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Issues for CALD Carers of People with Dementia (2008)
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Issues for CALD Carers of People with Dementia (2008)

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Presentation at Expert meeting on Strategic Directions in CALD dementia research in Australia (DCRC) September 2008

Presentation at Expert meeting on Strategic Directions in CALD dementia research in Australia (DCRC) September 2008

Published in Health & Medicine
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  • 1. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD CarersBenedicte CruysmansMulticultural Dementia Consultant/EducatorAlzheimer’s Australia NSWpresentation at Expert meeting on Strategic Directions inCALD dementia research in AustraliaPrimary Dementia Collaborative Research CentreCoogee, 17 September 2008
  • 2. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityPerspective• Psychology – human experience• Multicultural background andmigration as an adult• Aged Care: Ethno-specific (5y) ,Multicultural (20y) , Dementia CALD (1y-)
  • 3. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD Carers• Diverse with unique circumstancesand personal attributes• Groups with similar cultural traditionsand beliefs• All share the impact of the migrationexperience
  • 4. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityMain Recommendationfor ResearchIdentify the best approaches toCommunity, Family and CarersAwareness and EducationContentFormatsDissemination Strategies
  • 5. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Targets low formal education/literacy• Practical• Everyday language• Equally supportive of the person withdementia and the main carer• Constructive and motivating• Reduces the stigma
  • 6. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Easily shared within the family and outsidewith friends and community• Used between family carers and careworkers• Used by GPs after formal diagnosis• Easy to teach via train-the-trainer• Standard and quality controlled, yet flexible
  • 7. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityFORMATS• Simple, user friendly• Words and images• Appealing, respectful and dignifying• Easily accessible• Can be shared• Multimedia and multiple formats
  • 8. Copyright Alzheimer’s Australia NSWDementia is a National Health PrioritySTRATEGIES Bring together complementary expertise Consider equity and access Provide economy of scale
  • 9. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityDesired Outcome Better understanding of condition and itsimpact Reduced stigma Practical, constructive and supportiveenvironment Improved access to services
  • 10. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityAlzheimer’s Australia NSWrepresenting the interests ofall people living with dementia