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Six lives: English Health Care Policy for people with intellectual disability (2013)

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In 2009 the English Health Ombudsman wrote a report - ‘Six Lives”- about six people who died because of mismanagement and maltreatment in the English health care system.

 The Six Lives report established policy and practice improvements to ensure that people with learning disabilities received good quality health care services all over England.

 It was legislated and implemented in 2010.

 The 2013 report is telling us what progress has been made in this policy area

Published in: Health & Medicine, Education
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Transcript of "Six lives: English Health Care Policy for people with intellectual disability (2013)"

  1. 1. Six Lives The English Government’s policy on health care for people with a learning disability (this is what we call intellectual disability in Australia)
  2. 2. 08/15/13National Council on Intellectual Disability Inc ncid.org.au What Happened 2 Mencap – an advocacy organisation in 2007 wrote a report called ‘Death by Indifference’ which told the story of people who died in the English health care system. http://www.mencap.org.uk/campaigns/take-action/death-indifference In 2009 the Health Ombudsman wrote another report - ‘Six Lives”- about six people who died because of mismanagement and maltreatment in the English health care system.
  3. 3. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 3  The Six Lives report established policy and practice improvements to ensure that people with learning disabilities received good quality health care services all over England.  It was legislated and implemented in 2010.  The 2013 report is telling us what progress has been made in this policy area https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/212292/ Six_lives_2nd_Progress_Report_on_Healthcare_for_People_with_Learning_Disabilities_- _full_report.pdf
  4. 4. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 4 Things going well in health care mean 1. Reasonable adjustments being made based on individual differences and need. 2. Staff having a positive attitude towards people with a learning disability. 3. Involving people with a learning disability and their families/carers in health care treatment and plans. 4. Employment of learning disability nurses. 5. People (staff) in hospitals do what the law says in the Mental Capacity Act. What they found
  5. 5. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 5 They also found Things not going well in health care mean 1. It takes too long to find out what is wrong with someone and start treatment. 2. Annual health checks are not always done properly. 3. People with learning disabilities are not given information in a way they can understand. 4. People who work in hospitals do not always realise when someone is in pain. 5. People are not included in decisions about their care.
  6. 6. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 6 Australian Context Current research supports the English findings of Six Lives. The Queensland Centre for Intellectual and Developmental Disabilities (QCIDD) INC undertakes a range of research in this area and also have a You Tube channel with a range of information available. https://www.youtube.com/channel/UChCUpCHdvnHqAf8SBOuV_tA
  7. 7. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 7 The Six Lives Plan (Rationale) 1. Getting information from the Learning Disabilities Public Health Observatory. (Research) 2. Looking at the results of the Confidential Inquiry which looked at why people with learning disabilities died earlier than other people. (Analysis) 3. Annual health checks for people (Action) 4. Share good practice with everyone (Education)
  8. 8. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 8 5. Educate staff in the health system how to work with people with intellectual disabilities and their families. (Mentoring) 6. Have people with intellectual disabilities on partnerships boards. (Communication and Education) 5. Put quality control monitoring mechanisms in the system (Regulation and Legislation) 6. Regularly check the progress of the health care system (Evaluation)
  9. 9. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 9 Advocates have been calling for better health care in Australia too To our knowledge there has not been a report like the Mencap 2007 report, which looks at the number and cause of deaths of people with an intellectual disability in the Australian health care system. Q. Is it time for one? Do we know what is happening? Would it affect policy change?
  10. 10. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 10 The Australian Context The Australian government in 2010 introduced the National Disability Strategy 2010 - 2020 which has 6 key strategies. Priority 6 deals with health and wellbeing and sets out broad system and policy changes; none in detail or legislated to date. Some states have developed policy responses on the health care of people with intellectual disability.
  11. 11. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 11 Following England’s lead by  Establishing yearly health checks for people that are funded through Medicare.  Individual health care plans with one professional taking responsibility for actioning the plan and placing relevant information on the e-health system for future reference.  Longer time given to appointments times for people with intellectual disability.
  12. 12. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 12  Having people with an intellectual disability as advisors on boards in the health system.  Providing information in Easy English for people and their families.  Education and mentoring of health care workers on ways to work effectively with people with intellectual disabilities and their support networks.  Involving the person and their support networks in health care team.
  13. 13. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 13 Calling for action  The current research in this area established that people with intellectual disabilities have poorer health than other Australians and die 20 years earlier.  Negative attitudes toward people with intellectual disabilities continue to play a role in how the health care system responds to them and there is a need for intensive education of health care workers to change this.  Urgent action is require for equity to be achieved
  14. 14. 08/15/13National Council on Intellectual Disability Inc ncid.org.au 14 NCID advocates the health sector learn from the Six Lives policy and commitment to change demonstrated by the English Government in the policy and follow their lead.
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