Jf&Cs Parkinsons Family Support Program
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Jf&Cs Parkinsons Family Support Program

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Jf&Cs Parkinsons Family Support Program Jf&Cs Parkinsons Family Support Program Presentation Transcript

  • Dance and Parkinson's Disease: Research, Practice, and Patient Experience Naomi Goodman, MPH Nancy Mazonson, MS OTR/L Marjie Sokoll, M.Ed
  • Jewish Family & Children’s Service Parkinson’s Family Support Program "Your programs continue to be a cornerstone inspiration of our life with this disease. Thank you."
  • Our Programs: Monthly Education, Networking and Support Group
    • “ I want you to know that coming to your group with my husband makes us feel taken care of.”
  • Community Wellness
    • “ We’ve learned incredibly helpful things in this group, and I’ve had a great time. I’m now more motivated to keep active.”
  • Adult Child Support Group
    • “ As the daughter of someone with Parkinson’s Disease, I’m learning to have patience.”
  • Our Services
    • Information and referral
      • Community resources
      • Mental health counseling
      • Home health
      • Nutrition
      • Geriatric care management
    • Free home safety evaluation
  •  
  • Why Dance? The Research on Exercise
    • Patients with PD improve their physical performance and activities of daily living through exercise, specifically improved axial rotation, functional reach, flexibility, balance, muscle strength, short-step gait, and mobility.
    • Crizzle, AM , Newhouse, IJ. Clin J Sport Med. 2006 Sep;16(5):422-5.
    • Evidence supported exercise as being beneficial to physical functioning, health-related quality of life, strength, balance and gait speed for people with PD.
    • Goodwin, VA, Richards, SH, Taylor, RS, Taylor, AH, Campbell, JL. Mov Disord. 2008 Apr 15;23(5):631-40
  • And Dance in Particular…
    • Rhythmic auditory stimulation (RAS)- metronome-pulse patterns embedded into the on/off beat structure of rhythmically accentuated music.
    • Patients trained with RAS significantly improved their gait velocity by 25%, stride length by 12%, step cadence by 10%,compared to self-paced subjects and no-training subjects.
    • Hausdorff JM, Lowenthal J, Herman T, Gruendlinger L, Peretz C, Giladi N. Eur J Neurosci. 2007 Oct;26(8):2369-75.
  • And Dance in Particular
    • After 20 Tango sessions, people with PD showed significant improvements in overall Unified Parkinson's Disease Rating Scale (UPDRS) score and significant improvements on the Berg Balance Scale.
    • Hackney ME, Kantorovich S, Levin R, Earhart GM. Program in Physical Therapy, Washington University School of Medicine, St. Louis, Missouri, USA.
  • Tango and PD
    • Is it tango? Is it dance in general?
    • We have the UNOFFICIAL answer!
  • Qualitative Evidence
    • The Ed Rudman Story
  • Models of PD Dance
    • Mark Morris
  • Qualitative Evidence
    • Bob Dawson
    • “ Dance as therapy.
    • Dance for flexibility, strength, endurance.
    • Dance for joy.
    • Dance in defiance of the disease.
    • Dance for a cure.
    • Dance to bother the scientists.
    • Dance to raise a question.”
  • Clinical Features of Dance- An OT Perspective
    • Address common PD symptoms such as:
      • Rigidity/stiffness with
      • poor trunk rotation
      • Decreased balance
      • Limited range of
      • motion
      • Stooped posture
  • Clinical Features of Dance- An OT Perspective (Cont)
      • Address common PD symptoms such as:
      • Shuffling gait
      • Slowness of movement
      • Loss of smooth, coordinated movements
      • Stiff facial expression
      • Muffled speech
  • So what does a class look like…
  • Welcome and Introductions
    • “… We learn there is 'no right way', to explore our own response in movement. [This class] encourages free movement, reassuring people who felt self-conscious or unsure or embarrassed.”-JP
    • “ We start with a greeting ritual of names, connecting us, showing us  each one's particular movement gesture. We are learning the language of movement.”-JP
  • Yoga Warm Up “ What I love is that this is low stress, with no mirrors, so I don’t feel conspicuous. Here, you can let all of your worries drop….”-LA
  • Chair Routines (Free Form)
  • Floor Work “ When I dance, I potentiate my movements. I now listen to disco music at home. I turn on the tape in my bedroom and dance away. When I am done, my whole body feels stretched. It feels so good, that I like to aim to do it every day.”-AF
  • Choreographed Routine
    • “ The other night I had to get up and I was feeling very stiff. I looked out the window and saw the big full moon. I smiled and started picking apples (one of the dance routines), which made me feel much better.”-GA
  • Partner Work
    • (Photo by: Michele McDonald/Globe Staff)
    “ It’s a joy to have fun doing something physical together again with my spouse.”-CA
  • Break
    • Hydrate
    • “ You offer something simple to drink, a cookie, and serve us!”
    • Determine pacing for second half of class.
    • Connect with each other and staff
  • Group Routine
  • Cool Down and Stretching “ I find dancing relaxing. I haven’t felt that I could exercise for more than three years. My arms and muscles were tightening. Dancing is a great workout.”
  • Meditation “ Dancing is so helpful, and so hopeful. I love being here with others who are doing what they can to help themselves.”
  • Closing “ I had been searching for something and coming here, we have found it! Finally, I have found people who ‘get’ what having and dealing with Parkinson’s are all about.” “ We end with a ritual of gratitude, connecting us.”-JP
  • Support
    • “ This is a caring community with the input of others and the camaraderie. Sharing dancing and sharing knowledge with others is good for the soul. It’s so much better than going it alone.”
  • Support
    • Harbouring “P” by Rosamond Rosenmeier
    • “ Something is happening in me,
    • Something interior and real
    • Something not me, but present in everything I do.
    • “ P” is the name I have given this ghostly invader…..”
    •  
  • Support
    • “ A primary function of music is collective and communal….People sing together and dance together in every culture, and one can imagine them having done so around the first fires, a hundred thousand years ago.”
    •  
    • Dr. Oliver Sacks, Musicophila: Tales of Music and the Brain
  • Support
    • “ Hope is the elevating feeling we experience when we see – in the mind’s eye – a path to a better future.”
    •  
    • Dr. Jerome Groopman, The Anatomy of Hope: How People Prevail in the Face of Illness
    •  
  • Your Turn!
    • Now, what’s a class really like?
    • Let’s try it!
  • Our mission: To improve quality of life for families affected by Parkinson’s disease
    • For information, contact:
    • Nancy Mazonson MS, OTR/L
    • Program Coordinator
    • JF&CS
    • 1430 Main St.
    • Waltham, MA 02451
    • 781 693 5069
    • [email_address]