Personal Data for Community Health
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Personal Data for Community Health

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Individuals are tracking a variety of health-related data via a growing number of wearable devices and smartphone apps. More and more data relevant to health are also being captured passively as people communicate with one another on social networks, shop, work, or do any number of activities that leave “digital footprints.” Self-tracking data can provide better measures of everyday behavior and lifestyle and can fill in gaps in more traditional clinical or public health data collection, giving us a more complete picture of health for both individual and communities.

This presentation outlines the power of these new forms of data in the context of community health, and outlines some of the challenges that must be addressed.

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Personal Data for Community Health Personal Data for Community Health Presentation Transcript

  • Personal Data for Community Health Matthew J. Bietz Assistant Project Scientist Department of Informatics University of California, Irvine
  • http://hdexplore.calit2.net
  • “Health happens where we live, learn, work and play.” View slide
  • Sources of Personal Health Data View slide
  • Produce Knowledge Inspire Change Research Health Care Policy Individual Feedback Social Support Community Engagement Power of Personal Health Data
  • New Data, New Challenges • Individual Concerns About Data – Privacy, anonymity, and ownership – Technology moving faster than norms and laws • Access and Representation – Who is represented in the knowledge created? – Who has access to technologies and associated benefits?
  • Next Step: Building a Network • Newly funded by Robert Wood Johnson Foundation • Network of innovators in PHD to catalyze the use of personal data for the public good – Companies, researchers, and strategic partners • Learn more and express interest: http://hdexplore.calit2.net
  • Thank you! Matthew J. Bietz University of California, Irvine mbietz@uci.edu hdexplore.calit2.net Special thanks to: Kevin Patrick, Jerry Sheehan, Scout Calvert, Judith Gregory, Mike Claffey, Alexandra Hubenko, Stephen Downs, Lori Melichar, Tiffany Fox, Jemma Weymouth, members of our advisory board, and all the participants in our studies.