The Missing Piece in Health Care Reform: Patient & Caregiver Roles

How To Be A Savvy Patient/ Caregiver Use Arrows Below to Advance Slides

Definition
A “Savvy Patient / Caregiver” is a person who:
Is Well-informed / Knowledgeable
Has Practical Understanding & Ability to Apply
Is Intelligent about a Specific Subject
Him or her self or the person for whom he or she is a caregiver
Personal Health Literacy

Cutting Health Care Costs: The Missing Piece
Studies show involved patients have better results & lower costs
“Savvy Patients” do even better…
One test, one appointment, one error at a time, patients & caregivers can make a BIG difference
This presentation shows How & the Benefits

Cutting Health Care Costs: The Missing Piece
Government, Providers, Insurance Companies all working to improve the system
Electronic Health Records, Patient Information Websites & Disease Management Programs help
BUT…
None truly Empower Patients to Take Control of & Manage their own care
There are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver

Goal
How people can take control of their health care by becoming Savvy Patients
&/or Caregivers

How to Do It
Decide to be more involved in their and / or another’s healthcare
Become:
The Leader & Coordinator of their healthcare team
Partner with each member of the team

How to Do It
Improve their personal health literacy by
Setting up & using a Health Record Management System
That provides fingertip access to their information
Enables use of that information in the Right Way at the Right Time – tell a better story
Research
Becoming knowledgeable
Knowing what questions to ask & when to ask them

Outcomes
“ Savvy Patients / Caregivers” who:
Are able to interact more effectively with healthcare providers to help them think & better help them
Make joint decisions
Obtain timelier & appropriate treatment plans / best for you or your loved one
Know how to & can prevented medical errors
Are better stewards of their health & healthcare $$$ - <costs
Less time away from work
Have better outcomes & more Confidence & Peace of Mind

WHY People Aren’t Savvy Patients
Never Taught How To Be Patients / Caregivers
Don’t know how to tell story
Lack Personal Health Management System
Lack knowledge about “Medical-related Things ”

Results
Don’t know how to be involved or tell our stories effectively
Tend to leave everything up to the doctor
Often feel intimidated by medical professionals
Feel powerless to do anything about quality of care or to fix the system

Impact
Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan)
Delayed diagnosis or misdiagnosis (15% are misdiagnosis)
Medical errors
Level of care unsatisfactory
Higher health care cost

Medicine was rather simple

Medical System is Complex A doctor for every body part Now…

Ideal: Patient’s Medical Team Meets Regularly

Reality: Each has a Piece of Patient’s Story Specialist #2 Specialist #1

The Missing Piece Who Has It ?

Job of Patients / Caregivers Help Collect & Connect The Pieces

Individually Patients / Caregivers CAN Make A Difference
Receive more timely & accurate diagnoses
Prevent duplicate testing
Decrease number appointments
Prevent many kinds of errors
Especially medication & use of over-the-counter drugs

Making the Transition to a Savvy Patient / Caregiver

Key Roles & Responsibilities
1 st Change Mind Set & Make Personal Decision
To be an engaged & active participant
To do personal preventative & health habits activities
To be a good Storytelling
To have a Personal Health Management System
Engage in personal health education

Details of Roles & Responsibilities
Engaged & Active = Willing to:
Be a Leader & Coordinator of healthcare team & Partner each member
Be open & honest
Share everything with every provider
Storytelling:
Be prepared
With thorough, complete & accurate story
To remind of & connect numerous pieces
To fill gaps

Management System
Good records with fingertip access to details & test
results
Appointment
Questions written & prioritized
Have advocate aid during appointment
Prep while wait
Research - Knowledgeable
Conditions, medications, procedures, etc .

Ask educated questions
Make joint decisions
Good follow through
Good outcomes

Health Care Provider Roles & Responsibilities
Expert - Explain What, Where, Why, When & How
Consultant / Coach - Discuss options & Make recommendations, not decisions
Listener - Reflect back concerns & goals
Educator - Understandable language & suggest resources
Partner - Mutual Respect

Communication

“ Doctors desperately need patients & their families & friends to help them think … … when the patient Tells His Story , the patient gives cues and clues the doctor may not be thinking about .” How Doctors Think, 2007 Jerome Groopman, MD Communication

Desired Effect of Your Story
Get immediate attention of your clinician
Help her be a good listener & prevent interruption
Tell for maximum benefit
Right sequence & right details
Allow connections with his knowledge bank
Enable her to think of alternatives & prevent premature diagnosis
Provide him with information he may not think to ask about

Story & Discussion
The Right Information
In the Right Way
At the Right Time

Questions
The Right Questions
In the Right Way
At the Right Time

Fingertip Access to Questions
Critical Question Series
Times When Patients / Caregivers Need to Know the Right Questions
Interviewing New Provider
Appointment Preparation
Test or Procedure / Especially Invasive
Test Results Outside the Normal Range
New Diagnosis / Chronic Condition
New Medication / Change in Medication
Research
Surgery
Hospital

Personal Health Management System

Needs to Be More Than Documentation
It’s one thing to compile personal medical information…
It’s another thing to have the Right Details & know how to Use that information How It’s Compiled makes A BIG difference , too!

Goals of A Personal Health Management System
Forms constructed in a way that help connect the pieces of medical story when:
Capturing medical history
Tracking ongoing care in a meaningful way
Preparing to tell story effectively & efficiently w/ the right details
Providing fingertip access to medical information in any circumstance
Helping patient / caregiver help their provider think & connect the pieces

Health System Components
Personal & Family Medical History
Appointments – Before, During & After
Symptom Tracking
Chronic Condition Tracking
Medication Management
Tracking & Using Test & Procedure Results
Research – Conditions. Procedures, Medications, etc.
Making & Tracking Lifestyle Changes
Using Your System in the Hospital
Tracking Medical Expenses
Advance Directives

Keys To Effective Care
Storytelling
Right Information, Right Way, Right Time
Questions
Right ???, Right Way, Right Time
Ability to Answer Provider Questions
Fingertip access to information
Joint Decisions
Plan of action

Benefits
Better Quality Care
Less chance of & able to Prevent medical errors
Save money & help Cut healthcare costs

Greater Confidence & Peace of Mind about care Biggest Benefit for Patient / Caregiver

Biggest Benefit for Employer Less employee absence & greater productivity

Offerings
Lunch & Learn Series
In Person & via Teleconference
Self-Directed Online Course
www.SavvyPatientSchool.com
Signed Book w/ or w/o CD
w/ Free Critical Question Series
Free e-newsletter
www.SavvyPatientToolkit.com
Access to Patient Advocates TeleSeries
Available to Speak In-Person & via Teleconference
E-mail form on websites Phone: 336-529-0441

The Missing Piece in Health Care Reform: Patient & Caregiver Roles

by Margo Corbett on May 13, 2009

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The Missing Piece in Health Care Reform: Patient & Caregiver Roles — Presentation Transcript