How To Be A Savvy Patient/ Caregiver Use Arrows Below to Advance Slides

Definition A “Savvy Patient / Caregiver” is a person who: Is Well-informed / Knowledgeable Has Practical Understanding & Ability to Apply Is Intelligent about a Specific Subject Him or her self or the person for whom he or she is a caregiver Personal Health Literacy

A “Savvy Patient / Caregiver” is a person who:

Is Well-informed / Knowledgeable

Has Practical Understanding & Ability to Apply

Is Intelligent about a Specific Subject

Him or her self or the person for whom he or she is a caregiver

Personal Health Literacy

Cutting Health Care Costs: The Missing Piece Studies show involved patients have better results & lower costs “Savvy Patients” do even better… One test, one appointment, one error at a time, patients & caregivers can make a BIG difference This presentation shows How & the Benefits

Studies show involved patients have better results & lower costs

“Savvy Patients” do even better…

One test, one appointment, one error at a time, patients & caregivers can make a BIG difference

This presentation shows How & the Benefits

Cutting Health Care Costs: The Missing Piece Government, Providers, Insurance Companies all working to improve the system Electronic Health Records, Patient Information Websites & Disease Management Programs help BUT… None truly Empower Patients to Take Control of & Manage their own care There are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver

Government, Providers, Insurance Companies all working to improve the system

Electronic Health Records, Patient Information Websites & Disease Management Programs help

BUT…

None truly Empower Patients to Take Control of & Manage their own care

There are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver

Goal How people can take control of their health care by becoming Savvy Patients &/or Caregivers

How people can take control of their health care by becoming Savvy Patients

&/or Caregivers

How to Do It Decide to be more involved in their and / or another’s healthcare Become: The Leader & Coordinator of their healthcare team Partner with each member of the team

Decide to be more involved in their and / or another’s healthcare

Become:

The Leader & Coordinator of their healthcare team

Partner with each member of the team

How to Do It Improve their personal health literacy by Setting up & using a Health Record Management System That provides fingertip access to their information Enables use of that information in the Right Way at the Right Time – tell a better story Research Becoming knowledgeable Knowing what questions to ask & when to ask them

Improve their personal health literacy by

Setting up & using a Health Record Management System

That provides fingertip access to their information

Enables use of that information in the Right Way at the Right Time – tell a better story

Research

Becoming knowledgeable

Knowing what questions to ask & when to ask them

Outcomes “ Savvy Patients / Caregivers” who: Are able to interact more effectively with healthcare providers to help them think & better help them Make joint decisions Obtain timelier & appropriate treatment plans / best for you or your loved one Know how to & can prevented medical errors Are better stewards of their health & healthcare $$$ - <costs Less time away from work Have better outcomes & more Confidence & Peace of Mind

“ Savvy Patients / Caregivers” who:

Are able to interact more effectively with healthcare providers to help them think & better help them

Make joint decisions

Obtain timelier & appropriate treatment plans / best for you or your loved one

Know how to & can prevented medical errors

Are better stewards of their health & healthcare $$$ - <costs

Less time away from work

Have better outcomes & more Confidence & Peace of Mind

WHY People Aren’t Savvy Patients Never Taught How To Be Patients / Caregivers Don’t know how to tell story Lack Personal Health Management System Lack knowledge about “Medical-related Things ”

Never Taught How To Be Patients / Caregivers

Don’t know how to tell story

Lack Personal Health Management System

Lack knowledge about “Medical-related Things ”

Results Don’t know how to be involved or tell our stories effectively Tend to leave everything up to the doctor Often feel intimidated by medical professionals Feel powerless to do anything about quality of care or to fix the system

Don’t know how to be involved or tell our stories effectively

Tend to leave everything up to the doctor

Often feel intimidated by medical professionals

Feel powerless to do anything about quality of care or to fix the system

Impact Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan) Delayed diagnosis or misdiagnosis (15% are misdiagnosis) Medical errors Level of care unsatisfactory Higher health care cost

Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan)

Delayed diagnosis or misdiagnosis (15% are misdiagnosis)

Medical errors

Level of care unsatisfactory

Higher health care cost

Medicine was rather simple

Medical System is Complex A doctor for every body part Now…

Ideal: Patient’s Medical Team Meets Regularly

Reality: Each has a Piece of Patient’s Story Specialist #2 Specialist #1

The Missing Piece Who Has It ?

Job of Patients / Caregivers Help Collect & Connect The Pieces

Individually Patients / Caregivers CAN Make A Difference Receive more timely & accurate diagnoses Prevent duplicate testing Decrease number appointments Prevent many kinds of errors Especially medication & use of over-the-counter drugs

Receive more timely & accurate diagnoses

Prevent duplicate testing

Decrease number appointments

Prevent many kinds of errors

Especially medication & use of over-the-counter drugs

Making the Transition to a Savvy Patient / Caregiver

Key Roles & Responsibilities 1 st Change Mind Set & Make Personal Decision To be an engaged & active participant To do personal preventative & health habits activities To be a good Storytelling To have a Personal Health Management System Engage in personal health education

1 st Change Mind Set & Make Personal Decision

To be an engaged & active participant

To do personal preventative & health habits activities

To be a good Storytelling

To have a Personal Health Management System

Engage in personal health education

Details of Roles & Responsibilities Engaged & Active = Willing to: Be a Leader & Coordinator of healthcare team & Partner each member Be open & honest Share everything with every provider Storytelling: Be prepared With thorough, complete & accurate story To remind of & connect numerous pieces To fill gaps

Engaged & Active = Willing to:

Be a Leader & Coordinator of healthcare team & Partner each member

Be open & honest

Share everything with every provider

Storytelling:

Be prepared

With thorough, complete & accurate story

To remind of & connect numerous pieces

To fill gaps

Details of Roles & Responsibilities Management System Good records with fingertip access to details & test results Appointment Questions written & prioritized Have advocate aid during appointment Prep while wait Research - Knowledgeable Conditions, medications, procedures, etc .

Management System

Good records with fingertip access to details & test

results

Appointment

Questions written & prioritized

Have advocate aid during appointment

Prep while wait

Research - Knowledgeable

Conditions, medications, procedures, etc .

Details of Roles & Responsibilities Ask educated questions Make joint decisions Good follow through Good outcomes

Ask educated questions

Make joint decisions

Good follow through

Good outcomes

Health Care Provider Roles & Responsibilities Expert - Explain What, Where, Why, When & How Consultant / Coach - Discuss options & Make recommendations, not decisions Listener - Reflect back concerns & goals Educator - Understandable language & suggest resources Partner - Mutual Respect

Expert - Explain What, Where, Why, When & How

Consultant / Coach - Discuss options & Make recommendations, not decisions

Listener - Reflect back concerns & goals

Educator - Understandable language & suggest resources

Partner - Mutual Respect

Communication

“ Doctors desperately need patients & their families & friends to help them think … … when the patient Tells His Story , the patient gives cues and clues the doctor may not be thinking about .” How Doctors Think, 2007 Jerome Groopman, MD Communication

Desired Effect of Your Story Get immediate attention of your clinician Help her be a good listener & prevent interruption Tell for maximum benefit Right sequence & right details Allow connections with his knowledge bank Enable her to think of alternatives & prevent premature diagnosis Provide him with information he may not think to ask about

Get immediate attention of your clinician

Help her be a good listener & prevent interruption

Tell for maximum benefit

Right sequence & right details

Allow connections with his knowledge bank

Enable her to think of alternatives & prevent premature diagnosis

Provide him with information he may not think to ask about

Story & Discussion The Right Information In the Right Way At the Right Time

The Right Information

In the Right Way

At the Right Time

Questions The Right Questions In the Right Way At the Right Time

The Right Questions

In the Right Way

At the Right Time

Fingertip Access to Questions Critical Question Series Times When Patients / Caregivers Need to Know the Right Questions Interviewing New Provider Appointment Preparation Test or Procedure / Especially Invasive Test Results Outside the Normal Range New Diagnosis / Chronic Condition New Medication / Change in Medication Research Surgery Hospital

Critical Question Series

Times When Patients / Caregivers Need to Know the Right Questions

Interviewing New Provider

Appointment Preparation

Test or Procedure / Especially Invasive

Test Results Outside the Normal Range

New Diagnosis / Chronic Condition

New Medication / Change in Medication

Research

Surgery

Hospital

Personal Health Management System

Needs to Be More Than Documentation It’s one thing to compile personal medical information… It’s another thing to have the Right Details & know how to Use that information How It’s Compiled makes A BIG difference , too!

It’s one thing to compile personal medical information…

Goals of A Personal Health Management System Forms constructed in a way that help connect the pieces of medical story when: Capturing medical history Tracking ongoing care in a meaningful way Preparing to tell story effectively & efficiently w/ the right details Providing fingertip access to medical information in any circumstance Helping patient / caregiver help their provider think & connect the pieces

Forms constructed in a way that help connect the pieces of medical story when:

Capturing medical history

Tracking ongoing care in a meaningful way

Preparing to tell story effectively & efficiently w/ the right details

Providing fingertip access to medical information in any circumstance

Helping patient / caregiver help their provider think & connect the pieces

Health System Components Personal & Family Medical History Appointments – Before, During & After Symptom Tracking Chronic Condition Tracking Medication Management Tracking & Using Test & Procedure Results Research – Conditions. Procedures, Medications, etc. Making & Tracking Lifestyle Changes Using Your System in the Hospital Tracking Medical Expenses Advance Directives

Personal & Family Medical History

Appointments – Before, During & After

Symptom Tracking

Chronic Condition Tracking

Medication Management

Tracking & Using Test & Procedure Results

Research – Conditions. Procedures, Medications, etc.

Making & Tracking Lifestyle Changes

Using Your System in the Hospital

Tracking Medical Expenses

Advance Directives

Keys To Effective Care Storytelling Right Information, Right Way, Right Time Questions Right ???, Right Way, Right Time Ability to Answer Provider Questions Fingertip access to information Joint Decisions Plan of action

Storytelling

Right Information, Right Way, Right Time

Questions

Right ???, Right Way, Right Time

Ability to Answer Provider Questions

Fingertip access to information

Joint Decisions

Plan of action

Benefits Better Quality Care Less chance of & able to Prevent medical errors Save money & help Cut healthcare costs

Better Quality Care

Less chance of & able to Prevent medical errors

Save money & help Cut healthcare costs

Greater Confidence & Peace of Mind about care Biggest Benefit for Patient / Caregiver

Biggest Benefit for Employer Less employee absence & greater productivity

Offerings Lunch & Learn Series In Person & via Teleconference Self-Directed Online Course www.SavvyPatientSchool.com Signed Book w/ or w/o CD w/ Free Critical Question Series Free e-newsletter www.SavvyPatientToolkit.com Access to Patient Advocates TeleSeries Available to Speak In-Person & via Teleconference E-mail form on websites Phone: 336-529-0441

Lunch & Learn Series

In Person & via Teleconference

Self-Directed Online Course

www.SavvyPatientSchool.com

Signed Book w/ or w/o CD

w/ Free Critical Question Series

Free e-newsletter

www.SavvyPatientToolkit.com

Access to Patient Advocates TeleSeries

Available to Speak In-Person & via Teleconference