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Newsletter - The National Hospice and Palliative Care Organization (NHPCO)

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  • http://www.nhpco.org/templates/1/homepage.cfm The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. http://www.nhpco.org/templates/1/homepage.cfm
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  • 1. SPRING 2012• CONTENTS National Center for Care at the End of Life Hosts Room Dedication Ceremony• ational Center for Care at the End N of Life Hosts Room Dedication Guests Enjoy Tour of Center and Ceremony; page 1 Visit Their Named Spaces• ong-time Hospice Supporters, L In conjunction with NHPCO’s Susan and Dennis Gilardi Lend Their Management and Leadership Support to the Capital Campaign; Conference this March, The National page 1 Center for Care at the End of Life hosted a Room Dedication Ceremony• th Annual NHF Gala Raises Funds 8 to celebrate the spaces within the for Programs to Expand Hospice center that have been named as part of Kathy Dodd, Kate Cummings, and Jeannee Parker Martin Care; page 3 a campaign commitment by an individual, provider or business. the opportunity to create the National• HF Welcomes Samira Beckwith N Center for Care at the End of Life in as Chair; page 5 The National Center is the home of four 2008 and began a capital campaign to affiliated organizations with one vision: encourage investments in its future.• HPCO Joins with MedicAlert N a world where individuals and families Foundation for New Opportunity Forty spaces within the National Center facing serious illness, death and grief for Securing and Communicating will experience the best that humankind have been named to date, and the can offer. Those four organizations: The Room-Dedication Ceremony was an Healthcare Wishes; page 5 National Hospice and Palliative Care opportunity for contributors to• HF Thanks Hospice Pharmacia for N Organization (NHPCO), The National experience the space and see the area its Continued Support; page 6 they selected to name in honor of Hospice Foundation (NHF), FHSSA• wo Pairs of Siblings Tackle T (originally known as the Foundation for someone important to them as an Marathons as Run to Remember Hospices in Sub-Saharan Africa), and individual or organization. Participants; page 7 the Hospice Action Network (HAN), had continued on pg. 2 Long-time Hospice Supporters, Susan and Dennis Gilardi Lend Their Support to the Capital Campaign When Dennis Gilardi’s uncle was cared for by Hospice by the Bay 35 years ago, he had no way of knowing that it was the start of a lifetime of involvement in the hospice movement. A year after his uncle’s passing, Dennis joined the board of directors of that hospice program. Susan and Dennis Gilardi continued on pg. 2 A newsletter of the National Hospice Foundation. 1
  • 2. NHF would like to thank Bobby McKey’s piano bar and restaurant Samira Beckwith, president and CEO of Hope Healthcare Services and J. Donald Schumacher, president and CEO at the National Harbor for donating of NHPCO. the space for our Evening of Teresa Craig, president and CEO of Suncoast Solutions Gratitude Event!“The National Center is so much more than bricks and mortar,” said J. DonaldSchumacher, president and CEO of NHPCO. “It is a space that represents theimportant work being done across the country to improve care at the end of life, and ADD SPECIALhouses professionals working on critical issues related to improving quality patient MEANING TOcare, education, consumer services, research, data analysis, regulatory assistance,advocacy and philanthropy. We are so grateful to each of our contributors for making YOUR GIFTSthis space possible.” Show the ones you love that you really care.“ he center is strategically positioned to challenge conventions about hospice care T Each time you make a purchase from one of these vendors, they will donate $10 to the and press the boundaries of what is possible. This is a place where future leaders can National Hospice Foundation. set an example for collaborative thinking and acting in ways that inspire innovation and advance best practices. We are delighted to be able to contribute to the future in this way,” said Teresa Craig, president and CEO of Suncoast Solutions. To find out more about the National Center for Care at the End of Life or the Capital Campaign, contact Heather Slack-Ratiu at (703) 837-3155 or hslackratiu@nationalhospicefoundation.org. To see more pictures of the Room Dedication Ceremony, visit: www.nationalhospicefoundation/roomdedication Or if gift cards are what you’re looking for, TisBest Charity Gift Cards allow the recipient to make a donation to one of 250 national charities,continued from pg. 1 including NHF!From there he became a part of significant milestones in the movement, including www.nationalhospicefoundation.org/TisBestattending the first National Hospice Organization meeting in Washington, DC, and Remember also to purchase your greeting cardsbecame a member of the original Healthcare Financing Administration’s Medicare through Cards for Causes, and 20% of yourDemonstration Project. purchase will go to The National Hospice Foundation! www.cardsforcauses.com. They“Given my experience with hospice over the years, and my semi-retirement, offer cards for every occasion!when the opportunity came to support the movement on the national level bycontributing to the National Center for Care at the End of Life, I knew it was These programs will run through 2012 so include NHF for all holidays to add special meaning tosomething that would mean a lot to both Susan and me.” The Gilardis elected to your gift purchases.lend their name to the office of Senior Vice President, Office of Philanthropy www.nationalhospicefoundation.org/Shop(pictured on previous page).2 A newsletter of the National Hospice Foundation.
  • 3. 8th AnnualNHF Gala Raises Funds forPrograms to Expand Hospice CareMore than 600 Guests Gathered Several awards were presented at the Eleanor Clift, a hospice heroine in herto Honor the Women Who Have event: own right, having generously shared herShaped Hospice personal experience with hospice care in • he Today Show received the T a book about her husband’s death,More than 600 guests gathered this Buchwald Spirit Award for Public served as Mistress of Ceremonies.spring for the 8th Annual National Awareness for its dedication to sharingHospice Foundation Gala, “Celebrating compassionate stories. This award was In addition to these awards, severalthe Women of Hospice: A Salute to presented by actress and hospice women were honored by their hospiceHeroines and Humanitarians” at the advocate and volunteer, Torrey programs for their contributions withGaylord National Resort and Convention DeVitto. cards at each gala table describing theirCenter, National Harbor, MD. work in shaping hospice care in the U.S. • ernice Catherine Harper, a social BThe event, held during the National worker and hospice advocate with a Next year’s gala will be held on Friday,Hospice and Palliative Care long history in health policy and April 26, 2013, also at the GaylordOrganization’s 27th Management and minority access to care was honored National Resort and Convention CenterLeadership Conference, raised nearly with the Global Vision Award for her in conjunction with NHPCO’s 28th$300,000 through ticket sales and a silent work in expanding palliative care Management and Leadershipauction to support NHPCO programs services in Africa and her role in Conference.such as the We Honor Veterans program establishing FHSSA (originally knownin partnership with the Veterans as the Foundation for Hospices inAdministration focused on improving Sub-Saharan Africa).end-of-life care for veterans, and Caring • nn Morgan Vickery was granted the AConnections, a national consumer and Healthcare Architect Award for hercommunity engagement initiative. many years of dedication to hospice“The theme of this year’s Gala gave us beginning with her involvement in thethe opportunity to reflect on the women enactment of the Medicare Hospicewho have shaped hospice into what it is Benefit in 1982 and advising on atoday through their dedication, regulatory and policy level since.compassion and unique contributions • enter for Hospice Care received the Cthroughout the years. Without them, we Morfogen Art of Caring Award for itswould not be where we are today, work in collaboration with thechanging the way we live and the way we University of Notre Dame Film Schooldie,” said J. Donald Schumacher, on the film “Okuyamba,” about thepresident and CEO of the National challenges and triumphs of providing The live auction portion of the Gala was a hit withHospice and Palliative Care Organization. palliative care in Uganda. attendees. continued on pg. 4 A newsletter of the National Hospice Foundation. 3
  • 4. Topaz • Ac reditation Commission for Health c Care, Inc • Eleanor Blayneyˆ • E. John Bullard • Family LifeCare • Greenspring Village • Hospice Buffalo • Hospice of the Miami Valley • Jon Keyserling Jennifer Miller • John Mastrojohn III and Mike Davids • Medline • Galen Miller and Bob Ward ˆ • Mrs. Frank Perdueˆ • PNC Bank • Judy Polstraˆ • Stoladi Properties • David and Lynn Swensonˆ ˆ(auction donors)Pictured, from left to right: Kate Cummings, Hospice Director, Fairview Home Care and Hospice; Former Congressman GALA PARTNERSBill Gradison; Ann Morgan Vickery; Christy Whitney, President and CEO, Hospice Palliative Care of Western Colorado Capitol File MagazineNHF Wishes to Express Sincere Garnet CCR EventsGratitude to the Sponsors of the Gala • Bradford Renaissance Portraits Corp.ˆ Ga lord National Resort yas well as the staff and volunteers who • The Brennan Family Convention Centermade the event a tremendous success! • Bristol Hospice, LLC Master Print, Inc. • Sue CanutesonˆSPONSORS: • Th Corridor Group and Jeannee e STAFF AND VOLUNTEERS: Mike MartinRuby • Delaware Hospice Barbara Bouton, Kathy Brandt, Sharon• Suncoast Hospice and Suncoast Solutions • Denver Hospice Campbell, Jeana Connaughton, Shirley • Deyta Conroy, Andrew Cunningham, KarenPearl • The Elizabeth Hospice Davis, Kristi Dudash, Andy Duncan, Beth• Dignity Memorial Providers • Gilchrist Hospice Care Fells, Steve Gardner, Maryann Krayer, • HBO Tony Kudner, Caroline Kuo, JohnTanzanite • Hospice of the Bluegrass Mastrojohn III, Sarah Meltzer, Susan• Gentiva Hospice • Hospice and Palliative Care of Western Messina, Galen Miller, Aimee Murphy,• Hospice Pharmacia • Colorado Erinn Nanney, Debbie Perkins, Rodney • Hospice of Palm Beach County Perkins, Emily Person, Judi Lund Person,Amethyst • Hospice of the Western Reserve Jon Radulovic, Eric Shepperd, Heather• As raCare Home Healthcare and e • Lighthouse Hospice Slack-Ratiu, Shelley Smith, Shauna Hospice Inc. • Nathan Adelson Hospice Stupart, Gwynn Sullivan, Walter• Center for Hospice Care • National Association of Social Workers• Chapters Health System Swenson, Rebecca Trout, Annie • Pr irie Haven Hospice Hospice a• Community Health Accreditation Program Williams, Mary Williams, Patrick Williams, Services Inc.• Evercare Hospice Palliative Care and Merikokeb Wondafresh, Emil • Dr. Colin Ratiere and Familyˆ Hospice Inspiris • J. Donald Schumacher Zuberbueler and Grace Zupancic.• Gl tfelter Insurance Group/Hospice a • Simione Consultants LLC Community Care Insurance • Studer Covenant Alliance/Covenant• Hogan Lovells US LLP • Hospice Inc.• Hope HealthCare Services• Sara Jo Kobacker• David and Sandra Lee Christine Swann• Montgomery Hospice• mumms Software / Secure Computing• VITAS Innovative Hospice Care4 A newsletter of the National Hospice Foundation.
  • 5. NHF Welcomes Samira Beckwith as Chair NHPCO Joins with MedicAlert Foundation for Earlier in the year, the hospice community lost a true pioneer and trailblazer with the New Opportunity for death of Mary L. Labyak. Mary died Securing and Communicating peacefully at home on February 4, 2012 Healthcare Wishes in Cases under the loving care of her colleagues at of Emergency Suncoast Hospice, the organization she helped create and where she served as Advance Healthcare Planning President and CEO. Ensures Last Wishes are Honored At the time of her death, Mary was the Chair When the unexpected occurs, it’s of the National Hospice Foundation, Co- important that your loved ones know your chair of the Capital Campaign for the wishes regarding your medical care. National Center for Care at the End of Life, Advance Directives provide a means for and a member of the NHPCO Board. For documenting your preferred treatmentmany in the hospice and palliative care community, it seems that no one can replace options if you are unable to speak forMary. However, she would be the first person to say that we must keep moving yourself in a medical emergency.forward with the important work we share. Caring Connections, a program ofAt the Gala on March 30, the National Hospice Foundation proudly welcomed NHPCO supported by funds raisedSamira K. Beckwith, LCSW, FACHE, as the new chair of the NHF Board of Trustees. through the National Hospice Foundation,Samira is president and CEO of Hope HealthCare Services in Ft. Myers, Florida, and provides information and guidance onhas a long history with NHF and our affiliate organization the National Hospice and Advance Directives and now, through aPalliative Care Organization. She was a founding member of NHF’s board and its collaborative effort with MedicAlertexecutive committee and has served in many leadership roles. In her service to Foundation, these written documents areNHPCO, she served as board chair when the organization was still National Hospice safely and confidentially stored,Organization. communicated and made available when and where they are needed.NHF Executive Director John Mastrojohn said, “We are delighted to have Samiraserving as our Board Chair. She is an experienced and nationally respected leader “This is a great opportunity not only towho is strongly committed to our vision of a world where individuals and families encourage these important discussionsfacing serious illness and grief will experience the best that humankind can offer.” among family members and loved ones, but to make the process of storing andWe extend a warm welcome and look forward to Samira’s dedicated leadership. accessing advance directives secure and easy,” said J. Donald Schumacher, president and CEO of NHPCO. continued on pg. 6 Honoring the passion at the heart of hospice, this new t-shirt was designed by actor and hospice advocate Torrey DeVitto. All proceeds from the new “comfort.love.respect” shirt will support Caring Connections awareness and outreach efforts. Photo courtesy of Sierra Prescott. TO ORDER, VISIT: www.nationalhospicefoundation.org/shop 5
  • 6. continued from pg. 5 NHF RecognizesConsumers may purchase the Advance Hospice Pharmacia for ItsDirective Management Service for $50which includes five years of document Contributions to Hospicestorage and accessibility, live 24/7 Pioneer in Meeting Hospice Medication Needs Continuesemergency response and family Long-Standing Commitmentnotification services, and anemergency wallet card with The National Hospice Foundation is grateful for the continued support of Hospiceinformation on how to access the Pharmacia, pioneers in hospice pharmacy service solutions. Hospice Pharmacia, aindividual’s Advance Directives. division of excelleRx, has long supported the work of hospice programs as vendor partners in patient care as well as through contributions of time, professional“We are committed to providing resources, and financial gifts to the programs of the Foundation and NHPCO.consumers and our members with thebest quality healthcare available. For Hospice Pharmacia was the first pharmacy to focus on expert management ofpeople with no existing health medication for end-of-life patients and exists on the belief that all people,condition, the quality and choice of especially those dealing with end of life symptoms, have the right to appropriatecare is still a big concern. Through this medications. Hospice Pharmacia works directly with hospice and palliative careadvance directive service, we give organizations to design program-specific pharmacy service that meets thepatients who are unable unique needs of the hospice staff and patients. With a 15-year focus onto speak for themselves in an customer service and innovation and expertise in medication management,emergency situation a voice in formulary design, and symptom management education, Hospice Pharmaciadeciding their preferred medical continues to grow with our industry.treatment,” said Andrew “For most of us working in hospice, it is so much more than a job, it’s aWigglesworth, MedicAlert president commitment to making an impact on the lives of the patients we care for and theirand CEO. families. Hospice Pharmacia is no exception. Not only have they been leaders inFor more information about Advance improving pain management, but through their support of educational and policyDirectives, visit Caring Connections at: initiatives, they have made a real contribution to ensuring our field remainswww.caringinfo.org. To learn more innovative. We are so grateful for this commitment and contribution,” said J.about this MedicAlert service, visit: Donald Schumacher, president and CEO of NHPCO.www.medicalert.org. HP’s commitment to education is evidenced by their years of support of NHPCO conferences and educational opportunities for members. As an important partner in assuring the integrity and fortitude of our work, they have answered our calls whether for NHF’s Gala sponsorship requests or the Hospice Action Network’s need for pharmacy experts when addressing material legislative issues. “It continues to be an honor tow work with hospices that provide such critically important care at the end of life. We view our work as a noble calling and it has been or privilege to empower the good work of NHPCO for so long,” said Michael Cinque, PharmD, vice president of Medication Therapy Management Services for Hospice Pharmacia. Make a decision today… to make a gift tomorrow. Learn about the opportunities to give and save — meeting your financial goals and maximizing your charitable intentions through gift planning with the National Hospice Foundation. Visit www.nationalhospicefoundation.org/give
  • 7. Run to Remember sisters, Sara Garcia and Michelle ReitzTwo Pairs of Siblings Tackle Marathons asRun to Remember Participants The opportunity to memorialize loved ones was irresistible This year, two pairs of siblings are running marathons as part of Run to Remember. John and Mike O’Connor will tackle Bank of America Chicago Marathon on October 7 in memory of their father, Emmett O’Connor. On October 29, Sara Garcia and Michelle Reitz will run the Marine Corps Marathon in memory of their grandmother, Elizabeth Prior. Neither O’Connor brother has ever run a marathon. Mike explains, “I’ve always wanted to run a marathon, even though I’m not a huge runner. We always get together around the anniversary of our father’s death to remember him. I tried to think of something different this year and when I saw Run to Remember on the Chicago Marathon website, I knew that was it. My brother, John, runs every day so he had noRun to Remember brothers, Mike O’Connor andJohn O’Conner problem saying ‘yes’ to my idea.” Sara and Michelle, along with their brother and sometimes other siblings, have a longtradition of doing endurance events together. Sara says, “We’ve done marathons and triathlons for a number of years. It’s been afew since we did one together. When our group of friends and family decided on the Marine Corps Marathon, Sara and I weresurprised at how fast the race closed. We were so pleased to find that NHF had charity slots available. All four of ourgrandparents have passed away and all of them received hospice services.”All four participants find great meaning in running in memory of their loved ones. Michelle remembers her grandmother Elizabethas “really kind, extremely strong, and very independent. She worked for an airline early in her life and had the unusual opportunityto do a lot of travel.”About his father, Mike says, “He was the greatest guy in the world. He was laid back, worked as a painter. He raised five kids andwas married to my mom for 30 years. He was only in hospice one day, but it was so helpful. The hospice has a ‘memorial box’outside each room and we were able to put a baseball with his name on it in the case, as my dad was a huge Yankees fan.Sometimes we visit there, instead of making the 1.5 hour drive to the cemetery.”The two brothers and two sisters are all looking forward to their marathons this fall, knowing that they will be sharing somethingspecial with each other. Would you and a sibling like to do a race together? You could! Learn more at www.runtoremember.org or email info@nationalhospicefoundation.org A newsletter of the National Hospice Foundation. 7
  • 8. 1731 King Street, Alexandria, Virginia 22314 Ph: 703-516-4928 or 877-470-6472 Fax: 703-837-1233 info@nationalhospicefoundation.org Social Networking with NHF Join the conversation on Facebook! www.facebook.com/NatHospFdn Follow our tweets at Nhf_news Learn more about NHF at www.nationalhospicefoundation.orgMY I  have a pretty strong personal connection with hospice and here are  some of the reasons. I am no stranger to death. The scary word that noPERSONAL one wants to talk about has been the most common topic talked about in my personal and professional life. My experience with death started veryCONNECTION young with my grandfather dying. Later in the fifth grade my teacher collapsed and went in to a diabetic coma and soon after passed; she wasTO HOSPICE very young. My father had a heart attack and died when I was 14. His mother could not handle losing her son and died shortly after my father. My cousin was shot and killed at 14 not long after that. I lost two close friends to suicide in high school. I married and had three beautiful healthyBy Tim L. Pape daughters. My youngest, at age 7 months, died in her sleep and went to be with Jesus on September 28, 2010. Six months after that my stepfather died on Hospice, the same hospice I was working for at the time. With hospice my mother called her second husband’s death a beautiful death;Editor’s Note: When Tim Pape signed up to only hospice can provide that. So I am no stranger to death and have alsoreceive NHF’s online news, we asked him to tell been on a few different sides of hospice.us a little about his reasons, he wrote this. Wewanted to share it with you. One of my messages that I share with people is this: if you have ever had a sudden death in your family who was close to you, you know how difficult it is. After the pouring in of support for a month or two, everyone gets back to their lives and you are left alone to grieve and have no REAL support for yourself or your family. When you have someone close to you that you know is going to die and they choose hospice care for the short period of life they have left, you reap the benefits and receive REAL support. Hospice provides so much for families that NO OTHER profession can. If you ever have the opportunity to choose Hospice please do so for you and your family. — Tim L. Pape