Liz Lyon presentsCrowdsourcing Lay Summaries: Bridging the Gap in Health Research at the Patients Participate !Workshop at the British Library, 17th June 2011

1. Patients
Participate!
#JISCPP
Crowd-sourcing lay-summaries:
Bridging the Gap in Health Research
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2. 2011: Citizens
getting involved
in science
2

3. Classify
galaxies…
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4. 4

5. Validate
results data
and publish

6. But……
Public
understanding
of science
gets lost in
technical
http://www.flickr.com/photos/83456375@N00/100109448/
language
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7. • How will open and participative
science initiatives impact on
research practice?
• What are scientists and funder
attitudes towards citizen science?
• What are the societal
implications?
• How should professional
scientists, volunteers, amateurs
and citizen scientists work
together?
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http://www.ukoln.ac.uk/ukoln/staff/e.j.lyon/publications.html#november-2009

8. Patients Participate!
• Bridging the Gap
• Feasibility pilot study
• Stem cell research
• Develop Use Cases
• Deliver advocacy, guidance
• Report &
Citizen-patients producing Recommendations
crowd-sourced lay summaries • JISC funding
of UK PubMed Central papers
Blog : http://blogs.ukoln.ac.uk/patientsparticipate/
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9. The team
• Monica Duke
• Liz Lyon
• Lee-Ann Coleman
• Karen Walshe
• Allan Sudlow
• Simon Denegri
• Sara Ellis
• Stephen Friend
• Melanie Welham
• Julian Chaudhuri
The Blog :
http://blogs.ukoln.ac.uk/patientsparticipate/
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http://www.flickr.com/photos/andrewpescod/203127348/