Crowdsourcing Lay Summaries: Bridging the Gap in Health Research

Patients Participate! #JISCPPCrowd-sourcing lay-summaries:Bridging the Gap in Health Research 1

2011: Citizensgetting involvedin science 2

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Validateresults dataand publish

But…… Public understanding of science gets lost in technicalhttp://www.flickr.com/photos/83456375@N00/100109448/ language 6

• How will open and participative science initiatives impact on research practice? • What are scientists and funder attitudes towards citizen science? • What are the societal implications? • How should professional scientists, volunteers, amateurs and citizen scientists work together? 7http://www.ukoln.ac.uk/ukoln/staff/e.j.lyon/publications.html#november-2009

Patients Participate! • Bridging the Gap • Feasibility pilot study • Stem cell research • Develop Use Cases • Deliver advocacy, guidance • Report &Citizen-patients producing Recommendationscrowd-sourced lay summaries • JISC fundingof UK PubMed Central papersBlog : http://blogs.ukoln.ac.uk/patientsparticipate/ 8

The team • Monica Duke • Liz Lyon • Lee-Ann Coleman • Karen Walshe • Allan Sudlow • Simon Denegri • Sara Ellis • Stephen Friend • Melanie Welham • Julian Chaudhuri The Blog : http://blogs.ukoln.ac.uk/patientsparticipate/ 9http://www.flickr.com/photos/andrewpescod/203127348/

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Crowdsourcing Lay Summaries: Bridging the Gap in Health Research

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