The Missing Piece in Health Care Reform: Patient & Caregiver Roles


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The health care system will not be fixed until patients & caregivers learn how to "be patients" and fix their part of the system. Overview of how to be a Savvy Patient or Caregiver for better care, fewer errors & help cut health care costs.

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  • The Missing Piece in Health Care Reform: Patient & Caregiver Roles

    1. 1. How To Be A Savvy Patient/ Caregiver Use Arrows Below to Advance Slides
    2. 2. Definition <ul><li>A “Savvy Patient / Caregiver” is a person who: </li></ul><ul><ul><li>Is Well-informed / Knowledgeable </li></ul></ul><ul><ul><li>Has Practical Understanding & Ability to Apply </li></ul></ul><ul><ul><li>Is Intelligent about a Specific Subject </li></ul></ul><ul><ul><ul><li>Him or her self or the person for whom he or she is a caregiver </li></ul></ul></ul><ul><ul><ul><li>Personal Health Literacy </li></ul></ul></ul>
    3. 3. Cutting Health Care Costs: The Missing Piece <ul><li>Studies show involved patients have better results & lower costs </li></ul><ul><li>“Savvy Patients” do even better… </li></ul><ul><li>One test, one appointment, one error at a time, patients & caregivers can make a BIG difference </li></ul><ul><li>This presentation shows How & the Benefits </li></ul>
    4. 4. Cutting Health Care Costs: The Missing Piece <ul><li>Government, Providers, Insurance Companies all working to improve the system </li></ul><ul><li>Electronic Health Records, Patient Information Websites & Disease Management Programs help </li></ul><ul><li>BUT… </li></ul><ul><li>None truly Empower Patients to Take Control of & Manage their own care </li></ul><ul><li>There are no Patient Health Management Systems coupled with education on How to Be A Patient / Caregiver </li></ul>
    5. 5. Goal <ul><li>How people can take control of their health care by becoming Savvy Patients </li></ul><ul><li>&/or Caregivers </li></ul>
    6. 6. How to Do It <ul><li>Decide to be more involved in their and / or another’s healthcare </li></ul><ul><li>Become: </li></ul><ul><ul><li>The Leader & Coordinator of their healthcare team </li></ul></ul><ul><ul><li>Partner with each member of the team </li></ul></ul>
    7. 7. How to Do It <ul><li>Improve their personal health literacy by </li></ul><ul><ul><li>Setting up & using a Health Record Management System </li></ul></ul><ul><ul><ul><li>That provides fingertip access to their information </li></ul></ul></ul><ul><ul><ul><li>Enables use of that information in the Right Way at the Right Time – tell a better story </li></ul></ul></ul><ul><ul><li>Research </li></ul></ul><ul><ul><ul><li>Becoming knowledgeable </li></ul></ul></ul><ul><ul><ul><li>Knowing what questions to ask & when to ask them </li></ul></ul></ul>
    8. 8. Outcomes <ul><li>“ Savvy Patients / Caregivers” who: </li></ul><ul><li>Are able to interact more effectively with healthcare providers to help them think & better help them </li></ul><ul><li>Make joint decisions </li></ul><ul><li>Obtain timelier & appropriate treatment plans / best for you or your loved one </li></ul><ul><li>Know how to & can prevented medical errors </li></ul><ul><li>Are better stewards of their health & healthcare $$$ - <costs </li></ul><ul><li>Less time away from work </li></ul><ul><li>Have better outcomes & more Confidence & Peace of Mind </li></ul>
    9. 9. WHY People Aren’t Savvy Patients <ul><li>Never Taught How To Be Patients / Caregivers </li></ul><ul><ul><li>Don’t know how to tell story </li></ul></ul><ul><ul><li>Lack Personal Health Management System </li></ul></ul><ul><ul><li>Lack knowledge about “Medical-related Things ” </li></ul></ul>
    10. 10. Results <ul><li>Don’t know how to be involved or tell our stories effectively </li></ul><ul><li>Tend to leave everything up to the doctor </li></ul><ul><li>Often feel intimidated by medical professionals </li></ul><ul><li>Feel powerless to do anything about quality of care or to fix the system </li></ul>
    11. 11. Impact <ul><li>Lack of follow through of medication, therapy or treatment plans? (50-65% Do Not follow plan) </li></ul><ul><li>Delayed diagnosis or misdiagnosis (15% are misdiagnosis) </li></ul><ul><li>Medical errors </li></ul><ul><li>Level of care unsatisfactory </li></ul><ul><li>Higher health care cost </li></ul>
    12. 12. Medicine was rather simple
    13. 13. Medical System is Complex A doctor for every body part Now…
    14. 14. Ideal: Patient’s Medical Team Meets Regularly
    15. 15. Reality: Each has a Piece of Patient’s Story Specialist #2 Specialist #1
    16. 16. The Missing Piece Who Has It ?
    17. 17. Job of Patients / Caregivers Help Collect & Connect The Pieces
    18. 18. Individually Patients / Caregivers CAN Make A Difference <ul><li>Receive more timely & accurate diagnoses </li></ul><ul><li>Prevent duplicate testing </li></ul><ul><li>Decrease number appointments </li></ul><ul><li>Prevent many kinds of errors </li></ul><ul><ul><li>Especially medication & use of over-the-counter drugs </li></ul></ul>
    19. 19. Making the Transition to a Savvy Patient / Caregiver
    20. 20. Key Roles & Responsibilities <ul><li>1 st Change Mind Set & Make Personal Decision </li></ul><ul><li>To be an engaged & active participant </li></ul><ul><li>To do personal preventative & health habits activities </li></ul><ul><li>To be a good Storytelling </li></ul><ul><li>To have a Personal Health Management System </li></ul><ul><li>Engage in personal health education </li></ul>
    21. 21. Details of Roles & Responsibilities <ul><li>Engaged & Active = Willing to: </li></ul><ul><ul><li>Be a Leader & Coordinator of healthcare team & Partner each member </li></ul></ul><ul><ul><li>Be open & honest </li></ul></ul><ul><ul><li>Share everything with every provider </li></ul></ul><ul><li>Storytelling: </li></ul><ul><ul><li>Be prepared </li></ul></ul><ul><ul><ul><li>With thorough, complete & accurate story </li></ul></ul></ul><ul><ul><ul><li>To remind of & connect numerous pieces </li></ul></ul></ul><ul><ul><ul><li>To fill gaps </li></ul></ul></ul>
    22. 22. Details of Roles & Responsibilities <ul><li>Management System </li></ul><ul><ul><li>Good records with fingertip access to details & test </li></ul></ul><ul><ul><li>results </li></ul></ul><ul><li>Appointment </li></ul><ul><ul><li>Questions written & prioritized </li></ul></ul><ul><ul><li>Have advocate aid during appointment </li></ul></ul><ul><ul><li>Prep while wait </li></ul></ul><ul><li>Research - Knowledgeable </li></ul><ul><ul><li>Conditions, medications, procedures, etc . </li></ul></ul>
    23. 23. Details of Roles & Responsibilities <ul><li>Ask educated questions </li></ul><ul><li>Make joint decisions </li></ul><ul><li>Good follow through </li></ul><ul><li>Good outcomes </li></ul>
    24. 24. Health Care Provider Roles & Responsibilities <ul><li>Expert - Explain What, Where, Why, When & How </li></ul><ul><li>Consultant / Coach - Discuss options & Make recommendations, not decisions </li></ul><ul><li>Listener - Reflect back concerns & goals </li></ul><ul><li>Educator - Understandable language & suggest resources </li></ul><ul><li>Partner - Mutual Respect </li></ul>
    25. 25. Communication
    26. 26. “ Doctors desperately need patients & their families & friends to help them think … … when the patient Tells His Story , the patient gives cues and clues the doctor may not be thinking about .” How Doctors Think, 2007 Jerome Groopman, MD Communication
    27. 27. Desired Effect of Your Story <ul><li>Get immediate attention of your clinician </li></ul><ul><li>Help her be a good listener & prevent interruption </li></ul><ul><li>Tell for maximum benefit </li></ul><ul><ul><li>Right sequence & right details </li></ul></ul><ul><ul><li>Allow connections with his knowledge bank </li></ul></ul><ul><ul><li>Enable her to think of alternatives & prevent premature diagnosis </li></ul></ul><ul><li>Provide him with information he may not think to ask about </li></ul>
    28. 28. Story & Discussion <ul><li>The Right Information </li></ul><ul><li>In the Right Way </li></ul><ul><li>At the Right Time </li></ul>
    29. 29. Questions <ul><ul><li>The Right Questions </li></ul></ul><ul><ul><li>In the Right Way </li></ul></ul><ul><ul><li>At the Right Time </li></ul></ul>
    30. 30. Fingertip Access to Questions <ul><li>Critical Question Series </li></ul><ul><li>Times When Patients / Caregivers Need to Know the Right Questions </li></ul><ul><li>Interviewing New Provider </li></ul><ul><li>Appointment Preparation </li></ul><ul><li>Test or Procedure / Especially Invasive </li></ul><ul><li>Test Results Outside the Normal Range </li></ul><ul><li>New Diagnosis / Chronic Condition </li></ul><ul><li>New Medication / Change in Medication </li></ul><ul><li>Research </li></ul><ul><li>Surgery </li></ul><ul><li>Hospital </li></ul>
    31. 31. Personal Health Management System
    32. 32. Needs to Be More Than Documentation <ul><li>It’s one thing to compile personal medical information… </li></ul>It’s another thing to have the Right Details & know how to Use that information How It’s Compiled makes A BIG difference , too!
    33. 33. Goals of A Personal Health Management System <ul><li>Forms constructed in a way that help connect the pieces of medical story when: </li></ul><ul><ul><li>Capturing medical history </li></ul></ul><ul><ul><li>Tracking ongoing care in a meaningful way </li></ul></ul><ul><ul><li>Preparing to tell story effectively & efficiently w/ the right details </li></ul></ul><ul><ul><li>Providing fingertip access to medical information in any circumstance </li></ul></ul><ul><ul><li>Helping patient / caregiver help their provider think & connect the pieces </li></ul></ul>
    34. 34. Health System Components <ul><li>Personal & Family Medical History </li></ul><ul><li>Appointments – Before, During & After </li></ul><ul><li>Symptom Tracking </li></ul><ul><li>Chronic Condition Tracking </li></ul><ul><li>Medication Management </li></ul><ul><li>Tracking & Using Test & Procedure Results </li></ul><ul><li>Research – Conditions. Procedures, Medications, etc. </li></ul><ul><li>Making & Tracking Lifestyle Changes </li></ul><ul><li>Using Your System in the Hospital </li></ul><ul><li>Tracking Medical Expenses </li></ul><ul><li>Advance Directives </li></ul>
    35. 35. Keys To Effective Care <ul><li>Storytelling </li></ul><ul><ul><li>Right Information, Right Way, Right Time </li></ul></ul><ul><li>Questions </li></ul><ul><ul><li>Right ???, Right Way, Right Time </li></ul></ul><ul><li>Ability to Answer Provider Questions </li></ul><ul><ul><li>Fingertip access to information </li></ul></ul><ul><li>Joint Decisions </li></ul><ul><ul><li>Plan of action </li></ul></ul>
    36. 36. Benefits <ul><li>Better Quality Care </li></ul><ul><li>Less chance of & able to Prevent medical errors </li></ul><ul><li>Save money & help Cut healthcare costs </li></ul>
    37. 37. Greater Confidence & Peace of Mind about care Biggest Benefit for Patient / Caregiver
    38. 38. Biggest Benefit for Employer Less employee absence & greater productivity
    39. 39. Offerings <ul><li>Lunch & Learn Series </li></ul><ul><li>In Person & via Teleconference </li></ul><ul><li>Self-Directed Online Course </li></ul><ul><li> </li></ul><ul><li>Signed Book w/ or w/o CD </li></ul><ul><li>w/ Free Critical Question Series </li></ul><ul><li>Free e-newsletter </li></ul><ul><li> </li></ul><ul><li>Access to Patient Advocates TeleSeries </li></ul><ul><li>Available to Speak In-Person & via Teleconference </li></ul>E-mail form on websites Phone: 336-529-0441