Newsletter - The National Hospice and Palliative Care Organization (NHPCO) - Winter 2012


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You may have noticed, the NHF
Newsletter has a new name and a new
look. GivingMatters will be published
three times a year and will be eight
pages rather than the previous six. The
new name is a reflection of the two
purposes of the newsletter: to share
with you the latest news in our efforts
to raise funds for hospice care, and to
give us an opportunity to tell you, our
supporters, that all of the many ways
in which you Give to the National
Hospice Foundation Matters. We
hope you enjoy the new format, and
we’d love to hear your feedback!

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  • The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
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Newsletter - The National Hospice and Palliative Care Organization (NHPCO) - Winter 2012

  1. 1. WINTER 2012• CONTENTS The Elizabeth Hospice Honors its Founder by Naming a• he Elizabeth Hospice Honors its Founder by T Space at the National Center for Care at the End of Life Naming a Space at the National Center for Care at the End of Life; page 1 Hospice pioneer, Betty Bulen, has at heart and spent much of her life• NHF Announces the 2012 National Memorial dedicated much of her life to teaching the community and health Race and Spotlight Races; page 2 supporting hospice care on the care professionals about the concepts• Add Special Meaning to Your Gifts; page 3 local and national levels. of pain and symptom management.• A simple way to give back to celebrate a loved Another hospice She also put these skills to use in one and express gratitude for your family’s provider has joined helping to develop the Medicare positive hospice experience; page 3 the ranks of major Hospice Benefit.• 200 Miles, Two Days, One Night, 40 Volunteers; donors who have page 4 The Education Office named in honor contributed to the of Betty Bulen is used by the National• Colin Skinner Continues His Journey for five-year $10 million Hospice; page 4 Center to conduct online and virtual Campaign for the educational activities, including• Co-Workers’ Discussions Lead to Personal The Elizabeth Hospice National Center for webinars, instructor-led courses, virtual Connection and a Spiritual Journey; page 5 Founder, Betty Bulen, a consumate hospice Care at the End of conferences, and online courses.• Successful Fundraising Event Raises More Than educator and advocate. Life. The Elizabeth “Given Betty’s deep commitment to $50,000 for FHSSA; page 6 Hospice of Escondido, California has education, we felt this was a perfect• NHF Trustee Receives Lifetime Achievement named an Education Office in honor of space to bear her name,” said Laura Award; page 7 its founder, Elizabeth “Betty” Bulen. Miller, chief executive officer of The• Our Facebook Friends Named Three Things After reading an article in Parade Elizabeth Hospice. Related to Hospice for Which They Are Grateful; page 7 Magazine in the 1970’s about Dame To learn more about the Campaign and Cicely Saunders, Betty Bulen, a nurse naming opportunities, visit www. committed to connecting with• About US patients, was inspired to recruit her public/Campaign/NAMINGRIGHTS.pdf, friends to join her in creating a or contact Heather Slack-Ratiu atYou may have noticed, the NHF hospice program in Escondido, CA. 703-837-3155 or hslackratiu@Newsletter has a new name and a new The 50 people who responded to herlook. GivingMatters will be published call to action became the foundation ofthree times a year and will be eight today’s The Elizabethpages rather than the previous six. The name is a reflection of the twopurposes of the newsletter: to share Because the program waswith you the latest news in our efforts an all-volunteerto raise funds for hospice care, and to organization, Betty woregive us an opportunity to tell you, our every conceivable hat.supporters, that all of the many ways She was chief volunteerin which you Give to the National coordinator, nurse,Hospice Foundation Matters. We executive director, publichope you enjoy the new format, and relations director, andwe’d love to hear your feedback! Members of the Education and Engagement team, Emil Zuberbueler, Cozzie grant writer. But she has King, and Barbara Bouton meet in the Office of the Manager, Professional always been an educator Development which will recognize The Elizabeth Hospice and Bulen. A newsletter of the National Hospice Foundation. 1
  2. 2. NHF Announces the 2012 National Memorial Race andSpotlight Races Spotlight races • The ING Miami Marathon and Half Marathon on January 12. Miami’s palm tree lined boulevards and balmy ocean breeze are the perfect backdrop for your winter race.The evening before the 2011 Marine Corps Marathon, the team of • The New Jersey runners enjoyed a pre-race reception at the National Center for Marathon at the Shore on Father-daughter team Bill and Kristy Pepple don theirCare at the End of Life. RTR shirts honoring their loved one for the Rock’n’Roll May 6. NHF is an Official Chicago Half Marathon. Charity Partner of thisYou can find the 1-loop course marathonperfect race this year! If you run with Run to Remember, with beautiful ocean NHF will provide you with:We are thrilled to give you the line-up views. It’s flat and so aof special Run to Remember races this great race to qualify for • high-tech Run to Remember Ayear. You can still run “any race at any Boston. running shirt suitable for race day,pace.” However, this set of premier printed with the name of your loved • The Bourbon Chase Relay on races will have large hospice teams. one(s) on the back September 27-28. For the third year inMost will offer the opportunity for a row, the National Hospice • Full online training and fundraising “post-close” entry. Since these are Foundation/Run to Remember is an supportextremely popular events, they can be Official Charity of this overnight relayhard to get into. But, by running for Run • An individual fundraising web page through Kentucky. Each team of 12to Remember, runners can gain entry. you can customize with a runners (plus a support van driver) photograph and your story, to make races to complete the 200-mile course.The National Memorial Race fundraising easy • Bank of America Chicago Marathon After careful consideration of the • The opportunity to direct 50% of on October 7. A premier marathon, thecompetition, NHF designated the your fundraising efforts to the local Bank of America Chicago Marathon isMedtronic Twin Cities Marathon as the hospice program of YOUR the second largest marathon in the U.S.2012 National Memorial Race. The CHOICE — perhaps the organization Due to its popularity, registration closesmarathon will be held on October 7 in that touched your life! very quickly.Minneapolis-Saint Paul. The race is called • Regular emails packed with “The Most Beautiful Urban Marathon in • The Nationwide Insurance fundraising tips, training advice,America®” and boasts 26.2 miles of Columbus Marathon on October inspirational support, andparkways, lakes, rivers, and tree-lined 21. According to Running USA, the encouraging experiences to keepboulevards. Nationwide Better Health Columbus you on the path to marathon is consistently one of the 25 largestRun to Remember will provide success marathons in the United States.outstanding support to any runner • lasting memory of a journey Aplanning to participate in the race, • The Marine Corps Marathon on honoring your loved oneincluding a pre- or post-race event in the October 28. Take to the streets ofTwin Cities and lots of advice and support Arlington, Virginia and Washington,along the way. DC next fall for “the People’s Marathon” — one of the premierRegistration for this race opens February marathons this nation offers.12. To register, visit And To learn more about how to register for these races, visit:, register with Run to Remember at i4a/pages/index.cfm?pageID=3353www.runtoremember.org2 A newsletter of the National Hospice Foundation.
  3. 3. Add Special Meaning A Simple Way to Give Back to Celebrate ato Your Gifts Loved One and Express Gratitude for Your Family’s Positive Hospice ExperienceShow the ones you love that you reallycare. This Valentine’s Day, make your Make a decision today to make a gift tomorrowgifts extra special! Each time youmake a purchase from one of these One of the most popular ways to make a legacy gift is to remember NHF in yourvendors, they will donate $10 to the will or living trust. This is very simple, can be included at any time, and costs youNational Hospice Foundation. nothing during your lifetime. Or if you already have a will or living trust, have your attorney add the language in a codicil, or amendment. How to name us in your will Sample Language and Tax ID TM “ give and bequeath to the National Hospice Foundation, a not-for-profit I organization incorporated in the Commonwealth of Virginia, with business address of 1731 King Street, Alexandria, VA 22314, and with a tax identification number of 54-1586967, __________ [describe the asset – i.e. gift amount, percentage, etc.] for the National Hospice Foundation.” • ou can specify an amount. Creating such a bequest is as simple as adding this Y statement to your will: I bequeath the sum of _______ dollars to the National Hospice Foundation. • ou can specify a particular asset, such as securities, real estate, tangible Y personal property (valuable works of art, etc.). Including such a statement: I bequeath ______ to the National Hospice Foundation. • ou can designate a percentage of your estate rather than a specific amount Y and your gift to NHF can grow along with your estate. Such language could read: I bequeath to the National Hospice Foundation, an amount equal to _____ percent of the net value of my estate.Or if gift cards are what you’re lookingfor, TisBest Charity Gift Cards allow the • ou can ensure your wishes for family and friends are first met. Simply specify Yrecipient to make a donation to one of that NHF is to receive or share in the rest and residue of your estate as250 national charities, including NHF! suggested: I bequeath to the National Hospice Foundation, all the rest, residue, and remainder of my estate; OR _____ portion of the rest, and remainder of my estate.TisBest • ou can ensure your assets pass to beneficiaries of your choice, should YRemember also to purchase your unforeseen circumstances occur, such as an intended beneficiary’sgreeting cards through Cards for predeceasing you. Sample language for consideration is: If _______Causes, and 20% of your purchase predeceases me, I give such property to the National Hospice Foundation.will go to The National HospiceFoundation! To learn more about NHF’s estate planning opportunities, please visitThey offer cards for every occasion! our websiteThese programs will run through 2012 include NHF for all holidays to add Would you consider becoming a member of The Legacy Society? If youspecial meaning to your gift have already included NHF in your estate plans, please let us know so thatpurchases. we can give you the special thanks you deserve. As well, if you prefer to included as anonymous, we certainly will respect your privacy and oblige.Shop As always, it is our pleasure to help you and your advisors. For a confidential conversation, without any obligation, please contact, Heather Slack-Ratiu in our Planned Giving Office at 703-837-3155 or hslackratiu@ A newsletter of the National Hospice Foundation. 3
  4. 4. 200 Miles, Two Days, OneNight, 40 VolunteersHospice comes out strong forthe Bourbon ChaseImagine running through the hills ofKentucky in beautiful fall weather. Nowimagine running for 200 miles…over twodays and one night. That’s what it takesto run in the Bourbon Chase Relay, anannual race in Lexington, Kentucky. Thegood news is that the distance is sharedby a team of 12 runners, each runningthree legs of the race. Colin visits with staff of Bear Paw Hospice in Hauve, Montana, some of the many gracious supporters he has met along his journeyIn 2011, hospice made a big splash atthe Bourbon Chase. A record numberof six teams ran to benefit hospice.Together, they raised $37,007. Colin Skinner Continues His Journey for HospiceIn addition, volunteers from Hospiceof the Bluegrass served a major part in Picking up on the exact mile marker where he left off in 2009, Colinmaking the race a success. Forty Skinner is making his way across the United States to raise awarenesshospice representatives, including of hospice.volunteers and staff helped with event. “It’s not what you know, but who you know. That’s what matters,” according to anThey helped with set up and race excerpt from Colin Skinner’s blog. Skinner is walking across the United States to getlogistics. But, the most rewarding people talking about hospice. And he’s doing just that. His journey began in August ofvolunteer task was cheering runners as 2009 in New York City. During the first leg of his quest, he made it as far as Minot,they crossed the finish line. North Dakota, collecting friends and donations along the way.“We stood in awe at the finish line,” at This September, Colin put on his backpack, plugged in his iPod (a technologicalthe achievement of the runners, said upgrade from 2009!) and hit the pavement again, exactly where he left off: mileKatherine Pinero, Community marker 283 on Route 2 in Minot, North Dakota. Braving pounding rain, 60-mile-Resource Coordinator of Hospice of per-hour winds, voracious mosquitoes, and biting cold. Colin is making his way tothe Bluegrass, adding that everyone San Francisco one step at a time.involved is committed to participatingagain next year. “Next time, though, His journey is enlivened and made possiblemany of us will be running!” by the kindness of hospices along the way, and the staff that make sure he has places to stay—sometimes the floor of a church or the sofa of a kind hospice employee or volunteer—and a good meal to eat. In addition to the new friends he collects along the way, Colin continues to cross paths with those he met on his adventure 21 years ago. Colin’s stops often include a visit with a local newspaper or radio reporter, which gives him a chance to tell his story and spread the word about the benefits of hospice. Colin expects to reach San Francisco by mid-February. Follow his blog at www. Colin gives two thumbs up as his journey brings him to the geographical center of the continent,Volunteers from Hospice of the Bluegrass handing out Rugby, NDwater to runners durning the Bourbon Chase.4 A newsletter of the National Hospice Foundation.
  5. 5. Co-Workers’ Discussions Lead to Personal Connectionand a Spiritual JourneyLives are touched in Ethiopia and Merikokeb and Walter stayed behind.Ecuador through their generosity Merikokeb was working on finishing up some important website work.This is the story of two co-workers,Merikokeb Wondafrash and Walter Walter was also busy. He was putting $5Swenson. Their assignment to a shared bills into envelopes, and handwritingoffice here at the National Center for notes of encouragement to the unknownCare at the End of Life has had recipients. He gave them to Merikokeb.remarkable consequence. Their When she protested, “This is too much,”discussions have led to a profound he simply said, “This is an opportunity topersonal connection. They say they would touch someone else’s life. I don’t get thiseven describe it as a shared spiritual kind of opportunity often. Please takejourney. the money.”Merikokeb is NHPCO’s website associate In Addis Ababamanager. She has been on staff for seven At her sister’s wedding, Merikokeb spokeyears. Walter serves as a quality and with another guest about Walter’s giftregulatory coordinator in NHPCO’s and how she needed to find a goodOffice of Health Policy. He has been with organization to give it to. This manNHPCO for three years. In early 2011, Merikokeb Wondafrash and Walter Swenson share an suggested an orphanage run by Motherthey were assigned a roomy office on the office—and a passion for making a difference. Teresa’s order.first floor. As any “roommates” will do, serving over one thousand people, fromthey would chat on downtime and began Merikokeb, her husband, daughter, and newborns to the elderly,” explainsto get to know each other. another sister, all set about driving Merikokeb. “There were men, women, through Addis Ababa,The First Gift and children, some in wheelchairs. MostIn August of 2011, Merikokeb trying to find the facility, at no avail. For four hours of the residents had been abandoned by their families. It was incredibly clean. IMerikokeb was slated totravel home to Addis and Walter they drove around, asking for help, but no have never seen a place so clean, especially in contrast with the rest of the one seemed to knowAbaba, Ethiopia for heryounger sister’s wedding. are shining where it was. Finally, a city which is smelly and dirty.” woman gave them After the tour, Merikokeb asked if theyMerikokeb and herhusband immigrated to examples of directions to a location in did any publicity to get donations. Thethe U.S. 17 years ago. the middle of the city. nun answered simply, “No. We just pray.Having heard about her personal There were absolutely And people like you knock on the door.”impending trip, and It was then that Merikokeb told Walter’sthinking about the human philanthropy, no markings, no signs. They started knocking story. The nuns prayed for Walter all thatneed in Ethiopia, Walter week, in gratitude for this generous giftdecided he wanted to making a on doors. On the third try, they found it. from a man they had never met.give Merikokeb $50 togive away. difference Merikokeb says, “The nuns were at prayer, so Merikokeb returned to the States, and her job, a changed woman. She toldFate intervened in two we were invited back in Walter, “You changed my life. If you hadways. First, Walter, distracted by planning two hours. I wanted to see this place for not given me that money, I would neverhis upcoming wedding, had yet to follow myself, to make sure Walter’s money was have found that place. I would neverthrough with what they had discussed. getting into the right hands.” have known what kind of need exists. IAnd then, the day before Merikokeb was When they returned, Merikokeb and her knew there were poor people in myto leave, an earthquake struck the East home country, but this was a whole family were stunned. They had expectedCoast of the U.S., literally rocking the different level.” to find a small building behind theNational Center for Care at the End of guarded door, with perhaps 6 to10Life and everyone in it. That afternoon, as children. What they discovered insteadmost of the staff raced to get home, amazed them. “It was a very large place, (continued on page 6) A newsletter of the National Hospice Foundation. 5
  6. 6. they saw regularly on the streets. One man is blind and homeless; he was extremely grateful for the money. Another man makes tables and sells them near the Ethiopia presidential palace. He carries Ecuador these tables up a big hill every day on his back. Some days he doesn’t sell any and has to(Co-Workers’ Spiritual Journey continued from page 5) carry them all down again. They gave him money as well.”The Second Gift An Ongoing EndeavorWalter says, “When she came back andtold me the amazing story of her search Moved by their own examples of Guests enjoyed the sounds of Sené Africa at thefor the home for the needy, and what the connection across continents, Merikokeb successful fundraising event for FHSSA.nun said about how they pray for help, and Walter are inspired to share their storythat gave me chills. I had written in each with others. Walter says, “We want to Successful Fundraisingnote, ‘May you find strength and comfort motivate others to think about how they Event, From San Diego toin Jesus Christ’ because my faith is such can give when they travel so we have created a website called ‘The Gift of Travel’ Africa, Raises More Thanan integral part of my life. Hearing whatthe nun said has strengthened my faith People can go to $50,000 for FHSSAfurther. It’s clear prayers are being this site to share their own stories of thingsanswered.” they have done or plan to do in the future With 200 guests and great San Diego and to read about other people’s weather, this year’s FHSSA fundraisingThen it was Merikokeb’s turn to give! experiences. We hope that this site will event, From San Diego to Africa, atWalter’s new wife, Daniela, has family serve as inspiration for others to give to NHPCO’s Clinical Team Conferenceliving in Ecuador who came to the United those who are less fortunate.” was a big success. ConferenceStates for their wedding. Merikokeb gave attendees, board members, andWalter money for them to take home with J. Donald Schumacher, president and special guests mingled, danced, andthem upon their return and give away CEO of NHPCO and NHF says, bid on over 100 auction items, whichhowever they wanted. “Merikokeb and Walter are shining included authentic African treasures examples of personal philanthropy,Walter says, “When my wife’s family and a safari trip in South Africa. The making a difference where they can. I amreturned to Ecuador, her grandmother grand total raised to support FHSSA so proud that they work with us here atand mother sought out a few individuals was $51,487. the National Center.” An exclusive VIP reception was held for top level sponsors with a beer tasting from Stone Brewing Co. Guests enjoyed learning about and sampling beers not available to the public. As they moved to the Tiki Pavilion for the main event, guests were greeted with the sounds of Sene Africa, a group originally from Senegal and gaining much recognition in the San Diego area. Drums, guitar, and a Celebrating the Women of Hospice traditional African kora filled the air and set the stage for a wonderful A Salute to Heroines and Humanitarians evening. NHF and FHSSA are grateful for all of the sponsors for their generous Friday, March 30, 2012 support. Gaylord National Resort Convention Center National Harbor, Maryland6 A newsletter of the National Hospice Foundation.
  7. 7. NHF Trustee Receives Lifetime Achievement Award Eleanor Clift, NHF Trustee since 2006, received a Lifetime Achievement Award from the National Association for Home Care and Hospice (NAHC) Foundation in October 2011. The award was presented during NAHC’s fall meeting in Las Vegas in recognition of her long-standing commitment to improving care at the end of life. Clift is a political commentator who serves as a contributing editor for Newsweek Magazine and a regular panelist on the syndicated talk show, The McLaughlin Group. NHF congratulates Ms. Clift on this prestigious and well-deserved recognition. Eleanor Clift, NHF Trustee since 2006, is recognized with a Lifetime Achievement Award for her dedication to improving care at the end of life. Special thanks to those who have made gifts and/or pledges to the Campaign for the National Center for Care at the End of Life (as of December 10, 2011) $100,000 and above Family LifeCareWhat are you grateful to Cathy Gibney Paul (posthumously) and Junehospice for? Ebensteiner Glatfelter Insurance Group Good Shepherd Hospice Home Healthcare SolutionsOur Facebook Friends Named HospiceCare of Boulder and Haven HospiceThree Things Related to Hospice Broomfield Counties Hope Hospice and Communityfor Which They Are Grateful Services Hospice By The BayOn our Facebook page, we share LifePath Hospice Hospice of the Bluegrassinformation, but we also like to The Morfogen Fund for Arts and Hospice of the Miami Valleyengage in dialogue. In November, we Education Hospice of the Valleyinvestigated gratitude about hospice. The Staff of NHPCO and Affiliates Hospice of the Western ReserveHere are the answers: Suncoast Hospice and Suncoast Cami and Brad Hunter “ ain management, social P Solutions Jonathan Keyserling services support, 11th hour Jay Mahoney volunteers” $10,000    99,999 –$ John Mastrojohn III and “ indness of staff, come when K D. Michael Davids Beacon Hospice called, skill” Jeannee and Mike Martin Eleanor Blayney “ ome, comfort, caring” H Galen Miller and Bob Ward Matthew Branam Mark Murray “Compassionate volunteers, The Center for Hospice and Palliative supportive guidance, Care San Diego Hospice and the Institute for Palliative Medicine bereavement support” Center for Hospice Care J. Donald Schumacher “ omfort, peace of mind, C The Corridor Group Cindy Hasenzahl Susienka understanding” Covenant Hospice, Inc. The Elizabeth Hospice * or a complete donor listing, please F “Patience, understanding, perspective” Evercare Hospice and visit: www.nationalhospicefoundation. Palliative Care org/i4a/pages/index.cfm?pageid=576 “ ompassionate staff, being able C Family Hospice and to make a difference, appreciation Palliative Care for being alive and healthy”Have you “liked” us on Facebook yet? Correction: In the NHF 2011 Summer Quarterly Report, an article about thePlease do! National Center misreferenced donor “Home Healthcare Solutions” asNatHospFdn “Home Healthcare Services.” We apologize for this error. A newsletter of the National Hospice Foundation. 7
  8. 8. Learn more about NHF at Follow our tweets at Nhf_news Join the conversation on Facebook! Social Networking with NHF Fax: 703-837-1233 Ph: 703-516-4928 or 877-470-6472 1731 King Street, Alexandria, Virginia 22314THANK YOU! The National Hospice Foundation would like to extend special thanks to the following:• rin Heramb for editing Colin Skinner’s blog about his walk from North Dakota E to California. (You can read about his adventures — which are ongoing — at• he Nationwide Insurance Columbus Marathon for the $5,000 gift presented in person by T race director Darris Blackford.• leanor Blayney and Jim Smith for their extraordinary Run to Remember efforts this year. E – Eleanor, an NHF Trustee, raised $24,365 for the Campaign for the National Center for Care at the End of Life. – Jim, an elite athlete and good friend of NHF, raised $17,365 in support of We Honor Veterans. (Jim will be doing even more for NHF in 2012; we will share details with you soon!)