If Not Us, Then Who? Medical Librarians Providing Information and Data Management to Promote Health Equity

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  • GOALS OF MY TALK: Give a brief overview of issues & problems related to health disparities research Look at an example of a national strategy for eliminating health disparities Lead an exercise to answer the question, “If not us, then who?” and more importantly, “How?” Share some stories of my own work and where/how I feel I can help address the question Provide ideas for places to start
  • If Not Us, Then Who? Medical Librarians Providing Information and Data Management to Promote Health Equity

    1. 1. Health Despairities
    2. 2. Health Disparities ResearchIssues & Problems- Definitions of “Disparity”- Lack of Research- Heterogeneity w/in Racial or Ethnic Groups- Measurements of Disparities- Difficulties in Conducting Research- Methodological and Analytical Issues- Money- PoliticsSue, S. & Dhindsa, M.K. (2006). Ethnic and Racial Health Disparities Research: Issues and ProblemsHealth Education & Behavior, 33 (4). P. 459-469
    3. 3. Elimination of Health DisparitiesNational Prevention StrategyFrom the National Prevention Council, Office of the Surgeon General of the United States, 2010http://www.surgeongeneral.gov/nationalpreventioncouncilState, Tribal, Local, andTerritorial GovernmentsACTIONSFederalGovernmentIndividual FamiliesCommunity, Non-Profit, &Faith-Based OrganizationsEarly LearningCenters, Schools, Colleges, &UniversitiesHealth Care Systems,Insurers, and CliniciansBusinesses and Employers
    4. 4. If not us, then who?
    5. 5. A Tale of Two ProjectsNo, make that three.Project No. 1:R01 CA-132935: Promoting Breast Cancer Screening in Non-AdherentWomenPrincipal Investigators:• Roger Luckmann, MD• Mary Costanza, MD++
    6. 6. A Tale of Two ProjectsNo, make that three.Project No. 2:UMass Center for Clinical & Translational ScienceCommunity Engagement Research SectionSection Leadership:• Ira Ockene, MD• Stephenie Lemon, PhD• Suzanne Cashman, ScD• Phil Merriam, MS• Amy Borg, MPH, Med• Sally Gore, MS, MS LISDISSEMINATIONCONSULTATIONCOLLABORATION
    7. 7. A Tale of Two ProjectsNo, make that three.Project No. 3:UMass Center for mHealth-Based Behavioral Sensing andInterventions*Co-Investigators:• Sherry Pagoto, PhD• Deepak Ganesan, PhD*Proposal:• Information architecture, web design, content supply• Develop and promote tool for collaborative research across the UMasscampuses• Enhance communication, dissemination, information & data literacy ofCenter staff
    8. 8. Now It’s YOUR Turn

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