Communities of practice vs the status quo

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2011 UK Mental Health 2.0
A presentation on service delivery level - forming conversations on collaborative models of working between service user led and service led mental health.
Framing thinking for ongoing innovation.

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  • As we go along I’m going to pose you some questions.
  • . CoPs can exist online, such as within discussion boards and newsgroups, or in real life, such as in a lunch room at work, in a field setting, on a factory floor, or elsewhere in the environment.While Lave and Wenger coined the term in the 1990s, this type of learning practice has existed for as long as people have been learning and sharing their experiences through storytelling.In relation to mental health – these communities of practice have been developing because of the digital medium itself and because this work began before ‘powers that be’ – local government or Health care services identified the practice. Within the over all umbrella community of practice – mental health 2.o there are subsets of communties. These are useful to be able to identify. This methodology will evolves’s organically and groupings are identfied rather than areas’ being defined then knowledge sought.
  • What is the current status quo for mental health? Who are the pillars for this status quo?What do they need to understand about The Brave New World.Power and Control. The status quo is an age old description of power and control. The situations can change but the issue is the same.Where digital mental health work in the principles of social media is the redefining of the power structures.
  • Commissioners – role changing. Economic situation. Information age. Just to note:Funding for mental health in the UK is mainly joint funded by Health (Primary Care Trust) & Social Care – (Adult Social Services)Contract’s awarded to Voluntary sector – dependent on specific outcomesMental Health Trust’s work independently but to same outcomesSome independent funding – or ring fenced. I won’t go too deeply into what our funding is – but what is important is understanding it –it’s processes & expectations in order to understand the cultures who will be ultimately influencing the digital service design that you would be developing, using etc.
  • Conversation is happening all over the place with hash tags on twitter – without hashtags. Forums, discussion groups.My involvement has watched these conversations and used my experience to understand how to intervene appropriately – how to influence policy.I can do this as an individual – but as a worker?
  • Good – evidence based – saving money or example, 27% of members are from BME communities and men are over a third of our membership. We are outcome focused. Last month 88% of members found Big White Wall fairly or very helpful in managing their condition without any other form of support and nearly a half found it useful in finding work or improving work performance 
  In cost terms, the model of an independent specialist showed that we make conservative estimates of direct preventative cost savings to the NHS of £34 000 per 100 people (attached). 
  • Comissioners – feedback loop – development – became a social enterprise – core development team – co-productive mental health & strategy with technical expertise. Involvement of young people in fulll process – not just tokenism. Changing the way technical team’s delivery product & service.
  • Effective business model – feedback look – pay to respond.James MunroCollabating with spain.
  • Andy hasn’t been shy about his business approach – he has done ‘deal’s’ with Local and national gov, alcoholic beverages, education providers. He challenges thought on the traditional ways that mental health ‘should be done’ by the deals he makes.
  • Data hacking and owning data Is starting to be a key movement in the UK – independent city hacking. Entrepreneurs. With coders amongst others.Front end is about story telling/ sharing/ guidingBack end is the same – but it’s also the building blocks – and will drive the innovation
  • My personal experience is that it is 6 years on from my original point of work. I have been able to move the commissioners & health care providers perspective on and I have been able to initiatte online networks that are I belive the building blocks for a cutural shift.Services in the UK are starting to get, that they don’t get it. And that they need to get it. But they are now dividing into 2 camps. One is the panic camp. One is the measured ‘right, lets invest some time and expertise in understanding’ That’s difficult at a time when they are simultaneously being forced into cutting anything that is seen as an extra to direct service provision.So a lot not has to be couched in how to meet real current need. Which is no bad thing.I’m entrepreurial and a little bit of an artist/ inventor. So it can be very interesting to me to start to work out an interesting product/ idea.What’s good about the current constraints is it keeps it ‘real’ – simplicity.
  • What do you want? To be safeTo have choiceTo share knowledge as well as learn what is relevant to themResearch – basis – asking. Anecdotal.
  • I make a correlation when discussing with health care professionals the change that happened in the mental health care system that we are all aware of. The time of the Lunatic asylum which when began were the places offering support to the most vulnerable. But the survivors of High Royds and many similar places talk about really, what was abuses of power whether known or unknown and most likely for the right reasons – from an orignial desire to protect people from harm or harming others. Moving from that to current acute services and community services was a change. Moving towards a community cohesion and lessening stigma approach took work. And similarly we are moving to an age where people have more breadth of access to others. And can choose to disconnect from us ‘the professionals’ And so we need to change our approach. Baseline of research facts – needed for mental health digital development.Cyber bullying – 7% of young people bullied online – observing offline & online bullying behaviour - Anke
  • Baseline of research facts – needed for mental health digital development.Cyber bullying – 7% of young people bullied online – observing offline & online bullying behaviour - AnkePredatory & Harmful behavioursEngagement & disengagementGovernancePromoting positive practice onlineOnce its out there… Theseare our concerns as individual users whether mental health problem related or not. They may be more pronounced in this area or it may be a case of service led – duty of care fears. Research into offline and online behaviours the key. However there is a big discussion about the social media simply being the tool of people. However the speed and breadth of access and disconnect between mental health professionals understanding is actually where the danger lies.
  • This is a workers perspectiveBut what I also want to remind you is that no one is just a worker. We’re all individuals – with our own experience of mental health. Of learning. Of sharing.And in this you have an opportunity to develop – from your perspective your community of practice.You have the tools now. – you can keep a learning journalYou can develop your practiceBut you must also be engaged in plugging this in to services – to be having conversations with health care professionals – to service providers. To begin to be the bridge between what is happening outside of services – conversations in health to the understanding that is being developed in health. Its an exciting time – you have the opportunity to influence positive change in a way that can be very visible. (and appropriate – responsible)Its also a time when we must show responsibility – to non mental health – opportunity to break down issues around stigma.
  • This new wheel uses some spokes that already existBroadband speed – political decision making (Europe)Digital Divide – how is your nation addressing this?Hard ware & accessibility – research, figures & a plan
  • Communities of practice vs the status quo

    1. 1. UK Mental Health 2.0 2011<br />Communities of Practice Vs The Status Quo<br />
    2. 2. My experience is the context<br />2004 - 2005<br />Grass roots development<br />Managing mental health services<br />Messing about with ‘social media’ stuff<br />Lack of local knowledge & info for mental health service users<br />Positioned myself <br />
    3. 3. Community of Practice <br />A community of practice (CoP) is a group of people who share an interest, a craft, and/or a profession. The group can evolve naturally because of the members' common interest in a particular domain or area, or it can be created specifically with the goal of gaining knowledge related to their field. It is through the process of sharing information and experiences with the group that the members learn from each other, and have an opportunity to develop themselves personally and professionally (Lave & Wenger 1991). <br />
    4. 4.
    5. 5. UK Health & Social Care<br />
    6. 6. People are talking… <br />
    7. 7. From within:<br />www.thebigwhitewall.com - localised health care providing National Resource – log in, sharing stories. <br />
    8. 8. From within (specialist):<br />www.puzzledout.com - young people influencing offline world mental health service design online.<br />
    9. 9. The space between: <br />www.patientopinion.co.uk - Department of Health funded independent start up.<br />Initiating feedback and dialogue between service users & services<br />
    10. 10. On the outside looking in (& out):<br />www.mindapples.org - An Independent portfolio funded non profit social enterprise – backers from public health to retailers<br />
    11. 11. Data, Data, Data:<br />Quantified Self came out of work by @accarmichael who is behind www.curetogether.com - this is the taking of data for own purpose. Mood tracking etc<br />@carlosrizo runs this meet up local to you. <br />
    12. 12. But this is all service related isn’t it?<br />It didn’t start like that.<br />This is all about Power and Control. <br />But then, it always is.<br />
    13. 13. What do service users want? <br />
    14. 14. High Royds – Leeds <br />Also known as the West Riding Pauper Lunatic Asylum<br />
    15. 15. The risks are also mental health opportunities <br />
    16. 16. Triage approach to cultural change<br />
    17. 17. Who else do you need to be talking too? <br />
    18. 18. How do you legislate for sustainability in a fast changing economic world? <br />Observing independent models, journalistic models<br />Understanding ‘failure’<br />Getting the principles – and not getting tied to the platform or Political understanding<br />Economic drivers<br />How it relates to what you will be doing – what is your role? Where do you sit in this picture? <br />
    19. 19. Some useful stuff: <br />http://mh20.net - TobitEmmens (@tobite) Centre for innovation & technology for mental health and wellbeing<br />Mapping online risks: AnkeGorzig (google)<br />http://www.wellbeinghq.com/ - EmachiEneje (@wellbeinghq) The user experience of Internet Supported Therapeutic Interventions – Towards an interdisciplinary framework<br />
    20. 20. Thankyou!<br />Katie Brown – Technical Wellbeing (facebook) <br />www.theprocessivegenesis@wordpress.com<br />kate.brown@leedsmind.org.uk<br />necessarykate@gmail.com<br />@re_connection (twitter)<br />@dysconnection (skype)<br />

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