• Like

Loading…

Flash Player 9 (or above) is needed to view presentations.
We have detected that you do not have it on your computer. To install it, go here.

Uploaded on

 

  • Full Name Full Name Comment goes here.
    Are you sure you want to
    Your message goes here
    Be the first to comment
    Be the first to like this
No Downloads

Views

Total Views
190
On Slideshare
0
From Embeds
0
Number of Embeds
0

Actions

Shares
Downloads
0
Comments
0
Likes
0

Embeds 0

No embeds

Report content

Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
    No notes for slide

Transcript

  • 1. OP MH Dementia Dataset OP MH Dementia Data ManualNational Mental Health Dataset ProjectOP MH Dementia Data ManualBased on OP MH Dementia Dataset Draft Version 1.2Draft Version 0.2 1March 2005
  • 2. OP MH Dementia Dataset OP MH Dementia Data ManualDistribution On requestAuthor Jimmy BatesFurther copies Penny Brayfrom NHS Information Authority Kings Court The Broadway Winchester, SO23 9BE Tel: 0121 333 0333 E-mail: penny.bray@nhsia.nhs.ukDate of issue March 2005 Draft Version 0.2 2 March 2005
  • 3. OP MH Dementia Dataset OP MH Dementia Data ManualTable of ContentsA IntroductionB Guide to Data Collection 1 Person Demographics 2 Dementia Needs Assessment 3 Dementia Cognitive Assessment and Clinical Diagnosis 4 Referral to Specialist Services 5 Dementia - Specialist Treatments 6 Diagnosis Related Services 7 Dementia - Drug Treatment 8 Access to Other Services/Facilities 9 Access to Benefits 10 Care Package 11 Community Related/Epidemiological 12 OtherC Appendices a Key – List of Abbreviations b Clinical Codes c ReferencesList of Tables1 Full List of Business Requirements2 Data Items: Person Demographics3 Business Requirements Linked to Dementia Needs Assessment Data Items4 Data Items: Dementia Needs Assessment5 Business Requirements Linked to Dementia Cognitive Assessment and Clinical Diagnosis Data Items6 Data Items: Dementia Cognitive Assessment and Clinical Diagnosis7 Business Requirements Linked to Referral to Specialist Services Data Items8 Data Items: Referral to Specialist Services9 Business Requirements Linked to Dementia - Specialist Treatments Data Items10 Data Items: Dementia - Specialist Treatments11 Business Requirements Linked to Diagnosis Related Services Data Items12 Data Items: Diagnosis Related Services13 Business Requirements Linked to Dementia - Drug treatment Data Items14 Data Items: Dementia - Drug treatment15 Business Requirements Linked to Access to Other Services/Facilities Data Items16 Data Items: Access to Other Services/Facilities17 Business Requirements Linked to Access to Benefits Data Items18 Data Items: Access to Benefits19 Business Requirements Linked to Care Package Data Items20 Data Items: Care Package21 Business Requirements Linked to Community Related/Epidemiological Data Items22 Data Items: Community Related/Epidemiological23 Business Items Linked to Other Data Items24 Data Items: OtherDraft Version 0.2 3March 2005
  • 4. OP MH Dementia Dataset OP MH Dementia Data ManualA IntroductionBackgroundThe OP MH Dementia dataset is one of five datasets to support the implementation of the National ServiceFramework (NSF) for Older People and has been produced by a multi-professional working group (WG) during2004.NSF Standard seven: mental health in old people, covers both dementia and depression (the subject of a separate,but related dataset). The aim of this standard is:“To promote good mental health in older people and to treat and support those older people with dementia and depression”Standard seven itself states “Older people who have mental health problems have access to integrated mentalhealth services, provided by the NHS and councils to ensure effective diagnosis, treatment and support, for themand their carers.Mental health problems among older people exact a large social and economic toll on patients, their families andcarers, and the statutory agencies. Under-detection of mental illness in older people is widespread, due to thenature of the symptoms and the fact that many older people live alone. Older people from black and minorityethnic communities need accessible and appropriate mental health services, which may not currently be readilyaccessible or fully appropriate - leading to distrust of agencies tasked with providing this support. Older peoplewith mental health disabilities may also have difficulties obtaining appropriate mental health care.Although the focus tends to be on dementia and dementia, which are particularly common in older people,illnesses such as schizophrenia also occur. In developing these two datasets (dementia and depression), theworking group (WG) recognised that mental health problems can affect people of any age, but that mental healthproblems tend to increase by age. The WG took the view that much of the data will be collected in a primarycare and community setting, with GPs, practice and community nurses being prime examples of professionalstaff users of these datasets. That being said, it is recognised that many other professional staff will be involvedat various stages, including for example: consultants, psychiatrists, pharmacists, therapists, etc.The data items were generated from a set of related business requirements that were derived mainly from theOlder People NSF, the GMS contract and guidelines from the National Institute of Clinical Effectiveness(NICE). This was complemented with NHS performance indicators and specialist advice from members of theMental Health WG itself. The business requirements were compiled to identify a concise set of particularnational and local information imperatives to enable dementia dataset development, so that the monitoring ofbest practice in dementia care can be monitored.Purpose of this documentThe purpose of this document is to provide additional information in support of the dementia dataset. Itfunctions as a reference guide for any health and care professional who comes into contact with older people.There are 39 major business requirements that will be met with the completion of the dementia dataset – eachone linked back to expert opinion or policy (or similar) guidance. The business requirements are listed in table 1(page 8) – the origins of each one being outlined more fully in the relevant section. Developing a list of businessrequirements was a precursor to the development of the dataset: the WG defined what questions need to beanswered through the business requirements and subsequently listed data items to meet these requirements.A summary of good practice for the provision of integrated mental health services can be seen in the NationalService Framework for Older People, Chapter 2: http://www.dh.gov.uk/PolicyAndGuidance/HealthAndSocialCareTopics/OlderPeoplesServices/fs/enDraft Version 0.2 4March 2005
  • 5. OP MH Dementia Dataset OP MH Dementia Data ManualKey Issues around Using the Dementia Dataset:Use of the dataset is intended to help improve the prevention, care and treatment of mental health problems inold ages through:• promoting good mental health• early recognition and management of mental health problems• access to specialist careThe dataset is designed as a proactive approach for health and care professionals to begin entering dementia datafrom the date when a dementia assessment is carried out (as a routine for over 75 year olds), through assessment,diagnosis, referral, treatment, advice and subsequent support, building up a long-term record of individualdementia histories.The dementia dataset is intended to be used for all patients identified as having a dementia issue.The dataset covers all stages of the provision of integrated mental health services across the primary, secondaryand residential care sectors. Each care provider will be responsible for collecting the required informationrelating to their contact with the patient, although demographic information will be supplemented byadministrative data. The development and implementation of this dataset is a significant undertaking for allthose involved in the management and delivery of mental health care.Finally, it should be noted that the first section of the dataset, Person Demographics, is common to all OlderPeople (and other) Datasets. This section has been designed to be consistent in format with the NHS DataDictionary, the National Programme for Information Technology (NPfIT), NHS Information Authority standardsand the Single Assessment Process (SAP). For those items subject to NHS Data Dictionary format, this is notdefined in the dataset itself; rather, reference is made to the data dictionary as the source of information (which isonly accessible online, because it is subject to continual update). Access to the NHS Data Dictionary is via: www.nhsia.nhs.uk/datastandards/pages/ddm/index.aspDraft Version 0.2 5March 2005
  • 6. OP MH Dementia Dataset OP MH Dementia Data ManualHow to use this guideThe data items are grouped into 12 sections: 1. Person Demographics* 2. Dementia Needs Assessment 3. Dementia Cognitive Assessment and Clinical Diagnosis 4. Referral to Specialist Services 5. Dementia - Specialist Treatments 6. Dementia Related Services 7. Dementia - Drug Treatment 8. Access to Other Services/Facilities 9. Access to Benefits 10. Care Package 11. Community Related/Epidemiological 12. Other* This section has been designed to be consistent in format with the NHS Data Dictionary, the NationalProgramme for Information Technology (NPfIT), NHS Information Authority standards and the SingleAssessment Process (SAP) for older people.For each of the other main sections there is a brief text introduction, followed by a table listing the relevantbusiness requirements for that particular section, eg: No. Business Requirement Document of Origin Comment 2. Simple mental state tests should be used in Clinical guidelines Possible scores are mini- primary care to assess for dementia mental test, AMTS, 6CIT, otherThe ‘document of origin’ indicates where the main influence came from for the inclusion of the businessrequirement. The business requirement may not always be a straight quote and may differ slightly as theworking group strove to balance the requirements of a number of documents and make the statements relevant tothe dataset development. Where the business requirement was the result of expert opinion from the workinggroup (or external reference group) it is indicated in this column.The ‘Comment’ column contains additional detail about the data that must be collected for each item.Each section then follows with a second table that lists the data items (from the dataset itself) for the section, eg: No. Data Item Description Purpose 2.1 Date of last The date of the last routine Patients with dementia should be diagnosed as routine health check early as possible in the disease trajectory. health check Routine health checks for older people should screen for dementia. Simple mental health test should be used in primary careThe first column is the number of the data item, the second is the title of the data item, the third is a descriptionof the item and the fourth explains the purpose of collecting this data item (the format in which the data shouldbe collected is described in the following sections of this manual).If the data item is defined to conform to another existing dataset (eg, Single Assessment Summary dataset), thisis also indicated in this column.The fourth (‘Purpose’) column also includes a reference to the related business requirement that it is designed tomeet (in full or part).Draft Version 0.2 6March 2005
  • 7. OP MH Dementia Dataset OP MH Dementia Data ManualA final column contained in the actual dataset itself provides a description of the format the required data is to becollected in. These required formats are individually described in this manual immediately following each table.The appendices of this manual contain a list of the Read / ICD-10 codes related to relevant data items (a full listof the clinical codes for this dataset is planned to be included in the appendices of the final version of this datamanual), plus a listing of the abbreviations and references used in the dementia dataset.Draft Version 0.2 7March 2005
  • 8. OP MH Dementia Dataset OP MH Dementia Data ManualTable 1 Full List of Mental Health Business Requirements Ref Business Requirement 1. Patients with dementia should be diagnosed early in the disease trajectory as possible. For example 75+ health checks routinely offered should screen for dementia 2. Simple mental state tests should be used in primary care to assess for dementia. 3. Dementia may present with symptoms other than memory loss. 4. Evidence that a physical exam has been carried out. 5. Evidence that tests are carried out as per local protocol. 6. The clinical Diagnosis of dementia should be based on a standardised system such as ICD-10 / read codes 7. Attempts should be made to specify clinical sub-typing such as Alzheimers disease, Vascular Dementia, DLB Frontal Lobe Dementia, Normal Pressure Hydrocephalus etc. 8. Easy early and informative referral should be made to a specialist service if dementia is suspected or confirmed 9. First specialist assessment is carried out by a suitably qualified professional with access to multidisciplinary mental health service (including social services) 10. Patients referred to a specialist service should have a comprehensive assessment including medical assessment, neuropsychology and social, supported by neuro imaging 11. specialist treatments offered should be recorded 12. There is a record of who has been informed with regard to the diagnosis 13. Patients should be advised of their responsibility to inform the DVLA 14. Patients should be given information about the options of appointing a Power of Attorney 15. Patients should be given the opportunity to discuss advance directives 16. Patients should be given the opportunity to discuss appropriate services that are available to them (including 24 hour crisis support) 17. Where clinically appropriate patients should have access to anti dementia drugs Patients full range of medication reviewed at home visit and medication support needs assessed 18. Cholinesterase inhibitors should be prescribed by a specialist in elderly care / old age psychiatry / neurology for mild and moderate AD where the mini mental state examination is above 12 points, following full assessment in a specialist clinic 19. Patients prescribed cholinesterase inhibitors should be reviewed 2 to 4 months after the initiation of treatment 20. Patients who continue on cholinesterase inhibitors should be reviewed by MMSE score and global and functional and behavioural assessment every 6 months 21. Cholinesterase inhibitors should be discontinued as per national guidance 22. All patients on 4 or more antipsychotics or benzodiazepinesdrugs should be reviewed every 6 months. 23. There should be access to inpatient and day treatment facilities if required 24. There should be access both planned and emergency respite facilities if required 25. Intermediate care (emergency and planned), and 24 hour access to crisis support services should be available to patients and carers 26. There should be access to benefits advice and benefits as required 27. An individual care package is developed that reflects both health and social care needs of the patient according to the Single assessment process 28. Carers of patients with dementia should undergo individual carers assessment 29. An individual care package is developed that reflects both health and social care needs of the carers according to the Single assessment process 30. Numbers of older people with dementia in the locality living alone and with family carers 31. Numbers of older people from minority ethnic communities with dementia in the locality living alone and with family carers 32. Proportion of GPs with copies of care plans for all their patients who should have one 33. Proportion of CPA care plans for people with severe mental illness signed by user 34. Proportion of carers on enhanced CPA that have had their own written care plan 35. Proportion of carers of people on enhanced CPA having had a needs assessment 36. Best practice is followed in the last days and hours of life 37. Patients with Young Onset DementiaDraft Version 0.2 8March 2005
  • 9. OP MH Dementia Dataset OP MH Dementia Data ManualB Guide to Data Collection1 Person DemographicsThis section is common to all datasets and contains data items which provide information about the person.These data items are listed here together for reference, but it is not intended that they should necessarily all becollected at the same point in the pathway. Rather, some should be collected once, on initial contact with theperson; others should be collected at each point in the during the course of treatment.Where this information is exchanged, the appropriate data item name should be used to identify the particularinstance of the data.Some data items for a person will never change; others can and will change over time.As noted in the ‘How to Use this Guide’ section above, those data items already published in the NHSDictionary contain only an associated reference to the data dictionary in the ‘Description’ column (rather than anactual description of the item, because it is which subject to continuous update). Likewise, this same reference isall that is contained in the ‘Codes and Classifications’ column for these same data items (rather than a definitionof the format in which the data for these items is to be collected) for the same reason. Access to the NHS DataDictionary can only be made online (rather than being able to obtain a paper or electronic disk-based copy), toensure that professional users of the dataset are always provided with the latest up-to-date version.Table 2 Data Items: Person Demographics Data Item Description Purpose1.1 NHS NUMBER See NHS Data Dictionary Used to uniquely identify the patient who is the subject of the dataset.1.2 LOCAL PATIENT See NHS Data Dictionary Used to uniquely identify the patient within a IDENTIFIER health care provider1.2a ORGANISATION See NHS Data Dictionary CODE (LOCAL PATIENT IDENTIFIER)1.3 CASE NUMBER The unique number assigned to a Used to uniquely identify the patient who is the person when they are formally subject of the Dataset within a local authority care recognised as a social service user and provider have a case opened for them.1.3a LOCAL The identifier of a local authority AUTHORITY within the UK CODE1.4 PERSON FAMILY See NHS Data Dictionary Identifies that part of a NAME1.5 PERSON GIVEN See NHS Data Dictionary Identifies the forename or given name of a person. NAME1.6 PATIENT USUAL See NHS Data Dictionary Identifies the address details for the person at their ADDRESS usual address1.7 POSTCODE OF See NHS Data Dictionary. USUAL ADDRESS1.8 PRESENT This is the ADDRESS nominated by Identifies the address details for the person at their ADDRESS the PATIENT, with ADDRESS present address where this is different from their ASSOCIATION TYPE of Present usual address address’1.9 POSTCODE OF The POSTCODE of the ADDRESS PRESENT nominated by the PATIENT with ADDRESS ADDRESS ASSOCIATION TYPE Present Address’.Draft Version 0.2 9March 2005
  • 10. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose1.10 PERSON BIRTH See NHS Data Dictionary Additional identifier for the person who is the DATE subject of the dataset. Also required for the calculation of age. To enable the provision of case mix indicators.1.11 PERSON See NHS Data Dictionary Identifies the phenotypical gender classification GENDER that currently applies to the person. CURRENT1.12 ETHNIC Records the ethnicity of a person, as specified by See NHS Data Dictionary. CATEGORY the person.1.13 GP NAME Identifies the name of the person’s general medical See NHS Data Dictionary (NAME OF practitioner REGISTERED OR REFERRING GMP)1.14 GMP (CODE OF See NHS Data Dictionary. Identifies the unique code for the person’s general REGISTERED OR medical practitioner REFERRING GMP)1.14a ORGANISATION The name of the GP practice for the Identifies the name for the person’s general NAME (GP GMP who has either registered or medical practitioner PRACTICE) referred the PATIENT1.15 CODE OF GP See NHS Data Dictionary Identifies the unique practise code for the person’s PRACTICE general medical practitioner (REGISTERED GMP)1.16 ORGANISATION See NHS Data Dictionary Identifies the unique code of the Primary Care CODE (PCT OF Trust responsible for the GP practise at which the GP PRACTICE) person is registered.1.17 ORGANISATION See NHS Data Dictionary Identifies the unique code of the CODE (CODE OF ORGANISATION providing the care to the PROVIDER) patient.1.18 ORGANISATION See NHS Data Dictionary Identifies the unique code of the CODE (CODE OF ORGANISATION commissioning the care for the COMMISSIONER) patient.1.1 NHS NumberRecord the person’s unique NHS Number. It is mandatory to record the new NHS number for each person. Ifthe NHS number is not available for a person it can be accessed via the NHS Tracing Service. Access to theNSTS is via the secure website at http://nww.nhsia.nhs.uk/nstsThis can take some time but need only be done once for each person and then the information shared as this is apermanent lifetime number that will not change.• Format is as defined in the NHS Data Dictionary1.2 Local Patient IdentifierRecord the code used specifically within the organisation to uniquely identify the patient. This may be hospitalsite specific, that is, there may be different hospital numbers collected for the person at different points in thepathway – hence the data item should be a repeating item.• Format is as defined in the NHS Data DictionaryDraft Version 0.2 10March 2005
  • 11. OP MH Dementia Dataset OP MH Dementia Data Manual1.2a Organisation Code (Local Patient Identifier)Record the code used specifically to identify the organisation responsible for the care or treatment of the patient.The patient may be treated at more than one organisation hence this will need to be a repeating data item. • Format is 5 alphanumeric characters1.3 Case NumberSocial services case number to allow identification of person records held by social services. NHS numbershould be the primary identifier for all persons.• Up to 10 alphanumeric characters are allowed.1.3a Local Authority CodeThis data item is used in conjunction with the previous one (Case Number) to provide a unique reference for theperson. This pair of data items may occur any number of times.The organisation identifier of the local authority providing social care to the person.• Format is an4, comprising 2 numeric characters followed by 2 alphabetical characters1.4 Person Family NameIdentifies that part of a person’s name which is used to describe the family, clan, tribal group or maritalassociation who is the subject of the Dementia Dataset. If the person’s family name (surname) changes duringcare, it is essential that the latest name is recorded.• Format is as defined in the NHS Data Dictionary1.5 Person Given NameIdentifies the forename or given name of the person who is the subject of the Dementia Dataset. If the person’sforename(s) or personal name(s) changes during care, it is essential that the latest names are recorded• Format is as defined in the NHS Data Dictionary1.6 Patient Usual AddressIdentifies the address details for the person at their usual address.• Format is as defined in the NHS Data Dictionary1.7 Postcode Of Usual AddressIdentifies the address details for the person at their usual address.• Format is as defined in the NHS Data Dictionary1.8 Present AddressIdentifies the address details for the person at their present address where this is different from their usualaddress.• Format is the same as defined in the NHS Data Dictionary for PATIENT USUAL ADDRESS1.9 Postcode of Present AddressIdentifies the address details for the person at their present address where this is different from their usualaddress.• Format is the same as defined in the NHS Data Dictionary for PATIENT USUAL ADDRESS1.10 Person Birth DateThis is an additional identified for the person who is subject to the dataset. It is also required to calculate theperson’s age, and to enable the provision of case mix indicators.• Format is as defined in the NHS Data DictionaryDraft Version 0.2 11March 2005
  • 12. OP MH Dementia Dataset OP MH Dementia Data Manual1.11 Person Gender CurrentIdentifies the phenotypical gender classification that currently applies to the person• Format is as defined in the NHS Data Dictionary1.12 Ethnic CategoryRecords the ethnicity of a person, as specified by the person.• Format is as defined in the NHS Data Dictionary1.13 GP Name (Name of Registered or Referring GMP)Identifies the name of the person’s general medical practitioner.• Format is as defined in the NHS Data Dictionary1.14 GMP (Code Of Registered Or Referring GMP)Identifies the unique code for the person’s general medical practitioner• Format is as defined in the NHS Data Dictionary1.14a Organisation Name (GP Practice)Identifies the name for the person’s general medical practitioner.• Format is a maximum of 255 alphanumeric characters1.15 Code of GP Practice (Registered GMP)Identifies the unique practice code for the person’s general medical practitioner.• Format is as defined in the NHS Data Dictionary1.16 Organisation Code (PCT of GP Practice)Identifies the unique code of the Primary Care Trust responsible for the GP practice at which the person isregistered• Format is as defined in the NHS Data Dictionary1.17 Organisation Code (Code of Provider)Identifies the unique code of the ORGANISATION providing care to the patient.• Format is as defined in the NHS Data Dictionary1.18 Organisation Code (Code of Commissioner)Identifies the unique code of the ORGANISATION commissioning the care for the patient.• Format is as defined in the NHS Data DictionaryDraft Version 0.2 12March 2005
  • 13. OP MH Dementia Dataset OP MH Dementia Data Manual2 Dementia Needs AssessmentData items 2.1 to 2.4 relate to information about the initial assessment of dementia, the role of the healthcareindividual who collected the information, and related dates. They originate from a number of businessrequirements (see below) and can be referenced back primarily to the NICE clinical guidelines and expertopinion from the mental health dataset WG.Table 3 Business Requirements Linked to Dementia Needs Assessment Data ItemsRef Business Requirement Document of Comment Origin1. Patients with dementia should be NICE guidelines diagnosed early in the disease trajectory as possible. For example 75+ health checks routinely offered should screen for dementiaTable 4 Data Items: Dementia Needs Assessment Data Item Description Purpose2.1 DATE OF LAST The date of the last routine health Patients with dementia should be ROUTINE HEALTH check diagnosed as early as possible in the CHECK disease trajectory. Routine health checks for older people should screen for dementia. Simple mental health test should be used in primary care. Business Requirements Draft 0.8a Requirement 12.2 DATE OF NEEDS The date the memory assessment was ASSESSMENT conducted (MEMORY LOSS)2.3 ASSESSMENT A summary of the person’s memory (MEMORY LOSS) needs and circumstances captured within a Single Assessment Process2.4 NEEDS ASSESSOR The person responsible for the (MEMORY LOSS) memory loss needs and circumstances assessment2.1 Date of Last Routine Health CheckThe date of the last routine health check.• Format is 8 numeric characters (with 2 spaces) indicating the year-month-day (4-2-2)2.2 Date of Needs Assessment (Memory Loss)The date the memory assessment was conducted• Format is 8 numeric characters (with 2 spaces) indicating the year-month-day (4-2-2)2.3 Assessment (Memory Loss)A summary of the person’s memory loss needs and circumstances captured within a Single Assessment Process.• Format is 2 numeric characters (to indicate Need being addressed, Not being addressed, No current need orDraft Version 0.2 13March 2005
  • 14. OP MH Dementia Dataset OP MH Dementia Data Manual Unknown)2.4 Needs Assessor (Memory Loss)The person responsible for the memory loss needs and circumstances assessment.• Format is text3 Dementia Cognitive Assessment and Clinical DiagnosisData items 3.1 to 3.10 relate to detailed assessment of cognitive functions and memory loss, diagnosis andrelated dates. They originate from a number of business requirements (see below) and can be referenced back tothe National Service Framework for Older People, ERG, NICE clinical guidelines, RCP consensus documentand expert opinion from the dementia dataset WG.Table 5 Business Requirements Linked To Dementia & Morale Assessment and Clinical DiagnosisRef Business Requirement Document of Comment Origin2 Simple mental state tests should be NICE guidelines Possible scores are mini-mental test, AMTS, used in primary care to assess for 6CIT, other dementia3 Dementia may present with ERG symptoms other than memory loss4 Evidence that a physical examination Links to primary care - tests are commenced has been carried out here NICE guidelines / RCP consensus document5 Evidence that tests are carried out as per local protocol6 The clinical diagnosis of dementia should be based on standardised system such as ICD-10 / Read codes7 Attempts should be made to specify clinical sub-typing such as Alzheimer’s disease, vascular dementia, DLB frontal lobe dementia, normal pressure, hydrocephalus, etc.Table 6 Data Items: Dementia Cognitive Assessment and Clinical Diagnosis Data Item Description Purpose3.1 ASSESSMENT The date on which the cognitive DATE functions and memory of the person (COGNITIVE were assessed using the identified FUNCTIONS AND assessment scale MEMORY)3.2 ASSESSMENT The assessment scale used to determine SCALE USED the person’s cognitive functions and (COGNITIVE memory FUNCTIONS AND MEMORY) link to primary care – tests are commenced hereDraft Version 0.2 14March 2005
  • 15. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose3.3 ASSESSMENT The assessment score achieved by the SCORE person in relation to their cognitive (COGNITIVE functions and memory FUNCTIONS AND MEMORY)3.4 DATE (PHYSICAL Date of examination, to provide EXAMINATION) evidence that a physical examination of the person was carried out3.5 PRESENTING Symptoms recorded at diagnosis of To capture other symptoms that may SYMPTOM (S) dementia present in addition to memory lossDraft Version 0.2 15March 2005
  • 16. OP MH Dementia Dataset OP MH Dementia Data Manual3.6 DATE (Symptom First date that each symptom was first recorded) recorded The clinical diagnosis of dementia and types of dementia should be based upon a standardised system such as ICD-10, Read codes or Snomed Attempts should be made to specify clinical sub-typing such as; Alzheimer’s disease, Vascular Dementia, DLB Frontal lobe Dementia, Normal Pressure Hydrocephalus etc.3.7 DIAGNOSIS A medical diagnosis that potentially (ENDURING has an enduring impact on the health IMPACT ON and social care needs of the person NEEDS ICD)3.8 DIAGNOSIS A medical diagnosis that potentially (ENDURING has an enduring impact on the health IMPACT ON and social care needs of the person NEEDS Read)3.9 DIAGNOSIS A medical diagnosis that potentially (ENDURING has an enduring impact on the health IMPACT ON and social care needs of the person NEEDS Snomed)3.10 DIAGNOSIS DATE The date on which the diagnosis was (DIAGNOSIS) made3.1 Assessment Date (Cognitive Functions and Memory)The date on which the cognitive function and memory of the person were assessed using the identifiedassessment scale• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-2)3.2 Assessment Scale Used (Cognitive Functions and Memory)The assessment scale used to determine the person’s cognitive function and memory.• Format is 2 alphanumeric characters to indicate assessment scale used3.3 Assessment Score (Cognitive Functions and Memory)The assessment score achieved by the person in relation to their cognitive functions and memory.• Format is alphanumeric3.4 Date (Physical Examination)Date of examination, to provide evidence that a physical examination of the person was carried out.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)3.5 Presenting Symptom(s)Symptoms recorded at diagnosis of dementia.• Format to be defined3.6 Date (Symptom First Recorded)First date on that each symptom was recorded.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 16March 2005
  • 17. OP MH Dementia Dataset OP MH Dementia Data Manual3.7-9 Diagnosis (Enduring Impact on Needs)A medical diagnosis that potentially has an enduring impact on the health and social care needs of the person• Format is relevant ICD, Read, Snomed code3.10 Diagnosis Date (Diagnosis)The date on which the diagnosis was made.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 17March 2005
  • 18. OP MH Dementia Dataset OP MH Dementia Data Manual4 Referral to Specialist ServicesData items 4.1 to 4.19 relate to referral to specialist services, assessment, services and related dates. Theyoriginate from a number of business requirements (see below) and can be referenced back to the NationalService Framework for Older People, RCP consensus document and expert opinion from the mental health WG.Table 7 Business Requirements Linked To Referral to Specialist ServicesRef Business Requirement Document of Comment Origin8 Easy, early and informative referral RCP consensus should be made to a specialist service document if dementia is suspected or confirmed9 First specialist assessment is carried out by a suitably qualified professional with access to multi- disciplinary mental health service (including social services)10 Patients referred to a specialist service Organisation rather than patient-related data should have a comprehensive assessment including medical assessment, neuropsychology and social, supported by neuro-imagingTable 8 Data Items: Referral to Specialist Services Data Item Description Purpose4.1 DATE The date the presenting symptoms same as field recorded under diagnosis (PRESENTING were first recorded see 2.5 SYMPTOMS)4.2 REFERRED ON? To capture whether the person was To capture those cases who are or who (TO SPECIALIST referred onto a specialist are not referred on for specialist SERVICE) services4.3 DATE (REFERRAL The data a referral was made to a Easy, early and informative referral TO SPECIALIST specialist service should be made to a specialist service if SERVICE) dementia suspected or confirmed. Also provides data on the time between referral and first appointment4.4 DATE (SEEN BY The date the person was seen be a SPECIALIST specialist service SERVICE)4.5 REFERRAL Source of referral to specialist To provide information on sources of SOURCE service referral to specialist services4.6 REASON (FOR The reason the person was referred REFERRAL) to the specialist service4.7 SERVICE TYPE The type of service the person was referred to the specialist service for4.8 PERSON ROLE IN The professional role of the person ORGANISATION making the first specialist (FIRST assessment SPECIALIST)Draft Version 0.2 18March 2005
  • 19. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose4.9 REFERRAL TYPE Referral type required (other n2 (suggested professional roles): relevant professional) 01= Psychiatrist 02= Mental health nurse 03= Social worker 04= Psychologist 05= Occupational therapist 06= Other allied health professional 07= Other4.10 REFERRAL DATE Date referred to other health care professional4.11 ASSESSMENT Date assessed by other relevant DATE professional4.12 ASSESSMENT Location where the other health To monitor where assessments are LOCATION professional conducted assessment undertaken4.13 DATE DISCUSSED Date on which the case is discussed at the MDT (Multi Disciplinary Team)4.14 DATE SEEN The date the person is seen by the Patients referred to a specialist service (SPECIALIST specialist service should have a comprehensive SERVICE) assessment including medical assessment, neuro psychology and social, supported by neuro imaging4.15 DATE (OF The date the specialist examination SPECIALIST is conducted EXAMINATION)4.16 DATE (NEURO The date a Neuro Psychological PSYCHOLOGICAL assessment is conducted ASSESSMENT)4.17 DATE (SOCIAL The date a social assessment is ASSESSMENT) conducted4.18 DATE (BRAIN The date a brain scan is conducted SCAN)4.19 SERVICE TYPE Specialist service the person is (REFERRED TO) referred to4.1 Date (Presenting Symptoms)The date the presenting symptoms were first recorded.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.2 Referred On? (to a Specialist Service)To capture whether the person was referred onto a specialist.• Format is 2 numeric characters (to indicate Yes, No, Unknown)4.3 Date (Referral to Specialist Service)The date a referral was made to a specialist service.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.4 Date (Seen by to Specialist Service)The date the person was seen by a specialist service.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 19March 2005
  • 20. OP MH Dementia Dataset OP MH Dementia Data Manual4.5 Referral SourceSource of referral to specialist service.• Format to be confirmed (suggested 2 numeric characters to indicate source type)4.6 Reason (For Referral)The reason the person was referred to the specialist service.• Format is 2 numeric characters (to indicate reason for referral)4.7 Service TypeThe type of service the person was referred to the specialist service for.• Format is 2 numeric characters (to indicate professional role of service provider)4.8 Person Role in Organisation (First Specialist)The professional role of the person making the first specialist assessment.• Format is 2 numeric characters (to indicate professional role of assessor)4.9 Referral TypeReferral type of required (other relevant professional).• Format is 2 numeric characters (to indicate professional role)4.10 Referral DateDate referred to other health care professional.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.11 Assessment DateDate assessed by other relevant professional.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.12 Assessment LocationLocation where the other health professional conducted the assessment.• Format is free text or 2 numeric characters (to indicate location type)4.13 Date DiscussedDate on which the case was discussed at the multi-disciplinary teams.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.14 Date Seen (Specialist Service)The date the person was seen by the specialist service.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.15 Date (of Specialist Examination)The date the specialist examination was conducted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.16 Date (Neuro Psychological Assessment)The date a neuro psychological assessment was conducted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 20March 2005
  • 21. OP MH Dementia Dataset OP MH Dementia Data Manual4.17 Date (Social Assessment)The date a social assessment was conducted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.18 Date (Brain Scan)The date a brain scan was conducted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)4.19 Service Type (Referred to))Specialist service the person was referred to.• Format to be confirmedDraft Version 0.2 21March 2005
  • 22. OP MH Dementia Dataset OP MH Dementia Data Manual5 Dementia - Specialist TreatmentsData items 5.1 to 5.4 relate to drugs, behaviour management and counselling dates. They originate from anumber of business requirements (see below) and can be referenced back to the National Service Framework forOlder People and expert opinion from the mental health WG.Table 9 Business Requirements Linked To Dementia - Specialist TreatmentsRef Business Requirement Document of Comment Origin11 Specialist treatments offered should WG be recordedTable 12 Data Items: Referral to Specialist & Referral to Specialist Treatment and Therapies Data Item Description Purpose5.1 START DATE The date that antidementia Specialist treatments that are offered (ANTIDEMENTIA drug(s) were prescribed should be recorded DRUGS)5.2 START DATE (OTHER This needs further discussion - DRUGS) which other drugs are to be recorded and if so are they to be coded by type (eg, antipsychotic or actual name?)5.3 START DATE The start date that the non- (BEHAVIOUR professional carers received MANAGEMENT) behaviour management support and advice5.4 START DATE The start date that the patient (INDIVIDUAL received individual counselling COUNSELLING)5.1 Start Date (Antidementia Drugs)The date that antidementia drugs were prescribed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)5.2 Start Date (Other Drugs)The date that other drugs were prescribed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)5.3 Start Date (Behaviour Management)The start date that the non-professional carers received behaviour management support and advice.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)5.4 Start Date (Individual Counselling)The start date that the patient received individual counselling.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 22March 2005
  • 23. OP MH Dementia Dataset OP MH Dementia Data Manual6 Diagnosis Related ServicesData items 6.1 to 6.6 relate to related diagnosis and advice services and related dates. They originate from anumber of business requirements (see below) and can be referenced back to the National Service Framework forOlder People, NICE clinical guidelines, ERG and expert opinion from the mental health WG.Table 11 Business Requirements Linked To Diagnosis Related ServicesRef Business Requirement Document of Comment Origin12 There is a record of who has been Look at cancer items informed with regard to the diagnosis13 Patients should be advised of their NICE clinical responsibility to inform the DVLA guidelines DVLA14 Patients should be given information ERG about the options of appointing a Power of Attorney15 Patients should be given the ERG Generic issue for OP datasets opportunity to discuss advance directives16 Patients should be given the opportunity to discuss appropriate services that are available to them (including 24 hour crisis support)Table 12 Data Items: Diagnosis Related Services Data Item Description Purpose6.1 DATE (DEMENTIA The date the person was DIAGNOSIS informed of the diagnosis To monitor there is a record of who has DISCUSSED WITH been informed of the diagnosis. PATIENT)6.2 DATE (DEMENTIA The date that the dementia was DIAGNOSIS discussed with another person DISCUSSED WITH who has a significant relationship SIGNIFICANT OTHER) with the patient6.3 DATE (re: DVLA To monitor that patients are advised re: The date the person was advised ADVICE) the impact of their condition with of their responsibility to the regard to driving DVLA6.4 DATE (re: POWER OF The date the person was given To monitor that patients are informed ATTORNEY) information about the options of re: the options regarding the appointing a Power of Attorney appointment of powers of attorney6.5 DATE (re: ADVANCED The date the person receives a General issue re; older people dataset DIRECTIVES) consultation including advice regarding the appropriate services that are available to them including 24hr crisis supportDraft Version 0.2 23March 2005
  • 24. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose6.6 DATE (re: SERVICES) General issue re; older people dataset This is role in the organisation performed by the care professional who undertook the home visit6.1 Date (Dementia Diagnosis Discussed with Patient)The date that the person was informed of the diagnosis.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)6.2 Date (Dementia Diagnosis Discussed with Significant Other)The date that the dementia diagnosis was discussed with another person who has a significant relationship withthe patient.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)6.3 Date (DVLA Advice)The date the person was advised about their responsibility to the DVLA.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)6.4 Date (Power of Attorney Advice)The date that the person was given information about the options of appointing a power of attorney.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)6.5 Date (Advanced Directives)The date the person received a consultation wherein they are given the opportunity to discuss advanceddirectives.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)6.6 Date (Services)The date the person received a consultation including advice regarding the appropriate services that are availableto them including 24hr crisis support.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 24March 2005
  • 25. OP MH Dementia Dataset OP MH Dementia Data Manual7 Dementia - Drug TreatmentData items 7.1 to 7.26 relate to prescribing drugs, assessment, review and related dates. They originate from anumber of business requirements (see below) and can be referenced back to the National Service Framework forOlder People, NSF/Medicines, NICE clinical guidelines and expert opinion from the mental health WG.Table 13 Business Requirements Linked To Dementia - Drug TreatmentRef Business Requirement Document of Comment Origin17 Where clinically appropriate patients NICE clinical should have access to antidepressant guidelines drugs18 Cholinesterase inhibitors should be NICE clinical prescribed by a specialist in elderly guidelines care/old age psychiatry/neurology for mild and moderate AD where the mini-mental state examination is above 12 points, following full assessment in a specialist clinic.19 Patients prescribed cholinesterase NICE clinical inhibitors should be reviewed 2 to 4 guidelines months after the initiation of treatment20 Patients who continue on NICE clinical cholinesterase inhibitors should be guidelines reviewed by MMSE score and global and function and behavioural assessment every 6 months21 Cholinesterase inhibitors should be NICE clinical The threshold for discontinuing is currently discontinued as per national guidance guidelines a mini-mental score of 12 but may change22 All patients on 4 or more NSF antipsychotics or benzodiazepines drugs should be reviewed every 6 monthsTable 12 Data Items: Referral to Specialist & Referral to Specialist Treatment and Therapies Data Item Description Purpose7.1 ANTI DEMENTIA Has the person been prescribed To monitor use of anti dementia drugs DRUG PRESCRIBED? an anti dementia drug?7.2 PRESCRIBING The originating source of the To monitor the prescribing source SOURCE prescriber of the anti dementia patterns for anti dementia drugs (ANTIDEMENTIA drug DRUG) Cholinesterase inhibitors should be prescribed by a specialist in elderly care/old age psychiatry/neurology for mild and moderate AD where the mini mental state examination is above 12 points, following full assessment in a specialist clinicDraft Version 0.2 25March 2005
  • 26. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose7.3 PROFESSIONAL ROLE This is the role in the Identifies contact details for the IN ORGANISATION organisation of the prescribing prescribing source (PRESCRIBING source. SOURCE)7.4 START DATE (ANTI The date the person was To monitor prescribing of anti dementia DEMENTIA DRUGS) prescribed anti dementia drugs drug therapies note Are these to be tracked separately from cholinesterase inhibitors?7.5 DEMENTIA DRUG The actual anti dementia drug To monitor the prescribing patterns of PRECRIBED prescribed for the person anti dementia drug therapies7.6 ASSESSMENT DATE The date on which the cognitive To monitor time period between (COGNITIVE functions and memory of the cognitive function and prescription of FUNCTION AND person were assessed using the anti dementia drug therapy MEMORY) identified assessment scale.7.7 ASSESSMENT SCALE The assessment scale used to To monitor use of specific assessment USED (COGNITIVE determine the person’s cognitive scales in respect of memory and FUNCTIONS AND functions and memory cognitive function MEMORY)7.8 ASSESSMENT SCORE The assessment score achieved To monitor the person’s cognitive (COGNITIVE by the person in relation to their impairment relative to therapies used FUNCTIONS AND cognitive functions and memory MEMORY)7.9 DATE (ASSESSED IN Cholinesterase inhibitors should be A SPECIALIST prescribed by a specialist in elderly CLINIC) care/old age psychiatry/neurology for mild and moderate AD where the mini mental state examination is above 12 points, following full assessment in a specialist clinic7.10 DATE (START DATE The start date that the Patients prescribed cholinesterase CHOLINESTERASE cholinesterase inhibitors inhibitors should be reviewed 2 to 4 INHIBITORS) treatment began months after the initiation of treatment7.11 REVIEW DATE The date the patient prescribed (CHOLINESTERASE cholinesterase inhibitors was INHIBITORS) reviewed7.12 REVIEW The assessment scale used to To monitor use of specific assessment ASSESSMENT SCALE determine the person’s cognitive scales in respect of memory and USED (COGNITIVE functions and memory cognitive function FUNCTIONS AND MEMORY)7.13 REVIEW The assessment score achieved To monitor the person’s cognitive ASSESSMENT SCORE by the person in relation to their impairment relative to therapies used (COGNITIVE cognitive functions and memory FUNCTIONS AND MEMORY)7.14 SIX MONTH REVIEW The date the patient prescribed Patients who continue on cholinesterase DATE cholinesterase inhibitors was inhibitors should be reviewed by (CHOLINESTERASE reviewed MMSE score, global, functional and INHIBITORS) behavioural assessments every six months.7.15 DATE (START DATE The start date that the CHOLINESTERASE cholinesterase inhibitors INHIBITORS) treatment began7.16 ASSESSMENT SCALE The assessment scale used to To monitor use of specific assessment USED (COGNITIVE determine the person’s cognitive scales in respect of memory and FUNCTIONS AND functions and memory cognitive function MEMORY)Draft Version 0.2 26March 2005
  • 27. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose7.17 ASSESSMENT SCORE The assessment score achieved To monitor the person’s cognitive (COGNITIVE by the person in relation to their impairment relative to therapies used FUNCTIONS AND cognitive functions and memory MEMORY)7.18 DATE (END DATE The date that the cholinesterase Cholinesterase inhibitors should be CHOLINESTERASE inhibitors treatment ended. discontinued as per national guidance. INHIBITORS) The threshold for discontinuing is currently a mini mental score of 12, but this may change.7.19 REASON The reason why the To monitor prescribing patterns for (CHOLINESTERASE cholinesterase inhibitors cholinesterase inhibitors relevant to INHIBITORS treatment was ended. cognitive function assessments STOPPED)7.20 ASSESSMENT SCORE The assessment score achieved To monitor the person’s cognitive (COGNITIVE by the person in relation to their impairment relative to therapies used FUNCTIONS AND cognitive functions and memory MEMORY) at the end of the cholinesterase Inhibitors treatment7.21 ASSESSMENT DATE The date on which the cognitive To monitor time period between (COGNITIVE functions and memory of the cognitive function and prescription of FUNCTION AND person were assessed using the anti dementia drug therapy and the MEMORY) identified assessment scale. cessation of the drug treatment7.22 NEEDS ASSESOR This is person undertaking the Identifies contact details for the (MEMORY LOSS) memory/cognitive function test. memory/cognitive function assessment7.23 DATE (RE START The date that the cholinesterase To monitor instances of CI treatment DATE Inhibitors treatment was re being restarted CHOLINESTERASE started. INHIBITORS)7.24 REVIEW DATE The date the person’s general All patients on antipsychotics or (GENERAL DRUG drugs were reviewed benzodiazepines +/- 4 or more drugs REVIEW) should be reviewed every 6 months7.25 DATE OF RE- The date the needs of the person ASSESSMENT OF was assessed once the drugs were NEEDS stopped7.26 PROFESSIONAL ROLE This is the role of the person Identifies the role & contact details for (PERSON REVIEWING conducting the review of the the reviewing person GENERAL DRUGS) patient’s general drugs.7.27 DATE IF 75+ ANNUAL The date that an annual review ASSESSMENT was made of a person who is 75+ years old7.28 NUEROLEPTIC USE Type of neuroleptic medicine prescribed7.1 Antidementia Drug Prescribed?Has the person been prescribed an antidementia drug?• Format is 2 numeric characters (to indicate Yes, No, Not known)7.2 Prescribing Source (Antidementia Drug)The originating source of the prescriber of the antidementia drug.• Suggested format is 1 alphabetic character to indicate type of organisation7.3 Professional Role in Organisation (Prescribing Source)This is the role in the organisation of the prescribing source.• Format is a maximum of 255 alphanumeric charactersDraft Version 0.2 27March 2005
  • 28. OP MH Dementia Dataset OP MH Dementia Data Manual7.4 Start Date (Antidementia Drug)The date the person was prescribed antidementia drugs.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.5 Dementia Drug PrescribedThe actual antidementia drug prescribed for the person.• Format is free text with a maximum of 255 alphanumeric characters7.6 Assessment Date (Cognitive Function and Memory)The date on which the cognitive functions and memory of the person were assessed using the identifiedassessment scale.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.7 Assessment Scale (Cognitive Function and Memory)The assessment scale used to determine the person’s cognitive functions and memory.• Format is 2 alphanumeric characters to indicate scale used7.8 Assessment Score (Cognitive Function and Memory)The assessment score achieved by the person’s in relation to their cognitive functions and memory.• Format is alphanumeric7.9 Date (Assessed in a Specialist Clinic)The date the person was assessed in a specialist clinic.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.10 Date (Start Date Cholinesterase Inhibitors)The start date that the cholinesterase inhibitors treatment began.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.11 Review Date (Cholinesterase Inhibitors)The date the patient prescribed cholinesterase inhibitors was reviewed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.12 Review Assessment Scale Used (Cognitive Functions and Memory)The assessment scale used to determine the person’s cognitive functions and memory.• Format is 2 alphanumeric characters (to indicate scale used)7.13 Review Assessment Score (Cognitive Functions and Memory)The assessment score achieved by the person in relation to their cognitive functions and memory.• Format is alphanumeric?7.14 Six Month Review Date (Cholinesterase Inhibitors)The date the patient prescribed cholinesterase inhibitors was reviewed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 28March 2005
  • 29. OP MH Dementia Dataset OP MH Dementia Data Manual7.15 Date (Re-Start Date Cholinesterase Inhibitors)The date that cholinesterase inhibitors treatment was restarted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.16 Assessment Scale Used (Cognitive Functions and Memory)The assessment scale used to determine the person’s cognitive functions and memory.• Format is 2 alphanumeric characters (to indicate scale sued)7.17 Assessment Score (Cognitive Functions and Memory)The assessment score achieved by the person in relation to their cognitive functions and memory.• Format is alphanumeric?7.18 Date (End Date Cholinesterase Inhibitors)The date the cholinesterase inhibitors treatment ended.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.19 Reason (Cholinesterase Inhibitors Stopped)The reason why the cholinesterase inhibitors treatment was ended.• Format is 2 numeric characters (to indicate reason7.20 Assessment Score (Cognitive Functions and Memory)The assessment score achieved by the person in relation to their cognitive functions and memory at the end ofthe cholinesterase inhibitors treatment.• Format is alphanumeric?7.21 Assessment Date (Cognitive Function and Memory)The date on which the cognitive functions and memory of the person were assessed using the identifiedassessment scale.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.22 Needs Assessor (Memory Loss)The person undertaking the memory/cognitive test.• Format is a maximum of 255 alphanumeric characters7.23 Date (Re-Start Date Cholinesterase Inhibitors)The date that the cholinesterase inhibitors treatment was restarted.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.24 Review Date (General Drug Review)The date the person’s general drugs were reviewed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.25 Date of Re-assessment of NeedsThe date the needs of the person was assessed once the drugs were stopped.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 29March 2005
  • 30. OP MH Dementia Dataset OP MH Dementia Data Manual7.26 Professional Role (Person Reviewing General Drugs)This is the role of the person conducting the review of patient’s general drugs.• Format is a maximum of 255 alphanumeric characters7.27 Date of 75+ Annual AssessmentThe date that an annual review was made of a person who is 75+ years old.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)7.28 Neuroleptic UseType of neuroleptic medicine prescribed.• Format is a text (or 2 numeric characters) to indicate type.Draft Version 0.2 30March 2005
  • 31. OP MH Dementia Dataset OP MH Dementia Data Manual8 Access to Other Services/FacilitiesData items 8.1 to 8.31 relate to other referrals and treatments, including hospital-based, emergency, 24 hourcrisis support, and related dates. They originate from a number of business requirements (see below) and can bereferenced back to the National Service Framework for Older People, NICE clinical guidelines and expertopinion from the mental health WG.Table 15 Business Requirements Linked To Other Service/FacilitiesRef Business Requirement Document of Comment Origin23 There should be access to inpatient WG and day treatment facilities if required24 There should be access both planned and emergency respite facilities if required25 Intermediate care (emergency and This business requirement also needs to be planned) and 24 hour access to crisis monitored via organisational audit support services should be available to patients and carersTable 16 Data Items: Access to Other Services/Facilities Data Item Description Purpose8.1 DATE The date the person received a To monitor good practice in advising (CONSULTATION RE consultation explaining the patients and carers of available services. AVAILABLE various services available to This requirement should also be SERVICES) patients and carers including 24 monitored via the organisational audits hour support8.2 REFERRAL DATE The date the person was referred There should be access to Inpatient (HOSPITAL for a Hospital based provider facilities if required PROVIDER SPELL) spell8.3 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the hospital facilities. SOURCE)8.4 START DATE The start date that the person Monitor time between referral and attended a hospital based spell admission for hospital based facilities/treatment8.5 END DATE The end date that the person Monitor the period of time that the completed a hospital based spell patient utilised hospital based facilities/treatment8.6 REFERRAL DATE The date the person was referred There should be access to day treatment (DAY TREATMENT) for a day treatment provider spell facilities if required8.7 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the day treatment. SOURCE)8.8 START DATE The start date that the person Monitor time between referral and (DAY TREATMENT) attended a day treatment based admission for Day Treatment based spell facilities/treatment8.9 END DATE (DAY The end date that the person Monitor the period of time that the TREATMENT) completed a day treatment based patient utilised day treatment based spell facilitiesDraft Version 0.2 31March 2005
  • 32. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose8.10 REFERRAL DATE The date the person was referred Monitor the uptake of respite facilities (PLANNED RESPITE for planned respite facilities which should be available if required FACILITIES) for persons with dementia8.11 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the planned respite SOURCE) facilities.8.12 START DATE The start date that the person was Monitor time between referral and (PLANNED RESPITE) admitted for respite care admission for planned respite care8.13 END DATE (PLANNED The end date that the person Monitor the period of time that the RESPITE) completed a planned respite care patient utilised planned respite care stay facilities8.14 REFERRAL DATE The date the person was referred Monitor the uptake of emergency (EMERGENCY for emergency respite facilities respite facilities which should be RESPITE FACILITIES) available if required for persons with dementia8.15 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the emergency respite SOURCE) facilities.8.16 START DATE The start date that the person was Monitor time between referral and (EMERGENCY admitted for emergency respite admission for planned respite care RESPITE STAY) care8.17 END DATE The end date that the person Monitor the period of time that the (EMERGENCY completed a planned respite care patient utilised planned respite care RESPITE) stay facilities8.18 REFERRAL DATE The date the person was referred Monitor the uptake of planned (PLANNED for planned intermediate care intermediate care facilities which INTERMEDIATE facilities should be available if required for CARE FACILITIES) persons with dementia8.19 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the planned SOURCE) intermediate care facilities.8.20 START DATE The start date that the person was Monitor time between referral and (PLANNED admitted for planned admission for planned intermediate care INTERMEDIATE intermediate care spells CARE STAY)8.21 END DATE (PLANNED The end date that the person Monitor the period of time that the INTERMEDIATE completed a planned patient utilised planned intermediate CARE STAY) intermediate care stay care facilities8.22 REFERRAL DATE The date the person was referred Monitor the uptake of emergency (EMERGENCY for emergency intermediate care intermediate facilities which should be INTERMEDIATE facilities available if required for persons with FACILITIES) dementia8.23 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the emergency SOURCE) intermediate care facilities.8.24 START DATE The start date that the person was Monitor time between referral and (EMERGENCY admitted for emergency admission for planned Intermediate care INTERMEDIATE Intermediate care CARE STAY)8.25 END DATE The end date that the person Monitor the period of time that the (EMERGENCY completed a emergency patient utilised emergency Intermediate INTERMEDIATE intermediate care stay care facilities which should be available CARE STAY) for persons with dementiaDraft Version 0.2 32March 2005
  • 33. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose8.26 REFERRAL DATE (24 The date the person was referred Monitor the uptake of 24 hour crisis HOUR CRISIS for 24 Hour Crisis Support support services which should be SUPPORT) services available if required for persons with dementia8.27 PROFESSIONAL ROLE This is the role in the Identifies role and contact details for IN ORGANISATION organisation of the referring the referring source (REFERRING source for the 24 hour crisis SOURCE) support services8.28 START DATE (24 The start date that the person Monitor time between referral and HOUR CRISIS used 24 hour crisis support admission for planned respite care SUPPORT SERVICES) services8.29 END DATE (24 HOUR The end date that the person Monitor the period of time that the CRISIS SUPPORT stopped using 24 hour crisis patient utilised 24 hour crisis support SERVICES support services services8.30 24 HOUR SUPPORT The actual service(s) that the Monitor uptake of specific 24 Hour CRISIS SUPPORT person or their carers used support services SERVICE USED8.31 KEY WORKER / CARE Professional role of key worker CO-ORDINATOR or care coordinator8.1 Date (Consultation re: Available Services)The date the person received a consultation explaining the various services available to patients and carersincluding 24-hour support• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.2 Referral Date (Hospital Provider Spell)The date the person was referred for a hospital based provider spell.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.3 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for hospital facilities• Format is a maximum of 255 alphanumeric characters8.4 Start DateThe start date that the person attended a hospital-based spell.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.5 End DateThe end date that the person completed a hospital-based spell.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.6 Referral Date (Day Treatment|)The date the person was referred for a day treatment provider spell.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.7 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for day treatment.• Format is a maximum of 255 alphanumeric charactersDraft Version 0.2 33March 2005
  • 34. OP MH Dementia Dataset OP MH Dementia Data Manual8.8 Start Date (Day Treatment)The start date that the person attended a day treatment based spell• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.9 End Date (Day Treatment)The end date that the person completed a day treatment based spell.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.10 Referral Date (Planned Respite Facilities)The date the person was referred for planned respite facilities.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.11 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for planned respite facilities• Format is a maximum of 255 alphanumeric characters8.12 Start Date (Planned Respite)The start date that the person was admitted for planned respite care.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.13 End Date (Planned Respite)The end date that the person completed a planned respite care stay.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.14 Referral Date (Emergency Respite Facilities)The date the person was referred for emergency respite facilities.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.15 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for emergency respite facilities• Format is a maximum of 255 alphanumeric characters8.16 Start Date (Emergency Respite Stay)The start date that the person was admitted for emergency respite care.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.17 End Date (Emergency Respite)The end date that the person completed an emergency respite care stay.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.18 Referral (Planned Intermediate Care Facilities)The date the person was referred for planned intermediate care facilities.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.19 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for emergency intermediate care facilities• Format is a maximum of 255 alphanumeric charactersDraft Version 0.2 34March 2005
  • 35. OP MH Dementia Dataset OP MH Dementia Data Manual8.20 Start Date (Planned Intermediate Care Stay)The start date that the person was admitted for planned intermediate care.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.21 End Date (Planned Intermediate Care Stay)The end date that the person completed a planned intermediate care stay.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.22 Referral Date (Emergency Intermediate Facilities)The date the person was referred for emergency intermediate facilities.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.23 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source emergency intermediate care facilities.• Format is a maximum of 255 alphanumeric characters8.24 Start Date (Emergency Intermediate Care Stay)The start date that the person was admitted for emergency intermediate care.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.25 End Date (Emergency Intermediate Care Stay)The start date that the person was admitted for emergency intermediate care.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.26 Referral Date (24 Hour Crisis Support)The date the person was referred for 24-hour crisis support services.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.27 Professional Role in Organisation (Referring Source)The role in the organisation of the referring source for the 24-hour crisis support services.• Format is a maximum of 255 alphanumeric characters8.28 Start Date (24 hour Crisis Support Services)The start date that the person used 24 hour crisis support services.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.29 End Date (24 Hour Crisis Support ServicesThe end date that the person stopped using 24 hour crisis support services.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)8.30 24 Hour Crisis Support Service UsedThe actual service(s) that the person or their carers used.• Format to be determined8.31 Key Worker / Care Co-ordinatorThe professional role of the key worker / care coordinator.Draft Version 0.2 35March 2005
  • 36. OP MH Dementia Dataset OP MH Dementia Data Manual• Format is a maximum of 255 alphanumeric charactersDraft Version 0.2 36March 2005
  • 37. OP MH Dementia Dataset OP MH Dementia Data Manual9 Access to BenefitsData items 9.1 to 9.4 relate to attendance and disability allowances. They originate from a number of businessrequirements (see below) and can be referenced back to the National Service Framework for Older People andexpert opinion from the mental health WG.Table 17 Business Requirements Linked To Access to BenefitsRef Business Requirement Document of Comment Origin28 There should be access to benefits advice and benefits as requiredTable 18 Data Items: Access to Benefits Data Item Description Purpose9.1 ATTENDENCE Identifies if the person is in ALLOWANCE receipt of an attendance These allowance are taken as an allowance indicator of benefits received and are not meant to be all inclusive9.2 DISABILITY LIVING Identifies if the person is in ALLOWANCE (CARE) receipt of a disability living allowance for care9.3 DISABILITY LIVING Identifies if the person is in Note parking badge is also included in ALLOWANCE receipt of a disability living the business requirements but these (MOBILITY) allowance for mobility have been deleted from the benefits section on SAP.9.4 INVALID CARE Identifies if the person is in ALLOWANCE (CARE) receipt of an invalid care allowance benefit.9.1 Attendance AllowanceIdentifies if the person is in receipt of an attendance allowance.• Format is 2 numeric characters to indicate Yes, No, Unknown9.2 Disability Living Allowance (Care)Identifies if the person is in receipt of a disability living allowance for care.• Format is 2 numeric characters to indicate Yes, No, Unknown9.3 Disability Living Allowance (Mobility)Identifies if the person is in receipt of a disability living allowance for mobility.• Format is 2 numeric characters to indicate Yes, No, Unknown9.4 Invalid Care Allowance (Care)Identifies if the person is in receipt of an invalid care allowance benefit.• Format is 2 numeric characters to indicate Yes, No, UnknownDraft Version 0.2 37March 2005
  • 38. OP MH Dementia Dataset OP MH Dementia Data Manual10 Care PackageData items 10.1 to 10.12 relate to health and social care packages and plans and related dates. They originatefrom a number of business requirements (see below) and can be referenced back to the National ServiceFramework for Older People, NICE clinical guidelines and expert opinion from the mental health WG.Table 19 Business Requirements Linked To Care Package Data ItemsRef Business Requirement Document of Comment Origin27 An individual care package is NSF Eg, day care, respite, personal care help developed that reflects both health and social care needs of the patient according to the single assessment process28 Carers of patients with dementia Carers Act SAP data item should undergo individual carers assessment29 An individual care package is NICE guidelines Should also identify medical co-morbidity developed that reflects both health (eg, day care, respite, personal care help) and social care needs of the carers according to the SAPTable 20 Data Items: Care Package Data Item Description Purpose10.1 DATE (CARE The date the individual care To monitor good practice with respect PACKAGE AGREED package is agreed with the to individual care packages WITH PATIENT) patient10.2 HEALTH & SOCIAL The health and social care An individual care package is CARE RESOURCES resources made available developed that reflects health and social care needs of the patient according to the Single Assessment Process10.3 MANAGEMENT NOT SURE OF THE PURPOSE OF AGREEMENT THIS ITEM?10.4 DATE (CARE The date the package of care is To monitor good practice with regard to PACKAGE reviewed review of the person’s care package REVIEWED)10.5 DATE (CARE The date the individual care To monitor good practice with respect PACKAGE AGREED package is agreed with the to individual care packages WITH CARER) patient’s carer Note: Carers assessment noted on business requirements but this is captured on SAP 2.121/2.122, 3.23/3.24,3.2510.6 HEALTH & SOCIAL The health and social care An individual care package is CARE RESOURCES resources made available developed that reflects health and social (CARER) care needs of the carer according to the single assessment process10.7 DATE (CARE The date the package of care is To monitor good practice with regard to PACKAGE REVIEWED reviewed review of the Carer’s care package - CARER)10.8 COPY OF CARE PLAN Whether a copy of the care plan Monitor the proportion of GPs with ON GP FILES? is held on the GP files copies of care plans for all their patients who should have one10.9 DATE OF The date when the keyworker KEYWORKER was appointedDraft Version 0.2 38March 2005
  • 39. OP MH Dementia Dataset OP MH Dementia Data Manual Data Item Description Purpose10.10 COPY OF CARE PLAN Whether the patient has signed Proportion of CPA care plans with SIGNED BY THE the care plan severe mental illness signed by the SERVICE USER service user10.11 COPY OF CARE PLAN Whether the Caret has signed the Proportion of CPA care plans with SIGNED BY THE care plan severe mental illness signed by the CARER Carer10.12 CARER HAS OWN Whether the Carer of someone Proportion of Carers of people with CARE PLAN with enhanced CPA also has advanced CPA care plans also have a their own written care plan care plan themselves10.1 Date (Care package Agreed with Patient)The date the individual care package was agreed with the patient.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)10.2 Health & Social Care ResourcesThe health and social care resources made available.• Format is 2 numeric characters to indicate classification10.3 Management Agreement(Not sure of purpose of this item)• Format to be determined10.4 Date (Care Package Reviewed)The date the package of care was reviewed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)10.5 Date (Care Package Agreed with Carer)The date the individual care package was agreed with the patient’s carer.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)10.6 Health & Social Care Resources (Carer)The health and social care resources made available.• Format to be determined10.7 Date (Care Package Reviewed - Carer)The date the care package was reviewed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)10.8 Copy of Care Plan on GP Files?Whether a copy of the care plan is held on the GP files.• Format is 2 numeric characters to indicate Yes, No, Not known10.9 Date of KeyworkerThe date when the keyworker was appointed.• Format is 8 numeric characters with 2 spaces to indicate year-month-day: (4-2-4)Draft Version 0.2 39March 2005
  • 40. OP MH Dementia Dataset OP MH Dementia Data Manual10.10 Copy of Care Plan Signed by Service User?Whether the patient has signed a copy of the care plan.• Format is 2 numeric characters to indicate Yes, No, Not known10.11 Copy of Care Plan Signed by Carer?Whether the carer has signed a copy of the care plan.• Format is 2 numeric characters to indicate Yes, No, Not known10.12 Carer has Own Copy of Care Plan?Whether the carer of someone with enhanced CPA has their own written care plan.• Format is 2 numeric characters to indicate Yes, No, Not knownDraft Version 0.2 40March 2005
  • 41. OP MH Dementia Dataset OP MH Dementia Data Manual11 Community Related/EpidemiologicalData items 11.1 to 11.4 relate to the person’s personal circumstances and ethnicity. They originate from anumber of business requirements (see below) and can be referenced back to the National Service Framework forOlder People, NICE clinical guidelines, NHS performance indicators and expert opinion from the mental healthWG.Table 21 Business Requirements Linked To Community Related/Epidemiological Data ItemsRef Business Requirement Document of Comment Origin30 Numbers of older people with NICE guidelines dementia in the locality living alone and with family carers31 Numbers of older people from NICE guidelines minority ethnic communities with dementia in the locality living alone and with family carersTable 22 Data Items: Community Related/Epidemiological Data Item Description Purpose11.1 PERSON LIVES Whether the person with ALONE? diagnosed dementia is living alone To monitor numbers of older people with dementia in the locality living alone and with family carers11.2 PERSON LIVES WITH Whether the person with FAMILY/CARERS diagnosed dementia is living with family or carers11.3 IS THE PERSON A Whether the person with CARER THEMSELF? diagnosed dementia is already providing carer support to another person themselves11.4 ETHNIC CATEGORY The ethnicity of a person as To monitor the ethnicity of older specified by the person persons diagnosed with dementia11.1 Person Lives Alone?Whether the person with diagnosed dementia is living alone.• Format is 2 numeric characters (to indicate Yes, No, Unknown)11.2 Person Lives with Family/Carers?Whether the person with diagnosed dementia is living with family or carers.• Format is 2 numeric characters (to indicate Yes, No, Unknown)11.3 Is the Person A Carer Themself?Whether the person with diagnosed dementia is already providing carer support to another person themselves.• Format is 2 numeric characters (to indicate Yes, No, Unknown)Draft Version 0.2 41March 2005
  • 42. OP MH Dementia Dataset OP MH Dementia Data Manual11.4 Ethnic CategoryThe ethnicity of a person, as specified by the person.• Format is a alphabetical characters to indicate categoryDraft Version 0.2 42March 2005
  • 43. OP MH Dementia Dataset OP MH Dementia Data Manual12 OtherData items 12.1 and 12.2 relate to the last hours of life, young onset of dementia and genetic counselling. Theyoriginate from a number of business requirements (see below) and can be referenced back to the NationalService Framework for Older People, NHS performance indicators and expert opinion from the mental healthWG.Table 23 Business Requirements Linked To Other Data ItemsRef Business Requirement Document of Comment Origin36 Best practice is followed in the last (More discussion required as to what data days and hours of life items could practically be captured here) NHS indicators37 Patient with young onset dementiaTable 24 Data Items: Other Data Item Description Purpose12.1 LAST DAYS/OURS OF LIFE To monitor best practice12.2 YOUNG ONSET OF DEMENTIA(More discussion required on these data items)Draft Version 0.2 43March 2005
  • 44. OP MH Dementia Dataset OP MH Dementia Data ManualC Appendicesa List of Abbreviationsb Clinical Codesc ReferencesDraft Version 0.2 44March 2005
  • 45. OP MH Dementia Dataset OP MH Dementia Data Manuala List of Abbreviations 6CIT (?) A&E Accident and Emergency AD Alzheimer Dementia AMTS Abbreviated Mental Test Score CI Cholinesterase Inhibitors CPA (?) DLB Dementia with Lewen Body DoH Department of Health DVLA Driver and Vehicle Licensing Agency ECT Electroconvulsive Therapy ERG External Reference Group GMS General Medical Services GP/GMP General Practitioner/General Medical Practioner ICD 10 International Classification of Diseases (version 10) IT Information Technology MDT Multi-disciplinary Team MH Mental Health MHMDS Mental Health Minimum Data Set MMSE (Folstein’s) Mini-Mental State Exam NHS National Health Service NHSIA NHS Information Authority NICE National Institute for Clinical Excellence NPfIT National Programme for Information Technology NSF National Service Framework NSTS NHS Strategic Tracing Service OP Older People PCT Primary Care Trust RCP Royal College of Physicians (Read code) (Clinical code) SAP Single Assessment Process Snomed Systemized Terms Nomenclature of Medicine UK United Kingdom V(1.2) version (1.2) WG Working GroupDraft Version 0.2 45March 2005
  • 46. OP MH Dementia Dataset OP MH Dementia Data Manual b Clinical Codes (to be completed)Draft Version 0.2 46March 2005
  • 47. OP MH Dementia Dataset OP MH Dementia Data Manual c References Older People Information Strategy National Service Framework for Older People National Institute for Clinical Excellence NHS Data Dictionary NHS Tracing Service NSF Medicines Single Assessment Process for Health and Social Care for Older PeopleDraft Version 0.2 47March 2005