The Missing Piece in Health Care Reform: Patient & Caregiver Roles

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    The Missing Piece in Health Care Reform: Patient & Caregiver Roles - Presentation Transcript

    1. How To Be A Savvy Patient/ Caregiver Use Arrows Below to Advance Slides
    2. Definition
      • A “Savvy Patient / Caregiver” is a person who:
        • Is Well-informed / Knowledgeable
        • Has Practical Understanding & Ability to Apply
        • Is Intelligent about a Specific Subject
          • Him or her self or the person for whom he or she is a caregiver
          • Personal Health Literacy
    3. Cutting Health Care Costs: The Missing Piece
      • Studies show involved patients have better results & lower costs
      • “Savvy Patients” do even better…
      • One test, one appointment, one error at a time, patients & caregivers can make a BIG difference
      • This presentation shows How & the Benefits
    4. Cutting Health Care Costs: The Missing Piece
      • Government, Providers, Insurance Companies all working to improve the system
      • Electronic Health Records, Patient Information Websites & Disease Management Programs help
      • BUT…
      • None truly Empower Patients to Take Control of & Manage their own care
      • There are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver
    5. Goal
      • How people can take control of their health care by becoming Savvy Patients
      • &/or Caregivers
    6. How to Do It
      • Decide to be more involved in their and / or another’s healthcare
      • Become:
        • The Leader & Coordinator of their healthcare team
        • Partner with each member of the team
    7. How to Do It
      • Improve their personal health literacy by
        • Setting up & using a Health Record Management System
          • That provides fingertip access to their information
          • Enables use of that information in the Right Way at the Right Time – tell a better story
        • Research
          • Becoming knowledgeable
          • Knowing what questions to ask & when to ask them
    8. Outcomes
      • “ Savvy Patients / Caregivers” who:
      • Are able to interact more effectively with healthcare providers to help them think & better help them
      • Make joint decisions
      • Obtain timelier & appropriate treatment plans / best for you or your loved one
      • Know how to & can prevented medical errors
      • Are better stewards of their health & healthcare $$$ - <costs
      • Less time away from work
      • Have better outcomes & more Confidence & Peace of Mind
    9. WHY People Aren’t Savvy Patients
      • Never Taught How To Be Patients / Caregivers
        • Don’t know how to tell story
        • Lack Personal Health Management System
        • Lack knowledge about “Medical-related Things ”
    10. Results
      • Don’t know how to be involved or tell our stories effectively
      • Tend to leave everything up to the doctor
      • Often feel intimidated by medical professionals
      • Feel powerless to do anything about quality of care or to fix the system
    11. Impact
      • Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan)
      • Delayed diagnosis or misdiagnosis (15% are misdiagnosis)
      • Medical errors
      • Level of care unsatisfactory
      • Higher health care cost
    12. Medicine was rather simple
    13. Medical System is Complex A doctor for every body part Now…
    14. Ideal: Patient’s Medical Team Meets Regularly
    15. Reality: Each has a Piece of Patient’s Story Specialist #2 Specialist #1
    16. The Missing Piece Who Has It ?
    17. Job of Patients / Caregivers Help Collect & Connect The Pieces
    18. Individually Patients / Caregivers CAN Make A Difference
      • Receive more timely & accurate diagnoses
      • Prevent duplicate testing
      • Decrease number appointments
      • Prevent many kinds of errors
        • Especially medication & use of over-the-counter drugs
    19. Making the Transition to a Savvy Patient / Caregiver
    20. Key Roles & Responsibilities
      • 1 st Change Mind Set & Make Personal Decision
      • To be an engaged & active participant
      • To do personal preventative & health habits activities
      • To be a good Storytelling
      • To have a Personal Health Management System
      • Engage in personal health education
    21. Details of Roles & Responsibilities
      • Engaged & Active = Willing to:
        • Be a Leader & Coordinator of healthcare team & Partner each member
        • Be open & honest
        • Share everything with every provider
      • Storytelling:
        • Be prepared
          • With thorough, complete & accurate story
          • To remind of & connect numerous pieces
          • To fill gaps
    22. Details of Roles & Responsibilities
      • Management System
        • Good records with fingertip access to details & test
        • results
      • Appointment
        • Questions written & prioritized
        • Have advocate aid during appointment
        • Prep while wait
      • Research - Knowledgeable
        • Conditions, medications, procedures, etc .
    23. Details of Roles & Responsibilities
      • Ask educated questions
      • Make joint decisions
      • Good follow through
      • Good outcomes
    24. Health Care Provider Roles & Responsibilities
      • Expert - Explain What, Where, Why, When & How
      • Consultant / Coach - Discuss options & Make recommendations, not decisions
      • Listener - Reflect back concerns & goals
      • Educator - Understandable language & suggest resources
      • Partner - Mutual Respect
    25. Communication
    26. “ Doctors desperately need patients & their families & friends to help them think … … when the patient Tells His Story , the patient gives cues and clues the doctor may not be thinking about .” How Doctors Think, 2007 Jerome Groopman, MD Communication
    27. Desired Effect of Your Story
      • Get immediate attention of your clinician
      • Help her be a good listener & prevent interruption
      • Tell for maximum benefit
        • Right sequence & right details
        • Allow connections with his knowledge bank
        • Enable her to think of alternatives & prevent premature diagnosis
      • Provide him with information he may not think to ask about
    28. Story & Discussion
      • The Right Information
      • In the Right Way
      • At the Right Time
    29. Questions
        • The Right Questions
        • In the Right Way
        • At the Right Time
    30. Fingertip Access to Questions
      • Critical Question Series
      • Times When Patients / Caregivers Need to Know the Right Questions
      • Interviewing New Provider
      • Appointment Preparation
      • Test or Procedure / Especially Invasive
      • Test Results Outside the Normal Range
      • New Diagnosis / Chronic Condition
      • New Medication / Change in Medication
      • Research
      • Surgery
      • Hospital
    31. Personal Health Management System
    32. Needs to Be More Than Documentation
      • It’s one thing to compile personal medical information…
      It’s another thing to have the Right Details & know how to Use that information How It’s Compiled makes A BIG difference , too!
    33. Goals of A Personal Health Management System
      • Forms constructed in a way that help connect the pieces of medical story when:
        • Capturing medical history
        • Tracking ongoing care in a meaningful way
        • Preparing to tell story effectively & efficiently w/ the right details
        • Providing fingertip access to medical information in any circumstance
        • Helping patient / caregiver help their provider think & connect the pieces
    34. Health System Components
      • Personal & Family Medical History
      • Appointments – Before, During & After
      • Symptom Tracking
      • Chronic Condition Tracking
      • Medication Management
      • Tracking & Using Test & Procedure Results
      • Research – Conditions. Procedures, Medications, etc.
      • Making & Tracking Lifestyle Changes
      • Using Your System in the Hospital
      • Tracking Medical Expenses
      • Advance Directives
    35. Keys To Effective Care
      • Storytelling
        • Right Information, Right Way, Right Time
      • Questions
        • Right ???, Right Way, Right Time
      • Ability to Answer Provider Questions
        • Fingertip access to information
      • Joint Decisions
        • Plan of action
    36. Benefits
      • Better Quality Care
      • Less chance of & able to Prevent medical errors
      • Save money & help Cut healthcare costs
    37. Greater Confidence & Peace of Mind about care Biggest Benefit for Patient / Caregiver
    38. Biggest Benefit for Employer Less employee absence & greater productivity
    39. Offerings
      • Lunch & Learn Series
      • In Person & via Teleconference
      • Self-Directed Online Course
      • www.SavvyPatientSchool.com
      • Signed Book w/ or w/o CD
      • w/ Free Critical Question Series
      • Free e-newsletter
      • www.SavvyPatientToolkit.com
      • Access to Patient Advocates TeleSeries
      • Available to Speak In-Person & via Teleconference
      E-mail form on websites Phone: 336-529-0441
    SlideShare Zeitgeist 2009

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