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HeartNET: an online community giving heart patients a voice (Lynsey Ulridge - ECU)

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Presentation at Making Links Conference 2010 in Perth, Western Australia.

Presentation at Making Links Conference 2010 in Perth, Western Australia.

www.makinglinks.org.au

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HeartNET: an online community giving heart patients a voice (Lynsey Ulridge - ECU) HeartNET: an online community giving heart patients a voice (Lynsey Ulridge - ECU) Presentation Transcript

  • HeartNET an online community: Giving heart patients a voice Lynsey Uridge Moderator: HeartNET PhD candidate www.heartnet.com.au
  • Cardiovascular disease Is heart, stroke and blood vessel disease kills one Australian nearly every 11 minutes affects more than 3.4 million Australians prevents 1.4 million people from living a full life because of disability caused by the disease affects one in five Australians, and two out of three families claimed the lives of almost 48,500 Australians (34% of all deaths) in 2008 - deaths that are largely preventable. (Heart Foundation, 2010)
  • What is HeartNET? Semi moderated support site for anyone affected by CVD Collaborative PhD project Edith Cowan University National Heart Foundation WA Division Australian Research Council
  • HeartNET www.heartnet.com.au
  • Membership Place of Residence 350 321 300 250 200 160 146 150 131 100 68 59 59 50 18 15 0 T C SA SW A LD l S T na N W VI AC TA Q tio N na er nt -I er th O
  • What does HeartNET provide? Provides member only Discussion board (asynchronous- not real time) Chat room (synchronous – real time) Private message facility Guest access
  • Some Statistics HeartNET turned 5 on the ANZAC Day weekend 2010 Since 2005 there has been: 75,331 logins On average 50-100 messages a week Over 10,000 posts on the bulletin board
  • PhD Research The identity of the cardiovascular patient in the gift economy: Media influences and HeartNET Comparison between HeartNET members and non- HeartNET members Reciprocation and sharing of support How media portrays heart disease
  • Methodology In-depth interview x2 Focus groups Interactions on HeartNET Interviewing of Health Reporters The West Australian The Australian
  • Preliminary Findings: Networking Important essential as many people experience moments of dark thoughts and panic in the middle of the night; having the online support available allows people to express their thoughts at anytime because sometimes there are other sleepless HeartNETters online (Uridge, Green & Rodan, 2008, p.148)
  • Preliminary Findings Ignoring symptoms Patients experiencing an acute myocardial infarction wait an average of 4.5 hours before seeking medical treatment (Wielgoz, Nolan, Earp, Biro & Wielgoz, 1988, p. 853) In a study of 313 patients who had a myocardial infarction only 25% called an ambulance within an hour of the onset of symptoms, 60% sought help within four hours; of the remainder 12% waited longer than 24 hours to seek medical treatment (Hooper and Morrison, 2000, p.138)
  • Hollywood Phenomenon 4 out of 10 people in UK take advice on heart attacks from TV and movies (Hope, 2008) Coronation Street East Enders Neighbours Simpsons
  • Empowerment Empowerment is the process of enabling or authorizing an individual to think, behave, take action, and control work and decision making in autonomous ways. It is the state of feeling self-empowered to take control of one's own destiny (Heathfield, 2010). Change of attitude over time Readjustment period Get affairs in order Not afraid to die
  • The Bucket List Similar to movie of same name Heart events give members permission to live life to the full Do things thought about- but never done Tick tasks off and share with fellow HeartNETters when completed
  • Where to from here? HeartNET will continue until completion of current PhD Community will continue to grow Members will continue to have a voice
  • Contact details Lynsey Uridge Moderator HeartNET PhD Candidate Edith Cowan University 2 Bradford street Mt Lawley WA 6050 P: (08) 9370 6337 E: l.uridge@ecu.edu.au W: www.heartNET.com.au