Royal Society of Medicine

Patients as Partners Radboud REshape & Innovation Centerdonderdag 5 juli 12

Lucien Engelen (@lucienengelen) Radboud University Medical Centre, The Netherlands Head Regional Emergency Network Director Radboud REshape & Innovation Center Advisory to the Executive Committee NOT a doctor, and extremely IMpatient ;-)donderdag 5 juli 12

donderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right !donderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right ! patients know bestdonderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right ! patients know best is only constant systemdonderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right ! patients know best is only constant system over 250 communities by 2015donderdag 5 juli 12

Crowdsourcing Adolescent Young Adults community Tossing in some innovations Crowdfunding (WILL change HC) Gutfeelingdonderdag 5 juli 12

How many of you are here because they are :donderdag 5 juli 12

How many of you are here because they are : doctors ?donderdag 5 juli 12

How many of you are here because they are : doctors ? policymakers ?donderdag 5 juli 12

How many of you are here because they are : doctors ? policymakers ? management ?donderdag 5 juli 12

How many of you are here because they are : doctors ? policymakers ? management ? researchers ?donderdag 5 juli 12

How many of you are here because they are : doctors ? policymakers ? management ? researchers ? patients ?donderdag 5 juli 12

donderdag 5 juli 12

Medicine X Stanford Medicine 2.0 Harvard TEDMED Wash DC Doctors 2.0 Paris TEDxMaastricht World PD conference National Health Debate ....donderdag 5 juli 12

Medicine X Stanford Medicine 2.0 Harvard TEDMED Wash DC Doctors 2.0 Paris TEDxMaastricht World PD conference National Health Debate .... Radboud REshape & Innovation Centerdonderdag 5 juli 12

from Health1 . 0 to Participatory Healthcare Participatory Healthcare Participatory Medicine Health 2.0 Health 1.0 Radboud REshape & Innovation Centerdonderdag 5 juli 12

from Health1 . 0 to Participatory Healthcare Participatory Healthcare Participatory Medicine Health 2.0 Health 1.0 found 46 deﬁnitions of Health 2.0 Radboud REshape & Innovation Centerdonderdag 5 juli 12

donderdag 5 juli 12

Radboud REshape : dare to dream ... dare to do ... dare to fail ...donderdag 5 juli 12

Radboud REshape & Innovation Center Radboud REshape & Innovation Center Engelen, Derksen 2010donderdag 5 juli 12

Shift happening in Media Radboud REshape & Innovation Centerdonderdag 5 juli 12

Shift happening in regimes Radboud REshape & Innovation Centerdonderdag 5 juli 12

Use of SoMe by hospitals in Europe and USA (%) Youtube Twitter Facebook Linkedin Radboud REshape & Innovation Center Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = Hyves USA: Data of Ed Bennet www.ebennett.orgdonderdag 5 juli 12

Use of SoMe by hospitals in Europe and USA (%) 60 50 40 30 20 10 0 Germany Switzerland Austria Sweden Norway UK Netherlands USA Youtube Twitter Facebook Linkedin Radboud REshape & Innovation Center Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = Hyves USA: Data of Ed Bennet www.ebennett.orgdonderdag 5 juli 12

Radboud REshape & Innovation Centerdonderdag 5 juli 12

donderdag 5 juli 12

Crowdsourcing = outsourcingdonderdag 5 juli 12

Crowdsourcing = outsourcing Wisdom of the crowdsdonderdag 5 juli 12

Crowdsourcing = outsourcing Wisdom of the crowds Crowd fundingdonderdag 5 juli 12

Ask the crowd for help Radboud REshape & Innovation Centerdonderdag 5 juli 12

Passed 100.000 downloads 17.5000 AED’s in Database Soon blind spots and geo-send to dispatch Run by UMC so in-dependent non-commercial Worldwide coverage Radboud REshape & Innovation Centerdonderdag 5 juli 12

Joined now : Radboud REshape & Innovation Centerdonderdag 5 juli 12

Joined now : teers ED vo lun 20.0 0 0 A so urci ng owd activ ely cr Radboud REshape & Innovation Centerdonderdag 5 juli 12

Joined now : teers ED vo lun 20.0 0 0 A so urci ng owd activ ely cr Would LOVE to collaborate i.e. with : Radboud REshape & Innovation Centerdonderdag 5 juli 12

Prof. Dr. Bas Bloem Consulting Neurologist Radboud University Medical Centre Radboud REshape & Innovation Centerdonderdag 5 juli 12

Prof. Dr. Bas Bloem Consulting Neurologist Radboud University Medical Centre We’ve asked the help of PD patients : over 50 patient-opinions 321.000 impressions Radboud REshape & Innovation Centerdonderdag 5 juli 12

Prof. Dr. Bas Bloem Consulting Neurologist Radboud University Medical Centre We’ve asked the help of PD patients : over 50 patient-opinions 321.000 impressions within 24 hours Radboud REshape & Innovation Centerdonderdag 5 juli 12

www.parkinsonsvoice.org Radboud REshape & Innovation Centerdonderdag 5 juli 12

www.parkinsonsvoice.org co-founder INTEL, Any Grove PD patient had a lot of data, Max ran algorithms Claimes now 99% accurate Radboud REshape & Innovation Centerdonderdag 5 juli 12

www.parkinsonsvoice.org co-founder INTEL, Any Grove PD patient had a lot of data, Max ran algorithms Claimes now 99% accurate Goal 10.000 in 3 days 3.500 recordings Radboud REshape & Innovation Center Max Little, TED Fellow : maxl@mit.edudonderdag 5 juli 12

MyHealthstory.me Radboud REshape & Innovation Centerdonderdag 5 juli 12

MyHealthstory.me Dr Roni Zeiger MD a.k.a. Radboud REshape & Innovation Centerdonderdag 5 juli 12

Empower patients Disrupt healthcare No add. hardware Secure Recording Radboud REshape & Innovation Centerdonderdag 5 juli 12

option Physiotherapist other clinic Neurologist “ The Patient isand or group consult hospital visit offered virtual from Multi Disciplinary MS Team ” Patient at home Radboud REshape & Innovation Center option Relative at workdonderdag 5 juli 12

donderdag 5 juli 12

So, we often THINK we know what our patients need, want or looking for, but we DON’T !donderdag 5 juli 12

CLO Chief Listening Officer Radboud REshape & Innovation Centerdonderdag 5 juli 12

Radboud REshape & Innovation Center 900 people , 3500 waitinglist, 35 locations worldwidedonderdag 5 juli 12

February 4th, 2013 Radboud REshape & Innovation Centerdonderdag 5 juli 12

donderdag 5 juli 12

www.patienstscrowds.comdonderdag 5 juli 12

www.patienstscrowds.com crowdfunding for health(care)donderdag 5 juli 12

www.patienstscrowds.com crowdfunding for health(care) organize patients(groups) to design & fund researchdonderdag 5 juli 12

www.patienstscrowds.com crowdfunding for health(care) organize patients(groups) to design & fund research non-geographicaldonderdag 5 juli 12

donderdag 5 juli 12

Patients are least utilized resources in HCdonderdag 5 juli 12

Patients are least utilized resources in HC you can’t keep up with speed of technologydonderdag 5 juli 12

Patients are least utilized resources in HC you can’t keep up with speed of technology The crowd will change HC dramaticallydonderdag 5 juli 12

Building a kind of Swiss Army knife Radboud REshape & Innovation Centerdonderdag 5 juli 12

donderdag 5 juli 12

This is where all the magic happensdonderdag 5 juli 12

This is where Your all the comfort zone magic happensdonderdag 5 juli 12

REshape : Dare to dream ... Dare to do ... Dare to fail ...donderdag 5 juli 12

http://businessclub.name	27
http://www.linkedin.com	20
http://www.experience-economy.com	19

Royal Society of Medicine

by Lucien Engelen on Jul 05, 2012

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