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NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
NHC Communications Affinity Group May 2012
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NHC Communications Affinity Group May 2012

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  • 1. Communications Affinity Group May 21, 2012 Tamara RuggieroVice President, Communications and Marketing American Kidney Fund and Chair, Communications Affinity Group
  • 2. Housekeeping Announcements  Will mute phone lines so that we all can hear  Will take questions at end of each presentation  Will record the presentation  Problems during the presentation?  Contact us at kgarrity@nhcouncil.org or 202-785-3910© National Health Council
  • 3. Tamara Ruggiero
  • 4. Matt DoBiasHealth Care Reporter, PoliticoPro
  • 5. Questions & Answers Matt DoBias
  • 6. Kim RichardsonStrategic Experts Coordinator, WebMD
  • 7. Raising Awareness and Reaching Patients on WebMD05/22/12 8
  • 8. “A Different Normal” http://blogs.webmd.com/chronic-conditions05/22/12 For Internal Use Only 9
  • 9. Rising Above Restrictions Vision – Illuminate the reality – It’s about the people, not the conditions – Create a collective voice Opportunity – Reach audience – Personalize the condition – Provide resources05/22/12 For Internal Use Only 10
  • 10. Rising Above Restrictions Vision – Illuminate the reality – It’s about the people, not the conditions – Create a collective voice Opportunity – Reach audience – Personalize the condition – Provide resources – Raise visibility05/22/12 For Internal Use Only 11
  • 11. Organization Participation Plan – Organizations surface bloggers – Bloggers create content – WebMD posts and programs the content in appropriate areas Participation – Ad-hoc posting – Flexible schedule – Responding to comments is optional – Support from WebMD05/22/12 For Internal Use Only 12
  • 12. Participating Organizations The ALS Association American Association on Health and Disability American Kidney Fund CaringBridge Mesothelioma Applied Research Foundation National Eczema Association National Foundation for Ectodermal Dysplasias National Marfan Foundation National Psoriasis Foundation Parent Project Muscular Dystrophy Prevent Blindness America Sjögren’s Syndrome Foundation Society of Nuclear Medicine05/22/12 For Internal Use Only 13
  • 13. Reader Engagement This is my first time on this site an I am thrilled I have someone to vent to. Knowing you are not alone with this disease is a good feeling. Our problems are those that are difficult for others to comprehend, thus, we dont look sick. - Debra Sue (comment on “Breaking the Silence”) I love the above courage and inspirations you all have given me. It truly helps to talk to someone who also knows chronic pain. Believe me I pray a lot. -Julie (comment on “How to Find Smiles”) What a help to realize there are other people out there who are dealing with chronic conditions. If we are not able to meet in person this can be our support group. What a miracle the Internet is. – Susan (comment on “A Balancing Act”) More topics like this should be in all doctors offices, hospitals, and any health care facility. Anywhere it can be read by those who are so blind to those of us who suffer. We need to get our voices heard. Now not later. – mek53151 (comment on “Relationships and Invisible Illnesses”)05/22/12 For Internal Use Only 14
  • 14. Getting Involved Contact WebMD (karichardson@webmd.net) Identify bloggers – Patients, doctors, administrators – whoever has a story to tell and is dying to tell it Brainstorm topics – Topics should be “big picture”, using the specifics of the condition to frame and inform, but focusing the message on the impact of the condition not the condition itself – Posts can mention (and link to) the organizations when appropriate, but should not be about the organization Send post to WebMD for publishing – Posts should be 300-500 words – Written to 6th grade reading level – Also needs a headshot and bio of author (bio is 50-75 words)05/22/12 For Internal Use Only 15
  • 15. Questions & Answers Kim Richardson
  • 16. Communications Affinity Group May 21, 2012 Tamara RuggieroVice President, Communications and Marketing American Kidney Fund and Chair, Communications Affinity Group

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