In addition to hiking trails, some trails have been designated for other uses such as bicycling, skiing, or snowmobiling. Rail-trails are safe, easily accessible and many times very scenic. For a guide to the system write to: Rails-to-Trails Conservancy, The Duke Ellington Building 2121 Ward Ct., NW 5 th Floor Washington, DC 20037 Visit Rails-to-Trails for more information.
An Adult Education Program E-mail: firstname.lastname@example.org
www.disabled-world.com Free Federal Parks and Recreation Access Pass http://www.usga.org/rules/disabilities/Rules-for-Golfers-with-Disabilities/
Parade.com/braingames Brain Training Games published: 09/22/2009 Share 139 Lost in Migration Get distracted too easily? Then this is the game for you! Focus on the center bird without letting the other birds distract you. Word Bubble Our most popular game! Come up with as many words as you can that begin with the three letters provided. Memory Matrix Challenge yourself to remember patterns that grow bigger and more complex as you improve. Speed Match Feeling like your reaction time could use some improvement? Race against the clock and put your reaction speed to the test.
Cafe Plus open every Saturday afternoon from 12 to 4. There's coffee, bagels, ice tea, popcorn, conversation, and much more! What makes it different? Simple. It's run by and for head-injured people. Of course friends, family members, and professionals are always welcome too. Try your hand at : Meeting new people and making friends Playing cards, checkers, or other games with cool people Listening to music Watching a movie Playing computer games or surf the Internet Join an exciting writing group CLUBHOUSES
Other Stuff Target offers free and reduced-price events across the country. If you go to the Community Outreach area of the Target website, you can select a city and see what programs are available in your area. In Washington, DC, for example, they have free or reduced prices to the John F. Kennedy Center for the Performing Arts. TARGET
From project basics to giving your child the opportunity to say, "I built it!", our Build and Grow kid's clinics are a great way to help build confidence! Bring the kids into any Lowe's store and build a FREE wooden project. Each participant also receives a free apron, goggles, a project themed patch, and a certification of merit upon completion of their project.
More Other Stuff
This website lists free or low cost tours to a variety of interesting factories across the US.
This website lists bowling alleys that offer 2 free games to kids most weekday mornings.
Free movies for kids on Tues and Wed mornings
PA Adaptive Recreation Resources
Blue Ridge Adaptive Snow Sports (BRASS)- offers ski and snowboard instruction for people with disabilities at Ski Liberty in Carroll Valley, PA
P.O. Box 1414, Severna Park, MD 21146
717-642-8282, ext. 3479
Two Tops Mountain Adaptive Sports Foundation- Provide adaptive snow skiing opportunities for people with disabilities at Whitetail Resort in Mercersburg, PA.
675 Mower Rd. Chambersburg, PA 17240
more, Pennsylvania Adaptive Recreation Resources
Three Rivers Adaptive Sports (TRAS) - promotes quality of life, education and to provide quality year-round sports and recreation opportunities for people with disabilities, their families and friends
PO Box 38235 Pittsburgh, PA 15238
Maryland Adapted Recreation Resources
Baltimore Adapted Recreation and Sports (BARS)- is a community based, non-profit organization dedicated to providing year round recreational opportunities to both children and adults with disabilities. Among other activities BARS offers an adaptive snow ski program at Ski Roundtop in Lewisberry, PA
NARHA (North American Riding for the Handicapped Association)- changes lives by promoting excellence in equine assisted activities.
Lists 24 NAHRA Centers in Pennsylvania
National Center for Physical Activity and Disability (NCPAD)- promotes substantial health benefits that can be gained from participating in regular physical activity. The slogan of NCPAD is Exercise is for EVERY body , and every person can gain some health benefit from being more physically active.
Run. Walk. Get inspired. Get involved. Make a new friend. Make a difference. Take the first step. Join the Race.
Key Lesson from Mark Ylvisaker, PhD “ In the absence of meaningful engagement in chosen life activities, all interventions will ultimately fail”
The End Questions and Comments THANK YOU!! and “ PLAY” on…