Jf&Cs Parkinsons Family Support Program


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  • 2year old program 2 year old program Dale’s story Identified needs in the community Success measured by enormous response Looking to MGH referrals, partnerships like Surrounding Yourself with Care seminar
  • Jf&Cs Parkinsons Family Support Program

    1. 1. Jewish Family & Children’s Service Parkinson’s Family Support Program "Your programs continue to be a cornerstone inspiration of our life with this disease. Thank you."
    2. 2. Our Programs: Monthly Education, Networking and Support Group <ul><li>“ I want you to know that coming to your group with my husband makes us feel taken care of.” </li></ul>
    3. 3. Community Wellness <ul><li>“ We’ve learned incredibly helpful things in this group, and I’ve had a great time. I’m now more motivated to keep active.” </li></ul>
    4. 4. Adult Child Support Group <ul><li>“ As the daughter of someone with Parkinson’s Disease, I’m learning to have patience.” </li></ul>
    5. 5. Our Services <ul><li>Information and referral </li></ul><ul><ul><li>Community resources </li></ul></ul><ul><ul><li>Mental health counseling </li></ul></ul><ul><ul><li>Home health </li></ul></ul><ul><ul><li>Nutrition </li></ul></ul><ul><ul><li>Geriatric care management </li></ul></ul><ul><li>Free home safety evaluation </li></ul>
    6. 7. Why Dance? The Research on Exercise <ul><li>Patients with PD improve their physical performance and activities of daily living through exercise, specifically improved axial rotation, functional reach, flexibility, balance, muscle strength, short-step gait, and mobility. </li></ul><ul><li>Crizzle, AM , Newhouse, IJ. Clin J Sport Med. 2006 Sep;16(5):422-5. </li></ul><ul><li>Evidence supported exercise as being beneficial to physical functioning, health-related quality of life, strength, balance and gait speed for people with PD. </li></ul><ul><li>Goodwin, VA, Richards, SH, Taylor, RS, Taylor, AH, Campbell, JL. Mov Disord. 2008 Apr 15;23(5):631-40 </li></ul>
    7. 8. And Dance in Particular… <ul><li>Rhythmic auditory stimulation (RAS)- metronome-pulse patterns embedded into the on/off beat structure of rhythmically accentuated music. </li></ul><ul><li>Patients trained with RAS significantly improved their gait velocity by 25%, stride length by 12%, step cadence by 10%,compared to self-paced subjects and no-training subjects. </li></ul><ul><li>Hausdorff JM, Lowenthal J, Herman T, Gruendlinger L, Peretz C, Giladi N. Eur J Neurosci. 2007 Oct;26(8):2369-75. </li></ul>
    8. 9. And Dance in Particular <ul><li>After 20 Tango sessions, people with PD showed significant improvements in overall Unified Parkinson's Disease Rating Scale (UPDRS) score and significant improvements on the Berg Balance Scale. </li></ul><ul><li>Hackney ME, Kantorovich S, Levin R, Earhart GM. Program in Physical Therapy, Washington University School of Medicine, St. Louis, Missouri, USA. </li></ul>
    9. 10. Tango and PD <ul><li>Is it tango? Is it dance in general? </li></ul><ul><li>We have the UNOFFICIAL answer! </li></ul>
    10. 11. Qualitative Evidence <ul><li>The Ed Rudman Story </li></ul>
    11. 12. Models of PD Dance <ul><li>Mark Morris </li></ul>
    12. 13. Qualitative Evidence <ul><li>Bob Dawson </li></ul><ul><li>“ Dance as therapy. </li></ul><ul><li>Dance for flexibility, strength, endurance. </li></ul><ul><li>Dance for joy. </li></ul><ul><li>Dance in defiance of the disease. </li></ul><ul><li>Dance for a cure. </li></ul><ul><li>Dance to bother the scientists. </li></ul><ul><li>Dance to raise a question.” </li></ul>
    13. 14. Clinical Features of Dance- An OT Perspective <ul><li>Address common PD symptoms such as: </li></ul><ul><ul><li>Rigidity/stiffness with </li></ul></ul><ul><ul><li>poor trunk rotation </li></ul></ul><ul><ul><li>Decreased balance </li></ul></ul><ul><ul><li>Limited range of </li></ul></ul><ul><ul><li>motion </li></ul></ul><ul><ul><li>Stooped posture </li></ul></ul>
    14. 15. Clinical Features of Dance- An OT Perspective (Cont) <ul><ul><li>Address common PD symptoms such as: </li></ul></ul><ul><ul><li>Shuffling gait </li></ul></ul><ul><ul><li>Slowness of movement </li></ul></ul><ul><ul><li>Loss of smooth, coordinated movements </li></ul></ul><ul><ul><li>Stiff facial expression </li></ul></ul><ul><ul><li>Muffled speech </li></ul></ul>
    15. 16. So what does a class look like…
    16. 17. Welcome and Introductions <ul><li>“… We learn there is 'no right way', to explore our own response in movement. [This class] encourages free movement, reassuring people who felt self-conscious or unsure or embarrassed.”-JP </li></ul><ul><li>“ We start with a greeting ritual of names, connecting us, showing us  each one's particular movement gesture. We are learning the language of movement.”-JP </li></ul>
    17. 18. Yoga Warm Up “ What I love is that this is low stress, with no mirrors, so I don’t feel conspicuous. Here, you can let all of your worries drop….”-LA
    18. 19. Chair Routines (Free Form)
    19. 20. Floor Work “ When I dance, I potentiate my movements. I now listen to disco music at home. I turn on the tape in my bedroom and dance away. When I am done, my whole body feels stretched. It feels so good, that I like to aim to do it every day.”-AF
    20. 21. Choreographed Routine <ul><li>“ The other night I had to get up and I was feeling very stiff. I looked out the window and saw the big full moon. I smiled and started picking apples (one of the dance routines), which made me feel much better.”-GA </li></ul>
    21. 22. Partner Work <ul><li> (Photo by: Michele McDonald/Globe Staff) </li></ul>“ It’s a joy to have fun doing something physical together again with my spouse.”-CA
    22. 23. Break <ul><li>Hydrate </li></ul><ul><li>“ You offer something simple to drink, a cookie, and serve us!” </li></ul><ul><li>Determine pacing for second half of class. </li></ul><ul><li>Connect with each other and staff </li></ul>
    23. 24. Group Routine
    24. 25. Cool Down and Stretching “ I find dancing relaxing. I haven’t felt that I could exercise for more than three years. My arms and muscles were tightening. Dancing is a great workout.”
    25. 26. Meditation “ Dancing is so helpful, and so hopeful. I love being here with others who are doing what they can to help themselves.”
    26. 27. Closing “ I had been searching for something and coming here, we have found it! Finally, I have found people who ‘get’ what having and dealing with Parkinson’s are all about.” “ We end with a ritual of gratitude, connecting us.”-JP
    27. 28. Support <ul><li>“ This is a caring community with the input of others and the camaraderie. Sharing dancing and sharing knowledge with others is good for the soul. It’s so much better than going it alone.” </li></ul>
    28. 29. Support <ul><li>Harbouring “P” by Rosamond Rosenmeier </li></ul><ul><li>“ Something is happening in me, </li></ul><ul><li>Something interior and real </li></ul><ul><li>Something not me, but present in everything I do. </li></ul><ul><li>“ P” is the name I have given this ghostly invader…..” </li></ul><ul><li>  </li></ul>
    29. 30. Support <ul><li>“ A primary function of music is collective and communal….People sing together and dance together in every culture, and one can imagine them having done so around the first fires, a hundred thousand years ago.” </li></ul><ul><li>  </li></ul><ul><li>Dr. Oliver Sacks, Musicophila: Tales of Music and the Brain </li></ul>
    30. 31. Support <ul><li>“ Hope is the elevating feeling we experience when we see – in the mind’s eye – a path to a better future.” </li></ul><ul><li>  </li></ul><ul><li>Dr. Jerome Groopman, The Anatomy of Hope: How People Prevail in the Face of Illness </li></ul><ul><li>  </li></ul>
    31. 32. Your Turn! <ul><li>Now, what’s a class really like? </li></ul><ul><li>Let’s try it! </li></ul>
    32. 33. Our mission: To improve quality of life for families affected by Parkinson’s disease <ul><li>For information, contact: </li></ul><ul><li>Nancy Mazonson MS, OTR/L </li></ul><ul><li>Program Coordinator </li></ul><ul><li>JF&CS </li></ul><ul><li>1430 Main St. </li></ul><ul><li>Waltham, MA 02451 </li></ul><ul><li>781 693 5069 </li></ul><ul><li>[email_address] </li></ul>
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