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Information Therapy

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Information Therapy to empower patients

Information Therapy to empower patients

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  • 1. Information Therapy and the Empowered Patient Dr Malpani, MD Founder HELP – Health Education Library for People
  • 2. Patients are unhappy with the medical profession
    • Seen to be uncaring
    • Money-minded
    • Doctors are too busy to talk or to explain
    • Overtesting
    • Overtreatment
    • Too expensive
    • Move to alternative medicine
    • Long for the family doctor of the past…
  • 3. Doctor versus Patient
    • Indian patients are becoming increasingly articulate – they want more information about their medical conditions
    • Unfortunately their doctors do not have the time to provide them this information in detail
  • 4. Results ?
    • Doctor –shopping
    • Doctors get beaten up and arrested
    • Hospitals get burnt down
    • Doctors go on strike
    • Everyone suffers !
  • 5. Doctor and Patient
    • We are all on the same side – the patients’
    • Medicine is a service profession
    • Doctors like helping patients
    • Want them to get better
    • How can we create a win-win situation ?
  • 6. Information Therapy !
    • Information Therapy is Powerful Medicine !
    • Help patients to make better health decisions
    • Patients are the largest untapped healthcare resource !
    • Empower them with information – so they can take better care of themselves , in partnership with their doctor.
  • 7. Don’t underestimate your abilities !
    • 1. You are smart . With the right tools, you can make the right decisions !
    • 2. Knowledge is Power !
    • 3. Your doctor is your partner
    • 4. You cannot afford to leave everything upto God – or upto the doctor !
  • 8. HELP helps you save money on medical care
    • 1. Promote SelfCare . Help you to do as much for yourself as you can, so you are not completely dependent on the doctor
    • 2. Provide Evidence-Based Guidelines , so you can ask for the right medical treatment that they need - no more and no less
    • 3. Help you with Veto Power, so you can say No to medical care you don’t need, thus preventing overtesting and unnecessary surgery .
  • 9. We help doctors to talk to patients !
    • Improve doctor patient communication
    • Help doctors to look at things from the patient’s point of view !
    • Improve empathy and their bedside manner
    • Help them to get more patients !
    • Help them to reduce risk of lawsuits
  • 10. My personal experience
    • I learn a lot from my patients !
    • If you treat patients with respect, they will respect you in return
    • Patients get the doctors they deserve – and doctors get the patients they deserve
    • Well-informed patients are easier to treat, because they have realistic expectations
  • 11. We help patients to talk to doctors !
    • Demystify jargon
    • Remove the fear
    • Provide them with the tools they need
    • Help patients to make sense of what is happening to them
    • The quality of your doctor’s answers depend upon the quality of your questions !
  • 12.  
  • 13. How do you find this information ?
    • Google is great !
    • 24/7
    • Free
    • Great for quick and dirty searches
    • Instant access from home
  • 14. But – Internet searches can be frustrating
    • Get lost
    • Information can be unreliable
    • Confusing
    • Conflicting information
    • Not updated
    • Whom do you trust ?
    • Need handholding – especially in an area like medicine !
  • 15. Internet positive patients
    • Frustrated
    • Confused
    • Frustrate doctors as well
  • 16. Google and libraries
    • It’s NOT google v/s libraries
    • People who use google are the ones who will use libraries !
    • They ask questions. They trust – then verify !
    • Check and re-check – due diligence
    • Knowledge is power !
    • Click and mortar complementary approach - use both !
  • 17.
    • Perfect for people who’ve already done a google search; and then need help
    • Librarians – human infomediaries
    • Librarian-mediated search
    • Provide hand-holding
    • Guides – online and the real-world !
  • 18.  
  • 19.  
  • 20.  
  • 21.  
  • 22. What we provide
    • Easy to read materials – for patients and by patients
    • Wide variety of styles – from single page pamphlet to books
    • Comprehensive – from stress management, exercise, diet, all illnesses, alternative medicine
    • Over 300 DVDs
  • 23. Brief history
    • Established in 1997
    • Mission - to empower people by providing them with  the  information they  need to promote their health , and prevent and treat   medical problems in the family in partnership with their doctor.
    • We are a registered charitable trust and a non-profit organisation.
  • 24. HELP Talks
    • Free talks daily
    • Doctors, alternative medicines experts and by patients ( Expert Patient)
    • Partnership with Times of India Foundation
    • Wide range of topics
    • Longest running series of health talks ( Limca Book of Records) , ongoing since 3 years
  • 25. Outreach activities
    • Courier information ( fee charged)
    • Email information – free value-add service
    • Health ezine for corporates
  • 26. Services for doctors
    • MDConsult ( World’s largest online medical library) subscriptions as reduced prices
  • 27. Our focus areas now are:
    • 1. encouraging health insurance companies to invest in patient education
    • 2. advocating information therapy
    • 3. setting up a national network of patient education centers
    • 4. developing patient educational materials in Indian languages for the web
  • 28. HELP is growing ! National Network
    • Every hospital should have a Patient Education Resource Center
    • Win-win situation
    • Great tool to empower patients
    • Helps doctors and hospitals too !
  • 29. New locations
    • Mini-libraries in pharmacies
    • Mini-libraries in medical laboratories
    • Mini-libraries in clinics
  • 30. How do we grow ? Corporate Partners
    • Win win !
    • CSR
    • 80G benefits
    • Health insurance companies are the best fit - dollar spent on patient education is 10 dollars saved ( on unnecessary testing and surgery)
  • 31. Why libraries will always be useful !
    • Data v/s Information v/s Knowledge v/s Wisdom
    • Libraries and librarians help transmute information into knowledge
  • 32.  
  • 33.  

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