Personal Health Records and Consumer Health Informatics
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Personal Health Records and Consumer Health Informatics Presentation Transcript

  • 1. Nawanan Theera-Ampornpunt, MD, PhD Healthcare CIO Program Ramathibodi Hospital Administration School Aug. 30, 2013 SlideShare.net/Nawanan Except where  citing other works
  • 2. Stakeholders in Health Care Patient Providers Policy- Makers Public Payers Diagram modified from Supachai Parchariyanon’s 4Ps Concept • High bargaining power • Benefit with improved quality in fee-for-service • Needs to satisfy many “bosses” • Faces up-front costs in health IT investments • Long-term benefits depend on payment schemes • Require data for policy-making • Limited budget • Often face bureaucracies • Highly political • Concerns about resource allocation & community’s well-being, but not necessarily individual patients • Directly benefits from improved quality of care • Knowledge gap between patient & providers
  • 3. The Intersection Clinical Informatics Public Health Informatics Consumer Health Informatics Patients & Consumers Providers & Patients Policy-Makers, Payers, Public (Also providers)
  • 4. Public Policy in Informatics: A US’s Case 1991: IOM’s CPR Report published 1996: HIPAA enacted 2000-2001: IOM’s To Err Is Human & Crossing the Quality Chasm published 2004: George W. Bush’s Executive Order establishing ONCHIT (ONC) 2009-2010: ARRA/HITECH Act & “Meaningful use” regulations
  • 5. Political Support Behind Health IT “...We will make wider use of electronic records and other health information technology, to help control costs and reduce dangerous medical errors.” Source: Wikisource.org Image Source: Wikipedia.org President George W. Bush Sixth State of the Union Address January 31, 2006 ?
  • 6. U.S. Adoption of Health IT • U.S. lags behind other Western countries (Schoen et al, 2006;Jha et al, 2008) • Money and misalignment of benefits is the biggest reason Ambulatory(Hsiao et al, 2009) Hospitals (Jha et al, 2009) Basic EHRs w/ notes 7.6% Comprehensive EHRs 1.5% CPOE 17%
  • 7. President Obama Backs Health IT “...Our recovery plan will invest in electronic health records and new technology that will reduce errors, bring down costs, ensure privacy, and save lives.” President Barack Obama Address to Joint Session of Congress February 24, 2009 Source: WhiteHouse.gov
  • 8. American Recovery & Reinvestment Act  Contains HITECH Act (Health Information Technology for Economic and Clinical Health Act)  ~ 20 billion dollars for Health IT investments  Incentives & penalties for providers
  • 9. U.S. National Leadership David Blumenthal, MD, MPP National Coordinator for Health Information Technology (2009 - 2011) Farzad Mostashari, MD, ScM National Coordinator for Health Information Technology (2011 - 2013) Robert Kolodner, MD National Coordinator for Health Information Technology (2006 - 2009) David Brailer, MD, PhD National Coordinator for Health Information Technology (2004 - 2007) Office of the National Coordinator for Health Information Technology (ONC -- formerly ONCHIT) Photos courtesy of U.S. Department of Health & Human Services
  • 10. What is in HITECH Act? Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5.
  • 11. “Meaningful Use” “Meaningful Use” of a Pumpkin Pumpkin Image Source & Idea Courtesy of Pat Wise at HIMSS, Oct. 2009
  • 12. “Meaningful Use” of Health IT Stage 1 - Electronic capture of health information - Information sharing - Data reporting Stage 2 Use of EHRs to improve processes of care Stage 3 Use of EHRs to improve outcomes Better Health (Blumenthal D, 2010)
  • 13. Health Information Exchange (HIE) Hospital A Hospital B Clinic C Government Lab Patient at Home
  • 14. Health Information Exchange in the U.S.  Regional Health Information Organizations (RHIOs)  State e-Health initiatives  Nationwide Health Information Network (NHIN)  Still ongoing efforts, but with significant progress
  • 15. Other Public Health Informatics Applications  e-Health & m-Health  m-Health in disaster management: #ThaiFlood  Data reporting to government agencies  Claims & reimbursements  Diseases  Utilization statistics  Quality measures  etc.  Biosurveillance (case reporting vs. predictive)  Epidemiologic & health services research
  • 16. Google Flu Trends Source: Google.org/FluTrends
  • 17. Thailand’s Biosurveillance Source: www.biophics.org
  • 18. Consumer Health Informatics (CHI)  “The field devoted to informatics from a consumer view.” (Hersh, 2009)
  • 19. M/B/H Informatics As A Field (Hersh, 2009)
  • 20. Examples of Areas within Consumer Health Informatics Image Source: http://www.webmd.com/
  • 21. Examples of Areas within Consumer Health Informatics Image Source: http://www.greatdreams.com/cancer-cure.htm
  • 22. Examples of Areas within Consumer Health Informatics Image Source: http://www.hon.ch/, http://socialmarketing.blogs.com/r_craiig_lefebvres_social/2007/02/health_literacy.html
  • 23. Examples of Areas within Consumer Health Informatics Image Source: http://michaelcarusi.com/2012/01/01/when-you-should-not-become-a-social-media-manager/
  • 24. Examples of Areas within Consumer Health Informatics Image Source: http://ucedtech.wikispaces.com/Welcome
  • 25. mHealth http://whqlibdoc.who.int/publications/2011/9789241564250_eng.pdf
  • 26. Examples of Areas within Consumer Health Informatics Image Source: http://nutrition.about.com/od/recipesmenus/ss/learnlabels.htm
  • 27. Class Exercise
  • 28. Roles of ICT in Consumer Health Informatics  Access to information  Networking opportunities  Education/Self-study  Personalization  Effective & efficient communications  Empowerment  “User Experience”
  • 29. Issues in Consumer Health Informatics  Health literacy & IT literacy  Cultural diversity & sensitivity  Usability, information presentation  Impact of ICT on behavioral modifications  Integration with provider’s systems  Information exchange & interoperability  Business model  Privacy & security
  • 30. Personal Health Records (PHRs)  “An electronic application through which individuals can access, manage and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment.” (Markle Foundation, 2003)  “A PHR includes health information managed by the individual... This can be contrasted with the clinician’s record of patient encounter–related information [a paperchart or EHR], which is managed by the clinician and/or health care institution.” (Tang et al., 2006)
  • 31. Types of PHRs  Patient portal from a provider’s EHRs (“tethered” PHRs)  Online PHRs  Stand-alone  Can be integrated with EHRs from multiple providers (unidirectional/bidirectional data sharing)  Stand-alone PHRs  PC-based applications  USB Drive  CD-ROM or other data storage devices  Paper
  • 32. PHRs and Other Systems (Tang et al., 2006)
  • 33. Ideal PHRs  Integrated  Accessible  Secure  Comprehensive  Accurate & current  Patient able to manage sharing & update information  Engaging & educational  User-friendly, culturally & literacy appropriate The “Hub and Spoke” Model (Kaelber et al., 2008)
  • 34. Use Cases of PHRs  Data entry/update by patients  Data retrieval by providers  With patient’s consent  “Break-the-glass” emergency access  Data update from EHRs  Privacy settings  Personalized patient education  Communications with providers
  • 35. Data in PHRs (Tang et al., 2006) (Tang et al., 2006)
  • 36. Other IT for Consumer Health Traditional Web  MedlinePlus  Other sites Social Media  The Usuals: MySpace, Facebook, Twitter  Blogs, forums  PatientsLikeMe Telemedicine & Telehealth  Home monitoring/recording devices  Tele-consultations, virtual visits  http://media.nstda.or.th/video/viewVideo.php?video_id=1273
  • 37. The Future Microsoft Health: Future Vision http://www.microsoft.com/showcase/en/us/details/b112da1c-c918- 41ee-bb45-d6a553496168 NECTEC’s Smart Health http://media.nstda.or.th/video/viewVideo.php?video_id=1273
  • 38. References  Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5.  Blumenthal D, Tavenner M. The “meaningful use” regulation for electronic health records. N Engl J Med. 2010 Aug 5;363(6):501-4.  Connecting for Health. The personal health working group final report. Markle Foundation; 2003 Jul 1.  Hsiao C, Beatty PC, Hing ES, Woodwell DA. Electronic medical record/electronic health record use by office-based physicians: United States, 2008 and preliminary 2009 [Internet]. 2009 [cited 2010 Apr 12]; Available from: http://www.cdc.gov/nchs/data/hestat/emr_ehr/emr_ehr.pdf  Jha AK, DesRoches CM, Campbell EG, Donelan K, Rao SR, Ferris TG, Shields A, Rosenbaum S, Blumenthal D. Use of electronic health records in U.S. hospitals. N Engl J Med. 2009;360(16):1628-38.  Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for personal health records (PHRs). J Am Med Inform Assoc. 2008 Nov-Dec;15(6):729-36.  Schoen C, Osborn R, Huynh PT, Doty M, Puegh J, Zapert K. On the front lines of care: primary care doctors’ office systems, experiences, and views in seven countries. Health Aff (Millwood). 2006;25(6):w555-71.  Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc. 2006 Mar-Apr;13(2):121-6.