Programme( 15.00&h &RegistraFon&                  Welcome! 15.30&h &Social&media:&the&big&picture,(Lykle(de(Vries&(De&Onde...
wifi: UMCU-GASTENmaandag 23 april 12
@UtrechtLS                       #SMiLSmaandag 23 april 12
Schedule                      •   15.30 Social media: the big picture,                          How have Social Media chan...
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
Who...maandag 23 april 12
recent numbersmaandag 23 april 12
45%                      http://www.imedicalapps.com/2012/04/report-demonstrates-healthcare-organizations-failing-capitali...
45%                      http://www.imedicalapps.com/2012/04/report-demonstrates-healthcare-organizations-failing-capitali...
The Big Picturemaandag 23 april 12
let’s get introducedmaandag 23 april 12
Lykle de Vries                      @lykle                                     foto: Judith van der Meulenmaandag 23 april...
maandag 23 april 12
New Business Development                          Open Innovation                        Social Media Strategymaandag 23 a...
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
What about Social                          Media?maandag 23 april 12
http://www.youtube.com/watch?v=lFZ0z5Fm-Ngmaandag 23 april 12
http://www.flickr.com/photos/jorge-11/4817642638/in/photostream/maandag 23 april 12
Radio                              http://www.flickr.com/photos/imh/3297961043/maandag 23 april 12
TV                           http://www.flickr.com/photos/roadsidepictures/276395210/maandag 23 april 12
http://www.flickr.com/photos/inju/112082907/maandag 23 april 12
http://www.storytellersmediagroup.com/maandag 23 april 12
http://www.flickr.com/photos/fdtate/5823000083/in/photostream/maandag 23 april 12
http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
Closed                       Selective                      Controlling                                    http://www.flick...
http://www.flickr.com/photos/perspective/76640090/in/photostream/maandag 23 april 12
maandag 23 april 12
http://www.flickr.com/photos/antjeverena/3368703708/in/photostream/maandag 23 april 12
http://www.flickr.com/photos/antjeverena/3368703708/in/photostream/maandag 23 april 12
http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
Open                       Random                      Supportive                                   http://www.flickr.com/p...
some examplesmaandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
How to applymaandag 23 april 12
http://www.flickr.com/photos/ter-burg/5846043943/in/photostream/maandag 23 april 12
http://www4.picturepush.com/photo/a/2856902/img/foto-voor-                                  bij-mijn-gedichten-/Poezie-alb...
http://www.flickr.com/photos/renaissancechambara/3122900531/in/photostream/maandag 23 april 12
http://smash-gtennis.nl/wp-content/uploads/2012/01/IMG_95711.jpgmaandag 23 april 12
what about bad news?maandag 23 april 12
People connect             online with their              offline friends.            People love to          connect to p...
Positive experiences                are bigger conversation                 starters than negative                experien...
People prefer to                        share positive                      brand experiences                       on soc...
PwC Health Research Institute – Social media “likes” healthcare                                                           ...
Some more examplesmaandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
maandag 23 april 12
How to applymaandag 23 april 12
http://www.flickr.com/photos/jamesjordan/2649170201/maandag 23 april 12
Best Practicesmaandag 23 april 12
Erik Vollebregtmaandag 23 april 12
SOCIAL MEDIA IN             LIFE SCIENCES             Presentatienaam   Presentator             datum             www.axon...
Overview             • 2 twitter accounts                      • @axonlawyers                      • meddevlegal          ...
maandag 23 april 12
Our philosophy             Information wants to be free, so we offer free, relevant, expert content             • No stupi...
Sijme Zeilemakermaandag 23 april 12
Social Media @to_BBB        Sijme Zeilemaker        Business Development Associate                      to-BBB technologie...
Brief introduction        • to-BBB: Blood-Brain Barrier        • G-Technology: safely enhancing drug delivery to the brain...
Corporate Communication Profile     GSK, Janssen, Genzyme, etc.    Smaller CNS/oncology biotech                           ...
Corporate Communication Profile                         WEBSITE                                    ?     GSK, Janssen, Gen...
Social Media?        • May 2011              – to-BBB only had an inactive LinkedIn company page              – Decision t...
Social Media Platform        • Using Hootsuite to send messages to all social media        • Schedule messages in Publishe...
Social Media Platformmaandag 23 april 12
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on websitemaandag 23 apr...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on websitemaandag 23 apr...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Social Media Platform   • to-BBB press releases – also on website   • Press/media coverage – also on website   • Announce ...
Statistical Outputmaandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…maandag 23 april 12
Statistical Output        • Followers: growing…        • Exposure: growing…                      Twitter Clicks           ...
Favorites        • The more visual, the better…              – Movie from BIO-Europe Spring              – Movie from Medi...
Complementary to website and each othermaandag 23 april 12
Tips & Tricks        • Social Media can consume 2-80 hrs/week        • Work smart -> integrate social media platform      ...
Outstanding questionsmaandag 23 april 12
Outstanding questions        Discussion pointsmaandag 23 april 12
Outstanding questions        Discussion points        •How to involve patient organizations –        and even individual p...
Outstanding questions        Discussion points        •How to involve patient organizations –        and even individual p...
Outstanding questions        Discussion points        •How to involve patient organizations –        and even individual p...
Follow us!                      to-BBB technologies BV    Sijme Zeilemaker                 Phone   +31 71 33 222 56   E-ma...
Martijn van Oijenmaandag 23 april 12
@martijnvanoijen   #SocialMedicamaandag 23 april 12
@martijnvanoijen   #SocialMedicamaandag 23 april 12
1 2 3                  Introducing                 #SocialMedica                                      #SocialMedica       ...
Overview                      1 2 3                  Introducing                 #SocialMedica                            ...
1             Introducing                                    #SocialMedica           “Crohns is kicking me over and over a...
1992:                       - Encyclopedia                       - Talk to                      neighbors                 ...
#SocialMedica: Using Social Media                      to increase quality of healthcare                       Healthcare ...
#SocialMedica: Using Social Media                      to increase quality of healthcare                       Healthcare ...
#SocialMedica: Using Social Media                      to increase quality of healthcare                       Healthcare ...
2       #SocialMedica version                              1.0                 The use of Twitter to identify patients wit...
Introducing Twitter                      Micro-blogging:                      • ‘Tweet’: 140 characters                   ...
Feasibility study:                              – Are we able to identify          Aim of the study                       ...
Tweets with                                          “Crohn”                                         N=6,084              ...
Tweets with                                              “Crohn”                                             N=6,084      ...
Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Orginal tweets                                       Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Orginal tweets                                       Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Orginal tweets                      ‘I havent eaten food in 2 days and no appetite                         whats...
Results – Orginal tweets              ‘Found out my friend is in the hospital with Crohns and                   has to hav...
Results – Orginal tweets                                       Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Patient’ tweets                                        Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Patient’ tweets                                        Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Patient’ tweets         @genag515 Wish I was full of energy and joys.. But on Social Security right           no...
Results – Patient’ tweets                                        Van Oijen et al. (DDW 2012)maandag 23 april 12
Results – Patient’ tweets                      ‘Seizure caused by low calcium, VitD & magnesium. But I                    ...
Conclusion       • Patients identifiably             • Patient’ tweets largest category                • Coping & limitatio...
‘#Crohns will not keep me     down! Well maybe sitting..’maandag 23 april 12
‘#Crohns will not keep me     down! Well maybe sitting..’maandag 23 april 12
3     Future plans             Real-time automated measurement of patients’ geotagged                                     ...
#SocialMedica, version 2.0                                       Feasibility                                         Auto...
Tweets          #SocialMedica, version 2.0   Containing                                        ‘Crohn’maandag 23 april 12
Tweets          #SocialMedica, version 2.0   Containing                                        ‘Crohn’                    ...
Tweets          #SocialMedica, version 2.0          Containing                                               ‘Crohn’      ...
Tweets          #SocialMedica, version 2.0          Containing                                               ‘Crohn’      ...
Twitter density – Losmaandag 23 april 12                      Angeles
Twitter density -maandag 23 april 12                      Amsterdam
Acknowledgements                             Rachel Huisman, MD         Victoria Sheen, MD                             Mir...
@martijnvanoijen   #SocialMedicamaandag 23 april 12
@martijnvanoijen   #SocialMedicamaandag 23 april 12
Wrap-upmaandag 23 april 12
http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
Open                       Random                      Supportive                                   http://www.flickr.com/p...
http://www.flickr.com/photos/jamesjordan/2649170201/maandag 23 april 12
maandag 23 april 12
Webinars!                       7, 14, 21 May                         20.00 hmaandag 23 april 12
maandag 23 april 12
Saskia Ebeling                      Aernout van Haarst                           Irma Vijn                      Annika van...
Programme( 15.00&h &RegistraFon&         Enjoy the drinks! 15.30&h &Social&media:&the&big&picture,(Lykle(de(Vries&(De&Onde...
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Social Media in Life Sciences

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Utrecht Life Science, Niaba and Syntens organized a seminar dedicated to uses for Social Media in Life Sciences. I gave a big picture overview, and Erik Vollebregt, Sijme Zeilemaker and Martijn van Oijen provided focused Best Practices.

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Social Media in Life Sciences

  1. 1. Programme( 15.00&h &RegistraFon& Welcome! 15.30&h &Social&media:&the&big&picture,(Lykle(de(Vries&(De&Ondernemers)& &How&have&Social&Media&changed&the&world?&Including&interesFng&cases&that&are&relevant&& &to&Life&Sciences.& 16.00&h& &Best&pracFces,&examples&from&entrepreneurs&and&scienFsts:& &Erik(Vollebregt&(Axon&Lawyers)&will&outline&how&he&uses&blogs&and&twi;er&to&reach&maandag 23 april 12 &his&audience&and&clients.&
  2. 2. wifi: UMCU-GASTENmaandag 23 april 12
  3. 3. @UtrechtLS #SMiLSmaandag 23 april 12
  4. 4. Schedule • 15.30 Social media: the big picture, How have Social Media changed the world? • 16.00 Best practices: • Erik Vollebregt (Axon Lawyers) • Sijme Zeilemaker (to-BBB) • Martijn van Oijen (Assistant Professor of Medicine, Division of Digestive Diseases, #UCLA) • 17.00 Drink & Hands-on helpmaandag 23 april 12
  5. 5. Who...maandag 23 april 12
  6. 6. Who...maandag 23 april 12
  7. 7. Who...maandag 23 april 12
  8. 8. Who...maandag 23 april 12
  9. 9. Who...maandag 23 april 12
  10. 10. Who...maandag 23 april 12
  11. 11. Who...maandag 23 april 12
  12. 12. Who...maandag 23 april 12
  13. 13. Who...maandag 23 april 12
  14. 14. recent numbersmaandag 23 april 12
  15. 15. 45% http://www.imedicalapps.com/2012/04/report-demonstrates-healthcare-organizations-failing-capitalize-social-media/maandag 23 april 12
  16. 16. 45% http://www.imedicalapps.com/2012/04/report-demonstrates-healthcare-organizations-failing-capitalize-social-media/maandag 23 april 12
  17. 17. The Big Picturemaandag 23 april 12
  18. 18. let’s get introducedmaandag 23 april 12
  19. 19. Lykle de Vries @lykle foto: Judith van der Meulenmaandag 23 april 12
  20. 20. maandag 23 april 12
  21. 21. New Business Development Open Innovation Social Media Strategymaandag 23 april 12
  22. 22. maandag 23 april 12
  23. 23. maandag 23 april 12
  24. 24. maandag 23 april 12
  25. 25. maandag 23 april 12
  26. 26. What about Social Media?maandag 23 april 12
  27. 27. http://www.youtube.com/watch?v=lFZ0z5Fm-Ngmaandag 23 april 12
  28. 28. http://www.flickr.com/photos/jorge-11/4817642638/in/photostream/maandag 23 april 12
  29. 29. Radio http://www.flickr.com/photos/imh/3297961043/maandag 23 april 12
  30. 30. TV http://www.flickr.com/photos/roadsidepictures/276395210/maandag 23 april 12
  31. 31. http://www.flickr.com/photos/inju/112082907/maandag 23 april 12
  32. 32. http://www.storytellersmediagroup.com/maandag 23 april 12
  33. 33. http://www.flickr.com/photos/fdtate/5823000083/in/photostream/maandag 23 april 12
  34. 34. http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  35. 35. Closed Selective Controlling http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  36. 36. http://www.flickr.com/photos/perspective/76640090/in/photostream/maandag 23 april 12
  37. 37. maandag 23 april 12
  38. 38. http://www.flickr.com/photos/antjeverena/3368703708/in/photostream/maandag 23 april 12
  39. 39. http://www.flickr.com/photos/antjeverena/3368703708/in/photostream/maandag 23 april 12
  40. 40. http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  41. 41. Open Random Supportive http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  42. 42. some examplesmaandag 23 april 12
  43. 43. maandag 23 april 12
  44. 44. maandag 23 april 12
  45. 45. maandag 23 april 12
  46. 46. maandag 23 april 12
  47. 47. How to applymaandag 23 april 12
  48. 48. http://www.flickr.com/photos/ter-burg/5846043943/in/photostream/maandag 23 april 12
  49. 49. http://www4.picturepush.com/photo/a/2856902/img/foto-voor- bij-mijn-gedichten-/Poezie-album.jpgmaandag 23 april 12
  50. 50. http://www.flickr.com/photos/renaissancechambara/3122900531/in/photostream/maandag 23 april 12
  51. 51. http://smash-gtennis.nl/wp-content/uploads/2012/01/IMG_95711.jpgmaandag 23 april 12
  52. 52. what about bad news?maandag 23 april 12
  53. 53. People connect online with their offline friends. People love to connect to people. 38maandag 23 april 12
  54. 54. Positive experiences are bigger conversation starters than negative experiences. People like positive stuff. 39maandag 23 april 12
  55. 55. People prefer to share positive brand experiences on social mediamaandag 23 april 12
  56. 56. PwC Health Research Institute – Social media “likes” healthcare People prefer to 5 Chart Pack share positive brand experiences on social mediamaandag 23 april 12
  57. 57. Some more examplesmaandag 23 april 12
  58. 58. maandag 23 april 12
  59. 59. maandag 23 april 12
  60. 60. maandag 23 april 12
  61. 61. maandag 23 april 12
  62. 62. maandag 23 april 12
  63. 63. maandag 23 april 12
  64. 64. How to applymaandag 23 april 12
  65. 65. http://www.flickr.com/photos/jamesjordan/2649170201/maandag 23 april 12
  66. 66. Best Practicesmaandag 23 april 12
  67. 67. Erik Vollebregtmaandag 23 april 12
  68. 68. SOCIAL MEDIA IN LIFE SCIENCES Presentatienaam Presentator datum www.axonadvocaten.nlmaandag 23 april 12
  69. 69. Overview • 2 twitter accounts • @axonlawyers • meddevlegal • LinkedIn accounts (+ one In account) • 2 websites • Axonlawyers.com • AELSLF.eu • 2 blogs • Medicaldeviceslegal.com • Biotechlegal.wordpress.com • Mailinglist to email fed from CRM systemmaandag 23 april 12
  70. 70. maandag 23 april 12
  71. 71. Our philosophy Information wants to be free, so we offer free, relevant, expert content • No stupid paywalls etc People retweet and forward our information because it’s relevant to them or to others • They feel that any message is worthwhile We seek to exploit multipliers via other parties and deploy content in as many channels as possible • Always retain rights on published contentsmaandag 23 april 12
  72. 72. Sijme Zeilemakermaandag 23 april 12
  73. 73. Social Media @to_BBB Sijme Zeilemaker Business Development Associate to-BBB technologies BV Sijme Zeilemaker Phone +31 71 33 222 56 E-mail SijmeZeilemaker@toBBB.com Leiden, The Netherlands Business Development Associate Fax +31 84 83 134 09 Web www.toBBB.commaandag 23 april 12
  74. 74. Brief introduction • to-BBB: Blood-Brain Barrier • G-Technology: safely enhancing drug delivery to the brain • Strategy: – Develop off-patent compounds for brain indications – Collaborate with big pharma on patented compounds • Lead product: brain-targeted chemotherapy (2B3-101) – Significant brain tumor reduction in preclinical testing – Started dose-escalation clinical phase I/IIa trial in 2011 – Patients with solid tumors and brain metastases – Patients with primary brain tumor glioma • Many potential products in pipelinemaandag 23 april 12
  75. 75. Corporate Communication Profile GSK, Janssen, Genzyme, etc. Smaller CNS/oncology biotech Patients hoping for a cure Venture Capital Private equity Grant providers Volkskrant, FD, Telegraa International journalseiden, UvA, VU, UU, Erasmusnternational research groups Job vacancies Internships CROs Consultants maandag 23 april 12
  76. 76. Corporate Communication Profile WEBSITE ? GSK, Janssen, Genzyme, etc. Smaller CNS/oncology biotech Patients hoping for a cure Venture Capital Private equity Grant providers Volkskrant, FD, Telegraa International journalseiden, UvA, VU, UU, Erasmusnternational research groups Job vacancies Internships CROs Consultants maandag 23 april 12
  77. 77. Social Media? • May 2011 – to-BBB only had an inactive LinkedIn company page – Decision to look into social media – Search for comparable companies: • Some small biotechs use Twitter • Most small biotech & big pharma have LinkedIn • Most big pharma use Twitter • Some big pharma have Facebook page • Decision to go for social media platform – LinkedIn, Facebook & Twitter – Connect media by synchronizing messages to all - with • September 2011: launch social media platform • October 2011: launch new website tobbb.commaandag 23 april 12
  78. 78. Social Media Platform • Using Hootsuite to send messages to all social media • Schedule messages in Publisher • Minimizing effort -> maximizing exposuremaandag 23 april 12
  79. 79. Social Media Platformmaandag 23 april 12
  80. 80. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on websitemaandag 23 april 12
  81. 81. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on websitemaandag 23 april 12
  82. 82. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending eventsmaandag 23 april 12
  83. 83. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending events • Announce who is giving presentationsmaandag 23 april 12
  84. 84. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending events • Announce who is giving presentations • Retweet exposure to-BBB by othersmaandag 23 april 12
  85. 85. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending events • Announce who is giving presentations • Retweet exposure to-BBB by others • Retweet interesting associated messagesmaandag 23 april 12
  86. 86. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending events • Announce who is giving presentations • Retweet exposure to-BBB by others • Retweet interesting associated messages • Vacancies & internshipsmaandag 23 april 12
  87. 87. Social Media Platform • to-BBB press releases – also on website • Press/media coverage – also on website • Announce who is attending events • Announce who is giving presentations • Retweet exposure to-BBB by others • Retweet interesting associated messages • Vacancies & internships • Charity activities – Hersenstichting, STOPhersentumoren.nlmaandag 23 april 12
  88. 88. Statistical Outputmaandag 23 april 12
  89. 89. Statistical Output • Followers: growing…maandag 23 april 12
  90. 90. Statistical Output • Followers: growing…maandag 23 april 12
  91. 91. Statistical Output • Followers: growing…maandag 23 april 12
  92. 92. Statistical Output • Followers: growing…maandag 23 april 12
  93. 93. Statistical Output • Followers: growing…maandag 23 april 12
  94. 94. Statistical Output • Followers: growing…maandag 23 april 12
  95. 95. Statistical Output • Followers: growing… • Exposure: growing… Twitter Clicks 50 38 25 13 0 Sep Oct Nov Dec Jan Feb Mar Aprmaandag 23 april 12
  96. 96. Favorites • The more visual, the better… – Movie from BIO-Europe Spring – Movie from Medisch Contact – Interview articles in newspapers • Event announcements – Not by clicks, but feedback in real life • Interesting: minor interest in important press releasesmaandag 23 april 12
  97. 97. Complementary to website and each othermaandag 23 april 12
  98. 98. Tips & Tricks • Social Media can consume 2-80 hrs/week • Work smart -> integrate social media platform • Adds dimension to company website and press releases • Lay out some ground rules with management • Stay positive!maandag 23 april 12
  99. 99. Outstanding questionsmaandag 23 april 12
  100. 100. Outstanding questions Discussion pointsmaandag 23 april 12
  101. 101. Outstanding questions Discussion points •How to involve patient organizations – and even individual patients?maandag 23 april 12
  102. 102. Outstanding questions Discussion points •How to involve patient organizations – and even individual patients? •How to attract scientists to company?maandag 23 april 12
  103. 103. Outstanding questions Discussion points •How to involve patient organizations – and even individual patients? •How to attract scientists to company? •How to significantly increase exposure/ followers?maandag 23 april 12
  104. 104. Follow us! to-BBB technologies BV Sijme Zeilemaker Phone +31 71 33 222 56 E-mail SijmeZeilemaker@toBBB.com Leiden, The Netherlands Business Development Associate Fax +31 84 83 134 09 Web www.toBBB.commaandag 23 april 12
  105. 105. Martijn van Oijenmaandag 23 april 12
  106. 106. @martijnvanoijen #SocialMedicamaandag 23 april 12
  107. 107. @martijnvanoijen #SocialMedicamaandag 23 april 12
  108. 108. 1 2 3 Introducing #SocialMedica #SocialMedica version 1.0 Future plans Identification of patients, their needs and demands by use of available data from Social Network platformsmaandag 23 april 12
  109. 109. Overview 1 2 3 Introducing #SocialMedica #SocialMedica version 1.0 Future plans Identification of patients, their needs and demands by use of available data from Social Network platformsmaandag 23 april 12
  110. 110. 1 Introducing #SocialMedica “Crohns is kicking me over and over again this month. I hope I dont have to increase treatment”maandag 23 april 12
  111. 111. 1992: - Encyclopedia - Talk to neighbors - Call your family Rationale 2012: - Google / Wikipedia - Social Mediamaandag 23 april 12
  112. 112. #SocialMedica: Using Social Media to increase quality of healthcare Healthcare clinic Rationale Patientmaandag 23 april 12
  113. 113. #SocialMedica: Using Social Media to increase quality of healthcare Healthcare Provider clinic Rationale Patientmaandag 23 april 12
  114. 114. #SocialMedica: Using Social Media to increase quality of healthcare Healthcare Provider clinic Rationale Patient Provider Patient Patientmaandag 23 april 12
  115. 115. 2 #SocialMedica version 1.0 The use of Twitter to identify patients with Crohn’s diseasemaandag 23 april 12
  116. 116. Introducing Twitter Micro-blogging: • ‘Tweet’: 140 characters • ‘Re-tweet’: Republished tweet Twittermaandag 23 april 12
  117. 117. Feasibility study: – Are we able to identify Aim of the study Crohn’s patients on Twitter? – Is it a useful tool for measurement of disease activity and unmet needs?maandag 23 april 12
  118. 118. Tweets with “Crohn” N=6,084 Language = English and Dutch N=5,421 Original tweets Re-tweets N=2,236 (41%) N=3,185 (59%)maandag 23 april 12
  119. 119. Tweets with “Crohn” N=6,084 Language = English and Dutch N=5,421 Original tweets Re-tweets N=2,236 (41%) N=3,185 (59%) Patients Friends or Non-Profit or Healthcare Pharma/ N=987 (44%) Relatives Foundations Professionals Biotech N=484 (22%) N=432 (19%) N=167 (7%) N=137 (6%) Unclassified N=29(1%)maandag 23 april 12
  120. 120. Van Oijen et al. (DDW 2012)maandag 23 april 12
  121. 121. Results – Orginal tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  122. 122. Results – Orginal tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  123. 123. Results – Orginal tweets ‘I havent eaten food in 2 days and no appetite whatsoever. I’m used to this with #Crohns’ Van Oijen et al. (DDW 2012)maandag 23 april 12
  124. 124. Results – Orginal tweets ‘Found out my friend is in the hospital with Crohns and has to have a bowel resection. I never knew :(‘ Van Oijen et al. (DDW 2012)maandag 23 april 12
  125. 125. Results – Orginal tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  126. 126. Results – Patient’ tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  127. 127. Results – Patient’ tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  128. 128. Results – Patient’ tweets @genag515 Wish I was full of energy and joys.. But on Social Security right now due to crohns, I hope I’m going back to work very soon Van Oijen et al. (DDW 2012)maandag 23 april 12
  129. 129. Results – Patient’ tweets Van Oijen et al. (DDW 2012)maandag 23 april 12
  130. 130. Results – Patient’ tweets ‘Seizure caused by low calcium, VitD & magnesium. But I dont have any direct Crohns symptoms now.’ Van Oijen et al. (DDW 2012)maandag 23 april 12
  131. 131. Conclusion • Patients identifiably • Patient’ tweets largest category • Coping & limitations in daily activity • Disease activity • Twitter feasible to be a new data source for research Van Oijen et al. (DDW 2012)maandag 23 april 12
  132. 132. ‘#Crohns will not keep me down! Well maybe sitting..’maandag 23 april 12
  133. 133. ‘#Crohns will not keep me down! Well maybe sitting..’maandag 23 april 12
  134. 134. 3 Future plans Real-time automated measurement of patients’ geotagged reportsmaandag 23 april 12
  135. 135. #SocialMedica, version 2.0 Feasibility Automated processes Linking to other platforms Follow over time Geotaggingmaandag 23 april 12
  136. 136. Tweets #SocialMedica, version 2.0 Containing ‘Crohn’maandag 23 april 12
  137. 137. Tweets #SocialMedica, version 2.0 Containing ‘Crohn’ NLP Dynamic Cohortmaandag 23 april 12
  138. 138. Tweets #SocialMedica, version 2.0 Containing ‘Crohn’ NLP Dynamic Cohort Facebook LinkedIn YELPmaandag 23 april 12
  139. 139. Tweets #SocialMedica, version 2.0 Containing ‘Crohn’ NLP Follow Dynamic over time Cohort Facebook LinkedIn YELPmaandag 23 april 12
  140. 140. Twitter density – Losmaandag 23 april 12 Angeles
  141. 141. Twitter density -maandag 23 april 12 Amsterdam
  142. 142. Acknowledgements Rachel Huisman, MD Victoria Sheen, MD Mirthe van der Valk, MD Rusha Modi, MD Lieske Scholtus Corey Arnold, PhD Vincent de Widt Eric Fischer, MCS Herma Fidder, MD PhD Garth Fuller, MPH Brennan Spiegel, MD MSHS Bart Kokke Stef de Jongmaandag 23 april 12
  143. 143. @martijnvanoijen #SocialMedicamaandag 23 april 12
  144. 144. @martijnvanoijen #SocialMedicamaandag 23 april 12
  145. 145. Wrap-upmaandag 23 april 12
  146. 146. http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  147. 147. Open Random Supportive http://www.flickr.com/photos/scott_rtw/1350993666/maandag 23 april 12
  148. 148. http://www.flickr.com/photos/jamesjordan/2649170201/maandag 23 april 12
  149. 149. maandag 23 april 12
  150. 150. Webinars! 7, 14, 21 May 20.00 hmaandag 23 april 12
  151. 151. maandag 23 april 12
  152. 152. Saskia Ebeling Aernout van Haarst Irma Vijn Annika van Rosmalenmaandag 23 april 12
  153. 153. Programme( 15.00&h &RegistraFon& Enjoy the drinks! 15.30&h &Social&media:&the&big&picture,(Lykle(de(Vries&(De&Ondernemers)& &How&have&Social&Media&changed&the&world?&Including&interesFng&cases&that&are&relevant&& &to&Life&Sciences.& 16.00&h& &Best&pracFces,&examples&from&entrepreneurs&and&scienFsts:& &Erik(Vollebregt&(Axon&Lawyers)&will&outline&how&he&uses&blogs&and&twi;er&to&reach&maandag 23 april 12 &his&audience&and&clients.&
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