Cmhp summer 2010 newsletter


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Mental Health Summer 2010 Newsletter: Photo competition! Dementia Carers info; Benzos article; concessionary bus fares info; free mobile calls to benefit claim lines; Cornwall Respect Festival

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Cmhp summer 2010 newsletter

  1. 1. C O R N W A L L M E N T A L H E A L T H P R O J E C T Summer 2010 Mental Health Project Newsletter Summer 2010
  2. 2. Mental Health Project Newsletter Summer 2010 2 Inside this issue... Cover artwork: by Karen Mitchell Project update 4 Welcome to new project staff 5 SURG update 7 Photo competition! 8 Independent Visitor feedback 9 Community Visitor feedback 13 In memory of Graham Lewis 17 Self help group listings 21 Dementia Carers 25 Benzos—Prescription Addiction 27 Are you eligible for concessionary bus fares? 29 Free mobile calls to benefit claim lines 30 Rural Community Link Project relaunch 35 Cornwall Respect Festival 44 Editor: Nicki Sweeney Sub-Editor: Jane Morgan
  3. 3. Mental Health Project Newsletter Summer 2010 3 Dear Reader You will have read in our Spring issue an article written by Ms K Weber detailing some of the problems she and her partner had experienced with care from mental health services. Unfortunately the article was printed with typographical and spelling errors that were made by us and not Ms Weber. We would like to publicly apologise to Ms Weber and her partner for these errors and for any upset they have caused. Best wishes Cornwall Mental Health Project
  4. 4. Mental Health Project Newsletter Summer 2010 4 Cornwall Mental Health Project update Well it's been a very busy time here – we've said goodbye to two members of staff in February and are now welcoming three new ones! Chris Houghton is our new Project Manager, Abbie Willatt is our new East Co-ordinator and Nicky Cope is the West Project Worker, who will be doing more of the outreach work with service users in the west. You can hear from these three later on. Now that we have new staff, we hope to expand our Community Visitor Scheme over the coming months. At the moment, our volunteers in the west go to Richmond House, Boundervean and Anchor Project day centres; in the east, our volunteers visit Alexandra House and Trevillis House Mental Health Team offices. We hope to set up an arrangement at a GP surgery and a Cornwall Council One Stop Shop shortly. If anyone is interested in becoming a Community Visitor, please contact our Administrator, Jane, on 01872 243532. Elsewhere, Nightlink have launched a new text service – see p.11 for more information. We have a feature on Outlook South West's dementia carers service on p.24 and the re-launch of the Rural Community Link Project on p.34. Look out also for information on concessionary travel fares in Cornwall on p. 28 and info on free calls to benefits help lines from mobiles on p. 29 Don’t forget, you can do your bit to save trees and reduce your carbon footprint by opting to receive this newsletter electronically instead. Just visit : To subscribe, please email us with your full name to let us know you wish to change how you receive the newsletter to
  5. 5. Mental Health Project Newsletter Summer 2010 5 INTRODUCTION FROM CHRIS HOUGHTON— CORNWALL MENTAL HEALTH PROJECT MANAGER I am pleased to be writing my introduction to you, having now been in post as Project Manager for eight weeks. During this time I have already met many of our valued service user representatives through SURG, those that kindly give up their time and offer personal experience as volunteers, key partnership organisations through the Experts Reference Group and other meetings – all of these people are involved in shaping and delivering an effective mental health service in Cornwall. I have had time to better understand the good work that is being delivered across the county and the valuable contributions people make to support and nurture others suffering with mental health issues or those who care for them at home. This help comes from people who share their experience of living with mental health and accessing services that fall within this arena. It is good to witness the local authority (NHS and Cornwall Partnership Foundation Trust) value and respect the wealth of experience and knowledge service users/carers and organisations working within the voluntary and community sectors can add by being actively involved in the planning, delivery and evaluation of mental health services. My previous roles have been working within the children, young people and families directorate. Prior to starting my new job as Project Manager for adult mental health, I was one of eight strategic leads in Cornwall to deliver the Children and Young People’s Plan for Cornwall agenda. I was tasked with ensuring that all children and young people in Cornwall had a voice and a mechanism for having that voice heard and listened to. This was to ensure they influenced decisions being made that impacted on them as individuals or on the communities they lived in. I was responsible for all children and young people from 0 to 18 (or 25 with additional needs), this included children and young people suffering with mental health problems, children in care, children with a disability and children from black/minority ethnic groups. I needed to make sure all children and young people had access to information, support and opportunities and that their voices, ideas and opinions were listened to and included in future planning of services and the recruitment and selection of staff (who work with children and young people). I was very pleased to be given the opportunity to bring my experience into the adult health arena, and to work with people and partnerships to influence, plan, develop and deliver a robust mental health service network for Cornwall. I would also like to take this opportunity to say thank you to Nicki Sweeney and Jane Morgan who have worked hard to keep the Mental Health Project running, following the departures of Jenny Pheby and Lesley Ayers. I would also like to welcome Abbie Willatt and Nicky Cope into the team, and to say we are looking forward to meeting and working with you all in developing a strong and effective mental health service for Cornwall. Best wishes Chris
  6. 6. Mental Health Project Newsletter Summer 2010 6 Cornwall Mental Health Project Hello everyone… I have joined the Cornwall Mental Health Project on the 30th March as the Mental Health Project Co-ordinator for East Cornwall. I have previously been working as a project worker for two years in Stonham floating support in Penzance working with a diverse client group. My background before this is in the Mental Health field in London for the charity Thames Reach. I spent three and half years as a project worker at a supported housing project for people with severe mental health problems. This role was incredibly challenging and I learnt a lot about myself. I also worked in several daycentres and hostels in London. Moving from London to Cornwall I recognise that stigma is an issue in Cornwall. I am excited to be working in Mental Health again and am passionate about breaking this stigma down. I look forward to working with everyone in my new role and creating some positive change in the mental health system, I say let everyone’s voice be heard! Many Thanks Abbie Hi, My name is Nicky Cope & I joined the Mental Health Project in early May as the mental health Project Worker for the west of Cornwall. I have worked for many years in mental health in South Wales & London. On moving to Cornwall I concentrated on bringing up three small children & did various jobs to fit in with their time table rather than mine! I am now really looking forward to returning to mental health and have met many keen & enthusiastic people already over the past few weeks and looking forward to getting out & about, visiting & meeting more. This is a new role for the project so if you have any ideas or info you’d like to pass on or discuss - do ring or email me. Tel:07791322096
  7. 7. Mental Health Project Newsletter Summer 2010 7 SERVICE USER REPRESENTATIVE GROUP (SURG) UPDATE What is User Representation? User representation is a two way process. One aspect is about representing User concerns, providing a User perspective on issues and ensuring that User views are taken into account. In essence it is about supporting, promoting and protecting the rights of service Users. Recent activities At a recent SURG meeting, it was discussed that some day centre members are feeling uneasy about some of the changes that have taken place at centres over the last few years. Apparently, Cornwall Foundation Trust have set up a review group to look at day services and there is service user representation on this group to ensure service users are able to offer their views. More updates to follow. Service user reps attend the bimonthly Experts Reference Group, hosted by the Primary Care Trust. At one meeting, they reported hearing from Sarah Newham from Jobcentre Plus. Sarah is employed as the Mental Health Co-ordinator and will be looking at the support for people with mental health issues returning to work. Rose Wickett had given a podcast about the Independent Visiting Scheme on Harvest Ward and said that she has been invited to attend the AIMS (Accreditation of Mental Health Services) training in London with two members of ward staff. At the March meeting, news was announced on the sad loss of Graham Lewis. Graham had done tremendous work with LINk and the formation and creation of this group over the years and had been actively involved with SURG. Rose, on behalf of SURG, would always remember him for his Father Christmas appearances at our Christmas parties and “hopes he rests in peace”. Cornwall Foundation Trust have requested that SURG hold a one-off forum meeting in September. More news to follow at a later date. If you are interested in becoming a Service User Representative, please get in touch: 01872 243532 We are particularly interested in hearing from members of self help groups, young people and people from black and minority ethnic communities.
  8. 8. Mental Health Project Newsletter Summer 2010 8 Calling all budding photographers! Send us your seasonal nature photos for our newsletter! The four photos that most capture the spirit of each season will each win a prize of a fantastic £10 M & S Voucher and be featured on the front of the next four Cornwall Mental Health Project newsletters! Beaches, forests, animals, sunsets, anything you fancy as long as it captures a season in Cornwall… One picture within each category of 'Spring', 'Summer', 'Autumn' and 'Winter', will be selected as a winner. Please send y o ur pictures in jpeg format to along with your name and contact details. Or post your print to Abbie Willatt at Cornwall Mental Health Project, 2 Princes Street, Truro, Cornwall, TR1 2ES. All entries to be received by 30 July 2010
  9. 9. Mental Health Project Newsletter Summer 2010 9 Independent Visiting Scheme Feedback Longreach – Bay Unit • An Independent Visitor has investigated the cost for service users wanting to print out things from disc at Longreach. Initially, colour printing was to be charged at 20p per sheet and 10p per sheet for black & white. However, this seemed a bit steep so it has been agreed to drop the price to 5p for black and white printing and 10p for colour. • An Independent Visitor has been involved in the design of Service User Information Leaflets for Fletcher and Bay wards, which will help newly admitted patients with the basic information they might need to know – this has happened as a result of comments to the Independent Visitor on Bay Unit. These leaflets are now available on the wards. • Some service users have said that there is quite a lot of confusion with the patients due to different bank staff, workman etc entering and leaving the ward. The Independent Visitor asked the Ward Manager if name badges for staff etc could be more visible so that patients can identify people. It was also agreed that visitors badges will now also be given out at Reception on arrival. • Further work is being undertaken to offer separate spaces to men and women on the ward. The TV lounges will, in future, be accessed via the respective male or female bedroom corridors and the entrances to these corridors will have a coded keypad. • The ward suggestion box is going to be re instated to encourage feedback from service users direct to hospital staff.
  10. 10. Mental Health Project Newsletter Summer 2010 10 • The quiet lounge is to be used for group work and complementary therapies throughout the week. Work will start on this shortly. This will enable staff to have more input to help with the recovery process. • Following feedback from patients, there has been an improvement in the availability of recreational activities on the ward and the League of Friends are going to fund more games • Following feedback from service users, movie evenings have been taking place on the Unit. Cove • Cove now has a weekly Independent Visitor and all is going well. Bodmin Hospital – Harvest • The windows on Harvest Ward have been repaired, thanks to Fran Vosper of Grosvenor for his help with this. • An Independent Visitor, Rosemary, has been invited to participate in AIMS (Accreditation of Inpatient Mental Health services) and she will be attending training in London. Harvest Ward is undertaking their AIMS accreditation in May. • Rose also gave her Podcast about Harvest Ward with Andy Jago in February and it was very well received. • A new Activities Co-ordinator would be taking up post which would include cover at the weekends as well as weekdays. Bowman • The Independent Visitor recently made an Easter sponge and said how lovely the atmosphere was on the ward. She said that it is like “a house within the ward”.
  11. 11. Mental Health Project Newsletter Summer 2010 11 Fletcher • An Independent Visitor spoke to a patient who had been admitted to the Unit for the first time and the service user expressed positive comments about the ward and staff. Fettle • Independent Visitors now hold a fortnightly meeting on the ward for patients to feed back any concerns or comments, liaising with the ward Deputy Manager after each meeting. • Under recent Government legislation, men and women have to be segregated for eating and sleeping; men will come back over to the main ward area and women are to be moved over the bungalow. Therefore, there will be no communal dining arrangements in the future. Garner • Ward Manager has bought a new cooker for the Independent Visitor to use on Garner. The Visitor was delighted and thanked her on behalf of the Scheme. • The bottom garden had been altered with the help of the Kings Fund. • The Visitor has been working with the Mental Health Advocates in getting the views of patients with dementia on the Ward heard. If you would like to join our team of volunteers at either Bodmin or Longreach Hospitals, call us now on 01872 243532 for a chat about the role.
  12. 12. Mental Health Project Newsletter Summer 2010 12 NIGHTLINK Re-Gain are proud to offer a new emotional support service. N Nightlink E Emotional S Support T Texting The text service is open daily 5pm – midnight Text to: 07717 989021 This service is available to anyone resident in Cornwall and the Isles of Scilly. It allows people who are perhaps a little nervous of calling the helpline to make first contact.
  13. 13. Mental Health Project Newsletter Summer 2010 13 Community Independent Visiting Feedback Our Community Independent Visitors are now visiting the following places on a regular basis: Alexandra House, St Austell Richmond House, Penzance Anchor Project, Falmouth Boundervean, Camborne Trevillis House, Liskeard Feedback from service users is brought to our monthly Visitors' meeting and key issues raised are taken to the Community Care Services Forum. The CCSF is attended by Cornwall Foundation Trust (CFT) community services team leaders and managers, including those who manage the Home Treatment Team. Also in attendance are, of course, Service User representatives and Community Independent Visitors. This forum is chaired by a Service User Consultant. Our Community Visitors and Project Co-ordinators have picked up the following issues and taken them to the Community Care Services Forum. Issues raised by service users recently: • It’s been raised that Care Plans are being written without the client, clients are not being given a copy of the care plan and reviews are not being done regularly enough. Response: It was agreed that a working group be set up to look at these issues. Nicki Sweeney is co-ordinating these meetings and they are typically attended by service users, an advocate from SEAP and CFT community staff. CFT are currently introducing a new IT system (RIO) and this may have an impact on how care plans are
  14. 14. Mental Health Project Newsletter Summer 2010 14 electronically recorded and whether this allows care co-ordinators to work more closely with service users when producing care plans. In the meantime, simple changes to working have been suggested, such as: service users writing their own care plans, care plans being done in a more creative way rather than simply form-filling, using the person-centred planning approach from Learning Disability services, using an independent facilitator at care plan review and care plans to form the centre of any meeting with a care co- ordinator. Further meetings are scheduled to take place to look at these suggestions. • Comments from a number of service users who see CPNs from varying CMHTs stating that, when their CPN visits them, all they talk about is the CPN's problems (family, relationships, health). In the last month 3 service users, all independently of one another, have said that they had helped their CPN through divorce, depression and physical health concerns. If 3 service users felt that they had been unable to 'burden' their CPN with their mental health issues because the CPN seemed too fragile then I feel the relationship between them has become off kilter. The service users concerned live in Newquay, Redruth and Penzance to give an indication of where these issues are occurring. We would like to ask Team Managers to maybe be aware of which team members are having personal problems and to ensure they are not off-loading on to their patients. Response: Team managers at the CCSF agreed that CPNs should not be discussing their personal problems with service users, although everyone at the meeting recognised that, in building a relationship with a client, a professional may well talk about personal things. However, it was agreed that team managers would look out for staff who may be experiencing personal difficulties and ensure they are not discussing these with service users. • Someone recently highlighted that they had been receiving support from the Home Treatment Team and although the support was very good, there was sometimes a lack of consistency in doing what they had agreed with the service user. For instance, agreeing to call at the end of each day but sometimes phoning first thing in the morning. Response: It was agreed that these comments would be fed back to the HTTs, as consistency with people whose mental health is deteriorating is really important.
  15. 15. Mental Health Project Newsletter Summer 2010 15 • Staffing levels at day centres are felt to be low so that members feel they don't have enough contact with staff. It was acknowledged that at the Anchor Project in Falmouth the manager brings some of his (non-confidential) paperwork downstairs with him so that he can still be available - this was felt to be a really positive solution by members. Response: This suggestion would be fed back to the Day Service Review Committee. • Some people have trouble remembering what's been agreed/ discussed when they see their Care Co-ordinator. How do we ensure these people have a way of remembering info? Response: It as felt by the team managers that whilst care co- ordinators need to be aware of anyone who has trouble remembering information and to help with this, it is also the service users’ responsibility to flag this issue up and maybe to take a pen and pencil to each meeting so that they can write down all the important things that have been said. • Positive comments have been received about Bolitho CMHT. Someone said they'd received a very good service, careful monitoring of medication, all services they accessed (Social Services, Education & Health) had all worked well together, efficiently and effectively and service user said they had made real progress as a result. Response: This was fed back to the Team Manager at Bolitho who was very happy to have had good feedback. If you have any comments about the services you have received, whether good or bad, please let us know. You can contact us in the following ways: Email: Via a client feedback form at mental_health_service_user_involvement.html Tel: Abbie (East Cornwall) 01872 243557 Nicky C (West Cornwall) 01872 243532
  16. 16. Mental Health Project Newsletter Summer 2010 16 Words and Minds Do you enjoy reading a good book? Would you like a chance to chat about it over tea and biscuits in a safe and friendly environment? Words and Minds is a new kind of reading group where we read a good book aloud and talk about what it means to us. Open and informal – join in as much or as little as you like free of charge oh and we have chocolate biscuits too! Just come along TRURO LIBRARY or ST IVES LIBRARY Every Thursday 10am -12 noon For more details, call the library on 0300 1234 111
  17. 17. Mental Health Project Newsletter Summer 2010 17 In memory of Graham Lewis I heard about Graham’s death at a Service User Representative Group meeting. I was sitting at the table, getting my papers organised and ready, when Nicki announced the she had some sad news. Graham had died recently. I sat and listened to what she was saying. I recognised the name, but could not picture his face. Then it came to me. He was quite a character, once a journalist, whom I had met at SURG, and was a real contributor to discussions. One of those people who had clear views, derived from years of personal experience and recovery alongside others, and was ready to share those views. I immediately did what I usually do in those situations, wondered how he was when he died, and desperately hoped he had not been lonely and scared, and had not known that death was coming. I felt waves of grief and sadness rush over me and felt very tearful, and resorted to swallowing back tears. I felt sad that he had died before his time, I felt sad that I had not got to know him, and was hoping to, sad that he had not been able to start using his journalism skills on the newsletter as he had offered to, and Nicki had leapt at the opportunity. But I also felt very sad, and angry, because I knew that Graham didn’t manage to get the help and support that he needed, wanted and deserved. This was particularly significant, because as those who met him and chatted with
  18. 18. Mental Health Project Newsletter Summer 2010 18 him knew, Graham was not a shy person. He had clear views, passionately held, and, thankfully, he expressed them clearly. Yet, he didn’t get the help that he needed. Indeed, I got the impression that he felt that he was regarded by some as a ‘difficult’ service user. It really bothers me, that in order to get better support, tailored to our needs, we need to use energy, skills and experience that many people with mental health problems do not have enough of – that, for example, just getting one meeting arranged can be an exhausting process. That some of us have not seen our Care Plans, or they have been written without much input from us, the service user. I do not believe it has to be like this. I believe –passionately - that services can be better – much better, and that professionals and managers can have a better working environment too. I also believe that funding is part of the solution, but not the whole answer by any means. I believe that individual service users, but also organisations like the Service User Representative Group, now re-launched, and the forums, (re-launching), have a vital role to play, and that we can do a great deal to influence the way services develop. This is starting to happen, in that we are laying the foundations for an effective and focussed way of getting our message across, as a group, and so making a difference. We can make a difference – we can improve the service. My hope is that one way we can remember Graham is by using the means we have to push harder and persistently for improved mental health services. Rob Gough
  19. 19. Mental Health Project Newsletter Summer 2010 19 NEWSLETTER DISTRIBUTION Every quarter we have 1200 of these newsletters printed. 1000 are posted out to individuals and organisations across Cornwall. This has a huge impact not only on our budget but on the environment too. In order to help us reduce costs and our carbon footprint, we are asking you to consider whether you could receive this newsletter electronically instead. If you would be happy to receive an email with a link to our online newsletter instead of receiving one in the p o s t , p l e a s e c o n t a c t u s a t with your name, postal address and email address. If you would prefer not to receive our newsletter at all, please let us know and we'll remove you from our mailing list. Thank you
  20. 20. Mental Health Project Newsletter Summer 2010 20 The provision of out of hours support for people with mental health problems (Independent Living and Wellbeing) LINk is looking at where someone goes if they need support with Mental Health problems outside of normal working hours. There is a concern that the current out of hours provision in Cornwall is under resourced, especially during the night. The Mental Health Review Group due to take place on the 9th March was postponed to give more time for LINk recommendations to be included in the commissioning strategy. At the latest Expert Reference Group it was confirmed that there would be a meeting of the Service Specification (SS) Group. The group meet to discuss what they will do and who will be involved in the group. The LINk Mental Health Out of Hours Have Your Say Report will form a large part of their discussion in the SS group. There will be an update at the next ERG and LINk is working with the SS Group to look at how we can be involved further. At the last LINk Review Group meeting it was highlighted that a clear pathway needs to be established so that service users and professionals know what support is available when and how to access it. The Map of Medicine is a new system that has been worked on nationally by the NHS and is now being developed in Cornwall. It provides a visualisation of the ideal, evidence-based patient pathway for common and important conditions and shows the patients journey. The Map is a web-based tool that can be used by patients and clinicians, providing an overview that can be shared across all care settings. Currently in Cornwall the Primary Care Trust are starting to look at developing the national pathway frameworks to create local Pathways. Following the Review Group discussions LINk has written to the department working on the Map of Medicine for Cornwall to recommend that they look at the pathway for mental health, with a specific focus on accessing support out of hours. They have responded to say they will be bringing together a meeting of the relevant members of the Primary Care Trust and Cornwall Partnership Trust to discuss the LINk recommendation. The Review Group will be updated on the outcomes of the meeting. NEXT DATE: Tuesday 8th June 14:00-16:00 NEXT ACTIONS: ▪ Attend Expert Reference Group and subsequent service specification meeting. ▪ Monitor progress made from LINk and ERG Crisis Support Report. ▪ On going review by Facilitators and LINk Hosts. ▪ Review Group meeting on 8th June.
  21. 21. Mental Health Project Newsletter Summer 2010 21 Local Self-Help Support Groups Cornwall Mental Health  Breakaway Hearing Voices Network Support for people who want to West Cornwall reduce or come off Tuesdays, 1.30-3.30 pm Benzodiazepines Healing Star, Causewayhead, Thursdays, twice a month, Penzance 2-4 pm 2 Princes Street, Truro Mid Cornwall Thursdays, 4-5 pm Camel Club Newquay Mind, 40c East St, Social group Newquay Tuesdays & Fridays 10.00-1.30 East Cornwall pm Wednesdays, 2-3.30 pm Delabole Church, Delabole Bodmin (please call 07807 813996 for details) Cornwall Survivors Group Mutual support for male Manic Depression/ survivors of rape or sexual Bipolar Groups abuse, Tuesdays, 7.00 pm, West Cornwall St Austell Every 3rd Weds of the month, 2-4 pm Healing Star, Creative Words Causewayhead, Penzance Creative writing group Monday mornings, 10.30am— Mid Cornwall 12.30 pm, Once a month, Mondays Falmouth Health Centre, (please phone for dates) Trevaylor Road Newquay Centre, Please call Victoria on 01326 17a St Michael’s Rd, Newquay 319030 to reserve a place East Cornwall Every 4th Tues of the month, Where telephone numbers are 10-12 pm not given, call Cornwall Liskerrett Centre, Varley Lane, Mental Health Project for Liskeard details on 01872 243532
  22. 22. Mental Health Project Newsletter Summer 2010 22 Perranporth Coffee Corner Rural Community Link Social group Project (RCLP) Wednesdays 10.30– 1.00 pm Welcome groups—all run Upstairs in the Conservative Club, 10am—12.30 pm St Piran’s Road, Perranporth Monday—St Blazey Call Brenda 01872 572453 Tuesday—Indian Queens or Betty on 572546 Wednesday—St Dennis Friday—Penwithick & Lostwithiel Men’s group Pink Umbrella LGBT Group Gay, lesbian, bi-sexual & trans One Sunday a month for support Restormel residents Every 3rd Friday of the month, For info on any of the RCLP 1-3 pm, 2 Princes Street, Truro groups, please call 01726 821858 Redruth Friendship Club SOBS Social Club Suicide bereavement support group Wednesdays Meets monthly in Carrick 12.00-3.00 pm Call 07952 410637 for further Redruth YMCA, info Station Rd, Redruth St Agnes Self Help Group NEW!!! Social Support Group Mondays 10.00-1.00 pm Freedom OCD Group Coffee lounge, At Agnes Meets every last Thursday of the Methodist Church, British Rd, month St Agnes 10.30am-12.30pm Truro If you would like your self help group listed here, call Nicki on 01872 243542
  23. 23. Mental Health Project Newsletter Summer 2010 23 Mind Social Groups Penwith/ Kerrier Carrick cntd Camborne Supper Clubs Mondays, 1.30-3.30 pm, Meet once a month in Camborne Parish Church Hall, Wetherspoons in Truro & Church Street (opposite Aldis) Falmouth. Helston Please call Carrick Mind for details on 01872 222469 Tuesdays, 10 Catholic Church Hall, Clodgey Lane (near Tescos roundabout) Penzance Restormel Wednesdays, 10am—12pm Patchwork Group St Mary’s Church, Chapel Street Mondays 9.30am-12.00pm People can attend a group The Pavilion Workshop, Mount once for a taster session. Wise Car Park, Newquay After this, a referral is re- quired from a GP, mental Newquay S.H.E. Group health worker, housing sup- ( women’s social group) port or other support organi- Mondays 10am-1pm sations. The Newquay Centre, St For info on any of the Mind Michael’s Road groups, please call 01209 714 550 Newquay Coffee Corner Carrick Wednesdays 10am-12.30pm Truro Coffee Corner The Newquay Centre Tuesdays, 10 am –12 pm Baptist Church, Chapel Hill, Out ‘n’ About Group ( activity Truro group) Falmouth Coffee Corner Thursdays 10am-12pm Thursdays,10.30am-12.30 pm Various community venues W.I. Rooms, Webber Street, Falmouth
  24. 24. Mental Health Project Newsletter Summer 2010 24 Restormel cntd St Columb Major Coffee Corner St Stephen Coffee Corner Fridays 10am-12.30pm Fridays 10am-12.30pm The Columba Centre, Church St Stephen Community Centre, Hall Fore St For more information please contact Lynn Newman on St Austell Coffee Corner 01637 851155 Fridays 10am-1pm St John’s Methodist Church, Bodmin Road 10 Helpful Hints for Carers: Practical solutions for carers living with people with dementia 10 Helpful Hints for Carers is an easy-to-read guide for carers living with people with dementia. It provides simple, practical solutions to the everyday problems family carers can face when looking after a person with dementia. Covering areas like how to cope with aggression, creating relaxing environments, 'wandering', sleeplessness and how to cope with dementia and depression, it is a mine of information and good advice. Professor June Andrews and Professor Allan House, 2009 The book costs £7.50 from the University of Stirling The web link is : Telephone enquiries: 01786 467740 Email enquiries: Postal enquiries: Dementia Shop Dementia Services Development Centre Iris Murdoch Building University of Stirling Stirling Scotland FK9 4LA
  25. 25. Mental Health Project Newsletter Summer 2010 25 DEMENTIA CARERS (Help, advice and information for carers of people with dementia) For the past year, Outlook South West has been commissioned by NHS Cornwall and Isles of Scilly to deliver a programme of needs led information to carers who live at home looking after loved ones with dementia. The informational support has been co-ordinated and delivered by Outlook South West’s Dementia Carer Team, made up of Jo Hague, Chloe Hickson and Niki Welch. The team has used road shows, information sessions, memory cafes, cognitive stimulation therapy groups and occasional home visits to reach carers in the community. The team’s information sessions consist of the following modules: • What is dementia? • Understanding behaviours that may be challenging • Identifying and managing stress •Caring for the carer •Understanding change and loss •The importance of activities and life history •Creating a life story book and holistic approaches for maintaining wellbeing. Through the delivery of these subjects, attendees gain new information, skills and techniques designed to aid them in their roles as carers. Jo Hague, the lead dementia care trainer said: “Due to an increased knowledge and greater understanding of dementia, carers have been reporting improved results and a real sense of empowerment. They are also highlighting the importance of coming together and talking with others in similar circumstances. Many have expressed that they no longer feel so isolated and alone.”
  26. 26. Mental Health Project Newsletter Summer 2010 26 After attending the information sessions, most people will go on to attend their local memory cafe for support and social activities. One particular carer who took her husband along to a cognitive stimulation group, after eight weeks, went on to visit a few memory cafes in her locality and reported that her husband’s memory impairment had improved due to him being engaged in such stimulating environments. Carer quotes “I got out of the sessions what I came for – information and the opportunity to share thoughts and feelings. Also, the knowledge that you’re not being j udged.” Carer, Liskeard “Since attending the information sessions I have had a number of very cheerful and upbeat conversations with Dad and only a few problematic ones. This means so much. Distracting towards hobbies, interests and past memories is very productive. Of course, it’s one day at a time, but good days so far.” Carer, Truro If you would like to find out more about forthcoming events, please call Outlook South West on 01208 871904 or email Niki Welch leads a group of carers in Launceston and explains how hand massage can be used to create a calm and relaxing atmosphere.
  27. 27. Mental Health Project Newsletter Summer 2010 27 Benzos – prescription addiction According to a Daily Mail article recently, tranquilisers are being routinely prescribed by GPs without patients being informed of their powerful side effects or the immense difficulty many people have in coming off them. The article states that 1.5 million people today are addicted to benzodiazepines (the type of drug often prescribed by GPs for anxiety and sleep problems) and are unaware that symptoms they experience, such as panic attacks, sleeplessness, blurred vision, are the side effects of these drugs not the anxiety itself. However, these drugs are highly addictive and withdrawing from them can be a challenging, painful and frightening experience with little or no support from the NHS to do so. Benzos include: Chlordiazepoxide (Librium), Clonazepam (Rivotril), Diazepam (Valium), Loprazolam (Dormonoct), Lorazepam (Ativan), Lormetazepam, Nitrazepam (Mogadon), Oxazepam (Serenid-d/forte), Temazepam, Zolpidem (Stilnoct), Zopiclone (Zimovane) and Zaleplon (Sonata) The article states that GPs are advised to prescribe Benzos for no more than 2 to 4 weeks because of their highly addictive nature but many people claim they have been on them for much longer. Often Benzo addicts are older people who've been taking them for years. Rarely are alternatives offered, such as psychological therapies.
  28. 28. Mental Health Project Newsletter Summer 2010 28 In Cornwall, help with coming off Benzos is available from the self help group, Breakaway. Whilst it is not advised that people attempt to come off these powerful drugs by themselves without medical advice, the group can offer support from other people who have successfully withdrawn from Benzos themselves. The group says, "our group is friendly and welcoming. If you think you would like to come along, you can phone us and ask all the questions you want to. A lot of people are nervous at first, and feel frightened that they will be pressurised into reducing the amount they take before they are ready. We believe everyone has to decide for themselves—we’ll help you whatever you decide. The group is run by someone who has come off pills themselves, and understands how frightening this can be. "Because Benzodiazepines have so many physical effects, you may need to ask your doctor to check any symptoms which worry you. Doctors are increasingly aware of the problems caused by Benzodiazepines, and will be happy to help you." If you would like to talk to someone from Breakaway, you can ring Rosemary on 07788 572908 every day until 9pm. If you would like to read the Daily Mail article about Benzo addiction, you can go to article-1259892/Thousands-60s-hooked-tranquillisers-turned- virtual-zombies.html#ixzz0izxsugYN.
  29. 29. Mental Health Project Newsletter Summer 2010 29 ELIGIBILITY FOR CONCESSIONARY BUS FARES Can you get free or reduced bus fares? The Depart for Transport is of the opinion that the types of disability which should enable people to claim the statutory concession are those which are permanent or which have lasted at least twelve months - or which are likely to last at least twelve months, and have a substantial effect on a person’s ability to carry out normal day to day activities. If you have a mental health problem, you can submit a claim for concessionary fares if you fit the following: G People who would be refused a driving licence on medical grounds People who would be refused a driving licence on medical grounds under Section 92 of the Road Traffic Act 1988 (except on the grounds of persistent misuse of drugs or alcohol). Those who are currently barred from holding a licence are people with: •Uncontrolled epilepsy •A severe mental disorder •Liability to sudden attacks of giddiness or fainting (whether as a result of cardiac disorder or otherwise) •The inability to read a registration plate in good light at 20.5 metres •Other disabilities which are likely to cause the driving of vehicles by them to be a source of danger to the public. Cornwall Council requires ONE type of the following items of proof: •Evidence from a medical professional on official paper •confirming a medical condition that would cause a licence to be withdrawn or refused •Letter from DVLA giving notice of refusal or withdrawal of •licence •Social Services registration For more information, you can call Cornwall Council on 0300 1234 222
  30. 30. Mental Health Project Newsletter Summer 2010 30 Free mobile calls for benefit claimants starting from 18 January 2010 Free phone calls for most people using their mobiles to claim benefits and pensions are announced by the Department for Work and Pensions today. From next week, six of the biggest mobile phone network companies will no longer charge their customers for calls to the Department’s 0800 Benefit Claim lines. Currently 12% of UK households use only mobile phones and do not have a land line. Calls to claim benefits and state pension use 0800 numbers which are already free to customers using BT land lines and mobiles. But currently people calling 0800 numbers from other mobile phone providers are charged for these calls. The Department has now reached agreement with O2, Orange, Tesco Mobile, T-Mobile, Virgin Mobile and Vodafone to end charges to their customers for mobile calls to around seventy of its 0800 numbers. These numbers are used by people making initial claims for benefit and pensions and to request emergency payments, such as crisis loans. Together the six companies with whom the Department has now signed agreements cover over 90% of the mobile market in the UK. Secretary of State for Work and Pensions, Yvette Cooper, said: "We don't want people who lose their jobs or the poorest pensioners to be penalised when they need to claim benefits just because they call from a mobile phone. Lots of people need to use mobiles rather than landlines. “That's why we've been working hard to get this deal to make sure people don't lose out." The DWP estimate that there are around 60 million phone calls to its 0800 numbers each year, and around 15% (9 million) are from mobile phones. Source: ous-admi ni stration-news/press- releases/2010/january-2010/dwp007-150110.shtml CMHP says: If your mobile network provider is NOT listed in the article above, you may still be charged for calls to 0800 numbers to benefits lines. the free phones calls are only for people with the named providers.
  31. 31. Mental Health Project Newsletter Summer 2010 31 Note from the Editor In the last edition of our newsletter (Spring 2010) we published a letter written by Ms K Weber detailing some of the problems she and her partner experienced when trying to get help from mental health services. The letter has provoked a range of responses, both positive and negative. The reasons for publishing this letter were about giving service users a voice and enabling readers to benefit from the experiences of others. Ms Weber’s letter gave very useful information about what people are entitled to with regards to care plans under the Care Programme Approach, as well as highlighting the stigma and discrimination that some experience. Of course, everyone’s experiences of care from mental health services differs from one person to the next; many are very happy with the service they receive, others are not. Cornwall Mental Health Project aims to hear all comments about all mental health services and to work in partnership with service users and organisations to help improve services for people across the county. Our role is not to judge whether a comment is right or wrong, but to help service users and carers to be heard so that problems can be resolved. After reading Ms Weber’s comments, Cornwall Partnership Foundation Trust felt it important to respond to her and a letter from CFT’s Customer Services is on the following page.
  32. 32. Mental Health Project Newsletter Summer 2010 32 10 May 2010 The Editor Cornwall Mental Health Project Newsletter For publication In response to Ms K Weber As a Trust we aim to provide our patients with the highest quality of care within the available resources. We were sorry to hear of the experience described in Ms Weber’s letter to the Mental Health Proj ect. We were very pleased Ms Weber felt able to highlight her concerns to us on her and her partner’s behalf. This has allowed us the opportunity to fully investigate the issues raised and respond accordingly. I would like to thank Ms Weber for her feedback. Cornwall Partnership NHS Foundation Trust welcomes comments from patients, relatives and carers. It is only by examining the way we work and acting on feedback that we can improve. We have a Customer Support Team who will help and support people to give us feedback. They can be contacted on 01726 291109/1034, e-mail The Ombudsman is available to provide an independent review and assess if the Trust has completed thorough investigations. Anyone who is dissatisfied with our response should address their concerns to The Ombudsman at PHSO, Millbank Tower, Millbank, London SW1P 4QP. Customer Services Cornwall Partnership NHS Foundation Trust
  33. 33. Mental Health Project Newsletter Summer 2010 33 Carrick and West Cornwall Mind Befriending Schemes are providing an extremely effective and crucial method of support to people in their local community with or recovering from mental ill health or emotional distress. Carrick Mind Befriending Scheme offers support to anyone within the Carrick District and West Cornwall Mind offers a similar service to people within the Kerrier and Penwith areas. More information on the services at West Cornwall Mind can be seen on the website or those interested are welcome to contact West Cornwall Mind on 01209 714550 and Carrick Mind on 01872 222469. Mental ill health issues may include depression, anxiety, stress, a breakdown or isolation. Many people with mental ill health become withdrawn and cease to engage socially with their local community. To help promote social interaction both Mind schemes run social groups, walk groups and lunch/ supper clubs, to name a few. These groups are supported by volunteers to encourage social interaction for those people who feel able to attend. Service users recognise the fact that a volunteer is there to help them because they want to help and for no other reason. This fact is often so important to people experiencing mental health issues and often helps to breakdown communication barriers and encourages trust. Volunteers are a vital link in helping a person to take the first steps towards recovery, gaining confidence and starting to engage with their own community once more. Both Schemes are always seeking more people willing to help out as the schemes are continually growing. Therefore volunteers are offered an informative induction programme with helpful guidance on various volunteering roles, followed by group or one to one support, as well as training opportunities, travel expenses and social networking opportunities. There are many different opportunities available for volunteers. Some examples of these are: • One to One Befriending in the community • Group support workers within our social support groups; walk • groups; art and craft group; photography club, and our allotment. • Work experience • Promoting Volunteering and recruitment
  34. 34. Mental Health Project Newsletter Summer 2010 34
  35. 35. Mental Health Project Newsletter Summer 2010 35 Rural Community Link Project re-launches as a social enterprise Rural Community Link Project (RCLP) has been running for over nine years under the umbrella of local charity, Mind Restormel Association for Mental Health (RAMH). From 1st April 2010, RCLP will become an Independent Social Enterprise in the form of a Community Interest Company to be known as Rural Community Link Projects CIC (RCLP CIC). RCLP Manager, Glynis Meloy has been running RCLP since its inception in 2001 and is delighted to have been involved with the conversion to a CIC. She explains the reasons for the move: “Changing times, have had a significant impact on the charity and in turn on the project. So many different charitable organisations look for funds to run services, making grants more and more difficult to access. It has been identified that RCLP are in a good position to generate more of its own income from trading, but as a charity the potential for this is limited. Being a Community Interest Company will enable us to trade freely, but we will still be ‘non profit making’ as all surplus income will be ploughed back into the company to provide mental health services for community benefit. As a Social Enterprise, we plan to increase the involvement of our service users, channelling their many skills in order to help produce an income and to advise on how needs can be best met.” Although Mind RAMH and RCLP CIC will be independent from each other in the future, both organisations plan to maintain good communications and work together along with other agencies to ensure that third sector mental health services in Cornwall are not only available but also improved. Maureen Newman, CEO of Mind RAMH says: “We all wish RCLP every success for the future! The work they do is amazing and we have every confidence Glynis and her team will make a great success of the Company. This also provides us with the opportunity to concentrate on our core befriending services and expand the charity into the North Cornwall area“ Rural Community Link Proj ects CIC’s official launch was held at their offices on Wednesday 14th April. For more information about RCLP CIC visit the website, email or telephone 01726 821858. Information on Mind RAMH can be found at
  36. 36. Mental Health Project Newsletter Summer 2010 36 Outlook South West Improving Access to Psychological Therapies (IAPT) 2008 - Secretary of State for Health announces additional investment to fund stepped improvements in access to psychological therapies over three years in Primary Care. 90% of People with a mental health problem are seen in Primary Care. The majority of these people will have anxiety and depression. Outlook South West have been commissioned by NHS Cornwall and Isles of Scilly (what was the Primary Care Trust) to deliver the IAPT programme in Cornwall and Isles of Scilly. The programme mainly focuses on Anxiety Disorders and Depression. It is not a Counselling Service but it is a Psychological Therapy Service with CBT (Cognitive Behavioural Therapy) as the main therapeutic technique, as set out by NICE (National Institute for Clinical Excellence) - see below. If you are seeing your GP about Depression or an Anxiety Disorder (Panic Disorder, Social Anxiety, phobias, Obsessive Compulsive Disorder, Post-Traumatic Stress Disorder, Generalised Anxiety Disorder) you may be referred to Outlook South West for further help. Make sure you are clear about what it is your Doctor has referred you for (e.g. counselling or CBT, etc) and who you will be seeing. If you haven't already been given one, ask for an information leaflet - the leaflet; ‘Let’s talk about therapy’ clearly outlines what to expect from Outlook South West services. It is important that you understand what help you will be getting and whether you think it is what you are looking for. *NB: Nice is "an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health" and informs the government about health best practice. For more information, go to For more information about Outlook South West, go to
  37. 37. Mental Health Project Newsletter Summer 2010 37 These are photos of the sugar icing activity that took place on Harvest Ward, Bodmin, with our Independent Visitor, Rose.
  38. 38. Mental Health Project Newsletter Summer 2010 38 CARE PLANS — DID YOU KNOW?... • Know Your Rights leaflets are now available, which explain what you can expect from care planning • There is a new Service User Review Preparation Form, which your Care Co-ordinator should send to you before your review meeting to help you think about your needs • There is a leaflet called Mental Health Can Go Up and Down, which explains what to do if you become unwell again • If you are not happy with any aspect of the care planning process, you can contact Sarah Gabert (CFT Care Programme Approach Lead) on 01208 256265 • What is the care plan process like for you? What works well? What doesn’t? Please tell us: 01872 243532 or e: If you need any of the leaflets mentioned above, please contact us.
  39. 39. Mental Health Project Newsletter Summer 2010 39 A CAT AND MOUSE STORY Mr. Patterson had a cat. It got into all sorts of trouble. It never knew that he was a troublesome cat, but he was! One day when Mr. Patterson, that’s his owner, went out to do some shopping, he mumbled to himself, his cat decided to visit next door’s garden to do some mouse-hunting. He went to the shed and waited, so that if anything came out from underneath he would be able to pounce on it straight away without having to chase it very far. He sat there, for what seemed like an age, when suddenly a little nose appeared from under the shed…. and squeaked! The cat yowled and hissed and launched towards the mouse with both paws out-stretched and….missed! He missed!
  40. 40. Mental Health Project Newsletter Summer 2010 40 He looked at the empty space and ran around to the front of the shed, with the hope that it had gone round to the other side. He waited beside the door in hope that it might appear there. But it didn’t. He lay down beside the door and closed his eyes. He was all but fast asleep when he felt a tickle on his nose. He yowled out and launched into the air in fright, all four legs out-stretched and fur standing on end. The mouse ran into the bush with Mr. Patterson’s cat after it, when all of a sudden a downfall of rain appeared from nowhere dashing the hopes of ever finding the mouse. Mr. Patterson’s cat found the mouse. Not only did he find the mouse, he had him in his paws. ‘For later’ he thought, in his cat-like way, of course. He purred in satisfaction. He’d got one this time! THE END. By Maria Warren
  41. 41. Mental Health Project Newsletter Summer 2010 41 ‘Into Body, Into Being’ 10 sessions Movement group at the Lescudjack Centre 5th January to 9th March Facilitators: Val Stagg and Ellena Fries With a slow start with just one person showing up on January 5th the group has been picking up in participants ever since and a core of regular attendants has been forming. We offered a mixture of free movement experience with some gentle guidance and very clearly directed structured Yoga stretches and Shiatsu exercises. In general Val and I swap the main facilitator role after one hour, so that one of us is always available for participants, who might need special support. On top of that we feel that this way of working together makes the 2 hour session more interesting and so far nobody felt it was too long or too demanding. On the last day we asked the participants to fill in an evaluation form and the feedback has been very encouraging and enthusiastic. Everybody was saying how much they enjoyed the sessions and that they got what they expected or even more out of it. Our approach of balancing direction and allowing free exploration of movement was positively commented on: “It’s good to have direction and then some freedom. It’s good balance” says one participant. Participants feel that the group helped them to release stress and also address specific areas of pain, like back pain or shoulder aches. There is a warm and open atmosphere in the group and people have obviously enjoyed the company with others. So everybody now hopes for a continuation and we also still want to attract more people. We have been very grateful for the grant received via Cornwall Mental Health Project as it has enabled us to run a pilot project in Penzance and then attract funding from Cornwall Community Foundation to carry it on until Dec 2010 and then we hope to use the Self Help grant to continue until Easter 2011. For more information on self help grants, contact Jane on 01872 243532
  42. 42. Mental Health Project Newsletter Summer 2010 42 Mind Open Up Conference – 12 April 2010 The Mental Health Project attended the Open Up 'Challenging Discrimination' conference at Cornwall College, Camborne in April. The day involved presentations from both Open Up and the wider Time To Change campaign, which funds Open Up’s work, including a fantastic performance from InterACTing, a drama group from Yorkshire. Their performance illustrated the discrimination faced by many people when having to take time off work due to mental health problems and how difficult it can be when trying to return to work. There were also workshops on the following themes: ‘Stigma and Discrimination in the work place’ - this workshop centred on the work done by Shift and their valuable DVD resource; ‘Life in the Office’; ‘Stigma and Discrimination experienced by BME communities’ - this workshop used the award winning DVD, again produced by Shift titled; ‘Open Secrets’; ‘Discrimination and living in Cornwall’ - this workshop looked specifically at Cornwall and how its geographical isolation particularly impacts on those living with a mental health problem; and 'Self-Discrimination' – this workshop looked at how stigma and discrimination affects how we perceive ourselves. Open Up gives people who have experienced mental health issues the opportunity to tackle mental health discrimination within their communities. The project asks people to come forward with their anti-discrimination ideas and provide advice, mentoring and training to help them to put their plans into action. Support is delivered regionally by people who have experienced mental health problems themselves, who use their knowledge and understanding to reach out to people in similar situations in their local areas. For further information on Time To Change and Open Up please visit: and Service User Rep, Stan, helping with our stand.
  43. 43. Mental Health Project Newsletter Summer 2010 43 QI facts - the interesting, the amusing and the downright bizarre! Sent in by David from Camborne The average adult falls asleep seven minutes after turning out the light. Beard hair grows at twice its usual rate when you're in a plane Women blink nearly twice as much as men. Humans share one third of their DNA with lettuce. If you mouth the word "colourful" to someone it looks like you're saying "I love you". Kermit the Frog is left handed (as are all the best people, says our Editor!) In 1386 a pig in France was executed by public hanging for the murder of a child. One quarter of the bones in your body are in your feet. The placement of a donkey's eyes in its head enables it to see all four feet at the same time. Some worms will eat themselves if they can't find any food. The average person laughs 10 times a day. ******************************************** The Well We have a well deep within us which is always full with pure, crystal water. Through our life we are drawing from its strengthening purity of its healing water. The more we draw from our own personal well – the more strength we receive, the strength is greater the more we use it. 'Use it or lose it'. What a precious gift our well is. Daphne James
  44. 44. Mental Health Project Newsletter Summer 2010 44 Cornwall Respect Festival 2010 One Cornwall, One Love Saturday 14th August 2009 Victoria Park and Lemon Quay, Truro So say no to racism, bigotry, and segregation; And yes to love, understanding and acceptance by celebrating with us. Tel 07515 580002
  45. 45. Mental Health Project Newsletter Summer 2010 45 Useful Telephone Numbers Mental Health Project main office tel: 01872 243532 E: Web: * Nightlink: 0808 8000 306 (daily 5-midnight) Nightlink text service: 07717 989021 Samaritans: 01872 277277 Welfare Rights/Benefits Advice: 0800 882200 NHS Direct: 0845 4647 Carers and Service Users Leaflet Line (CASULL): 01726 823515 Shelter: 01209 314844 Legal Helpline: 0845 650 3122 Cornwall Rape & Sexual Abuse Centre: 01872 262100 SEAP Mental Health Advocacy (not Restormel): 0845 2799019 Rural Community Advocacy (Restormel only): 01726 823137 Disability Information and Advice Line: 01736 759500 Community Mental Health Teams (CMHTs) East Cornwall: 01579 335226 North Cornwall: 01208 251408 Restormel: 01726 291212 Carrick: 01872 356000 Kerrier: 01209 881888 Penwith: 01736 575524 Out Of Hours (Bodmin Hospital switchboard): 01208 251300 Cornwall Rural Community Council (registered as Cornwall Community Development Ltd.) Charity no: 1087550, Company no: 4144745, VAT no: 557448996. Main office: 2 Princes Street, Truro, Cornwall, TR1 2ES.