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Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
Jf&Cs Parkinsons Family Support Program
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Jf&Cs Parkinsons Family Support Program

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  • 2year old program 2 year old program Dale’s story Identified needs in the community Success measured by enormous response Looking to MGH referrals, partnerships like Surrounding Yourself with Care seminar
  • Transcript

    • 1. Jewish Family & Children’s Service Parkinson’s Family Support Program "Your programs continue to be a cornerstone inspiration of our life with this disease. Thank you."
    • 2. Our Programs: Monthly Education, Networking and Support Group
      • “ I want you to know that coming to your group with my husband makes us feel taken care of.”
    • 3. Community Wellness
      • “ We’ve learned incredibly helpful things in this group, and I’ve had a great time. I’m now more motivated to keep active.”
    • 4. Adult Child Support Group
      • “ As the daughter of someone with Parkinson’s Disease, I’m learning to have patience.”
    • 5. Our Services
      • Information and referral
        • Community resources
        • Mental health counseling
        • Home health
        • Nutrition
        • Geriatric care management
      • Free home safety evaluation
    • 6.  
    • 7. Why Dance? The Research on Exercise
      • Patients with PD improve their physical performance and activities of daily living through exercise, specifically improved axial rotation, functional reach, flexibility, balance, muscle strength, short-step gait, and mobility.
      • Crizzle, AM , Newhouse, IJ. Clin J Sport Med. 2006 Sep;16(5):422-5.
      • Evidence supported exercise as being beneficial to physical functioning, health-related quality of life, strength, balance and gait speed for people with PD.
      • Goodwin, VA, Richards, SH, Taylor, RS, Taylor, AH, Campbell, JL. Mov Disord. 2008 Apr 15;23(5):631-40
    • 8. And Dance in Particular…
      • Rhythmic auditory stimulation (RAS)- metronome-pulse patterns embedded into the on/off beat structure of rhythmically accentuated music.
      • Patients trained with RAS significantly improved their gait velocity by 25%, stride length by 12%, step cadence by 10%,compared to self-paced subjects and no-training subjects.
      • Hausdorff JM, Lowenthal J, Herman T, Gruendlinger L, Peretz C, Giladi N. Eur J Neurosci. 2007 Oct;26(8):2369-75.
    • 9. And Dance in Particular
      • After 20 Tango sessions, people with PD showed significant improvements in overall Unified Parkinson's Disease Rating Scale (UPDRS) score and significant improvements on the Berg Balance Scale.
      • Hackney ME, Kantorovich S, Levin R, Earhart GM. Program in Physical Therapy, Washington University School of Medicine, St. Louis, Missouri, USA.
    • 10. Tango and PD
      • Is it tango? Is it dance in general?
      • We have the UNOFFICIAL answer!
    • 11. Qualitative Evidence
      • The Ed Rudman Story
    • 12. Models of PD Dance
      • Mark Morris
    • 13. Qualitative Evidence
      • Bob Dawson
      • “ Dance as therapy.
      • Dance for flexibility, strength, endurance.
      • Dance for joy.
      • Dance in defiance of the disease.
      • Dance for a cure.
      • Dance to bother the scientists.
      • Dance to raise a question.”
    • 14. Clinical Features of Dance- An OT Perspective
      • Address common PD symptoms such as:
        • Rigidity/stiffness with
        • poor trunk rotation
        • Decreased balance
        • Limited range of
        • motion
        • Stooped posture
    • 15. Clinical Features of Dance- An OT Perspective (Cont)
        • Address common PD symptoms such as:
        • Shuffling gait
        • Slowness of movement
        • Loss of smooth, coordinated movements
        • Stiff facial expression
        • Muffled speech
    • 16. So what does a class look like…
    • 17. Welcome and Introductions
      • “… We learn there is 'no right way', to explore our own response in movement. [This class] encourages free movement, reassuring people who felt self-conscious or unsure or embarrassed.”-JP
      • “ We start with a greeting ritual of names, connecting us, showing us  each one's particular movement gesture. We are learning the language of movement.”-JP
    • 18. Yoga Warm Up “ What I love is that this is low stress, with no mirrors, so I don’t feel conspicuous. Here, you can let all of your worries drop….”-LA
    • 19. Chair Routines (Free Form)
    • 20. Floor Work “ When I dance, I potentiate my movements. I now listen to disco music at home. I turn on the tape in my bedroom and dance away. When I am done, my whole body feels stretched. It feels so good, that I like to aim to do it every day.”-AF
    • 21. Choreographed Routine
      • “ The other night I had to get up and I was feeling very stiff. I looked out the window and saw the big full moon. I smiled and started picking apples (one of the dance routines), which made me feel much better.”-GA
    • 22. Partner Work
      • (Photo by: Michele McDonald/Globe Staff)
      “ It’s a joy to have fun doing something physical together again with my spouse.”-CA
    • 23. Break
      • Hydrate
      • “ You offer something simple to drink, a cookie, and serve us!”
      • Determine pacing for second half of class.
      • Connect with each other and staff
    • 24. Group Routine
    • 25. Cool Down and Stretching “ I find dancing relaxing. I haven’t felt that I could exercise for more than three years. My arms and muscles were tightening. Dancing is a great workout.”
    • 26. Meditation “ Dancing is so helpful, and so hopeful. I love being here with others who are doing what they can to help themselves.”
    • 27. Closing “ I had been searching for something and coming here, we have found it! Finally, I have found people who ‘get’ what having and dealing with Parkinson’s are all about.” “ We end with a ritual of gratitude, connecting us.”-JP
    • 28. Support
      • “ This is a caring community with the input of others and the camaraderie. Sharing dancing and sharing knowledge with others is good for the soul. It’s so much better than going it alone.”
    • 29. Support
      • Harbouring “P” by Rosamond Rosenmeier
      • “ Something is happening in me,
      • Something interior and real
      • Something not me, but present in everything I do.
      • “ P” is the name I have given this ghostly invader…..”
      •  
    • 30. Support
      • “ A primary function of music is collective and communal….People sing together and dance together in every culture, and one can imagine them having done so around the first fires, a hundred thousand years ago.”
      •  
      • Dr. Oliver Sacks, Musicophila: Tales of Music and the Brain
    • 31. Support
      • “ Hope is the elevating feeling we experience when we see – in the mind’s eye – a path to a better future.”
      •  
      • Dr. Jerome Groopman, The Anatomy of Hope: How People Prevail in the Face of Illness
      •  
    • 32. Your Turn!
      • Now, what’s a class really like?
      • Let’s try it!
    • 33. Our mission: To improve quality of life for families affected by Parkinson’s disease
      • For information, contact:
      • Nancy Mazonson MS, OTR/L
      • Program Coordinator
      • JF&CS
      • 1430 Main St.
      • Waltham, MA 02451
      • 781 693 5069
      • [email_address]

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