Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD CarersBenedicte CruysmansMulticultural Demen...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityPerspective• Psychology – human experience• Multi...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD Carers• Diverse with unique circumstancesand...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityMain Recommendationfor ResearchIdentify the best ...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Targets low formal education/literacy• P...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Easily shared within the family and outs...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityFORMATS• Simple, user friendly• Words and images•...
Copyright Alzheimer’s Australia NSWDementia is a National Health PrioritySTRATEGIES Bring together complementary expertis...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityDesired Outcome Better understanding of conditio...
Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityAlzheimer’s Australia NSWrepresenting the interes...
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Issues for CALD Carers of People with Dementia (2008)

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Presentation at Expert meeting on Strategic Directions in CALD dementia research in Australia (DCRC) September 2008

Published in: Health & Medicine
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Issues for CALD Carers of People with Dementia (2008)

  1. 1. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD CarersBenedicte CruysmansMulticultural Dementia Consultant/EducatorAlzheimer’s Australia NSWpresentation at Expert meeting on Strategic Directions inCALD dementia research in AustraliaPrimary Dementia Collaborative Research CentreCoogee, 17 September 2008
  2. 2. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityPerspective• Psychology – human experience• Multicultural background andmigration as an adult• Aged Care: Ethno-specific (5y) ,Multicultural (20y) , Dementia CALD (1y-)
  3. 3. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCALD Carers• Diverse with unique circumstancesand personal attributes• Groups with similar cultural traditionsand beliefs• All share the impact of the migrationexperience
  4. 4. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityMain Recommendationfor ResearchIdentify the best approaches toCommunity, Family and CarersAwareness and EducationContentFormatsDissemination Strategies
  5. 5. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Targets low formal education/literacy• Practical• Everyday language• Equally supportive of the person withdementia and the main carer• Constructive and motivating• Reduces the stigma
  6. 6. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityCONTENT• Easily shared within the family and outsidewith friends and community• Used between family carers and careworkers• Used by GPs after formal diagnosis• Easy to teach via train-the-trainer• Standard and quality controlled, yet flexible
  7. 7. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityFORMATS• Simple, user friendly• Words and images• Appealing, respectful and dignifying• Easily accessible• Can be shared• Multimedia and multiple formats
  8. 8. Copyright Alzheimer’s Australia NSWDementia is a National Health PrioritySTRATEGIES Bring together complementary expertise Consider equity and access Provide economy of scale
  9. 9. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityDesired Outcome Better understanding of condition and itsimpact Reduced stigma Practical, constructive and supportiveenvironment Improved access to services
  10. 10. Copyright Alzheimer’s Australia NSWDementia is a National Health PriorityAlzheimer’s Australia NSWrepresenting the interests ofall people living with dementia
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